We are 221,139 members in 81 forums discussing 156,105 topics.

Help with Abbreviations

Topic: Bottle 'o Tamoxifen

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Nov 26, 2007 12:02PM - edited Nov 15, 2017 10:59AM by Moderators

ashaby wrote:

Dear All, (and Layne are you there?)

Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha

Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More

Dx 4/4/2007, DCIS, 6cm+, Stage 0, Grade 2, 0/0 nodes, ER+/PR-, HER2-
Log in to post a reply

Page 987 of 998 (29,923 results)

Posts 29581 - 29610 (29,923 total)

Log in to post a reply

Apr 8, 2019 12:12AM applejuice wrote:

Mymomsgirl I am exactly on the same schedule as you, I started 10 mg once a day (at night before bed) and after two weeks moved to twice a day. Mine has imprint WPI 2232 by Watson Pharmaceuticals, Inc..It is too early to say how things are going but hope for the best!

Diagnosed at 48 on routine annual mammo, non‐palpable lesion, 1.3 cm tumor (Grade 1, Luminal A). 98% ER+, 95% PR+, Her2-, Ki67 5%. Oncotype: 12. Dx 11/30/2018, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 1/23/2019 Lymph node removal: Sentinel Surgery 2/1/2019 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Apr 8, 2019 06:53AM Beaverntx wrote:

Nancy, Fingers crossed that the Mylan works for you. My hip pain has been diagnosed as bursitis and arthritis, currently physical therapy is helping. My gi track doesn't deal well with very many consecutive days of NSAIDs or Tylenol. What works for me is Celebrex which is now a no no since it blocks the action of Tamoxifin. I haven't tried an AI because I've had osteoporosis for more than ten years and don't want to risk the bone weakening. It is always something, isn't it?



Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 8, 2019 09:32AM Nancy618 wrote:

That's good to know beeline! My horrible pain started 3 weeks after I started a different manufacturer. Got a new scrip yesterday and hoping things get back to normal but will discuss half doses with the onc if doesn't.

Someone posted a link to Walkfit Platinum orthotics here. DO NOT order from that link. They'll tell you that included are THREE orthotics and post the price as 19.95 plus shipping. In fine print too hard to read on my phone, it says per pair. And when you get a comfirmation email, it doesn't include a receipt OR the price. You find that out when they charge your credit card. After the fact, I checked reviews and this appears to be a shady deal all around. The customer service email link they post is bogus. If you call the phone number, nobody answers.

These orthotics are available on Amazon, so if you want to try them, go there.

Normally I'm so careful about ordering online. I was tired and in pain and made a poor decision.

Oncotype 14 Philippians 4:13 Supplements: 500mg calcium, 500mg magnesium, 3000IU Vit D3, , 800mg Turmeric, Multi-Vitamin, Femdophlius, Align Dx 3/6/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/30/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 4/16/2017 Lumpectomy: Right Hormonal Therapy 5/5/2017 Femara (letrozole) Radiation Therapy 5/24/2017 Whole-breast: Breast Hormonal Therapy 6/20/2017 Arimidex (anastrozole) Hormonal Therapy 12/25/2017 Aromasin (exemestane) Hormonal Therapy 4/24/2018 Femara (letrozole) Hormonal Therapy 9/20/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 8, 2019 11:50AM DeeBB wrote:

Rljes: There are two different pills and you take one in the morning and then the other about 30-45 minutes before going to bed. The actual name is AM/PM for menopause.

Log in to post a reply

Apr 8, 2019 01:52PM rljes wrote:

Thanks Dee -

I'm still on 10mg once a day - (Actavis Pharma) and plan to be for several months.  However I have extreme bone/hip/back pain BEFORE Tamoxifen.  Pain no better No worse.  So no difference there.  I usually wake up with a bad headache which is unusual, usually I have Migraines 3/4 times a week. I had a bout with diarrhea for the past 2 days- usually constipated. This is Day 7.  I can't imagine how I would feel taking the full 20mg.  

Finished Chemo March 2018, No reconstruction "Going Flat" Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Apr 8, 2019 03:30PM - edited Apr 8, 2019 03:32PM by Nancy618

Rljes, I wonder if you could try a different manufacturer. I had terrible pain, and also noticed headaches, which I normally don't get. I've been on Actavis for a month. Previously on Teva with no issues except intense hot flashes and constipation. Now on Mylan for 2 days and already noticing a decrease in pain.

Oncotype 14 Philippians 4:13 Supplements: 500mg calcium, 500mg magnesium, 3000IU Vit D3, , 800mg Turmeric, Multi-Vitamin, Femdophlius, Align Dx 3/6/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/30/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 4/16/2017 Lumpectomy: Right Hormonal Therapy 5/5/2017 Femara (letrozole) Radiation Therapy 5/24/2017 Whole-breast: Breast Hormonal Therapy 6/20/2017 Arimidex (anastrozole) Hormonal Therapy 12/25/2017 Aromasin (exemestane) Hormonal Therapy 4/24/2018 Femara (letrozole) Hormonal Therapy 9/20/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 9, 2019 02:33PM LomLin wrote:

Yes, I was the one that posted that link about Walk Fit, didn't know the link was bad, I did as mentioned I ordered from Amazon instead.

I was on Activis from the start, I was fine, no pain, then I got a new manufacturer that was Teva, I was in so much pain, so I asked the pharmacy the next time I get the RX refilled to put me back on Activis and they did. Except my pain is still around. I really thought Activis was better. I have heard and even from my oncologist that women say Teva was better. What about Mylan? What kind of physical theraphy can you do for arthritis in the hip? I am curious as I have this and would like to know, someone here posted that that was helping them.

Log in to post a reply

Apr 9, 2019 03:09PM Beaverntx wrote:

LomLin, I' m having PT for trochanteric bursitis and arthritis in my hip so I'm not certain which aspects of therapy are for which problem, or if they all are for both! I am going to PT three times a week so far where they do deep massage on the hip, have me do a series of exercises, some with and some without special equipment, and finish with electrical stimulation and a cold pack. At home I am doing four of the exercises and using an ice pack three times a day. The PT thinks the problem is bilateral so some of the exercises involve both sides. It has only been a week but I can tell some difference already so I am very hopeful! My PT company does not require a doctor's referral, although I had one.



Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 9, 2019 03:22PM rljes wrote:

Thx Nancy - My MO will only prescribe 20 mg now, so the next bottle will be from my Optim Rx 90 day supply -I'll give them a call see what manufacture I can choose from.

Finished Chemo March 2018, No reconstruction "Going Flat" Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Apr 9, 2019 05:46PM Mymomsgirl wrote:

Nancy when I started the biggest thing I noticed is I was very thirsty. When I moved to the morning and evening dose I have had a few warm moments but no real hot flashes, except for right before my cycle but that has been the normal for the last year anyhow.

DX @ 47, the same age as my mother. Surgery was Oncoplastic with IORT and my Oncotype score is a 9. Dx 10/29/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Radiation Therapy 12/17/2018 Whole-breast: Breast Surgery 12/17/2018 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/23/2019 Whole-breast: Breast Hormonal Therapy 3/18/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 9, 2019 09:56PM Nancy618 wrote:

Thanks for all the replies.

LomLin you and I had exact opposite experiences. I was good on Teva and bad on Actavis. This is Day 3 of Mylan. I'm still having pain, today mostly behind my knees. Seems each day the pain moves. But it is less than it was last week. I haven't been going to yoga which is probably the wrong thing to do. It's a catch 22. Also I'm experiencing some mild depression where I don't want to go anywhere or do anything. I had that on the AIs. I'm hoping that the pain goes away. And I'm definitely asking for Teva.

Regarding the Walkfit... I was finally able to get someone on the phone. They couldn't cancel my order, but they said they will fully refund me and when I get the package to just write refused and take it to the post office.

Oncotype 14 Philippians 4:13 Supplements: 500mg calcium, 500mg magnesium, 3000IU Vit D3, , 800mg Turmeric, Multi-Vitamin, Femdophlius, Align Dx 3/6/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/30/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 4/16/2017 Lumpectomy: Right Hormonal Therapy 5/5/2017 Femara (letrozole) Radiation Therapy 5/24/2017 Whole-breast: Breast Hormonal Therapy 6/20/2017 Arimidex (anastrozole) Hormonal Therapy 12/25/2017 Aromasin (exemestane) Hormonal Therapy 4/24/2018 Femara (letrozole) Hormonal Therapy 9/20/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 10, 2019 12:27PM lala1 wrote:

Nancy618--I saw a segment this morning on the Today Show where Dr Oz talked about ways to treat chronic pain and yoga was one of them. I had severe muscle spasms after my mastectomy in my pec muscle from the surgery and the tissue expander. Then I had pretty bad muscle and joint pain from Tamoxifen. All my pain was helped dramatically with turmeric and yoga. Not sure I could have made it my 5 years on Tamoxifen without it. And still, one year after finishing Tamoxifen, if I go more than a week without yoga my muscle pain comes roaring back. I go 3 days a week to stretch yoga and it's been a lifesaver. Dr Oz strongly recommended even just doing certain yoga moves at home every morning when you get up. He said as little as 7 minutes a day can make a huge difference. Maybe you could google the story.

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/13/2012 Mastectomy: Left Hormonal Therapy 2/1/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/26/2013 Reconstruction (left): Silicone implant Surgery 6/25/2014 Reconstruction (left): Nipple reconstruction Surgery 1/20/2015 Prophylactic ovary removal
Log in to post a reply

Apr 10, 2019 01:50PM rljes wrote:

I have severe fatigue - more than my normal chronic fatigue - can't keep my eyes open fatigue... Anybody else? 


Finished Chemo March 2018, No reconstruction "Going Flat" Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Apr 12, 2019 12:47PM Nancy618 wrote:

Lala, thank you for the info. I KNOW I need to get back to yoga. The Tuesday class especially is gentle stretching. However, lately the instructor has been doing way more meditation and reading than I like.

I am happy to report that after 7 days on the new brand of tamoxifen, the aches and pains in my thighs, knees and left hip are gone! I still have some in my right but I've had that for quite some time. The sciatica is very minimal. I have been able to move better. And my attitude and emotions are much improved.

So don't let anyone tell me that there is no difference between manufactures!



Oncotype 14 Philippians 4:13 Supplements: 500mg calcium, 500mg magnesium, 3000IU Vit D3, , 800mg Turmeric, Multi-Vitamin, Femdophlius, Align Dx 3/6/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/30/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 4/16/2017 Lumpectomy: Right Hormonal Therapy 5/5/2017 Femara (letrozole) Radiation Therapy 5/24/2017 Whole-breast: Breast Hormonal Therapy 6/20/2017 Arimidex (anastrozole) Hormonal Therapy 12/25/2017 Aromasin (exemestane) Hormonal Therapy 4/24/2018 Femara (letrozole) Hormonal Therapy 9/20/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 12, 2019 02:11PM Beaverntx wrote:

Great news, Nancy. It is so very good when things work!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 12, 2019 03:29PM rljes wrote:

I wish I had the energy to go to a yoga class.  Its a catch 22 (like Nancy said)  Too tired to get up to take yoga, but I'd feel better if I did.  Today I was cross eyed so tired driving to get my port flushed.  So tired I locked keys in my car.  Its a danger for me to drive I'm so tired. and again, I'm only taking 5mg. I can't imagine going any hire. I'd never get out of bed. 

Finished Chemo March 2018, No reconstruction "Going Flat" Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Apr 14, 2019 12:02PM sm627 wrote:

Hi Everyone,

Wanted to check in and see how you all are doing?

I want to thank you all for your input about questions to ask my MO. I saw her last week. The good news is she spent 30 minutes with me answering all my questions and she did a great breast exam. She gave me a clean bill of boob health and ordered my 3D mammogram for May. The only thing that disappointed me was I felt like she didn't take my concern about my very heavy periods seriously. She said it was not caused by Tamoxifen and that it was just a part of getting older. She told me to talk to my GYN. I wish I could meet with my MO and GYN together that way I could get both their inputs on how to make my side effects better in one visit.

I still think Tamoxifen is the reason why I am having all these changes going on all of a sudden.If everything starts to go down hill in your 30s that sucks!

Does anyone else sometimes feel that Dr don't take your concerns about changes in your body seriously?

Thank you all for listening it helps to vent.

Hugs to all and I hope you all have a good week.

Diagnosed at 32 years old. DX 5/30/2017 Borderline Phyllodes Tumor 17cm. Surgery 6/27/2017 Mastectomy(right). Hormonal Therapy 9/25/2017 Tamoxifen
Log in to post a reply

Apr 15, 2019 07:03AM Lezza13 wrote:

LomLin and Beaverntx - I have done physical therapy for both hips n the past. Now I do acupuncture for my trocanter bursitis and really recommend giving it a try. It seems to help and lasts for months. I even got a groupon for it. Hope this info helps.

sm627 I have to agree with you that mds do not take changes in your body seriously. My onc says sure I have hot flashes and minor joint pain with Tami but I still have to take it. I am going to ask her about splitting the dose. After almost 7 years on it I did not think I could. Now I know. Glad you are getting that 3D mammogram. Perhaps you need to see a gyn. for your heavy periods.

Dx 12/30/2011, IDC, <1cm, Stage IIA, Grade 2, 2/23 nodes, ER+/PR+, HER2- Surgery 2/26/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Hormonal Therapy 7/15/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 15, 2019 07:28AM Beaverntx wrote:

Lezza, Thank you for your suggestion, I'll keep it in mind as a potential next step. Right now I'm working on retraining my hip muscles to do their jobs the way they are supposed to do. It has only been two weeks and I am seeing progress so I am hopeful! In the meantime I'll look into who does acupuncture in my area so I'll be prepared.😊

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 15, 2019 08:24PM Nancy618 wrote:

I may have been premature with my celebration on the new manufacturer. I've had a couple of bad days and last night I was in pain much of the night until I got up and took naproxen.

However, I was busy today and it entailed lots of walking... Well lots for me. More than twice my usual daily Fitbit steps. And my hips and legs feel good tonight. Got up out of the chair tonight after watching The Voice without grunting or groaning and walked without pain or limping.

I do think it's important to stay active and to move even when you don't feel like it. I'm going to yoga tomorrow!

Oncotype 14 Philippians 4:13 Supplements: 500mg calcium, 500mg magnesium, 3000IU Vit D3, , 800mg Turmeric, Multi-Vitamin, Femdophlius, Align Dx 3/6/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/30/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 4/16/2017 Lumpectomy: Right Hormonal Therapy 5/5/2017 Femara (letrozole) Radiation Therapy 5/24/2017 Whole-breast: Breast Hormonal Therapy 6/20/2017 Arimidex (anastrozole) Hormonal Therapy 12/25/2017 Aromasin (exemestane) Hormonal Therapy 4/24/2018 Femara (letrozole) Hormonal Therapy 9/20/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 15, 2019 08:48PM MinuteAtATime wrote:

sm627 - I am much older than you (53) but had not completed menopause before going on Tamoxofen. Every time I have a period or bleed, my OB-Gyn wants to do a pelvic exam to test for uterine cancer because I am on Tamoxofen. (Thankfully, I haven't had one in about six months. ) Have you talked with your Ob-Gyn about your heavy periods? Can you suggest to your Ob-Gyn that she talk to your MO about it?

I agree, docs should conference more with each other about these things. I honesly think a lot of times they don't know the answers, so they punt.

My biggest problem with Tamoxofen is vaginal atrophy resulting in painful sex. An older woman I spoke with said that her UCSF docs put her on the Estrogen Ring vaginally while she was on Tamoxofen to prevent vaginal atrophy. She looked at the packaage and it said "don't use if you have had breast cancer" but her docs told her it was OK, she should do it anyway. Generally about sex they said "use it or lose it" to her. Meanwhile, my docs won't help me with my vaginal atrophy and my husband and I haven't had sex in forever b/c it hurts me too much.

Is anyone else here using the Estrogen Ring or other vaginal estrogen? I've tried V-Magic and it helps a bit but doesn't resolve it. Would love to hear how others have dealt with it.

Dx 3/20/2017, IDC, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 5/1/2017 Lumpectomy: Right Surgery 5/1/2017 Mastectomy: Left; Reconstruction (left): Tissue expander placement Dx 5/4/2017, DCIS, Right, <1cm, Stage 0, ER+/PR+ Surgery 5/22/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/14/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/3/2017 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant
Log in to post a reply

Apr 16, 2019 03:34PM Beaverntx wrote:

Looking for suggestions about what folks do to protect your scalp with Tamoxifen thinning hair. With sunny days ahead I will need to do something, especially at the crown. Not enough loss at this point to get a buzz cut but definitely have a "glow" up there! Thanks for any ideas!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 17, 2019 02:45AM Rah2464 wrote:

Beaverntx I have the same issue! Yesterday I wore a hoodie to do yard work, but it was breezy and not completely warm. That isn't going to work much longer when it gets hotter. I am going to speak with my hair stylist and see if she has any suggestions beyond a hat.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 17, 2019 07:13AM Beaverntx wrote:

Rah, I'm interested in hearing what your stylist says. My hair is very fine. I tried piling it on top of my head only to discover that doing that displays how thin it has become on the sides. I really don't want a wig and prefer not to wear hats but am going to have to do something!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 17, 2019 07:34AM Lezza13 wrote:

MiniuteAtAt I like you are in menopause. I find that over the counter lubrication seem to help with that issue. I have to use lubrication every time my husband and I have sex. Also over the counter Replens is supposed to last for days to add extra moisture. I am too cautious about using anything with estrogen. Maybe others have. Best of luck

Dx 12/30/2011, IDC, <1cm, Stage IIA, Grade 2, 2/23 nodes, ER+/PR+, HER2- Surgery 2/26/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Hormonal Therapy 7/15/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 17, 2019 09:47AM rljes wrote:

Hi Everyone - I ;just started Tamoxifen (5mg) and I have to renew my Drivers License including taking a NEW photo - so I guess I had better get it over with before my hair starts thinning! 

Finished Chemo March 2018, No reconstruction "Going Flat" Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
Log in to post a reply

Apr 17, 2019 06:04PM Spoonie77 wrote:

Has anyone noticed a drastic decrease in alcohol tolerance since starting Tamoxifen?

I'm on 5mg daily in the AM and had no issues, whatsoever, with a small glass of red wine prior to starting this drug in March.

Now, after about 3 weeks, I can't tolerate any alcohol at all apparently. @ithin 30 mins or so of the wine, I was nauseous, throwing up, flushed, dizzy, and just feeling awful in general. Like I would the morning/day after a party with friends when I was 20 years younger, not after a tiny glass of wine.

What gives? Makes me worry about my liver or kidneys.

Has anyone else experienced this?

My MO is not concerned by this and just told me to avoid alcohol now.

I'm a wine gal, I like a glass every once in awhile. I'm depressed if this is for 5 or 10 years. Le Sigh.

Life long "Spoonie" who entered the BC world with IDC DX @ 41. Txt Plan: LX/SLNB/RADs. 5mg Tamoxifen = ZERO QOL so moved on to OS+AI Land. Started Zoladex 7/2/19. Will Start Arimidex 9/2/19. PS: Not a doctor, just an curious Googler. Dx 7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2 Surgery 8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/2/2019 Arimidex (anastrozole), Zoladex (goserelin)
Log in to post a reply

Apr 17, 2019 08:05PM Anxious789 wrote:

Hi, just checking in. I'm 4 weeks post final chemo, no radiation. I'm starting 20 mg Tamoxifen today. I'm planning to take it at night before bedtime. My Onco only told me the possible side effects, didn't recommend any supplements to take. I kind of scared to start Tamoxifen because still have muscle soreness ( leg & arm) due to chemo.

Dx 9/25/2018, IDC, Left, 2cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (IHC)
Log in to post a reply

Apr 18, 2019 08:28AM Beaverntx wrote:

Spoonie, I am a wine gal too and have noticed a decrease in my tolerance -- not as severe as yours. I have a bit less per glass than I used to, only have a glass when I will be staying at home (just in case of a greater reaction) and no more than 2 or 3 a week. I've also noticed my palate has changed and I am more sensitive to tannins. Bummer!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 18, 2019 11:09AM TrmTab wrote:

Spoonie, are you staying at 5mg dose or are starting at 5 and building up?

I am supposed to start next month and have been reading up on lower doses and trying to build the case for my MO.

I too am a wine girl...that would be horrible. TT

Dx 9/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 12/21/2015 Lumpectomy: Left Surgery 1/10/2016 Lumpectomy: Left Hormonal Therapy 2/4/2016 Arimidex (anastrozole) Surgery 6/3/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 1/1/2017 Arimidex (anastrozole) Surgery 9/8/2017 Reconstruction (left): Silicone implant Surgery 12/17/2018 Reconstruction (left): Silicone implant Hormonal Therapy 5/12/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Page 987 of 998 (29,923 results)