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Topic: FEMARA

Forum: Hormonal Therapy - Before, During, and After —

Hormonal therapy medicines can be used to lower the risk of early-stage hormone-receptor-positive breast cancer from coming back, shrink or slow the growth of advanced-stage or metastatic hormone-receptor-positive breast cancers, and lower the risk of developing breast cancer in certain women who are at high risk. They work by lowering the amount of estrogen in the body or by blocking the effect of estrogen on breast cancer cells.

There are several hormonal therapy medicines, including, tamoxifen (Nolvadex, Soltamox), Arimidex (anastrozole), Aromasin (exemestane), and Femara (letrozole).

Hormonal therapy is usually prescribed for multiple years. Common side effects include hot flashes, joint pain, fatigue, and bone thinning.

Note: This is a safe place to share YOUR experience, not to be influenced or influence others. Please contact your doctor about any questions or concerns you may have if you are currently taking hormonal therapy.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Dec 31, 2008 01:22PM - edited Nov 15, 2017 02:04PM by Moderators

nanna wrote:

I STARTED TAKING FEMARA ABOUT 2 WKS AGO. WHEN DOES THE SIDE EFFECTS START TO KICK IN

Edited by Mods to add content from the main Breastcancer.org site on Femara: Benefits, Side Effects and More

Dx 6/27/2008, ILC, 1cm, Stage I, Grade 1, 0/1 nodes, HER2+
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Nov 18, 2019 09:26PM Taco1946 wrote:

Mamma - don't beat yourself up. You made a rational decision based on the information/research available in 2012. Sounds like you have good pain control so live life to the fullest.

Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Nov 21, 2019 05:36PM wintersocks wrote:

Hi Moominmamma

What's you 'sorry hair situation?' Is it thinning? Mine is really bad and I have been on Femara for 7 years now. It's really upsetting me.

Dx 2/20/2012, IDC, 6cm+, Stage IIIA, Grade 2, 4/11 nodes, ER+/PR-, HER2- Chemotherapy 3/23/2012 Doxil (doxorubicin), Taxotere (docetaxel) Surgery 8/29/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/10/2012 Femara (letrozole) Radiation Therapy 9/16/2012 Breast, Lymph nodes
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Nov 22, 2019 11:32PM - edited Nov 22, 2019 11:44PM by gkbuser

This Post was deleted by gkbuser.
Dx 10/24/2016, LCIS/ILC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 11/10/2016 Lumpectomy: Right Radiation Therapy Whole-breast: Breast Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Nov 24, 2019 03:37PM ChaCha57 wrote:

I have recently broken out with red lesion like bumps on my hands, arms and legs. Saw the dermatologist and he thought it was Actinic Keratosis but it isn't, they biopsied. He said it wasn't normal, ha!, how often do we hear that? I've been on Anastrozole for 7 years, tried aromasin and Femara in the beginning but ended back on anastrozole. I have had terrible side effects when they changed manufacturers on me at the pharmacy so I have taken my first break from the AIs in 7 years (3 weeks off) and then I'm going to try the name brand arimidex to see if the skin issues will continue to improve. It has been getting much better in the last week but I have been using urea cream along with Shea butter and super mosturizers, spot treating about 50 or more of these lesions that have cropped up. I'm hopeful that the brand will make a difference as I'm too scared to stop taking them. 3 more years ūüėź I am grateful to be here fighting the SEs everyday. Also, since taking the break I‚Äôve been sleeping great and less irritable. Makes me sad to have to go back on anything but being high risk makes me regard the SEs as a nuisance I must live with

Kathy Dx 3/1/2012, IDC: Mucinous, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2+ Surgery 4/11/2012 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 5/3/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/3/2012 Herceptin (trastuzumab) Hormonal Therapy 11/1/2012 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Nov 24, 2019 04:17PM Moominmamma wrote:

yes really really thin, receding hairline, light shines through the hair, it sticks out too. Like a baby chick. Blah. I wear wigs sometimes

Dx 8/2007, DCIS, Left, Stage 0, ER+/PR+, HER2- (IHC) Surgery 9/9/2007 Lumpectomy: Left Surgery 9/16/2007 Lumpectomy: Left Dx 5/30/2012, IDC, Left, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (FISH) Surgery 7/11/2012 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Dx 9/15/2018, Left, Stage IV, metastasized to bone/other, Grade 3, 1/1 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 10/1/2018 Femara (letrozole) Targeted Therapy 10/5/2018 Ibrance (palbociclib) Hormonal Therapy 12/31/2020 Faslodex (fulvestrant) Targeted Therapy 1/10/2021 Verzenio Targeted Therapy Herceptin (trastuzumab) Radiation Therapy 3DCRT: Breast, Lymph nodes Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Nov 24, 2019 06:09PM wintersocks wrote:

Moominmama


Yes exactly the same here, I used to have very thick hair. it makes me feel depressed

Dx 2/20/2012, IDC, 6cm+, Stage IIIA, Grade 2, 4/11 nodes, ER+/PR-, HER2- Chemotherapy 3/23/2012 Doxil (doxorubicin), Taxotere (docetaxel) Surgery 8/29/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/10/2012 Femara (letrozole) Radiation Therapy 9/16/2012 Breast, Lymph nodes
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Nov 24, 2019 07:50PM Taco1946 wrote:

I've just gotten a large hat collection. Not as hot as wigs although I do wear them for special occasions.










Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Nov 25, 2019 12:44PM miranda2060 wrote:

ChaCha57, I had lesions on my palms. Switching to name brand Femara from generic letrozole almost completely eliminated the problem.

Dx 12/20/2017, LCIS/DCIS, Right, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Surgery 1/22/2018 Lymph node removal; Mastectomy; Reconstruction (right): Silicone implant Radiation Therapy 2/18/2018 External: Chest wall Hormonal Therapy 5/9/2018 Arimidex (anastrozole), Femara (letrozole) Hormonal Therapy 5/10/2018
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Nov 25, 2019 01:30PM Magari wrote:

Doing Well on AIs thread:

https://community.breastcancer.org/forum/78/topics/854403?page=40#idx_1189

I was on Arimidex for about 14 months. It was causing previously resolved plantar fasciitis to flare, so I switched to Femara a few months ago. Minor joint achiness and some hot flashes, but SEs are manageable.

I take Effexor ER 75 mg and melatonin. Naproxen as needed.


Diagnosed at 54; Bilateral mastectomy with DTI reconstruction 10/16/17; Revision surgery to switch implants 7/19/19; Cold capped during chemo - TCHP 11/26/17 Dx 9/1/2017, DCIS/IDC, Both breasts, <1cm, Stage IB, Grade 3, 1/3 nodes, ER+/PR+, HER2+ Hormonal Therapy 6/3/2018 Arimidex (anastrozole) Hormonal Therapy 8/16/2019 Aromasin (exemestane) Hormonal Therapy 9/16/2019 Femara (letrozole) Hormonal Therapy 1/14/2020 Arimidex (anastrozole)
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Nov 25, 2019 02:27PM Moominmamma wrote:

wintersocks I hear you. I have developed an obsession with other people's hair and how beautiful it is! Theres a tv commercial with a guy who is the same way about his hair loss - I find it very funny because I completely understand!. There are women who go bald - shave it all off - but I cant go there yet. Hats are a good idea. I am going to look at a better wig too as I cant imagine my hair will improve. I tell myself at least I am here even if my hair is not!!!

Dx 8/2007, DCIS, Left, Stage 0, ER+/PR+, HER2- (IHC) Surgery 9/9/2007 Lumpectomy: Left Surgery 9/16/2007 Lumpectomy: Left Dx 5/30/2012, IDC, Left, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (FISH) Surgery 7/11/2012 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Dx 9/15/2018, Left, Stage IV, metastasized to bone/other, Grade 3, 1/1 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 10/1/2018 Femara (letrozole) Targeted Therapy 10/5/2018 Ibrance (palbociclib) Hormonal Therapy 12/31/2020 Faslodex (fulvestrant) Targeted Therapy 1/10/2021 Verzenio Targeted Therapy Herceptin (trastuzumab) Radiation Therapy 3DCRT: Breast, Lymph nodes Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Nov 26, 2019 09:22AM - edited Nov 26, 2019 04:10PM by Mavericksmom

This Post was deleted by Mavericksmom.
Dx 6/6/2003, IDC, Left, 1cm, Stage IA, Grade 1, 0/24 nodes, ER+/PR+ Dx 12/4/2018, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH)
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Nov 26, 2019 03:33PM Taco1946 wrote:

Hair is definitely an issue but I am developing a large hat collection. Always hit the thrift stores. I did think I looked pretty good bald but I haven't shaved it off yet although I threaten, especially right after I shampoo.

Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Dec 9, 2019 03:55PM Abbidoodle wrote:

I will be receiving my last radiation treatment in 3 days, and my MO wants me to start on letrozole the next day. According to my biopsy results, my tumor was only 7% estrogen driven. I'm very concerned about side effects and I just wanted to join this forum to learn more about them. Any advice would be appreciated. Thanks everyone!

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Dec 9, 2019 05:31PM miranda2060 wrote:

Hi Abbidoodle. Congrats on almost completing radiation! I started on anastrazole and switched to letrozole, then to name-brand Femara (letrozole). I am tolerating it well. When I was on letrozole, I developed bumps on my palms -- almost none of that on Femara. Both the generic and name-brand were better for me in general than anastrazole. Keep an open mind about the drug -- you may have little or no side effects.

Dx 12/20/2017, LCIS/DCIS, Right, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Surgery 1/22/2018 Lymph node removal; Mastectomy; Reconstruction (right): Silicone implant Radiation Therapy 2/18/2018 External: Chest wall Hormonal Therapy 5/9/2018 Arimidex (anastrozole), Femara (letrozole) Hormonal Therapy 5/10/2018
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Dec 9, 2019 07:46PM Abbidoodle wrote:

Thank you, Miranda 2050. I'm glad you're doing well

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Dec 12, 2019 01:04PM Nash54 wrote:

HI Abbidoodle Ive been on letrozole for 5 years...I'll find out in Jan if I am to continue. I think the first couple of months there was some adjustment but overall have not had any major problems. I try to stay active...yoga mostly Best of luck!

Dx @59 ...Memento Vivere (remember to live) Dx 8/27/2014, IDC, 1cm, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 9/24/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/23/2014 Multi-catheter: Breast Hormonal Therapy 11/17/2014 Femara (letrozole)
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Dec 13, 2019 03:55PM KCKCKT5 wrote:

Good Afternoon,

Wanted to reach out and see if anyone has been put on Metformin for high glucose and noticed joint pain better. I'm on femera and my glucose it high and I have heard it helps.

Any feed back helps!

Thanks

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Dec 13, 2019 06:32PM Taco1946 wrote:

I started metformin after about 8 months on AI's. Primary said there was evidence for joint relief and I was on the border line for high glucose. His comment, "I know you don't want to take another pill so it's up to you." Hard for me to evaluate how much it's relieved joint pain as mine were in pretty bad shape and I have had a knee replacement since BC. I have been able to lose a few pounds when everyone seems to be having trouble holding the weight down with these fun drugs so that's a plus for me regardless of joint pain change.

Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Targeted Therapy
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Dec 18, 2019 08:50AM Annie60 wrote:

I've been following and have learned a lot. Can someone explain trigger finger or in my case, it's my thumb. It locks up during the night and feels like it 'pops' back in place with I move it with the other hand. So sore and today swollen. What is the treatment? Also, what are you using for insomnia?

Dx 8/28/2018, IDC, Right, 1cm, 1/3 nodes, ER+/PR+, HER2+ Dx 8/28/2018, DCIS/IDC, Right, 1cm, Stage IIIA, Grade 2, 2/3 nodes, ER+/PR+, HER2+ (DUAL) Radiation Therapy 5/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/21/2019 Surgery Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy AC + T (Taxol)
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Dec 19, 2019 06:18PM Magari wrote:

For insomnia, I take 5mg of melatonin before bed. My MO just prescribed low dose Gabapentin for my hot flashes, which I also take before bed since sleepiness is a SE.

Diagnosed at 54; Bilateral mastectomy with DTI reconstruction 10/16/17; Revision surgery to switch implants 7/19/19; Cold capped during chemo - TCHP 11/26/17 Dx 9/1/2017, DCIS/IDC, Both breasts, <1cm, Stage IB, Grade 3, 1/3 nodes, ER+/PR+, HER2+ Hormonal Therapy 6/3/2018 Arimidex (anastrozole) Hormonal Therapy 8/16/2019 Aromasin (exemestane) Hormonal Therapy 9/16/2019 Femara (letrozole) Hormonal Therapy 1/14/2020 Arimidex (anastrozole)
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Dec 19, 2019 09:53PM Abbidoodle wrote:

Thanks for your input, Nash54. Happy holidays to you and yours and all my fellow breast cancer ladies@

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Jun 3, 2020 09:55AM miranda2060 wrote:

Has anyone else had skin lesions caused by letrozole/Femara?

I had them a year ago, mostly on my hands, and asked my MO to switch me to brand-name Femara. It worked fine until just recently, when I got the WORST outbreak of itchy bumps, large and small, all over my hands (palms, especially fingers, backs of hands, wrists, all over), groin, torso, buttocks, legs). Mad itching that woke me in furious misery at night.

I stopped taking the Femara and had a Zoom consult with my primary care doc. In the absence of other symptoms, and because I had them before, he agreed it was the letrozole, and recommended Benadryl and ibuprofen, which I'm taking. He said letrozole's the drug's half-life is at least 10 days, so could take time.

Not sure where my AI journey will take me next. The angry red bumps/welts on my hands are unbelievably hideous. They are a bumpy mess. I hope they clear up soon.

I sent my MO this paper about this particular side effect. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4129361/

Dx 12/20/2017, LCIS/DCIS, Right, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Surgery 1/22/2018 Lymph node removal; Mastectomy; Reconstruction (right): Silicone implant Radiation Therapy 2/18/2018 External: Chest wall Hormonal Therapy 5/9/2018 Arimidex (anastrozole), Femara (letrozole) Hormonal Therapy 5/10/2018
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Aug 27, 2020 02:44PM Fairchild wrote:

Hey, folks, I'm wondering if any of you had muscle/bone pain severe enough to warrant discontinuing the letrozole. I've been on it about 2 years, without much in the way of side effects at all. But about 3 months ago I started having increasingly severe pain that is widespread, including in my lower back, hips, knees, elbows, hands and even the muscles on each side of my neck. It's gotten bad enough that I'm having marked pain at only 1/4th of my normal mile walk, and by the 1/2-way point, I thought I might not be able to make it back to the house. I finally decided to try a week off of it, and after only 3 days off, I can tell that this pain is much better. I guess I should tell my oncologist, but honestly, what's the point, because I know I need to take it for 5 years. I'm worried about breaking a hip, since my osteoporosis is pretty significant, so it scares me when my hips hurt that much when I'm walking. I know exercise is supposed to help, so I'm reluctant to stop walking. Is there any recommendation your doctors have made that really helped with this or is it pointless to talk with them about it? I'm 63, so this seems to be the drug of choice. Thanks!

Fairchild Dx 5/5/2018, ILC/IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH) Surgery 7/25/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 9/6/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/8/2019 Herceptin (trastuzumab) Targeted Therapy 1/9/2019 Perjeta (pertuzumab) Hormonal Therapy Aromasin (exemestane), Femara (letrozole)
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Aug 27, 2020 04:23PM PatsyKB wrote:

I'm 69+ years old I've been on Letrozole (Femara) for over 2 years now and count myself among the fortunate as I have not had any discernable side effects. At one point last year, I developed a lot of hip pain in one hip. My first visit at that point was to my oncologist because I knew he would be able to help me figure out if this was Letrozole pain or something else. (It turned out to be something else in my case.)

My advice would be to talk to your Medical Oncologist. There IS a point in doing so because there are OTHER Aromatase Inhibitors which might not cause the same pain side effects (if your pain is, in fact, due to the Femara). My oncologist had told me early on that we'd start with Letrozole and if I had negative reactions or side effects, we'd try another AI.

As far as osteoporosis goes: I have osteoporosis and so when I went on Letrozole, my oncologist did a couple of things. He increased the amount of calcium I need to take each day. He also increased the amount of Vitamin D3 I need to take. He agreed that lots of weight bearing and resistance exercise is a necessity. And finally, he ordered twice yearly Prolia shots to reduce the bone loss caused by Letrozole. (Sometimes Prolia even reverses bone loss.) My yearly bone scans have either held steady or IMPROVED each year.

In short - I urge you to talk to your oncologist. He or she is your go-to-cancer guru.

‚ÄúRing the bells (ring the bells) that still can ring Forget your perfect offering There is a crack in everything (there is a crack in everything) That's how the light gets in.‚ÄĚ -Leonard Cohen Dx 4/10/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR-, HER2- (FISH) Surgery 5/7/2018 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/23/2018 Multi-catheter: Breast Hormonal Therapy 6/12/2018 Femara (letrozole) Surgery
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Aug 27, 2020 06:07PM GeorgieGirlKC wrote:

Fairchild, this is just an idea, you might check to see if the manufacturer is different on your latest script especially since you have tolerated the med for 2 years. Might be a slight difference between additives?? Hope you and your oncologist can figure out what is going on.

Dx 7/2013, IDC, 3cm, Stage IIB, Grade 3, 2/18 nodes, ER+/PR+, HER2- (FISH) Dx 7/16/2013, IDC Chemotherapy 7/31/2013 AC + T (Taxol) Surgery 12/9/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 1/12/2014 Breast, Lymph nodes Hormonal Therapy 3/16/2014 Femara (letrozole) Surgery 5/4/2014 Reconstruction (right): DIEP flap Surgery 8/14/2014 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
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Aug 27, 2020 07:05PM quinnie wrote:

I am fortunate so far I have no joint pain with Letrozole. I have been on it only 2 months but have horrible hot flashes. My MO increased my lexapro but did not help. I know effexor can help but I do not want to change antidepressants. Does anyone know of any natural methods to decrease hot flashes? I guess I should tell my MO. I wonder if the other AL's have less SE's of hot flashes. I know hot flashes seem minimal but last night i didn;t get to sleep until 4 am. Fortunately i am retired and dont have to get up to work. The extremely warm weather here and wearing face masks don't help the situation

Dx 11/30/2007, DCIS, Right, 1cm, Stage 0, Grade 2, 0/0 nodes, ER-/PR- Dx 2/26/2020, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Radiation Therapy 5/14/2020 Whole-breast: Breast Hormonal Therapy 5/25/2020 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Aug 27, 2020 11:07PM LillyIsHere wrote:

Fairchild, I start having muscle+ligaments+bone pain on my right side of the body in 6 months after starting letrozole. My MO recommended me to start Zometa for 2 reasons: 1. to protect bones in case cancer decides to go here, 2. several independent research, especially in Europe have shown to slightly reduce the recurrence. Took me a while to make up my mind and I did it last week. After a day of flu like symptoms, the rest of the days have been great! My joint+body pains are gone. I don't know why. I started letrozole with normal bone density. I assume lots of crap has happened since then. I'm showing my experience in case you want to ask your MO if Zometa would work for your osteoporosis and it may reduce the pains.

Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole)
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Sep 8, 2020 06:00AM Lanne2389 wrote:

Fairchild and LilyWasHere,

I just finished my last Zometa infusion last week - I had them twice a year for 3 years, starting when I started Letrozole. My MO also said the evidence showed Zometa likely helped fight recurrence and protected against bone loss that the first few years of Letrozole can cause. I’ll have a bone scan in 6 months to see if there has been any loss. I had almost no side effects from Zometa, felt a little slow on day 2 but otherwise no problems.

Lanne

Lanne Dx 11/20/2016, IDC, Right, 3cm, Stage IIB, Grade 1, 3/17 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 1/3/2017 AC + T (Taxol) Surgery 6/14/2017 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 8/8/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 9/15/2017 Femara (letrozole) Surgery 7/17/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Sep 20, 2020 11:25PM - edited Sep 20, 2020 11:28PM by Wheatscapes

Hello all - Started Letrozole a month ago. The first few days were OK, but I did have a bit of nausea and headaches, and nose bleeds. Weird. Then I had my final reconstruction surgery from BMX and it almost didn't happen because my blood pressure was incredibly high. Turns-out all my side effects were due to the Letrozole causing high blood pressure. Went off the Letrozole for a month and then started again - After only two days my blood pressure was through the roof! Leg and hip pain/spasms also bad. And nose started bleeding again. Mind you, my PCP had put me on a BP med. It seems the BP med is no match against the effects of Letrozole. Now my side effects are leg muscle cramps/pain, hip pain, neck stiffness, red eyes, and mega high blood pressure. Anyone have any advice on what tomdo

5/9/2019 - Dx IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Surgery 6/4/2019 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/9/2019 Herceptin (trastuzumab) Chemotherapy 7/9/2019 Taxol (paclitaxel) Hormonal Therapy 10/27/2019 Fareston (toremifene), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/15/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Sep 21, 2020 12:14AM LillyIsHere wrote:

Wheatscapes, there are 3 types of AI, one of them is letrozole. Can your MO prescrible another one for you to use instead of letrozole?

Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole)

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