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Oct 7, 2019 09:58PM
ND, how do you feel about this? Do you feel it is pointless to take more tamoxifen? Do you feel it puts you at high risk for other side effects, most of them quite unpleasant? Do you feel secure going without?
I was VERY reluctant to start tamoxifen. It was a huge inner battle. In the end I didn't want to die. I see it this way. There are 4 bullets that we have to shoot this damn cancer. Surgery, radiation, chemo and hormonals. My Oncoscore 11 said there was no benefit to me to take chemo. Hooray, no chemo. Boo, one less bullet to shoot the cancer with. I mean, if you want to kill something you shoot it full of as many holes as you have bullets. I was down to three bullets. That left surgery, radiation and hormonals. So while I was not happy to take tamoxifen, to NOT take it would have removed yet another bullet from my arsenal.
You have done 5 years of the drug and if the benefit to you is low and you have had enough, then you have had enough.
Me? I have completed just over 2 years and I wonder how I will feel when the 5 years are up. Will I feel like Linus with his security blanket yanked away?
I think you need to question your doc more about why he feels you should have had chemo with an Onco score of 18. Some docs at 18 say chemo, others seem to say no chemo. I'd want to get a really clear understanding of my pathology report and what prompts your doc to make that comment. There might be information there that could help guide you about future choices. Good luck with this.
3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2-
4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel
7/5/2017 Whole-breast: Breast
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)