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Jun 13, 2012 11:44AM
, edited Jun 13, 2012 11:46AM
IF we had one master control over the medical system that constantly analyzed each of our situations and what things about them are the same and what things about them are different and how to offer the best answers for each one of us.... IF we did that...
Instead of putting surgeons and radiologists and oncologists in charge of deciding what to offer us, the master control would have had the intelligence to find a way to put specialists that are in charge of metabolism and endocrinology first in line to talk to us and test us and make sense out of our differences and similarities.
As well-intended as it may be, and as unintentional as it may be, making generalized statements without indicating one's general age range really keeps these issues more confused. Someone who is still in their 40's is going to have different body capabilities for the most part than someone who is in their 30's or their 50's or their 60's, hormonally speaking and just generally physiologically speaking.
With chemotherapy, one's level of such hormones as testosterone don't just drop a little, they plummet, and replacement is less with aging. And testosterone is what helps to build and maintain muscle tissue. But doctors who don't have expertise in metabolism and endocrinology and with expertise in other methods of treatment are not very likely to provide us with a thorough analysis of our metabolic and endocrine changes due to the very treatments they offer.
We truly, truly need to change the power structure of the medical system to be more responsive to our metabolic and endocrinologic problems. It would make more sense if we were to have someone like an endocrinologist trained not just in diabetes or thyroid problems, but specifically in cancer management as well, who would have the authority to see us prior to treatment of any kind, to see us as we are prior to treatment, to explain to us what our individual characteristics indicate and how they change with treatment, and to provide the leadership and guidance for the other specialists to be able to offer genuine answers to the kinds of questions you are all asking.
In short, we NEED that kind of specialist to be authorized to be a full member of our tumor boards, with full authority to speak to before-and-after issues about our medical care.
12/3/2001, IDC, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+
01/03/2002 Lumpectomy in one or both breasts: Lumpectomy in my left breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection)
, Lymph node removal (also called dissection) on my left side
03/12/2002 Adriamycin (chemical name: doxorubicin), Cytoxan (chemical name: cyclophosphamide), Fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil)