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All TopicsForum: Hormonal Therapy - Before, During and After → Topic: Life on aromasin

Topic: Life on aromasin

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Mar 6, 2012 09:31PM

rayofsun wrote:

Just starting aromasin after being on tamoxifen for 1.5 years. I am also on effexor so did not experience hot flashes with tamoxifen and my other side effects were mild. Am curious how others have done on Aromasin.

Thanks ray

brca neg.SNB 10/09, bilateral mastectomy 4/10. DIEP , ooph and tubes removed 1/5.11.. started breast cancer vaccine study for her2 positive at hopkins on feb 2011. Dx 9/30/2009, IDC, 6cm+, Stage IIIC, Grade 2, 1/25 nodes, ER+/PR-, HER2+
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Posts 5101 - 5118 (5,118 total)

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Apr 2, 2017 12:55PM Falconer wrote:

Doxie, congratulations on getting here! Best to you as you live free

Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots. Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Apr 4, 2017 06:51AM Shelly52 wrote:

Well, here it is! The answer to our prayers! Hand yoga! You're welcome.


Shelly52 Dx 6/9/2015, IDC, Right, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 7/22/2015 Mastectomy: Right; Reconstruction (right): DIEP flap Chemotherapy 9/10/2015 AC + T (Taxol) Hormonal Therapy 2/21/2016 Femara (letrozole) Hormonal Therapy 3/29/2017 Aromasin (exemestane) Surgery Prophylactic ovary removal
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Apr 4, 2017 07:49AM doxie wrote:

Thank you, Falconer. I'll report back in a while and let you know if I feel any different off the drug. That I'm curious about.

Dx 8/2011, IDC, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 9/2/2011 Lumpectomy: Right Hormonal Therapy Aromasin (exemestane) Radiation Therapy Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 4, 2017 03:14PM - edited Apr 4, 2017 03:22PM by Nicole503

This Post was deleted by Nicole503.
Dx 10/31/2012, IDC, 4cm, Stage IIA, Grade 1, 0/6 nodes, ER+/PR-, HER2- Surgery 11/13/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right Chemotherapy 12/27/2012 AC Chemotherapy 2/21/2013 Taxol (paclitaxel) Hormonal Therapy 4/25/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 4, 2017 03:19PM Nicole503 wrote:

I have a question about Aromasin and memory loss. Last month I switched from Tamoxifen to Aromasin. I had very few side effects with Tamoxifen. I did have pretty significant "chemo brain", which was most obvious in loss of recall of names. This got much better over time -- I would say I got back to 95% of my pre-chemo name memory baseline. This week, I'm once again experiencing a "blank" when I try to recall the names of co-workers and acquaintances. Did anyone else experience this when starting on Aromasin? Did it get better with time?

Thank you all for being here. I always appreciate BCO boards, and am glad this one is here for me when I need it.

Dx 10/31/2012, IDC, 4cm, Stage IIA, Grade 1, 0/6 nodes, ER+/PR-, HER2- Surgery 11/13/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right Chemotherapy 12/27/2012 AC Chemotherapy 2/21/2013 Taxol (paclitaxel) Hormonal Therapy 4/25/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 5, 2017 01:59PM feelingfeline wrote:

Well done Doxie.

Dx 1/20/2012, IDC, 5cm, Stage IIIA, 3/22 nodes, ER+/PR-, HER2- Surgery 2/8/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/3/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/31/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/6/2012 Breast, Lymph nodes Hormonal Therapy 8/1/2015 Aromasin (exemestane)
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Apr 12, 2017 01:32PM - edited Apr 12, 2017 01:42PM by Falconer

I am quitting the Be Positive outlook for a few minutes to complain; I know that you've been here with me, but grrrr today my body feels like garbage. Aside from the usual aches and pains I feel like I am 16 and experiencing the crazed land o PMS again. My boob hurts (the one I kept, now wondering why I did) and is lumpy and sore, I feel bloated and big, and I could either start crying or yelling at the slightest provocation. I'm reminded that I am in fact 30 years older by the frequent hot flashes that creep up the back of my neck and the sad fact that this PMS will not subside once I get my period. Because it won't be coming thanks to my new friend, Lupron. End of vent. Thanks for listening. I'm going to the grocery store and to Kohl's. Hopefully the crazy lady will stay contained while I'm out in public!

Edited to add- and zits! ☹️

Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots. Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Apr 14, 2017 05:12AM feelingfeline wrote:

Best wishes and feel free to give the crazy lady full rein on here.

Dx 1/20/2012, IDC, 5cm, Stage IIIA, 3/22 nodes, ER+/PR-, HER2- Surgery 2/8/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/3/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/31/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/6/2012 Breast, Lymph nodes Hormonal Therapy 8/1/2015 Aromasin (exemestane)
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Apr 16, 2017 08:44PM - edited Apr 16, 2017 08:45PM by Falconer

Thanks, feline!!

Here's a question for AI takers: anyone ever try a cleansing fast while taking hormone therapy? Each spring I usually follow a week long mono diet, but this year I am reluctant to do anything because I've been so thrown off kilter by HT. What do you think?

Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots. Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Apr 19, 2017 08:21PM newfmama wrote:

Tomorrow will be the 1st day in 51/2 years without a hormone blocker. I'm throwing in the towel. I did three long, grueling years on Tamoxifen and 2.3 years on Letrozole & 3 months on Exemestane. I've experienced most of the side effects and have decided my quality of life at 60 years of age is important. I've been unable to do any of the physical activities I love due to the pain, dizziness, and lack of sleep. My love life with my husband has been virtually nonexistent. I have high cholesterol now & osteoporosis due to the AI's. Enough I say. I hope there is reversal to some of th side effects.

I met with my Oncologist today and she wishes I would stay on it longer but understands my position & respects it. She feels I've gotten lots of benefit from the 5 1/2 years.

I pray I am given a long & healthy life & I'm going to enjoy each blessed day. I hope each of you are able to stay on the AI as long as possible to also live a long & healthy life.

Cheers

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength. Dx 8/22/2011, ILC, Right, 2cm, Stage IIA, Grade 3, 2/4 nodes, ER+/PR+, HER2- Surgery 9/20/2011 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right Hormonal Therapy 11/11/2011 Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 20, 2017 12:42AM Molly50 wrote:

I don't blame you, newfmama. I hope you get your qol back.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement
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Apr 20, 2017 05:51AM feelingfeline wrote:

Best wishes newfmama

Dx 1/20/2012, IDC, 5cm, Stage IIIA, 3/22 nodes, ER+/PR-, HER2- Surgery 2/8/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/3/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/31/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/6/2012 Breast, Lymph nodes Hormonal Therapy 8/1/2015 Aromasin (exemestane)
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Apr 20, 2017 08:58AM MARIONSGIRL wrote:

I have been on Aromasin for a year with one month on Femara in the middle. I was having so much trouble with Aromasin I changed to Femara and that was worse. My memory loss is horrible, I can't remember names or find the right words or even what someone told me 30 seconds ago. My oncologist said it may improve or it may not. I have been doing crossword puzzles every day to try and keep my brain sharp. Take care!

Maryellen

Dx 7/2015, LCIS/DCIS/IDC, Left, Stage IIB, 1/3 nodes, ER+ Surgery 8/17/2015 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 10/20/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/16/2016 Hormonal Therapy 3/13/2016 Aromasin (exemestane), Femara (letrozole) Surgery
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Apr 20, 2017 08:59AM MARIONSGIRL wrote:

Good Morning,

Today I feel like I am an old lady. Everything aches! Plus my memory is gone. I have been on Aromasin for a year and hate it.

Hoping that this week's aches and pains is just a flare up or something. I can hardly walk today. God bless us all.

Maryellen

Dx 7/2015, LCIS/DCIS/IDC, Left, Stage IIB, 1/3 nodes, ER+ Surgery 8/17/2015 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 10/20/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/16/2016 Hormonal Therapy 3/13/2016 Aromasin (exemestane), Femara (letrozole) Surgery
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Apr 20, 2017 10:40AM Molly50 wrote:

Maryellen, have you tried taking Claritin for the pain? I am sorry about the memory problem. I have word recall issues. I am also very depressed. I think it might be the exemestane.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement
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Apr 20, 2017 11:24AM MARIONSGIRL wrote:

Hi Molly , I do take Claritin and took it the whole time I was having chemo and it worked great. Most days now it helps. I take an antidepressant Effexor to control the hot flashes and it also helps with my moods!

Dx 7/2015, LCIS/DCIS/IDC, Left, Stage IIB, 1/3 nodes, ER+ Surgery 8/17/2015 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 10/20/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/16/2016 Hormonal Therapy 3/13/2016 Aromasin (exemestane), Femara (letrozole) Surgery
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Apr 21, 2017 04:56AM feelingfeline wrote:






Maryellen, Molly. I know that brain fog feeling all too well. I am 49. My Mum is 83 and as sharp as I used to be.

Dx 1/20/2012, IDC, 5cm, Stage IIIA, 3/22 nodes, ER+/PR-, HER2- Surgery 2/8/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/3/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/31/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/6/2012 Breast, Lymph nodes Hormonal Therapy 8/1/2015 Aromasin (exemestane)
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Apr 23, 2017 07:46PM Sue2009 wrote:

I started on aromasin 2 months ago. My hair has significantly thinned out. After every shower I brush my hair & the hairbrush is full of hair & I am beginning to see my scalp. On the flip side my TM has dropped by 30 points. I initially took arimidex for 3 years . My hips hurt & wrists were killing me. I took myself off arimidex. After 6 months of increased hip pain I insisted on PET scan. My RO called as soon as he got results & said my hip may Fx just walking around. Radiation , zometta started. New MO tried tamoxifen, only lasted 5 months. Changed MO again to get on Ibrance study. I got 18 month out of Ibrance. I recently refused chemo, but wanted quadromet & AI. Both MO & RO agreed. So 1st time on aromasin, my hair is falling out, my face is breaking out, & I think my Alzheimer's father has better memory than me. Effexor helps w/ hot flashes & depression

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