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All TopicsForum: Hormonal Therapy - Before, During and After → Topic: Bottle 'o Tamoxifen

Topic: Bottle 'o Tamoxifen

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Nov 26, 2007 03:02PM - edited Nov 15, 2017 01:59PM by Moderators

ashaby wrote:

Dear All, (and Layne are you there?)

Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha

Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More

Dx 4/4/2007, DCIS, 6cm+, Stage 0, Grade 2, 0/0 nodes, ER+/PR-, HER2-
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Mar 7, 2018 07:35PM vampeyes wrote:

shelabela - Thank you, so glad I am not alone in the Tamoxifen rollercoaster ride. I am happy your aunt will not need Chemo or Rads.

Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/17/2017 Lumpectomy: Left Surgery 11/14/2017 Lumpectomy: Left Radiation Therapy 1/28/2018 Whole-breast: Breast Hormonal Therapy 2/28/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 8, 2018 04:33AM runor wrote:

Samantha51, if there is something you do not understand, insist that your MO explain it to you until you DO understand it!

Did you take tamoxifen for your first diagnosis?

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 9, 2018 11:57PM sm627 wrote:

Hi Tamoxifen Sisters,

So it's Friday and we made it through another week. Overall how were the side effects? I found that I was very tired one day and the rest of the week I had my now normal SE pelvic pain and joint pain in my legs. Some days weren't quite as bad as others. I just think sometimes that every day is different in how you feel.

Hope the Tamoxifen train ride was a little smoother for the rest of you.

Hugs to all and I hope you all have a good weekend!

Take Care,

Sara

Diagnosed at 32 years old. DX 5/30/2017 Borderline Phyllodes Tumor 17cm. Surgery 6/27/2017 Mastectomy(right). Hormonal Therapy 9/25/2017 Tamoxifen
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Mar 10, 2018 12:44AM LiMa66 wrote:

Yay for the weekend. Day 9 of Tamoxifen completed. I'm beginning to notice some vague joint aches, random hot flashes, and still having these crazy vivid dreams. Always tired, just not sleeping well. Oh how I miss sleeping on my stomach. Other than that all is well and I just keep chugging along trying to find something positive each day. This evening I spent a little time on the treadmill and felt good after.

I hope you all have a good weekend.

I believe I can Dx 10/26/2017, ILC/IDC, Left, 2cm, Stage IIB, Grade 2, 2/6 nodes, ER+/PR+, HER2- (IHC) Surgery 1/31/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/9/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Mar 10, 2018 09:23AM shelabela wrote:

i seen my MO yesterday about the horrible SE I've started to get. After 2 hours of talking this is what we have decided to do.

Take 2 weeks off to give my body a rest. Yay , but what's 2 weeks gonna do?

Report back if my massive hot flashes subside, and joint pain, and headaches, and vaginal discharge.

If they settle down then when i start back up i will take effexor? (Sp) and then tamoxifen butt she recommended splitting the pill. 10 mg in the Am and 10 mg at night. I know this has been brought up before on here so i mentioned it. She says she's done that in the past and found no problems.

Hope all you wonderful ladies are having a great weekend

Diagnosed at age 43 Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Targeted Therapy 2/5/2017 Perjeta (pertuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/2/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 10, 2018 11:54AM Legomaster225 wrote:

Shelabela, I hope that does the trick for you and that your SEs ease up

Oncotype score 39. One node positive at diagnosis negative after preadjuvent chemo. Bilateral cancer discovered at BMX. Left breast was supposed to be prophylactic. :-( Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, 0/0 nodes, ER+/PR+, HER2- Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 6/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 8/22/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/17/2017
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Mar 10, 2018 02:18PM vampeyes wrote:

Well I now have 8 pills into me. I have been writing down all the SEs to talk to the oncologist about on Wednesday , but it sounds like that may be a wasted effort. Thankfully hot flashes have not started yet. I seem to have increased wrist pain, not sure if its the Tamoxifen adding to my existing issue?

Have a wonderful weekend ladies and gentlemen.

Cheryl

Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/17/2017 Lumpectomy: Left Surgery 11/14/2017 Lumpectomy: Left Radiation Therapy 1/28/2018 Whole-breast: Breast Hormonal Therapy 2/28/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 11, 2018 08:09PM TaRenee wrote:

Hi everyone,

i have been fighting the blahs all week and just trying to stay hydrated and rested (that wasn’t real successful but I tried). I finally was feeling better on Saturday. Then today we sprang forward. I needed a 2 hour nap. And it’s cold. We may or may not get snow tomorrow and it has rained a cold rain off and on all day today. I just want next weekend to get here already. I’m too tired to face the week!

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Mar 11, 2018 08:47PM LiMa66 wrote:

TaRenee- I agree. This whole jump forward an hour thing....not a fan. So tired. But, we can do this. I'm just going to take it day by day and look forward to my grandfather's 99th birthday next weekend.

Hope you all have a tolerable week. Day by day.

I believe I can Dx 10/26/2017, ILC/IDC, Left, 2cm, Stage IIB, Grade 2, 2/6 nodes, ER+/PR+, HER2- (IHC) Surgery 1/31/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/9/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Mar 12, 2018 12:22AM sm627 wrote:

I hope next week is a better week for everyone! TaRenee, I am glad to hear that you are starting to feel a little better hope next week won't be to bad. I agree that we do need to take it one day at a time or sometimes a minute at a time depending on how the side effects are. I went to a work party this weekend and all I could think about was my leg cramps and my pelvic pain. Then people started asking questions about how my side effects were.That was the last thing I wanted to talk about. I was happy when it was time to go home.

Wishing you all a week with less Side Effects.

Hugs and Love to all,

Sara

Diagnosed at 32 years old. DX 5/30/2017 Borderline Phyllodes Tumor 17cm. Surgery 6/27/2017 Mastectomy(right). Hormonal Therapy 9/25/2017 Tamoxifen
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Mar 12, 2018 08:17AM shelabela wrote:

sm627, i agree when i am out and about i hate when people constantly ask "How... are... You.....?" And its so slow and pronounced like that. I say fine, hoping the conversation moves on. Most of the time they just keep asking. That's when i leave them standing there

Diagnosed at age 43 Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Targeted Therapy 2/5/2017 Perjeta (pertuzumab) Chemotherapy 5/1/2017 AC Surgery 7/19/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/2/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 12, 2018 08:49AM VL22 wrote:

Hi everyone! Took my first tamoxifen pill today. I’m lucky enough to have had a TN tumor for which I needed chemo and 2 ER+ ones to need this. I’ve put off taking it for a week, but then ws like “what am I waiting for?”

My biggest concern is that it took me so long to feel ok after chemo - I worry I’m just predisposed to bad side effects!

I felt ok about taking it after speaking with my MO, but then I looked through the booklet that came with the prescription and was highly intimidated.

Nice to have a place to connect and learn from others

Dx 5/5/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/23/2017, IDC, Right, 1cm, Stage IB, Grade 3, 1/2 nodes, ER-/PR-, HER2- Chemotherapy 8/10/2017 AC + T (Taxol)
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Mar 12, 2018 07:50PM TaRenee wrote:

Today was National Napping Day. Very appropriate. We got out early for SNOW so I came home at 2 and took a nap. It was glorious. Now, if only I can sleep through the night tonight...

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Mar 12, 2018 11:03PM Blownaway wrote:

Napping Day???I MISSED IT!

Dx 3/31/2014, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/13/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 6/3/2014 Lumpectomy: Left Targeted Therapy 7/3/2014 Herceptin (trastuzumab) Chemotherapy 7/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/7/2014 3DCRT: Breast Hormonal Therapy 1/10/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast
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Mar 13, 2018 02:21PM LiMa66 wrote:

Well, I gave up on trying to get by on 3-4 hours of bad sleep each night. Saw my family doc today and got a script for Effexor and Klonapin. Sure hope it helps. Don't want to be on it forever but I sure need some good sleep.

Hope y'all are having a good week.

I believe I can Dx 10/26/2017, ILC/IDC, Left, 2cm, Stage IIB, Grade 2, 2/6 nodes, ER+/PR+, HER2- (IHC) Surgery 1/31/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/9/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Mar 13, 2018 03:03PM teachermomfl wrote:

I just got my prescription filled today for Tamoxifen. Was on the fence about taking it, as I've only been diagnosed with ADH and I worry about overtreatment (it there is such a thing). I promised my surgeon that I'd meet with the oncologist today to get all the info. She went over all of my medical history again, and seemed to be very thorough. Based on my risk, she recommended Tamoxifen. I went in with every intention of saying no, but ended up saying yes. I'm very scared to start it. I was going to start it tonight, but hubby and I have a date night planned for tomorrow night, and I don't want to risk being sick (we're going out to a nice restaurant, and I love food :) ). I hope I made the right choice. Any suggestions for a nube like me?

Diagnosis: ADH-12/26/17
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Mar 13, 2018 03:17PM lala1 wrote:

teachermomfl--My advice is to just jump in and take it. The anticipation may be way worse than the meds. I didn't even have any SEs for the first year! By then I'd read enough to figure out how to work with whatever SEs I got. I'm betting you be one who does pretty well on it. I just finished my 5 years and with hindsight realized that I was way more scared to start it than I should have been. Way I look at it now, if you can fight cancer, you can do anything.

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/13/2012 Mastectomy: Left Hormonal Therapy 2/1/2013 Surgery 3/26/2013 Reconstruction (left): Silicone implant Surgery 6/25/2014 Reconstruction (left): Nipple reconstruction Surgery 1/20/2015 Prophylactic ovary removal
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Mar 13, 2018 07:15PM Lewhy wrote:

Hi everyone, I was also very aprehensive about starting my Tamoxifen. I started it Feb 14th and I have only noticed hot flashes, which I already had. I definitely get more night sweats and I do notice I get a headache at the base of my skull if I don't drink enough. If those are the only SE I get, I will be happy!

Since my diagnosis I have learned of 3 friends of friends who took Tamoxifen and fortunately, none of them had any major SE's either. That made me feel better. Sometimes I think the anticipation worse than the actual thing you are anticipating! Good luck to everyone

Dx 10/18/2017, DCIS, Right, 1cm, Stage 0, Grade 3, ER+/PR+, HER2+ (IHC) Surgery 11/16/2017 Lumpectomy: Right Radiation Therapy 12/27/2017 Whole-breast: Breast Hormonal Therapy 2/14/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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Mar 13, 2018 07:33PM lala1 wrote:

Or better, depending on what you're anticipating! SillyHeartHappy

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/13/2012 Mastectomy: Left Hormonal Therapy 2/1/2013 Surgery 3/26/2013 Reconstruction (left): Silicone implant Surgery 6/25/2014 Reconstruction (left): Nipple reconstruction Surgery 1/20/2015 Prophylactic ovary removal
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Mar 14, 2018 06:53AM - edited Mar 14, 2018 06:53AM by vampeyes

hahaha - lala1, so very true!

Question ladies: for those that have had side effects from the Tamoxifen, have any gone away?

I am tired and tired of being tired. I can't work out, heck I can barely climb the stairs! I use to do hour long workouts and 80+km bike rides on top of cleaning houses for a living. It's depressing, what kind of life can I have if all I want to do is lay on the couch or lay in bed? Please tell me there is a way to get my energy back. Yesterday I took the kids to see a movie and I was falling asleep during it, it was a good movie so no that's not what put me to sleep. lol

Cheryl

Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/17/2017 Lumpectomy: Left Surgery 11/14/2017 Lumpectomy: Left Radiation Therapy 1/28/2018 Whole-breast: Breast Hormonal Therapy 2/28/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 14, 2018 08:56AM Lewhy wrote:

Very true la la! Vampeyes, I have noticed the fatigue, but I blamed it on not exercising. It is like a vicious circle. If I exercised I think I would have more energy. I didn't think about it being from the Tamoxifen. Hmmmm, I wonder if it's the lack of exercise or the Tamoxifen? Do a lot of people complain of fatigue while on it?

Dx 10/18/2017, DCIS, Right, 1cm, Stage 0, Grade 3, ER+/PR+, HER2+ (IHC) Surgery 11/16/2017 Lumpectomy: Right Radiation Therapy 12/27/2017 Whole-breast: Breast Hormonal Therapy 2/14/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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Mar 14, 2018 01:47PM sm627 wrote:

Hi Cheryl, and to all the newbies on Tamoxifen,

Some side effects do go away like the tired feeling. I've been on Tamoxifen for almost 6 months and I felt tired for the first 2 week when I started taking it, and after the 2 weeks was over I started feeling much better and got my energy back! Happy Dance! I noticed that some of my side effects like pelvic pain have become more mild and easier to live with as the months went on.

One of my friends who is a nurse told me early on think of it like Tamoxifen growing pains and that your body will get used to it just hang in there and take lots of naps in the meantime.

Sending Hugs and Love to all Good Luck to everyone!

Sara

Diagnosed at 32 years old. DX 5/30/2017 Borderline Phyllodes Tumor 17cm. Surgery 6/27/2017 Mastectomy(right). Hormonal Therapy 9/25/2017 Tamoxifen
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Mar 14, 2018 01:52PM Egads007 wrote:

I've been on the ol' Tee-Mox just a tad over 4 years. I used to suffer the 'my feet have been beaten within an inch of their lives' feeling until I joined a gym, hired a trainer and started lifting weights combined with cardio. If I take a break from the gym for more than say 5 days the feet start screaming at me to get my lazy derriere back into the gym. No biggie I enjoy working out, lets me know I'm alive.....or at least insane. I can deal with the hair thinning....Trump has actually asked me for comb over advice. I can deal with bursting into tears occasionally (and for no reason besides hearing something soppy). Dry skin, trouble getting weight down, fatigue, meh....no problem as I'm very grateful to have meds that just might give me a fighting chance.

What I can't get past, and pardon my wording here, but really pisses me off to no end....the HOT flash. I get approx. 2 a day....so I guess I'm very lucky. So why am I complaining? Timing my dears, it's all in the timing.....EVERY SINGLE TIME I get out of the shower or complete my makeup - BOOM, it hits. It's as if it KNOWS and lurks in the background waiting to make me look like Marilyn Manson and feel like a sweaty runner completing a 30 mile marathon. I've sweated off more dollars in product within minutes of application that I might as well start using Dollar Store cosmetics, creams, lotions and potions. I've tried all the tricks, nothing works, so I've grown to expect it.......don't have to like it, but expect it.

Just my whiny 2 cents worth

Loopy

"I base all my fashion choices on what doesn't itch" (Gilda Radner) Chemotherapy 3/20/2013 Doxil (doxorubicin), Taxol (paclitaxel) Surgery 8/23/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 11/1/2013 Whole-breast: Breast, Lymph nodes Dx IDC, 4cm, Stage IIB, 0/2 nodes, ER+/PR- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 14, 2018 03:15PM Ghionik wrote:

I hear you Egads about the hot flashes. I mostly get them at night but had one at work last week that left me with raccoon eyes during the middle of a meeting. Even waterproof eyeliner doesn’t hold up to my hot flashes.

Dx 10/26/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 14, 2018 05:24PM runor wrote:

I never had much fatigue (fatigue, what a limp wristed word for when you feel fall on your face tired) and the other side effects have eased off. But wait. No. Back for round two! The legs cramp. Oh dear lord in heaven, the leg cramps. I had THREE attacks the other night, leaping out of bed to hobble around in the dark, walk it off, walk it off, trip over the vacuum cleaner and the dog. Trying to walk while digging fingers into my thigh and swearing between gritted teeth trying not to wake husband. And then when it finally passes you're afraid to go to sleep cause you know there's another one, waiting, lurking, just doze off and stretch that leg out and BOOM got you again! If I have fatigue now it's because I'm scared to go to sleep and move a leg in such a way as to trigger a cramp. I fear the cramps!

Hair is still thinning. I have aged 15 years. Periods stopped instantly and completely. Hot flashes in day, luckily not bad enough to melt my mascara, but seem worse at night in bed. I am a balding, sweating, cramping ball of sexy. Who wouldn't want to get with this?

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 14, 2018 06:09PM - edited Mar 14, 2018 07:36PM by Michelle_in_cornland

Still doing great on Tamoxifen. No further hair shedding, other than what was lost after radiation. Hair regrowth, any aches can be headed off with magnesium. Walking several miles every day. Take 50,000 units of Vitamin D per week. Mostly vegetarian diet. Getting plenty of rest. Better than I was before breast cancer.

Live free - Oncotype 14, Take things as they come and you can do it!!! Dx 8/8/2016, IDC, Right, 2cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 8/29/2016 Radiation Therapy 10/6/2016 Whole-breast: Breast Hormonal Therapy 2/15/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal
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Mar 14, 2018 07:45PM lala1 wrote:

vampeyes---Thought I'd share one thing I was told when diagnosed. My dad is a retired doctor and when I was diagnosed he sat me down and offered some advice. One thing he told me was to expect to be tired....not just tired but so tired you can barely hold a conversation. He feels that anesthesia does a real number on some people. My doctor told me to be prepared to have 2 or 3 months of tired but dad said BS! He thinks it hits you hard for about a year. He told me that whenever I felt really really tired to just sit down and nap, whenever I could, wherever I could. He feels that's one of the best things we can do for our bodies when recovering from all this. So that was what I did. I'm not a napper normally but I took LOTS of them that first year. And I joined a gym. I dragged myself there and forced myself to workout and sure enough, eventually I started feeling less and less tired till one day I didn't need a nap! Don't get me wrong....about once a month or so I will find myself so tired I can't even think. And it's been 5 years! But I just find time and get a quick nap even if just for 5 minutes and then I move on. Don't worry. It'll get better. You got this.

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/13/2012 Mastectomy: Left Hormonal Therapy 2/1/2013 Surgery 3/26/2013 Reconstruction (left): Silicone implant Surgery 6/25/2014 Reconstruction (left): Nipple reconstruction Surgery 1/20/2015 Prophylactic ovary removal
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Mar 14, 2018 07:46PM - edited Mar 14, 2018 07:57PM by Samantha51

thanks for the advice about asking my MO until I DO understand.!



Dx 5/30/2007, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/19/2007 Lumpectomy: Right Surgery 8/15/2007 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 6/1/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 8/24/2017 Lumpectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 11/14/2017 Whole-breast: Breast
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Mar 14, 2018 08:04PM LiMa66 wrote:

Runor- ouch! I've had the occasional leg, ankle, toe cramps that are both excruciating and annoyong. No magic words or tips, just a big virtual hug. Hope they don't continue.


I believe I can Dx 10/26/2017, ILC/IDC, Left, 2cm, Stage IIB, Grade 2, 2/6 nodes, ER+/PR+, HER2- (IHC) Surgery 1/31/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/9/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Mar 14, 2018 09:01PM TaRenee wrote:

I’ve been on the lovely pill of hormonal imbalance since September. I started the week after my DMX. The HOT flashes, if only they would flash. And go away as quickly as they come on. I’ll be talking to someone and BLAM. No reason. Just hot as the 9th circle of Dante’s Inferno. It was below 20 outside and I was out there trying to cool off without getting sick. I was H. O. T. That and the night sweats have been my constant companion since I started this wonderful pill. I go to bed early (ok, well, not tonight as you can tell) and sleep off and on through the night. Up for sweats. Strip. Change. Back to sleep. Repeat. I stay tired. I don’t know if it is the not sleeping well or the Tamoxifen. Or both. Who knows. I am tired of being tired. I try to take naps when I can, but it doesn’t happen everyday. By the way, who was the genius that started this time change stuff. It did not help the tiredness!

I wish I could say I don’t have periods. Why is it the one side effect I wouldn’t mind I don’t get? Still regular. Yay. And emotional. I cry at daggum commercials. I’m not even talking about the SPCA ones (I mean I always cry at those too). I sometimes feel like I’m on the verge of a breakdown and I have to talk myself out of it. I’m either weepy or angry

My new SE are cramps in my feet, legs and hands. My thumb will turn inward and oh my gosh does it hurt! That usually happens at work (of course). The feet and legs I notice more at night. I haven’t found shoes that make it any better for my feet. But they feel like they are in a vice.

Wow. What a whiner I became there for a minute. I guess we all deserve to let it out, don’t we?

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