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Sep 11, 2019 09:32AM
I know by your posts in recent days that you are in a rough place right now. I think on this site we so often focus on how the patient is doing, that we forget to check up on how the caregiver is doing.
I have been both a patient and a caregiver. My sister and I cared for our bedridden mother for eight months before she died. I think in so many ways it's tougher to be the one to care for someone you love so much. I tell people it was the most horrible and the most wonderful thing I've ever had to do.
I've been where you are now. The one piece of advice I would give you is to take some time away, just for you. Pay attention to you, and how you're doing. You matter, too.
I can't do much for you, Mike, except to send love and support for what you're doing. As hard as it is, somewhere inside she knows what you're doing for her. And even more importantly, you know. When that time comes, and you are alone, that knowledge will comfort and sustain you.
Be well, Mike.
8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2-
8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2-
9/28/2016 AC + T (Taxol)
4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
8/5/2017 Xeloda (capecitabine)