Topic: Arimidex - Coping with the SE's

Forum: Hormonal Therapy - Before, During, and After — This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Jul 28, 2010 01:22PM - edited Nov 15, 2017 02:01PM by moderators

Posted on: Jul 28, 2010 01:22PM - edited Nov 15, 2017 02:01PM by moderators

Lowrider54 wrote:

Not just for Arimidex but all the Hormonals - se's are so similar so coping with them should also be similar and the remedies offered should work for any of the Hormonals - don't go away, read on if you are taking any of the hormonal treatments....

For those of us who are taking this potentially life saving/life prolonging drug, it does not come without side effects. There are some very lucky folks who don't have any...GREAT! But for those that do, lets share how we cope with the hot flashes and night sweats and stuff.

The 'Arimidex' thread covers more than just side effects and coping - there is much debate over it going generic and the effectiveness of its use. I am putting this up in hopes that new users can find the answers concerning the se's easily. Of course, please visit the Arimidex thread for more information concerning the statistics, research and controversy surrounding many of the AL's and new treatments we are being offered today.

Treatment is always a personal choice - if Arimidex is your choice, these kind folks can help you manage some of the issues that some with taking it.

I elected to take a low dose of Effexsor to aide with the hot flashes and night sweats. It worked very nicely for me. Water intake and walking assists with the possible joint pain. I eliminated as much gluten from my diet as I could (that stuff is in everything....lol) and did not experience weight gain - I did experience 'weight re-distribution' however - it seems to go to the tummy. I haven't found a good solution for that yet. Cool

Good Luck All!

Hugs

LowRider

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Smile...it will make people wonder what you are up to...Initial dx 04/99 - CMF; 9/2009 bone mets Arimidex; 6/2010 Faslodex/Xgeva; 8/2011; abdominal wall invaded, ER/PR flipped to TN, Abraxane/Avastin//Xgeva 09/02/2011; 11/2011Xeloda/Avastin/Xgeva. Dx 9/16/2009, Stage IV, 5/25 nodes, mets, ER-/PR-, HER2-
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Dec 1, 2010 10:11PM Medigal wrote:

So Call:  That is interesting what you wrote about the pain in the tendons of your forearm.  I have been on Arimidex for 7 years and suddenly this week I started experiencing a tightness in my upper arm and it is slightly painful if I try to stretch it.  Almost like I have a tight rubber band in the inside area from underarm to elbow. Nothing really looks swollen tho.  

It concerns me because it is only in the right upper arm the one where they took out the 27 nodes over 7 years ago.  Could this be some version of lymphedema starting??  I wear the Lymph bracelet and have protected that arm all these years and can't figure out what I could have done to cause this.  It is not really painful yet but I am concerned whether it will get worse.  I just wondered if any one else or yourself has had this happen to them?  Thanks for any info.

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Dec 1, 2010 10:28PM socallisa wrote:

It was called

  tenosynovitis

guess you can google it

Biography: DX 11/2000 LCIS,DCIS,IDC 2B, Grade 1, ER+,PR+ Her2Neg 1 pos node Lumptectomy, CMF chemo X 6 mos, DX 8/2001, IDC same breast--Mastectomy , Left Breast Lumpectomy... Tamoxifen, one year...Armidex, Four years
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Dec 1, 2010 11:43PM molly52 wrote:

Following exerpt from article doesn't seem to rack up with my experience.  I am stage 1 and had tons of joint pain. 

Only one factor predicted whether women had pain-having later stage cancer. "If you have stage II or stage III cancer, you are more likely to have this pain than if you have stage I cancer,"  

Any stage 1s out there that had joint pain, or am I the only one?

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Dec 2, 2010 12:03AM socallisa wrote:

All I do know is that when I finished up with the arimidex, most of it gradually went away

Biography: DX 11/2000 LCIS,DCIS,IDC 2B, Grade 1, ER+,PR+ Her2Neg 1 pos node Lumptectomy, CMF chemo X 6 mos, DX 8/2001, IDC same breast--Mastectomy , Left Breast Lumpectomy... Tamoxifen, one year...Armidex, Four years
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Dec 2, 2010 07:37AM nativemainer wrote:

Anti-inflammatories don't work well for AI tendon pain becuase the drug doesn't get into the fluid around the tendons (or the fluid around the joints or spinal fluid for that matter).  Unfortunately, the best way to get medication into that area is to inject it directly--not a fun prospect (of course, I am extremely needle phobic). 

"I have come to believe that caring for myself is not self indulgent. Caring for myself is an act of survival." Audre Lorde Dx 3/9/2007, IDC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/15/2007 Lumpectomy; Lumpectomy (Right) Surgery 3/29/2007 Lumpectomy; Lumpectomy (Left) Radiation Therapy 4/10/2007 Breast Hormonal Therapy 10/5/2007 Hormonal Therapy 4/25/2008 Arimidex (anastrozole) Surgery 8/15/2008 Mastectomy; Mastectomy (Left) Surgery 6/21/2010 Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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Dec 2, 2010 08:34AM Enjoyful wrote:

Oh!  That makes sense, Mainer.  Thank you!

Does anybody know if pain is a predictor of efficacy?  'Cause if it is, I'll be NED forever!

BENGHAZI! Dx 9/2004, IDC, 1cm, Stage IIIA, Grade 2, 4/14 nodes, ER+/PR+, HER2- Dx 8/28/2009, IDC, 2cm, Stage IV, Grade 2, ER+/PR-, HER2-
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Dec 2, 2010 09:18AM 0000000 wrote:

Hi all,

Met with my Med. Oncologist yesterday and he advised Arimidex but said it would increase my overall 10 year survival by 5%.  He gave me a print out with the stats on it.  Of couse every one is different and my tumor was 2cm, ER and PR + , Her2-, Histologic grade 2, 0/7 nodes neg. lumpectomy and SNB with biopsy track removal on Oct 20, 2010. No rads, No chemo and now I have decided no arimidex... I found this online and thought it was interesting

http://www.fda.gov/downloads/Drugs/GuidanceComplianceRegulatoryInformation/EnforcementActivitiesbyFDA/WarningLettersandNoticeofViolationLetterstoPharmaceuticalCompanies/UCM166192.pdf

The bottom line is the side effects are totally downplayed by the docs ; well, it's not their body.  I choose not to go this route because of the very high percentage of women (36% in some cases) who get very distressful and disturbing and painful side effects.  In the literature from the manufacture, they list the incidence as . .>10% because they don't want to give the actual percentage which is significantly higher than 10%.  It is just another way of deceiving the public.

Good luck to all of you as you made the very difficult decisions we are all faced with re: BC treatment.   I went thru a lot of agony and anxiety until I just decided to follow my gut and not take  Arimidex.  My doc is fine with that and  and was actually supportive...for the first time since diagnosis (IDC) in September I feel very positive about the future.  

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Dec 2, 2010 10:26AM don23 wrote:

molly52 - I am a stage 1 and have joint pain, too. Not sure what the stage has to do with it. We're still taking the same drug. Doesn't make sense to me. My pain is in my hips and somedays it is worse than others. I eat right and run three times a week. I just started doing strength training to see if that helps. I hope it does.

Dx 4/10/2009, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Dec 2, 2010 10:26AM socallisa wrote:

Despite all the side effects, I am glad I did my time with arimidex..good to have finished, I have to say

Biography: DX 11/2000 LCIS,DCIS,IDC 2B, Grade 1, ER+,PR+ Her2Neg 1 pos node Lumptectomy, CMF chemo X 6 mos, DX 8/2001, IDC same breast--Mastectomy , Left Breast Lumpectomy... Tamoxifen, one year...Armidex, Four years
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Dec 2, 2010 02:07PM Lowrider54 wrote:

Free yourself from gluten for good ridance of the joint pain from Arimidex...honestly, it happens in about 4 days once you switch to gluten free.  Chex cereals, potato bread, Bisquick gluten free pancakes, and the regular supermarkets, including WallyWorld (WalMart) have many gluten free products - you don't have to eliminate all of it - just as much as you can...trust me, your knees will love you and whether taking it at an early stage or late stage like me - it works!  And...I made the best pie crust ever with the gluten free stuff - a flaky crusted pumpkin pie - even on the bottom...that was an accomplishment!   

I should start wearing a sandwich board as much as I mention this...LOL

Hugs...LowRider

Smile...it will make people wonder what you are up to...Initial dx 04/99 - CMF; 9/2009 bone mets Arimidex; 6/2010 Faslodex/Xgeva; 8/2011; abdominal wall invaded, ER/PR flipped to TN, Abraxane/Avastin//Xgeva 09/02/2011; 11/2011Xeloda/Avastin/Xgeva. Dx 9/16/2009, Stage IV, 5/25 nodes, mets, ER-/PR-, HER2-

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