Topic: Bottle 'o Tamoxifen

Forum: Hormonal Therapy - Before, During, and After — This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Nov 26, 2007 03:02PM - edited Nov 15, 2017 01:59PM by moderators

Posted on: Nov 26, 2007 03:02PM - edited Nov 15, 2017 01:59PM by moderators

ashaby wrote:

Dear All, (and Layne are you there?)

Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha

Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More

Dx 4/4/2007, DCIS, 6cm+, Stage 0, Grade 2, 0/0 nodes, ER+/PR-, HER2-
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Oct 22, 2021 01:45PM - edited Oct 23, 2021 12:24AM by pamep

This Post was deleted by pamep.
Dx 7/26/2021, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2-, IHC Surgery 8/6/2021 Lumpectomy; Lumpectomy (Right); Lymph node removal Hormonal Therapy 10/15/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 10/27/2021 Whole breast: Breast Hormonal Therapy 3/1/2022 Arimidex (anastrozole) Hormonal Therapy 3/1/2022 Arimidex (anastrozole)
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Oct 23, 2021 06:01PM dani444 wrote:

I have been on tamoxifen for almost 3 years now. I am reading that others have brain fog and it is listed as a side effect. I am just wondering if anyone could explain what you would consider brain fog. I have felt like I have lost my critical thinking skills, can’t multitask at work as well as I used to, and simply forget things. This all started after rads and starting tamoxifen. I know I do not perform as well at work as I did before surgery and all that. I did not have chemo. I am so self conscious about this and also basically angry. I just had a particularly rough shift last night and just needed to vent about this and see if it is affecting anyone else

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- Surgery 10/25/2018 Lymph node removal; Mastectomy; Mastectomy (Right); Reconstruction (Right): Silicone implant Radiation Therapy 12/6/2018 Lymph nodes, Chest wall Surgery 8/20/2020 Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Silicone implant Surgery 4/19/2021 Reconstruction (Left): Fat grafting; Reconstruction (Right): Fat grafting Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 23, 2021 06:27PM beaverntx wrote:

Dani, that sounds very much like brain fog to me! Some days I feel as though my head is stuffed with cotton and thoughts or ideas simply cannot connect. Fortunately, I am retired so I can slow down and proceed carefully on those days, not a luxury you have at work. Sorry I don't have a solution to make it better. I do think sometimes increasing my water intake helps a bit.

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Radiation Therapy 3/11/2018 Whole breast: Breast Surgery 6/15/2018 Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 31, 2021 06:39AM - edited Oct 31, 2021 07:10AM by sampy661

This Post was deleted by sampy661.
Diagnosed 30/3/21 - DCIS 3cm - IDC 3.3cm - 0 nodes - Grade 3 - Stage IIA - ER/PR+ - Lumpectomy - Chemo TC (9/6/21) - More To Come…
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Oct 31, 2021 02:33PM valsc wrote:

I started tamoxifen 6 weeks ago and I haven’t any side effects at all. I am post menopausal and am on Tamoxifen for 2 years due to osteoporosis before being switched to AI.

When does most SE start?

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Oct 31, 2021 10:38PM cassiecanada wrote:

Hey valscac- i am 2 years on tamoxifin and no

side effects yet- us post menopausal

woman have fewer side effects according

to my Oncologist - while some have none at all.

You may or may not have any. On the flip side,

we are at higher risk for embolism and

uterine issues- however, the percentage is

still quite small and doesnt outweigh, in most

cases, the benefits of lowering risk of cancer

recurrence/mets. That being said, i find it interesting that you will seitch the AI after 2

years . i have osteopaenia and didnt want to

take AI - still dont….

(i still havent put my stats in at bottom

and plan on finally doung that soon

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Nov 1, 2021 11:32AM valsc wrote:

my MO has indicated me switching to AI in 2 years. But I like the no SE of Tamoxifen. I was worried about having SE many others have experienced. So relieved. At least now

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Dec 5, 2021 04:04PM lala1 wrote:

My BS and MO both recommended I stay on Tamoxifen for my full 5 years. They said since I was doing pretty well on it, why switch. They both also felt the increased SEs weren't worth the tiny improvement in recurrence risk. You don't HAVE to swap to an AI just because you're menopausal.

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/13/2012 Mastectomy; Mastectomy (Left) Hormonal Therapy 2/1/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/26/2013 Reconstruction (Left): Silicone implant Surgery 6/25/2014 Reconstruction (Left): Nipple reconstruction Surgery 1/20/2015
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Dec 9, 2021 05:17PM runor wrote:

Lala1, I think that is wise and honest counsel. I am in the same situation. No improvement from an AI that I was willing to mess around with potentially worse side effects.  I will be done tamox in August 2022. I hope. Kind of excited. Kind of scared too. I know that's stupid. 

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 7/5/2017 Whole breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 10, 2021 11:40PM mymomsgirl wrote:

My MO said since I'm doing well on Tamoxifen then maybe I would just stay on it. Of course everytime I think maybe I'm going to get to menopause my cycle starts back up. My OB commented that I can't catch a break.

DX @ 47, the same age as my mother. Surgery was Oncoplastic with IORT and my Oncotype score is a 9. Dx 10/29/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/18/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal; Reconstruction (Left); Reconstruction (Right) Radiation Therapy 12/18/2018 Whole breast: Breast Radiation Therapy 1/24/2019 Whole breast: Breast Hormonal Therapy 3/19/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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