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Topic: Bottle 'o Tamoxifen

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Nov 26, 2007 03:02PM - edited Nov 15, 2017 01:59PM by Moderators

ashaby wrote:

Dear All, (and Layne are you there?)

Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha

Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More

Dx 4/4/2007, DCIS, 6cm+, Stage 0, Grade 2, 0/0 nodes, ER+/PR-, HER2-
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Sep 9, 2019 11:56AM - edited Sep 9, 2019 12:08PM by Xxxxxxxxxxxxxxx

My MO is one of those who can't think outside the box, she doesn't even let me talk ... "20 mg is the dosis" She don't even let me divide the dose at 10mg twice a day.

She didn't want me starting with a smaller dosis for a few days. I wonder if she has ever wondered why the 20 mg tablets are slotted

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Sep 9, 2019 01:20PM cassiecanada wrote:

Peridot 180- you got lots of replies- woot! I’ll pipe in cos strangely, while your MO was pushing to start asap- mine was law -dee- daw- no rush- start may 1 - no rush- thus my 2 month wait time ( so i could get my anti drug anxiety in control)- Been 3 mos on 20 mg a day- and no side effects yet- Your MO may be pushing cos of your path report ( i will go back and look at that, actually) I am post menopausal ( stage 1 grade 1)
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Sep 9, 2019 03:27PM Elephant wrote:

Cassiecanada: I think that it could depend our path report, my MO had me wait a month after finishing rads before starting on 20mg.

Dx 11/5/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 12/16/2018 Lumpectomy: Left Radiation Therapy 2/19/2019 Whole-breast: Breast Hormonal Therapy 4/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 9, 2019 03:30PM edj3 wrote:

Yeah, path report, MammoPrint (which is what I had) or Oncotype--all sorts of factors. I know one point I used w/ my MO is that if diet/exercise gives a 40% reduction, then why do I need tamoxifen? I'm lean and fit so I've got that going for me. I think that's partly why he's not screeching about me ramping up super slowly and also waiting as long as I am.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 9, 2019 03:44PM DorothyB wrote:

Yndorian1 - my MO wanted me to do 20 mg once a day to start also. He did relent and prescribe the 10 mg pills to be taken 2 pills per day. As much trouble as I had getting him to give me the 10 mg pills, I wasn't about to ask about starting slow. I just did it, against his advice.

Diag. 4/19/2019 ER+ PR+ HER2 neg Lumpectomy 5/29/2019 IDC w/ DICS 2.0 cm Grade 3
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Sep 9, 2019 04:21PM Rah2464 wrote:

Hmm that is interesting. My MO was very strong in her determination for me to start my Tamox no later than four weeks after my BMx. It translated as a sense of urgency for me but who the heck even knows?

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 9, 2019 04:25PM edj3 wrote:

Wonder if it's our ages? Given that you had an mx, I suspect you're younger than I am.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 9, 2019 05:13PM peridot180 wrote:

I'm only 36, so that's probably why my MO wants me to start so early. It's probably pathology, too. I had to wait for surgery, which got cancelled since they couldn't find the remaining tumor, then had to wait for an MRI, then had to wait again for another surgery date. I hated waiting then and just wanted to move on with everything, but my MO wasn't concerned about that and said it was fine. Now that I would like to wait a bit to start the Tamoxifen, she's really pushy about me starting it immediately. I just can't win.

I'm going to start it when I'm good and ready.

Dx at 35. Dx 11/19/2018, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/16/2018 Herceptin (trastuzumab) Chemotherapy 12/17/2018 AC + T (Taxotere) Surgery 6/14/2019 Lumpectomy: Left Radiation Therapy 7/18/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 9, 2019 08:24PM Veeder14 wrote:

I had to request an app't with the MO assigned otherwise it would have been another month or two. Anyways, she was easy going and prescribed the Tamoxifen and I told her I was waiting to start until after my vacation. She was ok with that. So I started 2 months after radiation. I needed the time to recover and get my energy back. I wonder how fast can a tumor form anyways while being off a hormone blocker? In a week or month or what?

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/8/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Sep 10, 2019 05:53AM Rah2464 wrote:

Veeder I was always told that the cancer was slow growing and had likely been there for quite some time. So a few weeks just can't make a difference in my mind.

Edj3 - I was 54 when diagnosed, but not menopausal yet - trying to be ha! Maybe starting the T quickly is just my particular MO's thing. I do think if I had pushed back strongly or had something else serious going on she would have relented. She did offer to give me a two week vaca off the drug when about 8 months in the fatigue was crushing me. I chose not to yet. I am saving that 2 week vaca for when I hit the two year mark. I write on each on of those d@$# bottles what month it is. Just closing out #14. Hate it but at the same time thankful that its working.

Hmmm now that I am thinking about it, I need to coordinate a really great vacation to go along with my T break!

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 10, 2019 08:29AM edj3 wrote:

To be honest, I think the reason my MO hasn't had kittens about my planned approach is he knows I'll bail if I get the physical side effects so many of you have experienced. I'm a runner and I'll be damned if some drug takes that away from me.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 10, 2019 09:04AM - edited Sep 10, 2019 09:05AM by mom2bunky

It was two weeks for me per my MO. I took three weeks to get my head around it, and she can lump it.

She also wouldn't even consider my starting lower than 20mg. Instead of arguing, because why bother (the power here is mine), I decided to try it her way and see what happens. So far so okay. But we'll see.

She has no idea how stubborn I can be. But okay, so far her way is working. I am thinking of breaking up with her though because I didn't care for her pat textbook responses.

Dx at 55. KI-67: 18. Oncotype: 24 Dx 3/26/2019, DCIS/IDC, Right, 2cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 5/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/25/2019 Whole-breast: Breast Hormonal Therapy 8/5/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 10, 2019 11:54AM Xxxxxxxxxxxxxxx wrote:

A few hours after taking my first tamoxifen 20 mg pill I already had nausea, heartburn, ankle pain and a swollen belly like a 7 month pregnant woman...

5 mg/day is all I'm willing to try. If the University of Oxford does not lie, that dose is as effective as 20 mg. I'm thinking of taking sulforaphane tablets, according to some studies it is the same or more effective than tamox. and does not have its adverse effects.

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Sep 10, 2019 03:06PM BlueGirlRedState wrote:

AngielInAmsterdam - There is at least one forum on CBD, CBD/THC you should check out. For me, it does not seem to help. THC tends to make me feel groggy the next day, and I'm thinking CBD also does the same. Both drops to put in beverage, have not tried lotions. I took one product recommended by a friend for sleep ( hers is no cancer related), but did not seem to help me. Several people on the marijuana/THC/CBD mention products they found helpful. I have not tried many. Only CBD legal where I am, have to travel out of state for other stuff.

https://community.breastcancer.org/forum/79/topics/868047?page=1#post_5300868

https://community.breastcancer.org/forum/79/topics/817030?page=2#post_5300612

https://community.breastcancer.org/forum/79

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Sep 10, 2019 05:10PM AngieInAmsterdam wrote:

Thanks BlueGirlRedState.

Bought hemp CBD tea to test. Not really helping with joint/bone/muscle aches and pain, but did help with sleep. Not quite sure it’s doing anything for anxiety and depression. Had appointment with MO yesterday. She doesn’t have any remedies for all the SE’s. Going to take a break from T for 6 weeks, will do bloodwork to see if chemopause has led to menopause in a couple of weeks. Perhaps switch to letrozole as alternative to tamoxifen. Although, have heard AI’s have similar SE’s as well. An endless cycle.

Not feeling hopeful during appointment with MO. She made it seem that only option is tamoxifen or an AI if post menopausal. There are no other solutions. Either I follow anti hormonal therapy or stop and risk recurrence. Of course this did not help with my level of anxiety.

Will just enjoy these next few weeks without any meds or poison for the first time since chemo in December 2018! Already feeling relief just thinking about having respite. At least, temporarily, thisgives me a sense of happiness.

The human spirit is stronger than anything that can happen to it. ~ Carl Jung Dx 8/22/2018, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 9/20/2018 Lumpectomy: Right; Lymph node removal: Sentinel; Reconstruction (right): Latissimus dorsi flap Radiation Therapy 10/24/2018 Whole-breast: Breast Chemotherapy 12/24/2018 AC + T (Taxol)
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Sep 12, 2019 05:36PM BlueGirlRedState wrote:

AngieInAmsterdam - turmeric might help with joint issues and acupuncture might help with stress/anxiety. I add turmeric to meals as well as taking a supplement, and I think it helps. I like the Gaia "joint" formulation, but there are many other kinds and brands out there. Acupuncture has been quite variable with stress/anxiety/sleep loss/joints. Sometimes I find the sessions very helpful, othertimes I do not notice much. I looked into "scalp acupuncture" for joint issues related to cancer treatment. Only one person where I live seemed to know about it and said she had studied it in school, but never practiced it. We tried a few sessions, and it did not seem to help with joints. I can't find the original article I saw which described scalp acupuncture and patients taking cancer drugs, but maybe these links will be helpful. https://www.aimc.edu/event/yamamoto-new-scalp-acupuncture/

https://www.researchgate.net/publication/221915688_Yamamoto_New_Scalp_Acupuncture_YNSA_Development_Principles_Safety_Effectiveness_and_Clinical_Applications/link/0046353a9a1a672ac6000000/download

I have just started to read Anticancer living : transform your life and health with the mix of six by Cohen, Lorenzo, And so far I think it has alot of helpful information on lifestyle to get through/fight/prevent cancer. ".....building social and emotional support; managing stress; improving sleep, exercise and diet; and minimizing exposure to environmental toxins" . They even have a clinical type trial in Texas exploring this. For me, I need to work on the social/emotional support, so I am looking into a "Livestrong" program at the YMCA as well as Qigong. I am pretty motivated for excercise, but probably need to do more variety and with other people rather than the treadmill. Usually I manage stress fairly well, but working with internet providers has just about done me in. I need to reign in the sugar/carbs/alcohol. I probably consume far more than I think I do.

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Sep 12, 2019 05:55PM DorothyB wrote:

Re: tumeric - I've read that this affects the body's ability to use tamoxifen as well. I've started taking it, but I only take it morning and maybe lunch if early enough. I take tamoxifen at least 6 hours later.

I just started LiveStrong this week. I'm hoping that this does help me with the social / mental / emotional aspects in addition to the cardio & strength training.

Diag. 4/19/2019 ER+ PR+ HER2 neg Lumpectomy 5/29/2019 IDC w/ DICS 2.0 cm Grade 3
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Sep 12, 2019 05:55PM - edited Sep 12, 2019 05:56PM by DorothyB

This Post was deleted by DorothyB.
Diag. 4/19/2019 ER+ PR+ HER2 neg Lumpectomy 5/29/2019 IDC w/ DICS 2.0 cm Grade 3
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Sep 12, 2019 07:17PM flashlight wrote:

Hi Everyone, I also tried turmeric because I had read such good things about it. I took it for two weeks after lunch even though it gave me such terrible heart burn and nausea. I had to stop.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/27/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 13, 2019 09:56AM Live_love_laugh wrote:

Hi Ladies not sure if I am posting in the correct place but I have a question

With quiet a few cancers ie. Kidney..thyroid, bladder etc to name a couple..in the early stage they do surgery to remove the tumour and no preventative treatments are pushed or given.

With breast cancer even in early Tamoxifan hormone therpy is advised at times.. how come? A but confused.



But

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Sep 13, 2019 02:23PM trinigirl50 wrote:

live love laugh

they offer adjuvant hormone therapy because breast cancer does not have a "you are cured" date. Even very early stage breast cancers can recur (as many as 30%) and although the chances of that happening with Stage 1 is very slim, it is not impossible. Tamoxifen has been demonstrated to prevent recurrence by 20% according to large studies.

A Dr would be remiss not to recommend the added benefits of such treatment unless the treatment was not beneficial to a patient for other medical reasons.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Sep 19, 2019 09:49AM edj3 wrote:

Combo rant/whine.

My third of three 10K races is this Sunday. That means T day, when I will start this blasted drug, is Monday. Which is four days away.

I really-o truly-o do not want to take this.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 19, 2019 11:00AM mom2bunky wrote:

oh edj, I was there with you. DID NOT WANT TO TAKE IT. But I did. You will to. You're just trying it to see. Good luck!

Dx at 55. KI-67: 18. Oncotype: 24 Dx 3/26/2019, DCIS/IDC, Right, 2cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 5/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/25/2019 Whole-breast: Breast Hormonal Therapy 8/5/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 19, 2019 11:08AM - edited Sep 19, 2019 11:09AM by umakemehappy

edj3: I've been on it 6 months now, and it has been NOTHING for me, no issues!! Just take it Monday if you are worried, tho!

Edit: ok ... I guess it's been 9 months now, not 6. Time is flying! ; )

Dx 6/20/2018, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Surgery 7/20/2018 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 9/5/2018 Taxol (paclitaxel) Targeted Therapy 9/5/2018 Herceptin (trastuzumab) Radiation Therapy 12/3/2018 Whole-breast: Breast Hormonal Therapy 1/5/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 19, 2019 11:22AM edj3 wrote:

Truly, I'm glad you've had no issues.

I, personally, have had issues with a whole slew of drug categories--including anything hormone related. So you bet your bippy I'm not looking forward to this.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 19, 2019 02:16PM - edited Sep 19, 2019 02:55PM by TrmTab

If you can, start slowly. My Rx is for 10mg a day. I started with a half pill, 5, for the first 4 weeks. Have slowing been increasing. I have stabilized at 10 on MWF and 5 the other days for 50 mg over the course of the week. I am okay with this and I had horrible SEs with Arimedex... Since I am so close to the 70mg the MO wants, but am fine at 50mg without SEs...I am more fearful of ramping up the last bit than just staying where I am at. With the current regime I never take a 10mg pill on back to back days...I'm afraid I might tip my hand into SEs if the high dose is more frequent. TT

Dx 9/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 12/21/2015 Lumpectomy: Left Surgery 1/11/2016 Lumpectomy: Left Hormonal Therapy 2/5/2016 Arimidex (anastrozole) Surgery 6/3/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 1/1/2017 Arimidex (anastrozole) Surgery 9/8/2017 Reconstruction (left): Silicone implant Surgery 12/17/2018 Reconstruction (left): Silicone implant Hormonal Therapy 5/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 20, 2019 03:06PM AngieInAmsterdam wrote:

Hi BlueGirlRedState,

Thank you for the information regarding turmeric, acupuncture and Anti-cancer living, by Cohen, Lorenzo. Definitely need to live the anti cancer lifestyle. Though, I’m not doing too well with limiting stress and a little bit too much wine on the weekend. Plus, insomnia seems to only be getting worse. Can’t say that my diet is overly healthy. If I actually have an appetite, it’s usually high fat content.

I don’t know if anyone else is going through low mood/ depression as well. I don’t want to blame it totally on tamoxifen, although, it has certainly worsened because of it. Have been reading up on cancer diagnosis and depression, and for sure this causes extreme stress for some. I guess, I may be one of those people. Have tried CBD tea now for about 10 days or so, but honestly, I don’t think something over the counter is going to help.

Tried hot yoga this week. Was somewhat relaxing, but I know it will take being fully into yoga to gain the benefits. I’m not sure I can stick with it on a regular basis. At least not yet. (Can’t seem to find the motivation). I’ve restarted going back to the gym, especially for body combat class. It’s more like a high cardio work out using fight moves to music. This I enjoy. However, it is very intensive physically, particularly for someone post chemo 3.5 months. But it does seem to help me feel just a little bit stronger after each class. And the dry sauna afterwards is a nice reward for the hard workout.

I would highly recommend the LIVESTRONG program at the Y if it’s available. Exercise not only is helping against depression, it also keeps me in shape and healthy.

Will see in a couple of weeks if I’m back on tamoxifen or some other anti hormonal therapy. Let’s hope for milder side effects.

The human spirit is stronger than anything that can happen to it. ~ Carl Jung Dx 8/22/2018, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 9/20/2018 Lumpectomy: Right; Lymph node removal: Sentinel; Reconstruction (right): Latissimus dorsi flap Radiation Therapy 10/24/2018 Whole-breast: Breast Chemotherapy 12/24/2018 AC + T (Taxol)
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Sep 20, 2019 05:44PM Anx789 wrote:

Hi Angie, I hope everything works out for you. My daughter was home for summer and her presence keeps my mind occupied but now that she’s back to college and I have empty nest, my anxiety starts building up again. I noticed when anxiety hits, depression follows. I keep reminding myself to keep strong.

My current issues are, swollen eye lids, losing weight, insomnia, and anxiety. I am not losing a lot of weight but it bothers me since it was so hard for me lose weight before, now it seems like without trying hard, I am losing weight. I eat a lot of veggies now and stay away from meat especially red meat. I don’t have hot flushes or new pain from Tamoxifen. I have pain before diagnosis that I’m dealing with but no new one. I take Caltrate, it’s a calcium supplement that contains Magnesium and Vit D.

Does anybody had a CT scan after chemo as part of after treatment care? My MO requested one for me to ease my anxiety but I put it on hold because of the risk I’m reading online.

Have great weekend everybody!

Dx 9/25/2018, IDC, Left, 2cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (IHC)
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Sep 22, 2019 09:28PM molliefish wrote:

Hey all, I've been on a half dose of tam for 3.5 months or so and its been really good. My hair has stopped falling out, I've had fewer cramps through the night but there has been some adjustment. I've suddenly started having night sweats again 2-3 times a night and have to get up to pee at the same time. Could be age, could be drugs, who knows? I'm sure this will resolve in time. It's been almost 4 years for me... 5 years since diagnosis. Started tam 10th of January 2016.
Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy: Left Chemotherapy 8/13/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/9/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
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Sep 24, 2019 07:47PM lala1 wrote:

So I just saw my MO yesterday for my annual checkup. I'm coming up 7 years since diagnosis!! Anyway, he asked how I was doing and I said great now that I'm off Tamoxifen! I told him that when I finished my 5 years in Feb of 2018 I still felt like crap for months. I mentioned that I didn't start seeing relief from muscle pain till about Nov and then in Jan (almost a year after stopping) I started to lose weight. I'm now down about 12 pounds this year without changing diet or exercise. He told me that Tamoxifen settles in your fat tissue and that fat really sucks in the Tamoxifen so when you quit taking it, it will take many months for the fat to eventually release the Tamoxifen. He said once it does, the improvement is pretty dramatic and I have to say he's right. Kinda wish he'd told me this a year and a half ago but anyhoo.....So for those of you hoping for a quick dip in SEs once you're done with you T, just sit tight. It will happen. He also said that if you can drop any weight when you quit, it will help the Tamoxifen leave your body even faster. So there you have it....straight from my very smart MO's mouth....for what it's worth.

Happy

PS--I now have him looking into Relizen for my hot flashes. So far he's on the fence. Thinks it looks good but wary of no real studies done yet. We shall see.....

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/12/2012 Mastectomy: Left Hormonal Therapy 1/31/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/25/2013 Reconstruction (left): Silicone implant Surgery 6/24/2014 Reconstruction (left): Nipple reconstruction Surgery 1/19/2015 Prophylactic ovary removal

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