Feb 11, 2017 10:30PM Blownaway wrote:
twiggy - thanks for the website.
All Topics → Forum: Hormonal Therapy - Before, During and After → Topic: Bottle 'o Tamoxifen
Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.
Posted on: Nov 26, 2007 12:02PM - edited Nov 15, 2017 10:59AM by Moderators
Dear All, (and Layne are you there?)
Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha
Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More
Posts 26611 - 26640 (27,469 total)
Feb 11, 2017 10:30PM Blownaway wrote:
twiggy - thanks for the website.
Feb 12, 2017 09:43AM Trvler wrote:
Feb 13, 2017 08:29PM farmerlucy wrote:
My hysterectomy is schedule for next weds. It'll be open and not laparoscopic due to several large fibroids. I have to say I'm much more on the fence about this than any of the other surgeries. However I look down the road and I see one biopsy and TVU after another because I've been on Tamoxifen and my body makes these stupid bleeding polyps. So I'm gonna suck it up, follow my doctors orders to the letter and get past this.
Feb 14, 2017 06:24AM Trvler wrote:
Tried taking melatonin in the middle of the night and it seemed to help. I am optimistic.
Feb 14, 2017 10:31AM Sheri64 wrote:
Has anyone gotten back pain on Tamoxifen, I got really back upper back pain so of course your mind goes straight to bone meds. I read somewhere it could be from the tamoxifen so I stopped taking it last Thursday and most of the pain has gone.
Feb 14, 2017 11:25AM Trvler wrote:
So, the back pain is in your actual spine? Not in your muscles? I have horrible muscle cramps in my arms from it.
Feb 14, 2017 12:24PM lala1 wrote:
Sheri64---I noticed you don't have your stats in your tag line. Did you have lumpectomy or mastectomy? I only ask because I complained to my BS about shoulder blade pain and he said he has it as a fairly common complaint. His theory is that surgery causes us to overcompensate while recovering by hunching our shoulders, kind of like a protective thing from the pain. He feels it causes some of us to develop strained muscles up underneath. I went to a really good massage therapist and explained this to him and had him pay special attention to my shoulder blades. He was amazed at how tight I was. He said the muscles there were actually in fist sized knots. I had about 4 or 5 half hour massages from him focusing on that area before it felt normal again. Now I can keep it pretty loose myself by doing stretching exercises that he and my BS showed me. I'll go get a "maintenance massage" every few months just to keep me right. And I'm convinced that any "issue" you have is only exacerbated by Tamoxifen. So if you have slight arthritis, you'll get severe arthritis. You have slight allergies, you'll get severe allergies...and so on.
Feb 14, 2017 05:44PM - edited Feb 15, 2017 11:54AM by mellee
Anyone use Unisom (doxylamine) for insomnia? Unlike Benadryl, it doesn't interfere with tamoxifen.
Feb 15, 2017 10:07AM LovingIsLiving wrote:
I have some shoulder/upper back pain, but it all started in the last few weeks since work started getting crazy. Lots of bending down and reaching for things. It goes away with some rest and warm showers.
Re leg cramps: I've tried pretty much every magnesium supplement at the health food store. None have worked except Chelated Magnesium by Country Life. It's mostly Magnesium Oxide. Glycinate, malate, citrate, none of those worked for me even though they were much more expensive!
Feb 15, 2017 03:09PM Scottiemom11 wrote:
Recently, my HFs have gotten considerably better or less. I now know why. My cycle suddenly came back out of nowhere after 1.5 years. I'm having blood drawn this week for regular check with MO next week. I had graduated to every 6 mos but if my levels are not good we'll see what MO says. This is on top of learning last week that I need more recons. surgery. Ugggh
Feb 15, 2017 06:48PM katcar0001 wrote:
Scottie -- Just wanted to say hello and tell you how sorry I am that you are facing more surgeries. I can empathize as I am faced with some tough decisions as well. Keep us posted how you are doing.
Feb 16, 2017 12:50AM BlueKoala wrote:
I have been having horrendous upper back/ shoulder pain, especially since getting a silicon prosthetic. I'm going to see a physio about it because I have finally accepted that it isn't going to improve on its own.
Feb 16, 2017 05:44AM lala1 wrote:
Not sure where to ask this question....I want to get on the picture forum after a long time of not being on it. I have what I think is the link bookmarked but the user ID and passwords from BC.org don't work. Does anyone know if that forum is still in use?
Feb 16, 2017 06:06AM cliff wrote:
anyone else get exgiva shots once a month with their daily tamoxifen? my shots give me extreme pain for about 6 days after, different parts of the body each time, but hurts bad. last time I took plenty of ibuprofen before the shot and lots of liquids, didn't seem so bad. another shot tomorrow, trying again.
Feb 16, 2017 09:34AM mellee wrote:
Hey lala, I recently signed up for the pictures forum and was able to get on. But due to dealing with other stuff, never posted there. When I went back to sign in with an update on what's been going on with me, I couldn't get in either. I was thinking they might have disabled my account because I wasn't active.
Feb 16, 2017 02:51PM lala1 wrote:
Thanks, mellee....I was wondering the same thing since I haven't logged on in a year or so even thought I have a whole thread with my results there. Guess I need to figure out who's running things and PM them. If anyone knows who I should contact, could you post here?
Feb 16, 2017 03:48PM farmerlucy wrote:
I think it is nowheregirl.
Feb 17, 2017 07:01AM Rubiayat wrote:
Farmerlucy - I hope your hysterectomy goes well next week. My mother had one in her 30s (not BC related) and was recently telling me that she felt a certain relief afterwards and the recovery was easy. It is no simple thing to give up part of yourself. Hopefully, there will be less stress from continued biopsies, etc. after the hysterectomy.
Feb 17, 2017 12:04PM - edited Feb 17, 2017 12:04PM by farmerlucy
Thank you Rubiayat!
Feb 19, 2017 03:37PM jpr143 wrote:
farmerlucy: Just wondering how you decided on the hysterectomy? I see you already got rid of your ovaries. I still have all my lady parts but am considering a hysterectomy due to postmenopausal bleeding and pelvic pain while on Tamoxifen. The GYN onc seems to be leaning towards the hysterectomy while my regular onc wants me to stop the tamoxifen, check my FSH levels again(2 prior tests both in menopausal levels) and then possibly switch me to an AI. How do you make this decision! Ugh! I'm 46 and am more than willing to let them have my uterus to stop this pain. But then should I let them take my ovaries too? I worry that if I switch to an AI, I'll just trade one bad side effect for another.
Any thoughts or good articles appreciated!
Feb 19, 2017 04:03PM farmerlucy wrote:jpr - I did the ovaries to get to menopause, eliminate any ovarian cancer risk, and move onto an AI because Tamoxifen was playing tricks on the uterus. A gynonc told me if the uterus is proven benign there is no reason to remove it. Also I was worried about possible incontinence. Fast forward two years, tried Femara (tough), and Arimidex (no way) and the joint stuff and fatigue was too hard for me. I resorted back to the old standby Tamoxifen, which feels like a picnic for me comparatively. However after just a few months I was having light spotting, which I let go for a few months, then called my gyn who did a biopsy and TVU. Pathology called it benign polyps, but my gyn wanted me to have a hysteroscopy next. I basically decided four biopsies, a d&c, numerous TVU, and a hysterscopy in the past four years were enough. I just think that my body makes these polyps, but since I've been on Tamoxifen, any future presentation will take me down the same rabbit hole. I love my gyn but we see too much of each other!
Feb 19, 2017 05:13PM jpr143 wrote:
Thanks farmerlucy. I started tamoxifen in October 2015 but started having pelvic pain and some discharge after 4 weeks. Since then, I've had numerous cysts, 3 tvus, and a hysterscopy with D&C where they removed a large polyp. The polyp and endometrial sample were all benign which was great. But about 5 weeks after the d & c, my pelvic pain began again and isworse than before and I have spotting several days a week. So, I like you am tired of seeing the GYN and am just ready for some relief!
Feb 19, 2017 05:49PM ARCats wrote:
farmerlucy,I'll be in your pocket and you'll be in my prayers that all goes well for you with the hysterectomy.
irp13, Just like farmerlucy and you I'm also going down the path of pelvic pain and bleeding while on Tamoxifen. I'm sorry you've had so many problems and I guess this is the normal progression for some of us with the SE's. This coming Friday I will get my results from the Endo biopsy as my GYN stated that possibly all I have are polyps and will recommend a D&C, and I'm hoping this will be it for me.
Feb 19, 2017 07:11PM farmerlucy wrote:
Feb 20, 2017 03:18AM - edited Feb 20, 2017 03:22AM by jpr143
Thanks ARCats. I hope everything goes well and this will be the end of it for you too. I have another tvus tomorrow to make sure nothing bad is seen and then will follow up with the gyn to see if her recommendation is still hysterectomy. For the last week, I have also had soreness over my left ovary and down into groin. Anyone have groin pain too
Farmerlucy, hope all goes well with your hysterectomy! My sister had one years ago and said it was the best decision ever!
Feb 20, 2017 12:37PM lala1 wrote:
Just to chime in on the hysterectomy option....I had mine Jan 2015 after 2 years on Tamoxifen with ensuing "changes". I have to say, one of the best decisions I ever made. I had ovaries removed as well. The whole thing was done with 3 tiny incisions then removed vaginally so I have a cuff. By day 10 I felt totally normal which actually worries my gyn because he said I'd feel like I could do anything. And he was right. Day 11 had some strong pain in my side. Day 12 in his office and then over to CT for a scan and yep....I pulled a muscle :) Couple of days of rest and felt great. I walked 30 minutes a day from the first full day home (spent one night in hospital and went home next afternoon), never had the dreaded gas pains, had a BM by day 3 with no problem....etc etc. Now more more bloating and nausea and all the period issues. I do have one caveat....I've been walking around talking about how nice it is not to worry about "those" cancers and I got a call the other day from my gyn. Seems my pap (yep, you still need to have those. You have a vagina, you can get vaginal cancer) was very very slightly abnormal. My HPV test was negative so he's almost certain it was an aberration but now I get to do a repeat in 4 months. Surprisingly, I'm not really that worried. I've had a couple of abnormal results in years past and it was always negative. And now I find that menopause can actually contribute to that so....
Anyway, if you have any questions, I'll be happy to answer. The only real issue I have is the hot flashes and really they are pretty mild and short. I may have 1 during the day and 2-3 at night. I do take iCool per my MO's recommendation and I feel that helps alot. Otherwise, I am feeling better than I did even before BC!
Feb 20, 2017 06:51PM Vickster66 wrote:
I have had pain all over since I got my first herceptin alone after chemo. I hurt all in my back, arms, legs, fingers, feet and mainly in between my shoulder blades. I am on pain meds which wear off when the pain still continues. I am so tired of the oncologists saying the pain is not a side effect. I have finished the herceptin and I am now on tamoxifen and still hurting all over. Any suggestions to help the pain ?
Feb 20, 2017 08:24PM DCISinAZ wrote:
I had a UMX for DCIS and assumed Tamoxifen would be suggested for me. I am 46, no family history of BC. When I went last week for my appointment with my MO, he said no Tamoxifen for me. I am shocked, happy, and scared. I thought Tamoxifen was pretty standard for this but he said no. Any thoughts?