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Feb 7, 2020 12:30AM
It's called female pattern baldness when women’s hair thins as the hair falling out is a result of lowered estrogen (testosterone causes this in men). I was really worried at the start when mine started falling out and then, when I read up about it I chilled a bit as the hair loss would have been on the cards with or without BC and tamoxifen. My mum's hair when she went through menopause thinned a lot. And a number of ladies at work younger than me complain about thinning hair and they are not on any treatment. It gives me a bit of relief as I then, feel like I'm experiencing something to be expected.
I have been using an infrared lamp and massager on the intense leg cramping (the smallest movement can set it off like one of the ladies in this thread). It helps a bit especially if I'm struggling to fall asleep. The twitching is still there but it does ease it. A standing desk at work has also helped. Getting out of bed is slow but you know it's good to be able to get out of bed even if it's slow. And the truth is that most middle aged people, and older, are mostly all in pain. Our bones age like most things. Muscles don't age so, maintaining those can be a big motivator. And it does help with pain management as it can reduce inflammation. But I get it that some days it just builds up on us and we have a rough time psycho-emotionally. I had one of those episodes just recently. I went easy on myself and had to say "no" to a few request for things that I knew would overwhelm me. And I had to ride out the low feelings ... I hope all of us find effective pain management strategies to give us some relief.
I know it's unorthodox but I quite like the hot flashes ... but at the same time mine are mild and at 52 I was due them anyhow. I was quite relieved to get them as I had a sign my estrogen was decreasing and that's what I want in my circumstance. My mum and sister both had a terrible time with hot flashes (my sister used to have up to 50 a day) and they both had intense sweats. Neither of them have had breast cancer. So, again with or without tamoxifen women can have a terrible time with hot flashes and myriad other menopausal symptoms.
With or without tamoxifen treatment we are experiencing a uniquely female phenomenon. I do feel for the chaps with breast cancer getting hot flashes on tamoxifen that must be quite confronting for them. And yet in the same vein my dad used to get hot flashes after his prostate was removed from prostate cancer ... the body ... such a wonderful, curious, complex set of systems ...
And of course young women ... it’s really unfair on them getting menopausal symptoms and I know of ladies who get two menopause(s) once during BC treatment, when they are young and then, again when it’s time for menopause.
Good luck everyone and I hope your choices bring you peace of mind.
6/12/2018, DCIS/IDC, Left, 1cm, Stage IB, Grade 2, 2/2 nodes, ER+/PR+, HER2-
7/1/2018 Lumpectomy: Left
8/13/2018 Whole-breast: Breast, Lymph nodes
9/25/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)