We are 208,432 members in 81 forums discussing 150,009 topics.

Help with Abbreviations

All TopicsForum: Hormonal Therapy - Before, During and After → Topic: Bottle 'o Tamoxifen

Topic: Bottle 'o Tamoxifen

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Nov 26, 2007 03:02PM - edited Nov 15, 2017 01:59PM by Moderators

ashaby wrote:

Dear All, (and Layne are you there?)

Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha

Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More

Dx 4/4/2007, DCIS, 6cm+, Stage 0, Grade 2, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Page 919 of 955 (28,637 results)

Posts 27541 - 27570 (28,637 total)

Log in to post a reply

Jan 11, 2018 07:04PM runor wrote:

You SHOULD take offense if someone calls you a complainer! Who here has any right, any authority, any power to name, categorize, minimize or belittle your experience? No one! Women don't come to this site for a sugar coated, sparkly, FAKE story. They come for YOUR story. And mine. And Michelle's-in Cornland. No one's voice, no one's story has ANY more validity than anyone else's!

Michelle is absolutely correct when she says some women sail right through tamoxifen without a second thought.

You are correct when you say you did pretty well and will have to find something else to blame forgetfulness on.

And I am correct when I say I am growing an impressive beard, have a weird bald spot on the front of my head and produce enough heat, in waves, day and night, to power a greenhouse.

Not a single one of us is a 'complainer' and that word has no room at a table where all are invited and welcomed, equally, to speak their truth.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 11, 2018 07:38PM Bluebird-DE wrote:

Eeesh - I read this thread because I had been told that Tamoxifen might be a next choice though I have been on Aromasin for two weeks now instead. Reading my fav topics this evening and here this is. I cannot ignore this one. Man oh man.

The descriptive word 'complainers' is offensive to me, Michelle in Illinois. Perhaps that was a quick oversight?

This statement would be offensive if written on any thread about any treatment choice. Yes, this is name calling..... and leaves a very bad vibe.

Any person who is having some comfort issues of whatever treatment they are on, fear of using treatment issues, even acceptance issues,with their treatment choice needs to always be welcomed to express those concerns and problems. Without !!! being !!! considered !!! a !!! complainer !!!

And to say the non-complainers are doing fine and out living their lives is questionable. What about those on these threads helping others for hours a day whether they are doing well or pulled through treatment and stuck around to support us. What about those doing research for hours and days. Those who are too sick to eat or walk and who come to the threads to cry and laugh on these threads because this is a sisterhood / brotherhood where their tears and anguish and even appreciation of the 'sick cancer jokes' can be appreciated and where they can be loved regardless of what they bring to the table on any given day.

I try to never look back and argue stuff like this, and I like to let it go once saying what I feel I just have to say. With respect to all, I offer this as my opinion.

Dropping microphone. Bam.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left
Log in to post a reply

Jan 11, 2018 08:07PM Scrafgal wrote:

Ladies

I am still around. I've been battling the flu this week and just didn't feel up to posting gmtoday...until now... Runor and Bluebird, when I read Michelle's post I knew where this conversation was headed...and to be fair, I felt that the term "complainer" marginalizes the legitimacy of real side effects reported by many women here.

Bottom line: to our newcomers, there's no need to worry in advance. I did that, and it turns out that I am doing well on Tamoxifen. You just never know. So enjoy today and deal with tomorrow when it arrives!


Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Mastectomy: Right; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Chemotherapy 3/22/2017 Taxol (paclitaxel) Chemotherapy 6/15/2017 FAC Hormonal Therapy 9/28/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 11, 2018 09:04PM shelabela wrote:

ghionik,

Welcome. I've been on tamoxifen for 3 months and have a few SE but they are manageable. 1 thing to remember every body reacts different. And to keep a long of when you take the pill and how you feel. I've found i have to take it I the AM.

Hang in there

Diagnosed at age 43 Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Targeted Therapy 2/5/2017 Perjeta (pertuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/2/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 11, 2018 09:53PM Ghionik wrote:

Thank you ladies! This will be mynew home on this site. ❤️

As far as the word “complaining” doesn’t scare me one bit. I’m clearly good at it. Lol

Thanks for the welcome! Xo

Dx 10/26/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 11, 2018 10:14PM EastcoastTS wrote:

I've been on Tamox since May with minor drop-off for Exchange surgery. Minor side effects. Hope it's working!

;)

Dx@ 49. Oncotype: 14, BRCA 1/2- Dx 1/4/2017, ILC, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/7/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 12, 2018 03:10PM - edited Jan 12, 2018 03:24PM by Chiarara

Am up to my 2nd week of Tamoxifen- and insomnia has kicked in

Only other side effect is positive- less oily skin- but the insomnia is a doozy, up from 3am this morning. Please don't ask me to make any complicated decisions... Where I live it's currently summer, so I am going to blame any sweating on the weather.

Dx 10/5/2017, LCIS/DCIS/ILC/IDC, Right, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 11/4/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/6/2017 Mastectomy: Right Hormonal Therapy 1/4/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 12, 2018 04:40PM Trvler wrote:

The one and only side effect of any of this is that I no longer get any oil in my hair at all and I could go a month without showering without getting the heebie jeebies.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/24/2015 AC + T (Taxol) Surgery 9/1/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/15/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/1/2016
Log in to post a reply

Jan 12, 2018 06:03PM gigibee wrote:

Trvler that sounds like one side effect I might enjoy.

Dx 8/31/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/30/2017 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Radiation Therapy 12/12/2017 Whole-breast: Breast
Log in to post a reply

Jan 12, 2018 06:34PM Ghionik wrote:

I picked the tamoxifen up at Walgreens a few minutes ago. Starting it tomorrow. Hoping for no bad SE’s.

Dx 10/26/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 12, 2018 06:48PM runor wrote:

I found that some of the side effects tapered off after a while. Like the leg cramps. At first they were very bad (in bed at night), but now it's way better. At first I was quite constipated but that got better too. So there is hope on the horizon. Keep notes. It will help you notice when effects fade away or when new ones come up. Over time this will help you develop an overall picture of how you are doing on the drug. So give it a little time.....

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 12, 2018 11:31PM molliefish wrote:

this week marks two years complete. I still have the occasional hot flash but was 2 years into menopause when I started tam. I have a camera guided biopsy of the uterus on March 7. Hoping for and expecting the best. I have no other side effects other than the thickened lining and feeling of fullness. My hair is thin but I blame chemo. I'm happy to have it so I'll not complain. My skin is ultra dry, my eyes too. I suspect all of these taper my new normal. I am not uncomfortable or unhappy. I am not angry or railing against what happened. I just am. Happy Living Loving Just be. Feel the world around you. Appreciate the moments, leave the anger behind. Be gentle not abrupt, just be you.
Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy: Left Chemotherapy 8/14/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
Log in to post a reply

Jan 13, 2018 11:24AM Trvler wrote:

The leg cramps and constipation were the easiest things to fix for me. Magnesium for constipation and the second you feel a leg cramp, turn your toes towards your body and it stops them dead. I am sorry if I am being annoying to keep posting these tips but I do it in case someone hasn't read them and it can help. Hi Mollie!

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/24/2015 AC + T (Taxol) Surgery 9/1/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/15/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/1/2016
Log in to post a reply

Jan 13, 2018 11:39AM Ghionik wrote:

Pill number one is down the hatch. Thanks for all the tips you have for SE’s. That’s funny how turning toes toward your body gets rid of leg cramps. 😄

Whoever suggested to get a journal and track SE’s was a great tip too. I’m getting one today and will leave it by where I have the pills. My MO warned to watch for the rare signs of blood clots can form in legs. Good Lord. I hope that’s a way different feeling than leg cramping for pain.

I hope everyone has a great weekend and thanks for all the tips and advice. Xox

Dx 10/26/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 13, 2018 12:27PM Scrafgal wrote:


Ghionik, sound good. My only issues were the first week before my MO told me how dehydrating Tamoxifen can be--that is when I felt dizziness and perhaps some constipation. I already was drinking 80 ounces of water per day...I had to increase that to 96-100 ounces per day....and drank at least 16-20 ounces BEFORE my morning Tamoxifen.  After week 1, neither of those has been an issue. I have been taking it since late September last year.


Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Mastectomy: Right; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Chemotherapy 3/22/2017 Taxol (paclitaxel) Chemotherapy 6/15/2017 FAC Hormonal Therapy 9/28/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 13, 2018 02:33PM runor wrote:

I love this advice to watch out for blood clots. Never having met a blood clot in real life, I'm not sure I'd recognize one if it happened. Early on I had a weird and incredibly painful bruise come up on my wrist. Didn't hit my wrist on anything. Just all of a sudden it started hurting, an angry bruise appeared next day on the inside of my wrist and next day had leaked through to back side of wrist. Like my arm had been crushed in a vice. So I'm looking at this and thinking, is this a blood clot? I have no clue!

If docs tell you to watch out for blood clots they at least ought to provide a picture, like a Most Wanted poster, so you'll know one when you see it!


Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 13, 2018 04:27PM Chiarara wrote:

Good sleep last night- bliss. My personal trick, to not getting entrenched in insomnia land is to spend LESS time in bed, not more, but it is hard when you are tired. Lucky I’d planned a lunch with some good friends yesterday, and that kept me awake and distracted. If nothing else, this solves the problem of when to exercise. If I’m out of bed at 5am, I’ll be looking for stuff to do!

I like the tips, too, as a newbie.

Scrafgal that is very interesting, as I’d noticed I suddenly seemed to need to drink a lot more.

Runor- yes, watching out for blood clots. I have the poster in my bathroom! Actually, over the years, two people I worked with have had clots, so I have made the personal acquaintance of some clots Smile

For both people, the only reason they realised something was up was they got swelling which suddenly made clothes fit oddly. So one guy (clot in the calf) got things checked because his sock and shoe were really tight, and the woman realised something was wrong because she could not get sleeves to go over her arm (clot was high, near the shoulder, so her upper arm swelled a lot).

Have now finished my 2nd week of the Big T. Only 518 weeks to go..


Dx 10/5/2017, LCIS/DCIS/ILC/IDC, Right, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 11/4/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/6/2017 Mastectomy: Right Hormonal Therapy 1/4/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 13, 2018 09:31PM Rosabella wrote:

when i started tamox i had occasional warm flushes. The brain fog memory stuff carried over from chemo. Been on it since june 2016 and doing quite well. Fequency of warm flushes has gone down and im in menopause.

People not doing well yend to post while those doing fine are gone. Thats the problem is it looks like tons of people have ses when in fact many doing well on these meds are done with this board.

The only way to know is to give it a try for a decent amount of time if you are high risk. I was so scared before chemo reading the issues here, rads, hormonals that i almost said no way. But for me everything has been bearable. No one knows how your body will respond so imo be aware of the ses but don't dwell so much on someone's experience for there is another out there who did fine. Too bad those doing well dont stick around to post to even out this forum better but people are living their lives bearably.

Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, PR+, HER2- Surgery 8/6/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/4/2016 Whole-breast: Breast, Lymph nodes Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy
Log in to post a reply

Jan 13, 2018 10:28PM Ghionik wrote:

All info at this point, is helpful to me. 💕

Only 1824 more days of this stuff. I drank a ton of water today since I was warned about being dehydrated.

You ladies are my heroes!

Dx 10/26/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 14, 2018 02:58AM Tracy1972 wrote:

Howdy all! Thought I would just hop on and introduce myself. Have an appointment in 2 weeks to see my Oncologist and her plan is to start me on Tamoxifen. I am reading everyone’s posts just to get an idea of what things I may need to ask.

Thanks to everyone for your tips! It never occurred to me to get a journal to document how I am feeling so that I can keep track of/ evaluate any side effects I may have. Also good to know about the constipation. I hadn’t a gastric band 11 years ago so I Ambien already chronically constipated- I will make sure to talk to my MD about that.

Tracy

Log in to post a reply

Jan 14, 2018 03:22AM - edited Jan 14, 2018 03:23AM by canvasmaker

I started on Dec. 18. So far, so good. Only two sleepless nights in the past week. Hopefully, that's not something that will dominate my life. Can't do without sleep. I was afraid to start Tamo because of the SEs. But I am also afraid of the cancer coming back. I'd had lots of SEs on Arimidex and Femera, so wasn't looking forward to another drug. Fingers crossed that the Tamo continues to be fairly SE-free

Thanks for all the posts, everyone. It's so helpful to hear from others who are on the same road.

Dx 3/22/2016, IDC, Right, 1cm, Stage IIA, Grade 1, 1/3 nodes, ER+/PR+, HER2- Surgery 3/30/2016 Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Femara (letrozole) Hormonal Therapy Arimidex (anastrozole) Radiation Therapy 3DCRT
Log in to post a reply

Jan 15, 2018 03:54PM - edited Jan 15, 2018 04:06PM by Chiarara

Touch wood- no more insomnia since last Friday night.

All good otherwise. Bladder has been a bit touchy- calms down with no alcohol or vitamin C.Skin continues to be less oily.

Hope others are going OK too

Dx 10/5/2017, LCIS/DCIS/ILC/IDC, Right, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 11/4/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/6/2017 Mastectomy: Right Hormonal Therapy 1/4/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 15, 2018 08:20PM Ghionik wrote:

I’m doing ok so far. Day 3.

Dx 10/26/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 15, 2018 08:43PM EastcoastTS wrote:

So, what are signs of clots to watch for? Swelling? Bruise? I have no idea! ;)

So far Tamox ok. Some minor side effects -- nothing I can't live with. I have had no hot flashes for some reason.


Dx@ 49. Oncotype: 14, BRCA 1/2- Dx 1/4/2017, ILC, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/7/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 15, 2018 09:00PM Scrafgal wrote:

Awesome, Ghionik! Keep us posted!

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Mastectomy: Right; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Chemotherapy 3/22/2017 Taxol (paclitaxel) Chemotherapy 6/15/2017 FAC Hormonal Therapy 9/28/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 15, 2018 11:26PM superius wrote:

2 years and 2 months, 7 years 10 months to go. Minimum side effects, as MO said at the beginning --  I suppose she made that educated guess from how I reacted to chemo (also min in comparison to many)

I found it interesting for those who have stronger side effects are "complain" about it, then those with minimum s/e are wondering... "is it working?"

I noticed skin/ hair is drier! but this winter is drier, too! MO is tracking my period, according to her, is pretty much regular (every other month). I noticed at the beginning hot flashes was more frequent, now it's more like "warm flushes" once in a while, and seem to come & go with the cycle. My MD friends said it's the hormone changes, so I assume the Tamoxifen is doing it's job.

Dx 5/28/2015, IDC, Right, 2cm, ER+/PR+, HER2- (FISH) Surgery 6/18/2015 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy 7/27/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 16, 2018 11:21AM EastcoastTS wrote:

Ha ha, Superius! Exactly. I have so few side effects that I wonder if it's working! LOL

Dx@ 49. Oncotype: 14, BRCA 1/2- Dx 1/4/2017, ILC, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/7/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 16, 2018 01:29PM - edited Jan 16, 2018 01:32PM by Rhyfelwr

So I've been hot flashing since Taxol. Like must-rip-off-clothes heat. My dh doesn't understand how I can go outside without a coat in single degree weather, but if I am flushed....

Are tamoxifen flashes more frequent? More serious? Or am I already living the dream and have nothing new to worry about? Time to head to a beach somewhere....

(And how does this work 6 months from now, when I am already in my bathing suit?)

I haven't started yet. Prolly in 2weeks, when I see my MO.

Rhyfelwr Dx 5/5/2017, IDC, Left, Stage IIA, Grade 2, 1/10 nodes, ER+/PR+, HER2- Chemotherapy 6/14/2017 AC + T (Taxol) Radiation Therapy 11/15/2017 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jan 16, 2018 01:54PM Trvler wrote:

I tend to find my hot flashes follow me being cold. If I am in a warmer climate, I tend to not get cold and have fewer hot flashes.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/24/2015 AC + T (Taxol) Surgery 9/1/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/15/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/1/2016
Log in to post a reply

Jan 16, 2018 02:13PM Dizzybee wrote:

I was counting on my fingers and worked out I'm quarter of the way through my tamoxifen journey, and so far so good. Annual transvaginal ultrasound result was okay, spare tyre round my middle is definitely not okay !

So my question is this...I keep reading that the women on AIs are being changed over to ten years, not five. So has anyone else on tamoxifen had the timeframe lengthened?

Dx 7/2016, DCIS, Right, 5cm, Stage 0, Grade 3, ER+/PR- Surgery 8/24/2016 Lumpectomy: Right Surgery 9/20/2016 Lumpectomy Hormonal Therapy 10/11/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/30/2016 Whole-breast: Breast

Page 919 of 955 (28,637 results)