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Jul 28, 2010 02:17PM
Always be sure to check with the onc about anything anyone recommends to you. Folks here will relate what has worked for them in hopes that it might work for you. Everyone is different and that is what makes treating/preventing this disease so difficult. It may take many different combination of things until the end result is acheived.
When setting up any treatment plan, all of the treating physicians AND your pharmacy are connected and all the drugs are checked for interactions.
There are some natural remedies but anything that contains hormones is not going to be suited for us. Melatonin can aide in a more restful sleep, cranberry supplements can aide in liver, kidney and bladder function that some treatments can effect.
Effexsor is actually an anti-depressant which has an added effect that calms hot flashes and night sweats in some. I am on a very low dose and with the stage iv dx, it has helped me greatly to cope with my dx. I don't cry all the time anymore. I have a pretty decent quality of life most of the time.
Water is like magic. Walking is great. I found that even before I started the Effexsor, if I drank lots of water and took an evening walk, the night sweats diminished but I would still get the hot flashes but not as bad. Others have said that after the first month or so, those things diminish quite nicely. It took me 3 months of crying until I finally saw a shrink that specializes in bc mets patients - within a month and medication, I wasn't crying or sweating anymore.
I have also tried to eliminate as much gluten from my diet - not easy since lots of stuff has it in it - but Chex cereals are mostly gluten free and you can now found things in the regular grocery store instead of having to make a special trip to the natural food store.
Adopting a generally more healthy diet assists with everything.
This is what worked for me - check with your treating folks to be sure things will be ok for you before trying anything.
Success to All
Smile...it will make people wonder what you are up to...Initial dx 04/99 - CMF; 9/2009 bone mets Arimidex; 6/2010 Faslodex/Xgeva; 8/2011; abdominal wall invaded, ER/PR flipped to TN, Abraxane/Avastin//Xgeva 09/02/2011; 11/2011Xeloda/Avastin/Xgeva.
9/16/2009, Stage IV, 5/25 nodes, mets, ER-/PR-, HER2-