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Topic: Bottle 'o Tamoxifen

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Nov 26, 2007 03:02PM - edited Nov 15, 2017 01:59PM by Moderators

ashaby wrote:

Dear All, (and Layne are you there?)

Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha

Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More

Dx 4/4/2007, DCIS, 6cm+, Stage 0, Grade 2, 0/0 nodes, ER+/PR-, HER2-
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Sep 14, 2018 08:50AM Vargadoll wrote:

Vampeyes- I started Tamoxifen March 2017...no period for 14 months. Oncologist switched me to Anastrozole in March 2018. Periods were like clock work (I'm 53) until lumpectomy in Feb 2017. I skipped one that month should have started the day of surgery (glad I didn't that would have been to much for me to handle!) Since I hadnt had a cycle in 14 months the oncologist said I'm post menopausal. Took Anastrozole from March 2018 until first of June 2018. I started spotting May 31. Spotted for 15 days. I am perimenopausal and now that I'm back on Tamoxifen and here it is October and nothing since the spotting for 15 days in June. Of course I'm told Tamoxifen has nothing to do with me not "having a cycle"....smh!

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Lumpectomy: Right Radiation Therapy 4/12/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 14, 2018 09:42AM Legomaster225 wrote:

Sorry about the periods Vampeyes and Rah2464 I was diagnosed at 50 but had regular periods up until chemo started. I’m 52 now. No periods for the last 18 months (10 on tamoxifen). My gyn has been pretty good with testing and info on menopause. Hopefully, yours can shed some light on your marathon periods.

Karinna, sorry you are struggling with the meds. Perhaps you needed a longer weaning off period since you were on the Effexor for so long. I would go back and ask your doctor for help. You shouldn’t have to feel miserable.

Thanks for the encouragement Msphil! Congrats on 24 years.

I have random aching and discomfort on my rib cage and abdomen. Not everyday and it is more discomfort than pain. CT and ultrasounds showed nothing on my liver, ribs or anything else in that area. That is good but still doesn't explain my discomfort.

My ultrasound did find, however, that my endometrium is 19mm thick and I will need another D&C after just having one in March. I'll be Switching from tamoxifen to Aromasin next week since obviously it is doing something to my uterus. Hopefully, the joint pain won't be too bad. I had no side effects from tamoxifen that bothered me untouchable l they said my uterine was thickened again

Diagnosed at 50. Currently 52. Oncotype score 39. One node positive at diagnosis negative after preadjuvent chemo. Bilateral cancer discovered at BMX. Left breast was supposed to be prophylactic. :-( Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, 0/0 nodes, ER+/PR+, HER2- Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 6/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 8/21/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/17/2017 Hormonal Therapy 9/9/2018 Aromasin (exemestane)
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Sep 14, 2018 09:46AM - edited Sep 14, 2018 09:47AM by Legomaster225

vargadoll, that's interesting that your period came back after that long. I'm wondering if mine will do the same after I witch to Aromasin. My blood work says menopause but who knows. Were you tested formenopause before your change to an AI?

Diagnosed at 50. Currently 52. Oncotype score 39. One node positive at diagnosis negative after preadjuvent chemo. Bilateral cancer discovered at BMX. Left breast was supposed to be prophylactic. :-( Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, 0/0 nodes, ER+/PR+, HER2- Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 6/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 8/21/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/17/2017 Hormonal Therapy 9/9/2018 Aromasin (exemestane)
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Sep 14, 2018 12:12PM vampeyes wrote:

Varagadoll - they deny Tamoxifen for a lot of side effects we all seem to be experiencing. I am so thankful for this forum and the wonderful women that are here.

Legomaster I am sorry you have to go in for another D&C, especially so soon after the last one!

Rah - I booked an appointment with my gynecologist a few week's ago, unfortunately I still have another month before the appointment.


Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 14, 2018 03:03PM - edited Sep 14, 2018 03:06PM by Vargadoll

Legomaster- YES!!! I had blood work March 20th and was told I was post menopausal. ..bam just like that! No easing into the idea of the next phase of my life!!! I stopped Tamoxifin and started Anastrozole March 21st. Spotting started May 31st (and it wasn't pretty! A really disgusting brownish color...tmi) called oncologist was scheduled for blood work the next morning. 5 days later I get a call that I'm perimenopausal stop Anastrozole and go back on Tamoxifen. I have yet to receive a reasonable answer about how I went from post back to peri... I "assumed" it was the Tamoxifin. I just know that 15 days of spotting put me and my va-jaja in the spot light at my gyn. Atleast I have a good baseline on the condition of all my lady parts..

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Lumpectomy: Right Radiation Therapy 4/12/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 14, 2018 04:13PM Legomaster225 wrote:

Vargadoll, or anyone else with experience,how many days were you off tamoxifen before you started your Anastrozole?

Diagnosed at 50. Currently 52. Oncotype score 39. One node positive at diagnosis negative after preadjuvent chemo. Bilateral cancer discovered at BMX. Left breast was supposed to be prophylactic. :-( Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, 0/0 nodes, ER+/PR+, HER2- Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 6/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 8/21/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/17/2017 Hormonal Therapy 9/9/2018 Aromasin (exemestane)
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Sep 14, 2018 04:31PM PrincessButtercup wrote:

Vampeyes, none for me so far since the last one right before my diagnosis at age 56 (almost one year ago!). I was soooo close to menopause before last year. My working theory is that getting rid of the tumor stopped the hormone factory which was fueling my cycles. Tamoxifen is my insurance plan.

Dx 11/15/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 12/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/22/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/1/2018 Whole-breast: Breast
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Sep 14, 2018 07:02PM Veeder14 wrote:

Hi Vargadoll,

Way before I ever had cancer, over a period of a year and a half, my hormone levels were tested three different times checking to see if I was in menopause, and was told I was in menopause each time. It's a good thing that I listened to my body instead of the tests because the first two times I wasn't and could of gotten pregnant. The third time I was in menopause. So, regardless of taking medications, sometimes it's difficult to determine when your in menopause for sure.

,


Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/8/2018 Hormonal Therapy 7/1/2018
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Sep 15, 2018 10:57AM Vargadoll wrote:

Veeder14- Thank you for sharing! I always get more info from the ladies at BCO then anywhere else!

Legomaster - took Tamoxifen in Tuesday night got the phone call to start Anastrozole the next night. Just switched to straight to it. I had no side effects whatsoever at the anastrozole (except weight loss. .bonus!) the tamoxifen I have to pee more and have a little brain fog but that's it.

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Lumpectomy: Right Radiation Therapy 4/12/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 15, 2018 11:59AM runor wrote:

Vampeyes, I had no symptoms of being anywhere near menopause. Not a single hot flash, no sign that my evil periods were going to ease off anytime soon. They were unmanageable and ruled my life! At 53 I was horrifyingly regular (with some variation as I have had all my life, regularly irregular). I asked onc if tamox would affect my periods. He said no. Boy, was he wrong! 100% wrong! Stopped my periods completely. The last period I had was July 2017, I was staying at the cancer lodge having radiation. When I was done radiation I took my first tamox tablet, Aug 1, 2017. That July period was the LAST period I had. So (counting on my fingers) a little over a year since a period?

I do not miss them.

But I also instantly got all the other signs of menopause, like hot flashes, night sweats and thinking my husband is deliberately chewing like that to drive me insane.

My onc tried to tell me that I was obviously menopausal and my periods would have likely stopped instantly and completely anyway. Bullshit.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 15, 2018 12:24PM vampeyes wrote:

Well not a period as it only lasted yesterday.

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 17, 2018 12:00AM sm627 wrote:

Hi Everyone,

How are you all doing? Vampeyes, please don't get me started about periods! Tamoxifen makes mine so much more yucky and I'm due for my period in about a week. That is when the bitchy side of me comes out to play! LOL.

Any way I have question for you all. I plan on getting my Flu shot in the coming weeks, and I was wondering if any of you have had any kind of negative reaction to getting it while taking our friend Tamoxifen? Has it made your side effects more intense?

Thank you all for your help! I don't know what I would do without you!

Hugs,

Sara

Diagnosed at 32 years old. DX 5/30/2017 Borderline Phyllodes Tumor 17cm. Surgery 6/27/2017 Mastectomy(right). Hormonal Therapy 9/25/2017 Tamoxifen
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Sep 17, 2018 07:16AM vampeyes wrote:

Hahaha Sara, those poor kids! That sounds awful about the periods, but I think I have read that with you shedding like that you won't have the build up of the lining. That's a good thing! How is the pain? Can't help you with the flu shot, I don't get them. Did once when the kids were little and haven't since.

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 17, 2018 07:53AM Vargadoll wrote:

No flu shot for me either!

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Lumpectomy: Right Radiation Therapy 4/12/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 17, 2018 08:55AM Trvler wrote:

I have never had any issues with getting a flu shot.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Sep 17, 2018 07:37PM Rah2464 wrote:

So my second "period" on Tamoxifen has lasted so far 17 days and getting heavier. Maybe the heavier is a real period and the last 15 days were spotting or something. So I am guessing that the little white pill has made my lady parts quite irritable. Since I only started the medication July 27th, this doesn't bode well for my uterus adapting to it. So off to the Gyno I go for a check. Cancer, the gift that keeps on giving!

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 17, 2018 08:02PM RobinJ3024 wrote:

Karinna - I took Effexor years ago and experienced all those symptoms while discontinuing it. It was awful. I finally started my own ‘weaning’ schedule. I cut the pills and would decrease the dosage every week or 2. It took me at least 8 weeks to come off it

Dx 4/20/2018, ILC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 6/18/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/26/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 17, 2018 10:56PM gigibee wrote:

I have been on Tamoxifen for 8 mos and am having regular periods.

Dx 8/31/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/30/2017 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Radiation Therapy 12/12/2017 Whole-breast: Breast
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Sep 17, 2018 11:02PM TaRenee wrote:

I’ve been on Tamoxifen for a year and haven’t had a period in about 4 months. But they were pretty regular for the first 6 months. Hope they are done.

I have a fun new se. Feet (both of them but the right more than the left) pain. Worse in the morning when I get up but not wonderful all day either.

And leg cramps are making a comeback. ( I’m trying pickles, will let you know how that works out. )

Dx 7/29/2017, IDC, Left, 2cm, Stage IIA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 9/14/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/29/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Sep 18, 2018 02:38AM runor wrote:

TaRenee, I find all the symptoms are becoming cyclical. I'll go for a few weeks when I'm flashing all the time. Then it will ease off. Then I'll have a bout of constipation for a week or so, and then it will ease off. Then all of a sudden after a couple weeks of no leg cramps, I'll have a few weeks of several a night. It has taken over a year to see this pattern, but there it is. Things get bad, then ease off, rinse, repeat. The only thing that is unrelentingly constant is my hair falling out and bad memory. It is not funny how little I remember.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 18, 2018 05:47AM vampeyes wrote:

Anyone started talking funny? I don't know if I am trying to talk to fast but I keep messing up on talking. For example I ordered my son a "pooberry pomegranate fruit chill" instead of a blueberry, when saying rain, it came out Rhannon, these are just a couple examples. I don't want to talk anymore it's embarrassing how stupid I sound and then feel.

TaRenne - you are not alone with the foot pain, I have to really watch it or they get stuck in painful positions! I am trying a new magnesium from my natralopath. Can't wait to here if pickles are my answer!


Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 18, 2018 09:55AM Lula73 wrote:

vampeyes- I find it harder to say some words. Sometimes it’s just a more complicated/multiple syllable word or phrase and sometimes it’s finding the right word/getting my mind to make the right word to come out of my mouth, and sometimes it just happens. I’ve done similar to the poohberry incident before but not the rhannon. Wish I could say it gets better and maybe it does and I’m just not there yet. And this still happens after making the switch to an AI.

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/14/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/3/2018 Femara (letrozole)
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Sep 18, 2018 10:01AM Beaverntx wrote:

Lula & vampeyes, my tongue stumbles over words sometimes too! I've said some strange things at times but thanks to another SE I can't remember an example just now😀

Diagnosed at age 77-- dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 18, 2018 12:37PM BlueGirlRedState wrote:

A few people have asked about benefits of acupuncture. I have found it very helpful for relaxing/calming/stress reducing, and sometimes helpful with specific issues such as finger joint stiffness/trigger finger (brought on by anastrozole, which I quit after several months). Your clinic may or may not offer acupuncture as part of integrated therapy. Your insurance may or may not cover acupuncture, and since most acupuncturists are probably "not in the network", insurance might only pay a percentage. Chiropractors in some states can get a "acupuncture light" license, but are not required to take as much classroom/apprentice training as a fully licensed acupuncturist. I tried it in 2009 with the first round of cancer, the clinic I was going to offered it as part of integrated therapy. I continued with the acupuncturist for a year or so after wards in her private practice, then she moved. Years later I tried it for relief from the SEs of Anastrozole.. You might want to check into Yamasoto scalp acupuncture, I read an article in an oncology magazine, that many women found relief from the SEs brought on by Anastrozole. Nobody in this area practiced it, but one person said it was included as part of her training., but she had not practiced it We tried it for a while, but went back to "regular" acupuncture where we discuss what is going on with my health/how I feel, and she decides on how to place the needles. It took months for my fingers to feel better after I quit the anastrozole.

2009 ER+ left breast. 52 yrs. Lumpectomy, Radiation 6 weeks, tamoxifen 5 years. Dense lumpy left breast, normal right. Acupuncture offered at facility as part of integrative medicine. It really helped with anxiety/stress during radiation treatment.

2016 ER+ left breast. Probably a new cancer, but unknown. 4 rounds TC Aug-Oct 2016, Bi-lateral (my choice) Nov 2016, no reconstruction. Anastrozole 1 mg starting May 2017. Joint issues noticed immediately. Stopped Anastrozole after 3-4 months do to joint stiffness in hands. Started tamoxifen March 2018.



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Sep 21, 2018 01:55AM runor wrote:

Wow. Into year 2 of tamoxifen and in the last 2 weeks it's like my body has seized up. I'm the Tin Man in need of oil. Everything hurts. It took a while to clue in how stiff I was but yesterday I realized I was avoiding bending over because it hurts my hips to articulate like that. Squatting is just as painful. So if I drop something ... well shit. There it is. Down there. On the floor. And here I am. Up here. And my bendy parts aren't bendy anymore.

I have had joint pain and general stiffness in bed, at night, when I'm not moving much, but up until very recently had no stiffness issues during the day. Now? Holy crackers! It's like my body is crinkling and creasing and folding in on itself like a lawn chair. Extension and flexion of all joints has become slow and painful. Yoga, here I come (laying flat on face and moaning).

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2018 09:17AM shelabela wrote:

vampeyes, yes some days I sound like I am drunk.

I have not had a period since I started Chemo in February of 2017. Not even spotting.

I do agree some days I wake up so sore I can hardly walk.

Diagnosed at age 43 Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/4/2017 Taxol (paclitaxel) Targeted Therapy 2/4/2017 Perjeta (pertuzumab) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Chemotherapy 5/1/2017 AC Surgery 7/18/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Targeted Therapy 8/1/2017 Herceptin (trastuzumab) Radiation Therapy 9/18/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 10/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/18/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery
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Sep 23, 2018 09:48AM ReadyAbout wrote:

I started Tamoxifen on June 30th (my 50th birthday, what a gift) and I had to stop for two weeks for a surgery I had Sept 4. I haven't had my period since August and I'm wondering if going off Tamo for a few weeks has thrown me off or if I just won't have periods now. I was like clockwork before this. Missing a period is like a slacker boyfriend - I don't really want to deal with it on a regular basis but I kind of wonder where it is when I haven't heard from it.

Dx 2/1/2018, IDC: Papillary, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+ Surgery 2/23/2018 Lumpectomy: Left Surgery 5/16/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2018 11:22AM Joyseeker43 wrote:

My period stopped my second round of chemo in october. Has yet to return. Started T in March. I have all the menopause symptoms...oh joy.

Question. Constipation on T? If I get out of my schedule, like if I’m travelling, boy am I in trouble. A real challenge to get things moving again. Anyone similar?

Dx 9/20/2017, IDC, Right, 6cm+, Stage IIB, Grade 3, 2/4 nodes, ER+/PR+, HER2- Surgery 9/20/2017 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy 10/20/2017 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 3/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 8/28/2018 Prophylactic mastectomy: Left Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2018 12:46PM Rae7200 wrote:

Hi, Joyseeker 43,

I take Effexor for the menopause symptoms (prescription).

Yes, tamoxifen made me constipated! I take Magnesium glycinate (OTC - I get from Amazon - Pure??? Brand) for the constipation, 250 - 400 mg. I take the magnesium in the evening. Do not get magnesium oxide, it will make you more constipated. (I’d been taking magnesium on orders of my cardiologist for years, never had a problem until I started tamoxifen.). If you like dates or figs, I also eat one before bedtime with a few nuts - just my routine.

Good luck!

Dx 10/24/2014, IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 12/18/2014 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/11/2015 Whole-breast: Breast Hormonal Therapy 4/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 11/3/2017, IDC, Left, 1cm, Stage IA, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 12/15/2017 Lymph node removal: Left Radiation Therapy 2/19/2018 External: Lymph nodes Hormonal Therapy 5/18/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2018 03:34PM runor wrote:

Joyseeker, constipation was also an effect I noticed. That seemed to resolve as the months went by. But at first, it was a nasty surprise issue.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/4/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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