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All TopicsForum: Hormonal Therapy - Before, During and After → Topic: Aromasin - 5 or 10 years?!

Topic: Aromasin - 5 or 10 years?!

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Dec 16, 2009 02:44AM

susanmary wrote:


In June, 2010, I will have been on Aromasin for 5 years. I was on Tamoxifen for about 13 mths and Aramidex for about 15 mths - changed to Aromasin because of recurrence on the other A1's, which obviously didn't work for me.

I have read conflicting reports about doing an extra 5 years on Aromasin (or any of the other A1's). Some say the extra 5 years adds to your longevity and other reports say this is not so.   HELP PLEASE.

Take care 

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Dec 16, 2009 04:21PM karen1956 wrote:

I've been on AI's for 3 years, 4 months....the 1st year, I made my rounds on AI's and tamox....been on Aromasin since July 2007.  My onc is leaning toward keeping women on AI's past 5 years.....I have struggled on AI's and have asked to quit....my onc just looks at me like I am crazy.....he says the thinking is that staying beyond 5 years....to 10 years is wise, but he says we will talk about more than 5 years when I get to 5 years.  I just saw my onc on monday.  My onc keeps telling how much benefit the AI's provide for me....that they add 25-30% to my cure rate....I've struggled with side effects (have most of the ones for Aromasin), but he does not want me to quit and I think after our conversation the other day, he would like me to go not only the 5 years, but 10.....

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Dec 17, 2009 06:18AM susanmary wrote:

Thanks for the input. I am stage 4, diagnosed October, 2002. I had thought the end was in sight, but as I mentioned, I have read articles about the advantages of going another 5 years. All I can see is more weight being added around my middle, without even eating much. I think the Aromasin contributes to loss of appetite. Not sure. How has it affected you weight, etc?

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May 11, 2010 04:04AM sam52 wrote:

I have now been on endocrine therapy for 7 years and 8 months - tamoxifen for 2.5 years and aromasin for just over 5 years.I have had to fight to get aromasin for more than 2.5 years since both the oncologist and the Primary Care Trust (PCP) go by the guidelines of '5 years total'.I am in UK so socialised medicine, which means drugs are rationed according to budgets.( though of course they don't put it this way..but this is in effect what happens).For the last 2 years or so I have been paying to get a private prescription as this was the only way to continue on aromasin.

Now I am wondering.....to continue or not? I realise I cannot take aromasin indefinitely and already have osteoporosis - other than that, no discernable side effects.

I am bumping this thread to see if any of you have further input.

dx Oct 2001 IDC 1.6cm, stage II, grade 3, 3/11 nodes, ER+/PR+, HER2-
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May 11, 2010 05:59AM TokyoSing wrote:

Hi, My oncologist says there is an ongoing Dana Farber clinical research on whether or not extending  Aromasin for more than 5 years is beneficial.  The results are not out yet. 

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May 11, 2010 09:11AM NatsFan wrote:

I'm on Femara and at my last visit my onc told me that there was some evidence that extending AIs beyond 5 years has some benefits.  I told her that she was going to have to make a mighty good case to me for me to put in even a single day over 5 years! 

Since I'm only 2 years in I have 3 years before that decision point, so maybe things will be more clear then, or at least there'll be some hard numbers about exactly how much of a benefit there is, so we can each make an intelligent cost-benefit analysis for our own individual cases. As Karen says, my onc and I can talk about this further when I'm closer to that 5 year mark.

Mary Dx 12/31/2007, IDC, 2cm, Stage IIB, Grade 3, 1/15 nodes, ER+/PR+, HER2-
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May 11, 2010 10:28AM mrsb wrote:

Have been on tamo for 9mths then Arimedex/femara for  7 years. it is by choice although i have horrible arhtritis. My dr precribes it on a year by year after blood work and bone density. There are several of us on this board who are by choice still taking aroamtase inihubors past 5 years.

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