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Topic: Staring at my Tamoxifen Rx

Forum: Hormonal Therapy - Before, During and After — Risks and benefits, side effects, and costs of anti-estrogen medications.

Posted on: May 28, 2012 05:55AM

Sandyland wrote:

Hi Everyone,

I just finished with my active cancer treatments...Mastectomy, ACT Chemo, and 36 Radiation treatments.  Now, I find myself starting at (but not filling) my Tamoxifen Rx.

I'm tired, exhausted really.  I have treatment fatigue and I cannot scrounge up ANY motivation to fill this Rx and begin YET ANOTHER cancer treatment and face all the potential side effects that might follow.

I've managed to keep a pretty sunny outlook through all of this (until lately) and now that the hard stuff is over, I can't bring myself to do the easiest thing of all....take one pill a day. Is anyone else facing this??  HELP!!

SAN :-\

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Nov 27, 2012 03:21AM roadwarrior28 wrote:

Thanks Outdamnedspot - been taking Tamox for 3 days and don't feel any different yet. I just have that feeling that someone is pressing on my head right when I take it but it quickly goes away.

Dx 4/4/2012, DCIS, 6cm+, Stage 0, Grade 3, 1/2 nodes, ER+/PR-, HER2- Dx 4/4/2012, IDC, 2cm, Stage II, Grade 2, 1/2 nodes, ER+/PR-, HER2- Hormonal Therapy 10/25/2012 Surgery 05/13/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 05/29/2012 Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 07/05/2012 Reconstruction of my left breast Surgery 01/10/2013 Reconstruction of my left breast: Tissue expander placement Surgery 06/17/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/19/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 27, 2012 06:20AM StacyeD wrote:

Have been on tamoxifen for 3 months...and my lymph nodes in my neck are staying swollen. I feel like I have a cold all the time. My voice gets froggy and my taste buds and smell is still no where in sight. (which sucks) My 'brand' of TAM was just changed to combat these weird SEs (get vertigo, too...woohoo!) and now I am having migraines...even more sleepless (if that was even possible)...and I've been feeling very tubby. Weighed myself after Thanksgiving and I weighed a whopping 3 pounds more. I didn't eat THAT much. After reading all the comments, clearly I need to watch my food more closely. I lost about 20 lbs that I need to stay off. Can't seem to get back to my aerobics...so last night I tried Yoga. Rather comical to say the least... I am in Germany so the care is very different than the good ol USofA. Would love to hear if someone else has the cold issue...& what to do with lymph nodes. Grateful the blues haven't found me.

Dx 3/31/2012, IDC, 2cm, Stage IIB, Grade 3, 8/12 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 08/25/2012 Surgery 04/16/2012 Mastectomy of one or both breasts: Mastectomy of my left breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side Chemotherapy 05/24/2012 Ellence (chemical name: epirubicin), Cytoxan (chemical name: cyclophosphamide), Fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil) , Taxotere (chemical name: docetaxel)
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Nov 27, 2012 12:57PM ang7894 wrote:

StacyeD--  I here you I lost 20 lbs during chemo/radiation and was feeling great for losing it and I was not even trying at that time . But since I started tamox Well I gained ALL 20lbs back boy am I Pissed OFF...  Have to get on my treadmill  Cry

All chemo done!! last one was April 30th 2012 radiation Done!! Last one was June 22nd 2012 tamox started on Sept 29th 2012 for 5 years!!! Herceptin until March 12th 2013 All Done!!! ER+ 68% PR+ 96% HER2NEU + 3 Angie Dx 12/1/2011, IDC, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Hormonal Therapy 09/28/2012 Targeted Therapy 03/18/2012 Herceptin (chemical name: trastuzumab) Surgery 12/11/2011 Lumpectomy in one or both breasts: Lumpectomy in my left breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side Radiation Therapy 05/07/2012 Chemotherapy 01/22/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 27, 2012 04:18PM FLSUNMOM wrote:

Road warrior - thank you for sharing information on calcium. My Onco told me about D3 but didn't say a word about calcium! You were also very helpful on the Chemo July tread, thank you again.

I started tamoxifen on Thanksgiving and so far I have nothing to report.

Peaceful night all.

Dx 4/10/2012, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 11/22/2012 Surgery 05/20/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast Surgery 04/05/2012 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 05/20/2012 Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 11/05/2012 Reconstruction of my left breast; Reconstruction of my right breast Surgery 12/17/2012 Reconstruction of my left breast: Nipple reconstruction; Reconstruction of my right breast: Nipple reconstruction Chemotherapy 07/11/2012 Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel)
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Nov 27, 2012 04:28PM , edited Nov 27, 2012 04:29PM by tina_jason

I haven't been on these boards for about a month but here is where I am at.  I finished radiation 2 weeks ago and started tamoxifen a few days later.  As far as SE's go I have been getting headaches on and off but not constant.  Its hard to tell about anything else because I figure nothing has been normal about my body for about a year so I will have to wait a few more weeks.  Emotionally finishing treatments had me a mess.  I wasn't sure who I was anymore.  I was just the "cancer girl" for so long and now I'm just me again and I'm not even sure who that is.  I am learning to live again and find myself if that makes any sense.  Physically I seem to have a lot of energy and am throwing myself full force back into work and my regular routines at home as well.  The thought of living without treatments scares me but also has given me a renewed energy which I enjoy.  I hope to be more regular with these boards because they seem to help me stay balanced emotionally.

Dx 12/27/2011, IDC, 3cm, Stage IIIA, Grade 2, 6/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/10/2012 Surgery 06/25/2012 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 05/28/2012 Lumpectomy in one or both breasts: Lumpectomy in my left breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side Radiation Therapy 09/16/2012 Chemotherapy 01/12/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 28, 2012 05:26AM StacyeD wrote:

Angie...I don't own a treadmill! And worse is that I can't do my Jillian workouts because my implant seems to bounce around like a ping pong whacking all my nerves. And it aches for days & days. I actually made it to level 3 before I found the lump that led to all of this. I guess the weight gain is unavoidable??

Dx 3/31/2012, IDC, 2cm, Stage IIB, Grade 3, 8/12 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 08/25/2012 Surgery 04/16/2012 Mastectomy of one or both breasts: Mastectomy of my left breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side Chemotherapy 05/24/2012 Ellence (chemical name: epirubicin), Cytoxan (chemical name: cyclophosphamide), Fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil) , Taxotere (chemical name: docetaxel)
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Nov 28, 2012 05:46AM Beckers wrote:

Tina-Jason....it makes a lot of sense.....you were able to put what many feel into words. I have tried to explain that I don't know who I will be at the end of all this. It definitely changes you. (hugs)

Diagnosed with bilateral or synchronous breast cancer Dx 3/2012, IDC, 1cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 3/2012, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Hormonal Therapy 10/12/2012
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Nov 28, 2012 06:28AM roadwarrior28 wrote:

StacyeD - I know what you mean! I can't do jumping jacks or running because the TE rubs against my chest wall and moves all around! But don't give up. I started using the Lose It! app on my iPhone to track my calories, found a cheap trainer, am doing circuit workout, etc. Elliptical is always a great and gentle option if you can't run. 

Dx 4/4/2012, DCIS, 6cm+, Stage 0, Grade 3, 1/2 nodes, ER+/PR-, HER2- Dx 4/4/2012, IDC, 2cm, Stage II, Grade 2, 1/2 nodes, ER+/PR-, HER2- Hormonal Therapy 10/25/2012 Surgery 05/13/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 05/29/2012 Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 07/05/2012 Reconstruction of my left breast Surgery 01/10/2013 Reconstruction of my left breast: Tissue expander placement Surgery 06/17/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/19/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 28, 2012 06:35AM StacyeD wrote:

Roadwarrior28-- thanks a million for that tip! I feel so terribly tubby even tho I dropped a pant size. I am convincing myself that if I can get back to my exercise program, I will get the rest of my energy back. Still only working part-time...or 6 hours a day. And I was really grooving with Weight Watchers, too. I guess I just want to me again instantly. Patience has never been one of my strengths.

Dx 3/31/2012, IDC, 2cm, Stage IIB, Grade 3, 8/12 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 08/25/2012 Surgery 04/16/2012 Mastectomy of one or both breasts: Mastectomy of my left breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side Chemotherapy 05/24/2012 Ellence (chemical name: epirubicin), Cytoxan (chemical name: cyclophosphamide), Fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil) , Taxotere (chemical name: docetaxel)
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Nov 28, 2012 06:39AM roadwarrior28 wrote:

StacyeD - I love Weight Watchers! I find the Lose It! app is very similar, but free - it tracks calories instead of points. And it allows me to scan barcodes from foods - if available - instead of searching for them.

Dx 4/4/2012, DCIS, 6cm+, Stage 0, Grade 3, 1/2 nodes, ER+/PR-, HER2- Dx 4/4/2012, IDC, 2cm, Stage II, Grade 2, 1/2 nodes, ER+/PR-, HER2- Hormonal Therapy 10/25/2012 Surgery 05/13/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 05/29/2012 Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 07/05/2012 Reconstruction of my left breast Surgery 01/10/2013 Reconstruction of my left breast: Tissue expander placement Surgery 06/17/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/19/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 29, 2012 06:12PM Sandyland1 wrote:

StacyeD ~ I have vertigo too!  Do you think yours if from the Tamox?

SAN

Dx 8/5/2011, IDC, 5cm, Stage IIB, Grade 3, 0/6 nodes, ER+/PR+, HER2- Hormonal Therapy 05/31/2012 Hormonal Therapy 04/30/2013 Arimidex (chemical name: anastrozole, class: aromatase inhibitor) Hormonal Therapy 08/31/2013 Surgery 08/18/2013 Reconstruction of my left breast: DIEP flap Surgery 03/20/2013 Prophylactic (also called preventive) removal of the ovaries Surgery 09/22/2011 Mastectomy of one or both breasts: Mastectomy of my left breast Surgery 12/12/2013 Reconstruction of my right breast Surgery 04/10/2014 Reconstruction of my left breast: Nipple reconstruction Radiation Therapy 03/14/2012 Chemotherapy 11/03/2011 Adriamycin (chemical name: doxorubicin), Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel)
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Nov 29, 2012 07:17PM Live2Laugh2Love wrote:

I just started tamoxifen just after Thanksgiving. It makes me tired, muscles ache, and lots of hot flahes. Had my 9th herceptin, found out I am BRCA negative.
I have learned a lot from everyone from these sights, thank you so much. I even broke out with the shingles, it is so painful. I would love to make some new friends.

All we have to decide is what to do, with the time that is given to us. * Gandalf the Gray * Dx 4/20/2012, IDC, 1cm, Stage I, Grade 3, 0/6 nodes, ER+/PR+, HER2+ Hormonal Therapy 11/09/2012 Targeted Therapy 07/04/2012 Herceptin (chemical name: trastuzumab) Surgery 05/09/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast Surgery 05/07/2012 Mastectomy of one or both breasts: Mastectomy of my right breast; Reconstruction of my left breast: Tissue expander placement Surgery 02/05/2013 Mastectomy of one or both breasts: Mastectomy of my left breast; Reconstruction of my left breast: Tissue expander placement Surgery 06/07/2012 Mastectomy of one or both breasts: Mastectomy of my right breast Surgery 04/25/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/04/2012 Carboplatin (brand name: Paraplatin), Taxotere (chemical name: docetaxel)
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Nov 30, 2012 02:47AM roadwarrior28 wrote:

For those of you already on Tamox - how long was it before you felt any side effects?

Dx 4/4/2012, DCIS, 6cm+, Stage 0, Grade 3, 1/2 nodes, ER+/PR-, HER2- Dx 4/4/2012, IDC, 2cm, Stage II, Grade 2, 1/2 nodes, ER+/PR-, HER2- Hormonal Therapy 10/25/2012 Surgery 05/13/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 05/29/2012 Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 07/05/2012 Reconstruction of my left breast Surgery 01/10/2013 Reconstruction of my left breast: Tissue expander placement Surgery 06/17/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/19/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 30, 2012 03:12AM GmaFoley wrote:

Hello Ladies,  I bought the bottle and it is on my shelf... ONC and I agree that I need to get my sleep apnea taken care of first, because we want to weed out any current SEs from other stuff... I failed to be able to take any of the AIs - so this is my last resort, I think... I told him I would call him when I actually start... After 2 months, I got my donated apnea machine and then managed to catch my grandson's bug... First night with machine was ok, last night with the bug - chest congestion/asthma - had lots of problems and ripped off the mask so I could take a throat drop and never put it back on..  Why does life after BC have to be so frustrating... Just one treatment, I would like to be smooth sailing...

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Nov 30, 2012 04:54AM iatigger wrote:

I started 10/31 and haven't really had any SE's except missing my period.  That could be just all the stress of everything going on though. Woke up in a sweat a couple nights the first week but not sure that was even caused by the Tamox. I feel fortunate not to have had any of the SE's hit.

Dx 9/17/2012, IDC, 1cm, Stage IB, Grade 2, 0/8 nodes, ER+/PR+, HER2- Hormonal Therapy 10/29/2012 Surgery 10/14/2012 Mastectomy of one or both breasts: Mastectomy of my right breast; Prophylactic (also called preventive) mastectomy of one or both breasts : Prophylactic (also called preventive) mastectomy of my left breast ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement
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Nov 30, 2012 05:29AM roadwarrior28 wrote:

Iatigger - my MO said if periods go away that's actually good, that's what Tamox is supposed to do. She said if mine don't stop I should consider getting some shot that basically shuts down my ovaries. No SEs here either though - not yet at least

Dx 4/4/2012, DCIS, 6cm+, Stage 0, Grade 3, 1/2 nodes, ER+/PR-, HER2- Dx 4/4/2012, IDC, 2cm, Stage II, Grade 2, 1/2 nodes, ER+/PR-, HER2- Hormonal Therapy 10/25/2012 Surgery 05/13/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 05/29/2012 Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 07/05/2012 Reconstruction of my left breast Surgery 01/10/2013 Reconstruction of my left breast: Tissue expander placement Surgery 06/17/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/19/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 30, 2012 05:53AM swim_girl wrote:

My SEs started at about one month and have intensified over the past couple of months. 

That's weird that Tamoxifen is "supposed" to stop your period. My MO said that it was anyone's guess what would happen: I could stay regular, I could have periods but they'd be irregular, or I might stop. She didn't indicate that any result was better than the other--just that everyone's response is different--and she's pretty clear on what are good and bad "signs." 

Dx 4/19/2012, IDC, 1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 08/26/2012 Surgery 05/13/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast Radiation Therapy 06/18/2012
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Nov 30, 2012 06:09AM Cindyl wrote:

Yeah. My mo said it was anyone's guess what would happen on the period front. And that continuing to have a period is good in a way because you are less likely to have build up in the uterus.

Stay calm, have courage and watch for signs. Dx 2/11/2012, IDC, 3cm, Grade 1, 0/7 nodes, ER+/PR+, HER2- Hormonal Therapy 05/22/2012 Surgery 02/29/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Radiation Therapy 04/15/2012
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Nov 30, 2012 06:25AM roadwarrior28 wrote:

My MOs explanation was that if I still have my periods there's too much estrogen in my body and Tamox is not working as it should

Dx 4/4/2012, DCIS, 6cm+, Stage 0, Grade 3, 1/2 nodes, ER+/PR-, HER2- Dx 4/4/2012, IDC, 2cm, Stage II, Grade 2, 1/2 nodes, ER+/PR-, HER2- Hormonal Therapy 10/25/2012 Surgery 05/13/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 05/29/2012 Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 07/05/2012 Reconstruction of my left breast Surgery 01/10/2013 Reconstruction of my left breast: Tissue expander placement Surgery 06/17/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/19/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 30, 2012 06:52AM Michbunny wrote:

roadwarrior, according to my MO, side effects can happen within days of starting tamox or as much as months into treatment.  I think I'm suffering from the latter, as I feel way more crappy now than I did when I started at the end of May Frown.

I did speak to my MO about my concerns (fast heart rate, memory loss) and she gave me the ok to stop taking tamox until I see her next (which was postponed until 12/18).  She wasn't sure if the 2.5 weeks was enough for the medicine to work its way out of my body, but she said it's worth trying and it won't affect my preventative care regarding cancer reoccurence.  So, I'll see how that goes. 

Dx 1/20/2012, DCIS, 1cm, Stage I, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 05/21/2012 Surgery 02/09/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Radiation Therapy 03/27/2012
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Nov 30, 2012 07:56AM momof3boys wrote:

I got my period back in sept after 10 months of chemopause, and then three months of Tamoxifin. It's extremely heavy. They did an endometrial biopsy, which was benign, but my MO was insistent (so were ob Gyn group) that I have a hysterectomy. It's scheduled for Dec 18th. Seems Tamoxifin overstimulates some ovaries....

BMX w TE reconstruction 11/11/11, 4 TC, 3/12, 25 Rads 5/12 Tamoxifin 6/12, Prophalactic hysterectomy 12/18/12, Oncotype 16 Dx 10/14/2011, ILC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Nov 30, 2012 08:12AM roadwarrior28 wrote:

Momof3boys - why the hysterectomy if biopsy is benign?

Dx 4/4/2012, DCIS, 6cm+, Stage 0, Grade 3, 1/2 nodes, ER+/PR-, HER2- Dx 4/4/2012, IDC, 2cm, Stage II, Grade 2, 1/2 nodes, ER+/PR-, HER2- Hormonal Therapy 10/25/2012 Surgery 05/13/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 05/29/2012 Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 07/05/2012 Reconstruction of my left breast Surgery 01/10/2013 Reconstruction of my left breast: Tissue expander placement Surgery 06/17/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/19/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Nov 30, 2012 09:59AM momof3boys wrote:

Road warrior- sometimes Tamoxifin over stimulates the ovaries, that's what they think is happening to mine. I was almost 100% ER +, and they want to reduce the estrogen coursing thru my body. Also, a SE of Tamoxifin is uterine cancer, so they've decided to do a total hysterectomy, as opposed to ovary removal.

BMX w TE reconstruction 11/11/11, 4 TC, 3/12, 25 Rads 5/12 Tamoxifin 6/12, Prophalactic hysterectomy 12/18/12, Oncotype 16 Dx 10/14/2011, ILC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Nov 30, 2012 12:52PM Sandyland1 wrote:

RoadWarrior ~ My understanding is that Tamoxifen is not a hormone blocker, but a hormone receptor modulator.  It blocks estrogen to the breasts, but can act as a synthetic hormone to other reproductive organs, which is why periods can stay regular on the drug.  I, too, have been told that it is good to have periods so that the endometrial lining doesn't get too thick.

As far as SE's go...I had IMMEDIATE weight gain on Tamox.  I gained 10 lbs in 3 weeks.  I have had to begin walking 2 miles 3-4 times a week to control it.  Also, I had some serious sleep disruption, but I am controlling that with melatonin and valerian root.  Other than that, I've only had joint and bone pain.  So far, it's been really easy for me :)

Good luck!

SAN

Dx 8/5/2011, IDC, 5cm, Stage IIB, Grade 3, 0/6 nodes, ER+/PR+, HER2- Hormonal Therapy 05/31/2012 Hormonal Therapy 04/30/2013 Arimidex (chemical name: anastrozole, class: aromatase inhibitor) Hormonal Therapy 08/31/2013 Surgery 08/18/2013 Reconstruction of my left breast: DIEP flap Surgery 03/20/2013 Prophylactic (also called preventive) removal of the ovaries Surgery 09/22/2011 Mastectomy of one or both breasts: Mastectomy of my left breast Surgery 12/12/2013 Reconstruction of my right breast Surgery 04/10/2014 Reconstruction of my left breast: Nipple reconstruction Radiation Therapy 03/14/2012 Chemotherapy 11/03/2011 Adriamycin (chemical name: doxorubicin), Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel)
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Nov 30, 2012 06:05PM , edited Jun 25, 2014 03:59AM by sandpiper1

This Post was deleted by sandpiper1.
'They laugh at me because I am different; I laugh at them because they're all the same' DCIS > than 7cm with extensive comedonecrosis. Dx 4/26/2012, DCIS, 6cm+, Stage 0, Grade 2, 0/1 nodes, ER+/PR+
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Dec 1, 2012 03:51AM AEM47 wrote:

My sleep was effective almost immediately (waking up throughout the night) but the stiffness/achiness started intensifying probably 2 months into taking it...and I lost my waist somewhere over the last few months.  Now I'm to the point of being really annoyed with it since every day I wake up feeling like I had a full blown work out the day before. 

Andrea, Diagnosed 11/6/2011, Stage I, Grade 2&3, 0/1 nodes, DCIS with Microinvasion, LVI, Oncotype Score 24 Dx 11/16/2011, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 07/29/2012 Surgery 01/09/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 01/23/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast Radiation Therapy 05/22/2012 Chemotherapy 02/15/2012 Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel)
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Dec 1, 2012 04:23AM Joanne_53 wrote:

AEM ... Did you mean you lost your waist? If so, I laughed because I did too. Working at trying to get the weight off that tamoxifen helped me find.

Joanne - Onco DX score 12 Dx 12/8/2011, IDC, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 04/08/2012 Surgery 01/10/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Radiation Therapy 04/09/2012
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Dec 1, 2012 04:29AM , edited Dec 1, 2012 04:33AM by roadwarrior28

Thanks everyone. So after talking to my MO and my nurse friend, I understand that Tamox works like a synthetic anti-estrogen hormone and binds to receptors to prevent actual estrogen from binding to them. So in my case, stopped periods will actually signify that the drug is working properly and binding to receptors as it should. i guess in other cases stopped periods are not the goal -just depends on your individual case and genetic make-up.i

Dx 4/4/2012, DCIS, 6cm+, Stage 0, Grade 3, 1/2 nodes, ER+/PR-, HER2- Dx 4/4/2012, IDC, 2cm, Stage II, Grade 2, 1/2 nodes, ER+/PR-, HER2- Hormonal Therapy 10/25/2012 Surgery 05/13/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Surgery 05/29/2012 Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 07/05/2012 Reconstruction of my left breast Surgery 01/10/2013 Reconstruction of my left breast: Tissue expander placement Surgery 06/17/2013 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 07/19/2012 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol
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Dec 2, 2012 03:52AM AEM47 wrote:

Joanne - yes the damn thing just disappeared and was replaced with a tire tube !!!

I am even more disgusted since every day I wake up and feel like I had a major workout the day before - based on that feeling I should be fit and trim!

Andrea, Diagnosed 11/6/2011, Stage I, Grade 2&3, 0/1 nodes, DCIS with Microinvasion, LVI, Oncotype Score 24 Dx 11/16/2011, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 07/29/2012 Surgery 01/09/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Surgery 01/23/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast Radiation Therapy 05/22/2012 Chemotherapy 02/15/2012 Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel)
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Dec 2, 2012 04:17AM Joanne_53 wrote:

AEM47 ... I didn't have chemo but I am finally starting to feel like me ... It took along time. I am at weight watchers working on the weight and walking now too. It was too hot in the summer to walk and between weight and rads, I got extremely winded.
I don't like the tire tube around the middle ....

Joanne - Onco DX score 12 Dx 12/8/2011, IDC, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 04/08/2012 Surgery 01/10/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Radiation Therapy 04/09/2012

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