Jun 19, 2021 02:03AM runor wrote:
Momwriter, my onc has offered to switch me to an AI and so far I have declined because at least I know the side effects I deal with and don't want different ones. I don't consider bone density loss a side effect, I consider that a medical problem and at least tamoxifen, despite its many miseries, protects against bone density loss. But I thought I was on tamox for 5 years and now the oncologist is making it sound like he's thinking about 10 years......
Which brings me to Princess Buttercup (best name ever! As you wish!). I have decided not to have a hysterectomy, which is a complete turnaround from early April when I was screaming RIP IT OUT, RIP IT ALL OUT!!!! But it turns out there is nothing wrong with my uterus. Not one, single thing. The gynecologist said there was no medical reason to recommend a hysterectomy. Unlike you, I was not having pain or back ache or on and off bleeding. I had none of that. Just that one time when the flood gates opened and basically a hemorrhage with blood clots occurred. It was like someone opened up the faucet and 16 or so hours later, abruptly shut it off. The bleeding did not drizzle off slowly over a day or two. It stopped. Abruptly and completely. Weirdest damn thing. So the pathology said there was no sign of hyperplasia or anything. I waited for the results of the pap (which took way longer to get back) thinking if there was some weird stuff going on with my cervix cells, then I'd have the whole works taken out. Nope. Cervix normal as ever.
I talked it over with my regular doc who said I should have a hysterectomy when I need one. When I have a solid reason to have one. If the mental worry is more than I want to deal with, the threat that tamoxifen could give me uterine cancer, then he would say go ahead and take it out. But if the worry is not going to overwhelm me he said I should save that surgery for another day. If I get rid of the unterus and have other problems, I'll be mad. If I keep it and get cancer, I'll be mad. But if onc says he wants to keep me on tamox for another 5 years I might have to reconsider this.