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Topic: Tamoxifen, fatigue and emotional side effects

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jan 8, 2009 07:30PM

momodent wrote:

Hi- I'm so grateful to have finally come across this site all the way from Norway:) Yesterday I read what some of you had written about the psychological side effects of Tamoxifen, and felt like I might not be crazy to be claiming that I experience these symptoms after all. (I have physical se's too, but find them easier to handle..) However, my oncologist highly doubts the existence of these side effects, and it's hard to find any good information (they are not even listed on the note that follows the medication from the medical company). I have several questions for you:

1: Would those of you who have experienced fatigue, sadness, emotional unstability, anxiety or increased anger that they feel is directly connected to the medication tell me about your experience with this? 

2: Did you find that the se increased or decreased with time? (I have now been on tamox for 21 months and feel increasingly fatigued and unstable..)

3: those of you who quit the drug because of the se's or other reasons- how did these symptoms change- if they did, and how long did it take? 

4: Does anyone have experience with medical alternatives to remedy these se's?

Thank you so much already, and many warm hugs to all the bc sisters in the US from the wintery north!

Dx 11/1/2006, 2cm, Stage I, Grade 2, 0/2 nodes, ER+, HER2-
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Jan 8, 2009 07:46PM dmh2418 wrote:

Hello and welcome aboard!  I'm pretty new at this bc stuff but have had my hands full with Tamo.  I started Tamo at the end of July 2008.  My periods stopped totally (that's the good part).  Within 3 months I was having terrible joint pain and fatigue.  By December I started having trouble breathing and saw my onc on Dec 2nd.  She told me that Tamo doesn't have se's and that it was my lupus flaring up.  I went on some steriods even though I knew it wasn't the lupus.  By this time I was also an emotional wreck, crying a lot, confused, etc.  I finally had enough and called my onc and told her I was stopping for awhile.  She said I could take a one month break to see how I feel.  Other than a terrible cold, I feel so much better.  I got my period back after just two weeks but, had a pelvic ultrasound today and they found a large cyst on my ovary (one of the se of tamo).  Maybe now she'll believe me.  I'm sure she'll be calling as soon as she gets the results.  Until then, I will be tamo-free as long as I can go without risking my health.  I would love to look into alternatives but don't know if my onc is willing to try.  I'm willing to try a new onc very soon.

Good luck and I wish you the best in your care.

Dx 6/20/2008, DCIS, Stage 0, 0/0 nodes, ER+/PR+
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Jan 8, 2009 08:01PM pabbie wrote:

Hi-I have been on tamoxifen since Aug. 2008. I started at 10mg and titrated up to 20 mg. over a months time. I have had long-term fatigue since my first cancer in 1999-chemo & radiation. My doc put me on celexa; I think she thought it was depression. My dr got sick of me complaining to her (I think) & she referred me to a psychiatrist in which I started taking clonazapem for anxiety and insomnia. Fast forward Feb. 2008, breast cancer dx-Surgery, radiation & tamoxifen. My psychiatrist has added a mood stabilizer to the mix. My onc said clonozapem works well for the anxiety of tamoxifen. I tried Femara and Arimidex (alot of gastrintestinal upset, joint pain, and too much anxiety). Tamoxifen s/e's:hot flashes, GI upset (a little better), anxiety, and hair loss. I have to make the tamoxifen work because I didn't do the chemo. I would suggest seeing a psychiatrist; perhaps that deals with cancer patients. Good luck and take care of yourself.

May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
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Jan 8, 2009 10:08PM phoenixrising wrote:

Yes, I definitely experienced all of #1 and I eliminated it by splitting my tablet in half and taking half in the morn and half at night.  Within 2-3 days, my mood was much better. And yes, it was getting worse over time.  I also had a terrible time with my eyes which were also getting worse over time.  Dry, burning and fatigue upon which drops made little difference.  Only going off Tam gave me any relief.   Because I felt much better emotionally by splitting my dose I wondered if I might have a metabolism problem.  So I had my dna checked and found I was an intermediate metabolizer.  I have since gone on an AI.

There is a school of thought that if you are having se then certainly the tam must be working.  This would make sense to me except that there are many who are poor metabolizers and have horrific se and many normal metabolizers who have few.  And then there are some who do not believe in the test.  We sure do have a lot more to learn.

But before you give up, try splitting the dosage.  You will still get your 20mg, just smaller amounts at a time.  The tamoxifen tablet has a score (line) through it, this means you can split it. If that doesn't work, then we need to move on to plan B. 

Best of luck to you


Dx 5/1/2006, IDC, 2cm, Stage IIB, Grade 3, 3/6 nodes, ER+/PR+, HER2-
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Jan 8, 2009 10:24PM phoenixrising wrote:

I forgot to give you this link.  As you will see depression is listed at the bottom of the list, but it's still listed.  You could print it off for your onc.


Dx 5/1/2006, IDC, 2cm, Stage IIB, Grade 3, 3/6 nodes, ER+/PR+, HER2-
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Jan 14, 2009 06:16PM christyz wrote:

I am currently experiencing depression, anxiety, sadness and irritability and am pretty sure it's got to be connected to Tamoxifen.  I've been on the drug now for 18 months, and really didn't have side effects for the first year and a bit longer even, other than increased night sweats (which I was already having from the age of 36 anyway, so that wasn't really new).

There is definitely some stuff going on in my life which I also know is contributing to my moods, so it's hard to tell where actual problems end and Tamoxifen starts;  but my mental state seems too extreme for what's going on in my life.

It seems that my periods have gotten more irregular in the past 6 months, and I'm wondering if this is connected - as if maybe I'm experiencing the same symptoms that menopausal women experience?  

I have an appointment with an acupuncurist and a Chinese herbalist next week, and I am going to try and take care of it with natural methods.  I know the doctors are going to want me to try and antidepressant, and I'd rather avoid more drugs if possible.  

 If I cannot help this with natural remedies and with taking care of myself through diet, yoga and massage, then I will consider stopping Tamoxifen at the 2 year mark (in about 6 months), because I've heard that you can get significant benefit from taking it for 2 years.  

 The other side effect that I have had for at least a year now is almost zero sex drive, and that's been very hard.  I don't know what one does about that, and would be curious to know how many other folks experience this.

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Jan 14, 2009 07:01PM - edited Jan 14, 2009 07:02PM by karol61


Sorry that you have sadness,depression and irritability. 

I don't have those S/E probably because I'm on Effexor. Yoga,diet,and exercise have helped me with s/e like hot flashes+ low energy. Maybe you're in perimenopause.   My sex drive has been diminished since Tamox because of vaginal dryness. My onc recommended Replens which helped a bit. But not enough, I'm post menopausal (due to hysterectomy + oomphectomy).  So he gave me an Rx for Estrace cream and it has really helped boost my libido.   Hope this info helps you.  Karol 
Dx 3/22/2007, DCIS, 1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+, HER2+
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Jan 14, 2009 07:03PM karol61 wrote:

hope you can read my post....can't get rid of all those <address>things!

Dx 3/22/2007, DCIS, 1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+, HER2+
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Jan 15, 2009 08:53AM christyz wrote:

Hi,  Karol,

Thanks for input.  Yes, I am definitely in peri-menopause.  However, I think the Tamoxifen might be making it worse.  I am only 42 years old, so I don't think I'm in full-blown menopause yet.  The problem is that it's hard to know how much of it is the drug, and how much of it is other stuff.  But, thanks for your reply, I appreciate the ideas.

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Jan 15, 2009 01:02PM pabbie wrote:


I'm just recently experiencing more fatigue, sadness, joint pain, diahreah, & migraines, & loss of concentration. I've now been on tamoxifen 6 months. I started crying in my primary care physicians office. I think it's the tamoxifen. I might try cutting back again to 15mg. Wow, what a roller coaster ride and I'm not even working. Take care of yourselves.

May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
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Jan 21, 2009 09:54PM Hogtied wrote:

I have definitely noticed that the hot flashes are less severe when I take Tamox in the evenings. I mentioned this to my oncologist and she said she's heard others say that playing with time of day you take your dose can change your hot flashes. Also, been on Tamox for about 1-1/2 years and the hot flashes have definitely lessened since the beginning. I get an anxious feeling right before I get a hot flash. Anyone else have these "auras"?

 Chemo caused my periods to stop, and they haven't started back up since. Vaginal dryness and reduced libido has been a problem since chemo. I refuse to use any hormones, so Estrace is out, but Astroglide works very nicely. As for the question of reduced libido, there seems to be a use it or lose it effect. Just go for it (I've kind of put it on my to do list) and maybe you'll find that the emotional intimacy is enough on those days when your libido is low. 

I hit on this forum because I've been having quite a lot of anxiety. The feeling is almost like a little mini panic attack, with a nervous feeling in my stomach (like you feel when you're about to perform or give a speech). It's been getting worse over time. It's not enough for me to take additional medication (I'd have to be almost non functional before I'd consider it, I think) but it's interesting to see that it could be the tamox. Any ideas on reducing the anxiety? 

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Jan 21, 2009 10:55PM AnneW wrote:

I had a lot of problems with Tamoxifen. I lost about 17 pounds (wish I hadn't found them again!), I was very fatigued, and my brain didn't work. I never did chemo, so that wasn't to blame.

In retrospect, the fatigue was a form of depression. But the cognitive dysfunction was what was most intolerable to me. I would be in the middle of writing a prescription that I had written a thousand times before, and I'd draw a blank. Or I'd see someone I knew very well, and couldn't call their name.

Seven days after stopping tamoxifen, I actually could feel the lightbulb switch back on in my brain. It was that dramatic.

I got on Effexor after that in anticipation of hot flashes associated with Lupron/Arimidex. I didn't realize the extent of my low-grade anxiety till I got on the medicine, and the anxiety melted away. Till that point, I would have argued that I was fine. Since then, I have stayed on an SSRI, just to keep myself on an even keel.

Tamoxifen is not the answer for everyone. And there are other options. Life's too short to be miserable with treatment.


2002 IDC stage 1, grade 1, rads & AI Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Jan 21, 2009 10:57PM karol61 wrote:

Hi Hogtied,

Yes, my hot flashes have lessened and I do get an "aura" or warning before I have them.

I never thought I'd ever use any hormones but i used astroglide,+ replens and the dryness was still there and even caused pain.  Now I use Estrace cream,  a tiny bit of it. it has helped a lot.

For anxiety, which probably is a Tamox side effect,I do relaxation breathing, yoga,walk, draw and paint.

Hope this helps you. 

Dx 3/22/2007, DCIS, 1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+, HER2+
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Feb 17, 2009 02:01PM CABC40 wrote:

It took me awhile to find a site which listed fatigue as a Tamoxifen side effect.  I have been on it since last June, and I absolutely hate it.  I have low energy, as well as the hot flashes.  The fatigue is what bothers me the most.  I talked to 2 different Drs. about it.  One suggested taking an antidepressant - which I did not want to start another drug.  The other wondered if I was low on Vit. D - which I am not.  I always take a multivitamin, and also Calcium + Vit. D.  In the last 8 months, I have skipped a day (probably a total of 5 times), just to see if I have more energy.  More often than not, I do.  Anyway, I just wish a Dr. would recommend me trying something different, so I don't feel like I HAVE to take Tamoxifen.

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Feb 17, 2009 10:02PM Valeriex wrote:

I have finished my 5 years of tamoxifen.  What really upsets me is that the side effects of tamoxifen have been attributed to menopause.  Well.......the menopause was caused by chemo.  So whether it is chemo, tamoxifen, whatever, it certainly was caused by my breast cancer treatments!  So help me doctor!  I have friends that are my age and going through menopause naturally.  Some take hormones, some don't.  But the complaints from them aren't what I had gone through.  I am tired of complaining.  I know that I will never have my old life back.  I know this.  But I would sure like to feel my concentration is somewhat improved.  Or the sex drive.  Or the joint achiness.  I am hoping and waiting to see the improvement.  Already a bit of improvement in the concentration.  My last day of tamoxifen was mid-Jan.  We will see......

Dx 5/15/2003, IDC, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2-
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Feb 17, 2009 10:41PM awb wrote:

I just finished my 5 years of tamox 4 months ago and I can't say I see much difference in being off it as compared to being on it. I still have the hot flashes, the insomnia and the achiness.  My oncologist has always attributed my SEs  more to estrogen depletion from my surgical menopause than from the tamox. I haven't always agreed with him on this.  In fact, I've always blamed it on the combination of the two factors. But I was kinda  expecting some of these issues to resolve once I was done with the tamox--but no such luck.


"I don't know what the future holds, but I know who holds the future" Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes Surgery 9/16/2003 Lumpectomy: Right Hormonal Therapy 10/30/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/5/2005 Prophylactic ovary removal Hormonal Therapy 2/28/2009 Evista (raloxifene)
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Feb 26, 2009 10:32AM - edited Feb 26, 2009 10:32AM by Donna136

My doctor gave me a 6 months holiday on a half dose of Tamoxifen (1 took 20mg every other day) to give me a rest from side-effects, it took a couple of months to feel the effects but my periods came back and I started to feel better.  Have been back on the full dose since November and the side-effects are intensifying - night sweats, foggy brain, anxiety, tiredness.  I'm meditating and trying hard to be positive but it's not always easy.  Sometimes I feel like just stopping!  But before I do, I'm thinking of trying natural progesterone cream in conjunction with the tamox - has anyone else tried this?

Dx 11/21/2004, DCIS, 4cm, Grade 3, 0/36 nodes, ER+/PR-, HER2-
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Apr 6, 2009 10:17AM tnokes wrote:

Saturday evening I had a true blue meltdown and flushed my prescription. Cry I've had enough of that!
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Apr 8, 2009 06:33PM Nancyab wrote:

I certainly am glad to see that I am not the only one struggling with this stuff! I've been on it since Aug 07 with Effexor and I can tell you like clockwork 10 minutes after I take it I have a hot flash. I estimate I have 10 to 15 day, and my nights are miserable. I am so fatigued and depressed. I cry alot and I can't be intimate with my husband because it is so painful. I have tried everything from ky to Replens nothing helps. My onc. says going off Tamoxifen is not an option. I see her again in May and like tnokes I feel like chucking it.

Nancy Dx 11/20/2006, IDC, 2cm, Stage II, Grade 1, 2/19 nodes, ER+/PR+, HER2-
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Apr 17, 2009 12:47PM tnokes wrote:

Nancy I couldn't take it anymore. I felt like I was losing control of my life and I just couldn't let that happen. I went to my regular MD. She could tell that I was stressed, depressed and not myself. She put me on Lexapro which has helped tremendously. She also put me on Neurontin to help with my foot pain. I'm still waiting on those results but I'm taking it. I went back to my original RX which is Arimidex. The Lexapro has given me my life back!!!!!!! I just pray the next 4 years fly by so that I can stop the Arimidex all together.

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Feb 2, 2010 05:51PM operagirl wrote:

I'm not sure if anyone is on this thread any longer.  But just in case...I just started Tam 6 weeks ago & the side effects have come in with a bang.  Dryness, hot flashes, anxiety, & bladder issues.  I was told all of these are part of the deal.  Anyone have experience seeing a naturalpathic (sp?) doc?  I'd really like to stay off all extra meds if at all possible.  Doc said to try Primrose oil.  I started it yesterday, hopefully, it will give me relief. I liked the suggestion to split the pill up.  I will definitely give that a try. 

Dx 9/9/2009, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+
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Feb 3, 2010 07:39PM Psalm121 wrote:

Hello OperaGirl

I just picked up my tamoxifen prescription today.  I have picked up that bottle 10 times in the last 3 hours and set it back down....I know I will take it, but doing so is taking me to the next phase of this process and I just dread side effects when I am just now starting to feel better.  Last chemo was Jan 7th.  My oncologist told me to take Vitamin E to help with hot flashes (which I have already been having, probably due to chemo) Vitamin E: take 3 400 I.U. capsules daily...even if it doesn't help with hot flashes, I believe it may help me anyway....(muscles, skin, nails, etc).

I have gained 10 lbs. since Jan 7th chemo...and I have GOT to lose some weight!!  I'm afraid I'll start the Tamoxifen and gain MORE weight.  I'm just now getting more energy, so I'm doing more and plan to start walking, etc. I go back to work on Feb 8th after having been off work since Sept. 11th, 2009, so I'm sure that will help increase my activity....I just hope I can hang in there and the girls don't have to pick me up off the floor!

I've been so thankful for these message boards.  I've learned so much....with much more to learn obviously.  Look forward to hearing from you!

Dx 7/27/2009, IDC, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 9/15/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/5/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/4/2010 Surgery 8/15/2010 Reconstruction (right)
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Feb 7, 2010 10:52AM rebeccacollins1 wrote:


I have been on tamoxifen for 18 months now and I think I have had side effects.  My periods had stopped during chemo but returned a year into the tamoxifin and the vaginal dryness improved.  I also experienced alot of fatigue and breathlessness which turned out to be an underactive thyroid maybe brought on by the tamoxifin or maybe not, no-one seems to know, but I am now on thyroxine which took a while to get the right level for me but now I feel great most of the time and the thyroxine is only replacing the thyroid I am missing, so its quite a natural drug to take.  Good luck and stay well.

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Feb 7, 2010 12:34PM pinkribbongirl wrote:


Hello, I was wondering how the Tamoxifen was going?  I had my last chemo on Jan14th.  I go to see the oncologist on Feb 14th for my first check up, and to start taking it.  I'm getting pretty nervous about it after reading what everyone had to say about it.  My body still hurts so bad from the Taxol, I can't imagine adding another drug to my system.  Also, has the vitamin E helped with the hot flashes?  For someone who has always been cold...these hot flashes are something else!!  The onco. told me they would get much worse with the Tamoxifen:)

Best wishes to you, pinkribbongirl

Dx 7/2009, IDC, 3cm, Stage II, 0/3 nodes, ER+/PR+, HER2-
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Feb 7, 2010 04:38PM Psalm121 wrote:

Hi PinkRibbonGirl!

Well, so far, I'm doing okay with the Tamoxifen...and I'm so surprised! After initially being so apprehensive and hesitant, I started taking it and this is my 5th day.  Not a great reference range, I know.  But...I, like you, was expecting hot flashes to be sooo much worse with the Tamoxifen.  I started the Vitamin E on 2-2-10 and then the Tamoxifen on 2-3-10 (I had to wait for it to be delivered to my pharmacy). 

I, too have always been one to be freezing when everyone else is comfortable.  My husband used to say I wasn't comfortable unless it was at least 80 degrees outside!  You are so right, I really dreaded adding more drugs to my system having just finished Cytoxan/Taxotere chemo on Jan. 7th.  But, I also knew that the Tamoxifen will be my little mini-shield against a recurrence and/or a cancer in opposite breast.  With that in mind, I decided to call Tamoxifen "Vitamin T" and think really positive thoughts every time I take it!  My Onc prescribed 10 mg tabs for me to take twice daily...he said it didn't matter when I took them, just as long as I take 20 mg. daily.  So I take one 10 mg tab in the a.m. and another in the p.m.  He said I could adjust the when I take it part to suit my needs/responses to the medicine.  I drink a big glass of ice-water everytime I take it, too.  My hot flashes are NOT worse, if anything, during the day they are milder.  I still have them through the night, but not as frequent or severe. 

I see you were diagnosed in July 2009, same as me....did you have a mastectomy?  So nice to hear from you....I've been craving a talk with someone who totally gets all this bc stuff.  Looking forward to hearing from you.

Dx 7/27/2009, IDC, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 9/15/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/5/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/4/2010 Surgery 8/15/2010 Reconstruction (right)
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Feb 7, 2010 04:52PM KorynH wrote:

You asked for those of us who quit the drug. Well, I quit the drug thinking I was allergic to it, but when, after 3 months I kept having the allergic symptoms, we realized that it must have been to something else, and not the Tamoxifen. Then my oncologist asked me if I was still having periods (menses) after chemo last spring and I said no. That was when he told me he didn't have a problem with me not taking Tamoxifen because the Zebra study shows that women who stopped menstruating after chemo (I was 44 when diagnosed and pre-menopausal) show the same survival and reduced recurrence rates as the women on Tamoxifen. So I said goodbye for good to it. There are over 18 thousand articles on Google supporting the results of the Zebra study. It may not be the "standard of care" here in the USA, but is scientifically supported regardless.  To offset the hot flashes caused by early onset menopause I use progesterone cream from the health food store. Within 3 days I stopped having hot flashes. My oncologist also supports this practice. I'd talk these over with your doctor before pursuing anything on your own, but if he doesn't support this you may seek a 2nd opinion.
KorynH -age 44 at diagnosis (2008) , IDC 1.6cm , ILC 1.6cm ,Rt. mast. 10/08, 0/6 nodes,stage 2a, gr. 3, ER+/PR+, Her2NU+++, BRCA Neg.,TCH chemo 12/08 - Herceptin completed 12/09, T.E., silicone implant exchange July 2009
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Feb 8, 2010 01:17PM pinkribbongirl wrote:

Hi Psalm121,

I was diagnosed in July of 09, My husband actually found the lump months before, but I just sort of put it off about 8 months until my yearly check up with the gyno.  Pretty dumb move on my part considering my mom had breast cancer 15 years ago!!  I just didn't think it really could be, after all I'm just 39 years old:)  My gyno said that it usually hits 10 years sooner in the next generation.  My mom found out when she was 49, and myself at 39, so that was pretty weird.  I actually opted to do a double mastectomy with immediate reconstruction.  It went pretty good...more soreness than I expected to have to a longer period of time.  My surgeon told me that some women just take Tylenol after surgery and are fine, so I felt like a total wimp when that didn't cut it for me!!  I had some other stuff that went along with it, when we went to see my Onco. for the first time, he said that we could start chemo once we found out what the spot on my lung was.  This threw us for a loop, cause this is the first we had heard anything of this.  Anyway we did a pet scan, and it showed the spot in my lung, and also my ovaries were hot.  This really freaked us out.  They did an ultrasound of the ovaries, and it came out ok, then a biopsy of the lung and it showed to be some sort on infection.  Needless to say, we were very relieved to hear this, but they still had to find out what kind of infection it was before they could start chemo.  They wanted to go in and do another lung biopsy, but my family dr said no way to soon and to hard on my body.  So he thought we should go to Mayo.  So we went to Mayo, and they did surgery and removed the spot, and found out that it was Valley Fever from being in Arizona!!  So, after all of that I was finally able to start chemo.  I did 4 A/C, then 4 Taxol.  For me the Taxol was alot harder on me than the A/C.  After my first Taxol Neulasta, I saw my family dr, and he thought I looked terrible, so he wanted me to have my blood drawn, and my white count was 33,000.  So he had me go up to Mayo, and they brought in a Hematologist, and he said I had CML, a form of Leukemia!!  Anyway, to make a very long story short, we found out the next day that it was just a combo of the two drugs together.  My counts hadn't dropped as much with the Taxol, as with the A/C, so I didn't have to have the Neulasta shot anymore.

I am scheduled to have my exchange surgery on the 8th of March.  I'm a little nervous about this as I hate to subject my body to more, but on the other hand, I'm excited to get these hard rocks out of here!!!  Am hoping for great results with the implants.  Hopefully not too high of expectations though!  I have the same PS as my mom did, and she looks great!

I will ask my Onco if there's anything to take for the body aches when I see her on Thursday!!

Stay in touch, pinkribbongirl

Dx 7/2009, IDC, 3cm, Stage II, 0/3 nodes, ER+/PR+, HER2-
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Feb 8, 2010 02:47PM Psalm121 wrote:

PinkRibbonGirl, Bless your heart!!  So much to go through & deal with!!  When was your last saline fill for tissue expanders?  My last one will be on Feb 17th & PS told me exchange surgery wouldn't be for 3 MONTHS!!  OMGosh!!  I was okay with 6 weeks, or even 8 weeks, but not 3 months!!  I had right mastectomy and will do a lift/possibly implant on the left.  I'm 45 and did the breastfeeding thing, too, but just one youngin'!

Are you going to get saline or silicone?  I'm back and forth, can't make up my mind.  Today was my first day back at work, part-time for two weeks then back to full-time.  I don't want to sign off so soon, but gotta go.....I'll talk to you later!! 

Dx 7/27/2009, IDC, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 9/15/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/5/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/4/2010 Surgery 8/15/2010 Reconstruction (right)
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Feb 8, 2010 03:55PM pinkribbongirl wrote:

Psalm121...I sent you a private message!

Dx 7/2009, IDC, 3cm, Stage II, 0/3 nodes, ER+/PR+, HER2-
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Mar 1, 2010 11:19AM pjcrn wrote:

Ladies, I have been reading this for a few weeks and I am finally at the end of my rope and had to ask for some help. This drug stinks!!! I am crabby, tired, angry, emationally labile, frusted and just no fun to be around. I took the Tamoxifen for 3 years 10 years after my 1st diagnosis, and I couldn't stand it anymore so I stopped, with my onc approveal. Now, this b----of a disease decides to visit me again....when my baby was 4 mths old. I am now done with surgeries and Chemo(T/C), and my onc say because I am so young(40), and having BC twice(I am - for the gene), I have no other option but t take it for the next 5 years. My beautiful son is now 15 months old, and I will put up with the Tamoxifen, beacuse I have to be here for him!!! Oh, They put on Effexor to counter act the side effects, and they took me off because I got a rash, and it had been working too.

Thank you so much ladies for letting me vent. I really appreciate it. I hope everyone has a great day.


Dx 4/3/2009, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Mar 1, 2010 02:19PM seagan wrote:

I highly recommend acupuncture for Tamoxifen SEs, esp. hot flashes but also that odd irritability and fatigue I hear so many women talk about (and that I struggle with, too).  If you have access to an affordable, reputable acupuncturist, it's definitely worth a try, though keep in mind that it may take a few treatments to notice a difference.

My hot flashes, while never bad, noticeably diminish when I'm doing acupuncture once/week. And, equally valuable, it relaxes me more deeply than anything else I've tried.

CHEK2 mutation Dx 2/17/2009, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 5/20/2016, IDC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 5/31/2016 Ibrance (palbociclib) Hormonal Therapy 5/31/2016 Faslodex (fulvestrant) Chemotherapy 1/25/2017 Xeloda (capecitabine) Radiation Therapy 4/23/2017 External: Bone Radiation Therapy 7/24/2017 External: Bone

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