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Forum: Palliative Therapy/Hospice Care — A unique forum ONLY for those trying to live well and/or trying to die well.

Posted on: Jul 1, 2015 04:42PM

bhd1 wrote:

I just joined the palliative care.no more treatments for me. Quality of life.is important to me.I only hope I did not wait too long. My last chemo left me with a lot of problems. And I recently had radiation which

. Has caused sores all over my upper arms and the bad wound in my armpit. I hope it goes away but not sure it will . ready to live the rest of my life without treatments. Hello ladies. Hope you are ok. Looking forward to talking w you. I hope I am in the right place. If I am not can someone direct me.pleas

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Jul 1, 2015 07:50PM LindaE54 wrote:

Hello Barb - I'm so sorry to hear that.  Hope the sores and the wound will go away - I would think they will.  I agree with you that QOL is so important.  That's a major decision, one that I hope will be able to make in due course.  It must have been a hard decision to make.  Other than the sores and wound, how are you feeling?  Do you have plans for this summer?

Sending you big virtual hugs - Linda

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/27/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/16/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/4/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)
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Jul 1, 2015 09:59PM bhd1 wrote:

don't be sorry . I am at peace w my decision. I only hope I didn't wait too long

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Jul 1, 2015 10:15PM LindaE54 wrote:

I'm glad to hear that Barb.  Wishing a good QOL.  Keep in touch.

Linda

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/27/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/16/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/4/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)
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Jul 1, 2015 10:27PM bhd1 wrote:

thx linda

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Jul 2, 2015 11:54AM LindaE54 wrote:


Barb - Just bumping because you're not getting responses.  Perhaps, posting in Stage 4?

Linda

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/27/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/16/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/4/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)
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Jul 2, 2015 12:05PM MusicLover wrote:

Barb, I wish I had some advice for you but I wanted to let you know that my thoughts and prayers are with you and I do hope that the wounds heal.  I was wondering what your medical team has suggested for you?  Are they on board with your decision?  Have you thought about going to another center for their opinion?  I wish that I had more ideas.

As per PET scan, 3 or 4 nodules in the right breast, 2 of which were actually in the middle of my chest, the other 2 were side by side in the breast. Also DCIS in the left breast. Dx 9/23/2013, IDC, Right, 2cm, Stage IV, Grade 2, 1/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 10/9/2013 Femara (letrozole)
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Jul 2, 2015 01:13PM steelrose wrote:

Hi Barb…

Just here to offer my support. Quality of life is so important, and this is a very personal choice. I hope that someone can help you with those wounds. Comfort and peace this summer!

Rose.

Dx 1/22/2010, IDC, Stage IV, mets, ER+/PR+, HER2-
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Jul 4, 2015 02:52PM Zillsnot4me wrote:

I understand QOL. I'm glad you are at peace.

Did your RO give you silva dyne? It's a mousse like cream that is for burns. You'll be amazed how quickly it heals. Ask for it if you haven't been given any. It's awesome stuff.

7/22/2020 A/A combo, 11 cm liver spots! piqray, zometa, faslodex 6/11/2020 rads to liver 12/2020 3 cm liver 10/2019, Liver spots 1/ 2016, Xgeva 9/2015, Bones 4/2015, Lungs 4/2013 Dx 4/2013, 4cm, mets, ER+/PR+, HER2- Surgery 4/29/2013 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 5/23/2013 AC Hormonal Therapy 10/2/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/6/2013 Breast, Lymph nodes Surgery 9/25/2015 Prophylactic ovary removal Hormonal Therapy 1/7/2016 Femara (letrozole) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Hormonal Therapy 2/4/2016 Arimidex (anastrozole) Hormonal Therapy 4/24/2017 Faslodex (fulvestrant) Chemotherapy 11/16/2017 Xeloda (capecitabine) Dx 10/2019, metastasized to liver, ER+/PR+, HER2- Radiation Therapy Liver
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Jul 4, 2015 03:43PM leggo wrote:

Hi Barb. I know how hard it is to say "no" to treatment. Been there. It took a while for me to be at peace with the decision, but so glad I did. If it's any consolation, I started feeling better than when I was in active treatment. We all have our line in the sand. I wish you comfort and peace. Much love and a big hug to you.

"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
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Jul 4, 2015 04:23PM exbrnxgrl wrote:

Barb, I just saw this and wanted to wish you well. If you are at peace, then that's the right decision for you. Take care.
Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Jul 4, 2015 09:26PM 208sandy wrote:

Barb - just wanted to say hi and hope you're feeling at peace. I second the Silvadene (sp?) suggestion - stuff works like a charm. Here's to you getting some QOL. Hugs, S.

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Jul 5, 2015 10:21PM Maureen813 wrote:

Barb

I just saw this thread. I understand that point where you are sick of being sick. Kudos for having the strength to make that decision. I hope you have your families support and all the resources at your fingertip. Please let me know how you're doing. Hugs, prayers and best wishes. You are such a wonderful special lady who support so many on the SIV threads.

Love

Maureen


I am strong because I know my weaknesses, I am wise because I've been foolish, and I can laugh because I've known sadness Dx 8/13/2010, IDC, 5cm, Stage IIIA, Grade 3, 4/4 nodes, ER+/PR+, HER2- Dx 11/21/2013, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 2/19/2014 Gemzar (gemcitabine), Taxol (paclitaxel) Chemotherapy 10/31/2014 Xeloda (capecitabine) Chemotherapy 4/1/2015 Navelbine (vinorelbine) Chemotherapy AC + T (Taxol)
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Jul 6, 2015 01:48PM dlb823 wrote:

Barb, I'm glad to know you're at peace with your decision to stop tx. Thank you for sharing your thoughts on something we all think about. I wish you many beautiful days. You will be in my thoughts & prayers. Deanna

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Jul 8, 2015 06:43PM diana50 wrote:

barb

Know I am thinking about you and family. pray you can start to feel better as you cease treatment. I wish you comfort and feel good days ahead.

️Hugs

Diana

Not today cancer. Nope. Dx 2/26/2002, IDC, 1cm, Stage IIIC, Grade 3, 10/12 nodes, ER+/PR+, HER2- Surgery 3/3/2002 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 4/2/2002 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/5/2002 Hormonal Therapy 8/9/2002 Arimidex (anastrozole) Dx 8/30/2012, IDC, 1cm, Stage IV, mets, ER+/PR+, HER2- Radiation Therapy 10/1/2012 Bone Chemotherapy 7/7/2014 Taxol (paclitaxel) Chemotherapy 5/5/2015 Ixempra (ixabepilone) Chemotherapy 10/4/2015 Gemzar (gemcitabine) Hormonal Therapy 4/12/2016 Faslodex (fulvestrant)
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Jul 10, 2015 09:25AM LindaE54 wrote:

Barb - thinking of you and hoping you are feeling better and comfortable. - Linda

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/27/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/16/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/4/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)
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Jul 10, 2015 11:31PM Rosevalley wrote:

Hugs Barb! May hospice bring you symptom relief and comfort. Are you close to your family? I hope they can be there for you. Wishing you sunny days with no pain and love. I am following right behind as things are not going well for me in cancerland lots of symptoms and miserable options. More and more I feel like stopping is the kinder gentle saner option.

Double mastectomy 07/ chemo ACT, Radiation/ 07 Arimidex, 08 Aromasin, 2012 Faslodex, 2014 Afinitor / mets spine, bones 6/2015 mets to omentum, malignant ascites, lung, liver/ 2016 Herceptin, Doxil, Faslodex. Ibrance, Taxol, Abraxane, Navelbine Dx 1/2/2007, ILC, 6cm+, Stage IIIA, Grade 1, 1/17 nodes, ER+/PR+, HER2- Dx 4/2/2012, ILC, 6cm+, Stage IV, Grade 1, 1/17 nodes, mets, ER+/PR+, HER2- Dx 6/1/2015, ILC, 6cm+, Stage IV, Grade 2, 1/17 nodes, ER+/PR+, HER2+ (FISH)
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Jul 11, 2015 11:36AM CalicoCat wrote:

Hi, Barb, thank you for opening this thread. I'm not there yet, but think palliative/hospice is not far in my future. I'm preparing a room in my house where I, and hopefully, visitors, can be comfortable.

xoxoxoooooo

Calico

Dx 11/30/2006, IDC, 2cm, Stage IIIB, Grade 2, 4/9 nodes, ER+/PR+, HER2- Surgery 1/4/2007 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Chemotherapy 1/21/2007 AC + T (Taxol) Radiation Therapy 5/15/2007 Breast, Lymph nodes Hormonal Therapy 7/25/2007 Arimidex (anastrozole) Hormonal Therapy 2/18/2010 Faslodex (fulvestrant) Dx 6/22/2010, IDC, Stage IV, Grade 3, ER+/PR+, HER2- Hormonal Therapy 1/14/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 12/11/2012 Aromasin (exemestane) Targeted Therapy 12/11/2012 Afinitor (everolimus) Chemotherapy 9/19/2013 Xeloda (capecitabine) Chemotherapy 4/21/2014 Navelbine (vinorelbine) Chemotherapy 7/14/2014 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 1/12/2015 Doxil (doxorubicin) Chemotherapy 3/23/2015 Halaven (eribulin) Radiation Therapy 6/25/2015 External: Brain Chemotherapy Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jul 11, 2015 11:42AM Maureen813 wrote:

Prayers Barb. I hope you are enjoying every second off the toxic garbage.

I am strong because I know my weaknesses, I am wise because I've been foolish, and I can laugh because I've known sadness Dx 8/13/2010, IDC, 5cm, Stage IIIA, Grade 3, 4/4 nodes, ER+/PR+, HER2- Dx 11/21/2013, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 2/19/2014 Gemzar (gemcitabine), Taxol (paclitaxel) Chemotherapy 10/31/2014 Xeloda (capecitabine) Chemotherapy 4/1/2015 Navelbine (vinorelbine) Chemotherapy AC + T (Taxol)
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Jul 11, 2015 12:10PM - edited Jul 11, 2015 12:10PM by sas-schatzi

Barb hope everything improves from all the treatments, that you can experiences some comfort. This link is to a wound care that I worked on(old nurse). They're is a description on how to use silvadine. Cleans up wounds nicely.

https://community.breastcancer.org/forum/44/topic/754935?page=1


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Jul 13, 2015 08:27AM DivineMrsM wrote:

bhd1, posting to let you know I am thinking of you and will keep you in my prayers. I hope the issues from radiation clear up for you so you are not in so much discomfort. It's hard to know what to say in this situation, but you have my support. You say you are at peace with the matter, and that's what counts.
found lump 12/22/10~er+/pr+/her2- stage iv bone mets------------- Chemo~lumpectomy~radiation~arimidex------------- March2019/Ibrance-Aromasin---------- Sept2019/Verzenio-Aromasin
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Jul 13, 2015 09:48AM NineTwelve wrote:

Thoughts and prayers going out to you, Barb. Hoping the wounds are healing now and giving you less trouble.

Right thoughts, right words, right action! - Franz Ferdinand Dx 9/12/2014, IDC, 4cm, Stage IV, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 9/15/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 9/30/2014 Dx 7/2016, IDC, Stage IV, metastasized to bone/lungs Hormonal Therapy 8/15/2016 Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy 8/15/2016 Ibrance (palbociclib)
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Jul 13, 2015 11:12AM Rosevalley wrote:

(((Hugs))) Barb, thinking of you this morning and wishing you a pain free day.

Double mastectomy 07/ chemo ACT, Radiation/ 07 Arimidex, 08 Aromasin, 2012 Faslodex, 2014 Afinitor / mets spine, bones 6/2015 mets to omentum, malignant ascites, lung, liver/ 2016 Herceptin, Doxil, Faslodex. Ibrance, Taxol, Abraxane, Navelbine Dx 1/2/2007, ILC, 6cm+, Stage IIIA, Grade 1, 1/17 nodes, ER+/PR+, HER2- Dx 4/2/2012, ILC, 6cm+, Stage IV, Grade 1, 1/17 nodes, mets, ER+/PR+, HER2- Dx 6/1/2015, ILC, 6cm+, Stage IV, Grade 2, 1/17 nodes, ER+/PR+, HER2+ (FISH)
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Jul 13, 2015 12:19PM Leah_S wrote:

Barb, I hope your wounds are healing and you're feeling better now. I know your decision was difficult but you have to do what's right for you.

Sending love to you.

Leah

Dx 11/3/2008, IDC, 1cm, Stage IV, Grade 3, 6/17 nodes, ER+/PR+, HER2-
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Jul 31, 2015 05:27PM TriciaK wrote:

Barb, I just had my close friend make the same decision a few months ago so having had many frank talks with her regarding this I can well understand your decision and the fact you're at peace with it as was she. I really hope your wound heals quickly and you can get to enjoy some quality time with your family. My friend always said it took more courage to know when to stop than to battle on regardless and I send you my very best wishes.

Tricia Dx 7/4/2005, IDC: Cribriform, Right, 2cm, Stage IIA, Grade 2, 3/9 nodes, ER+/PR+, HER2+ (FISH)
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Jul 31, 2015 09:12PM LindaE54 wrote:

Tricia - I hate to be the bearer of sad news, but Barb passed away on 15 July.

Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/18/2013 External: Bone Hormonal Therapy 12/29/2013 Femara (letrozole) Hormonal Therapy 5/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/28/2014 External: Bone Radiation Therapy 8/27/2014 External: Bone Hormonal Therapy 9/24/2014 Femara (letrozole) Radiation Therapy 12/13/2014 External: Bone Hormonal Therapy 2/16/2017 Faslodex (fulvestrant) Chemotherapy 5/14/2017 Taxol (paclitaxel) Radiation Therapy 6/4/2017 External: Bone Chemotherapy 10/2/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF Chemotherapy 12/27/2017 Halaven (eribulin)

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