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Topic: Life on aromasin

Forum: Hormonal Therapy - Before, During, and After —

Hormonal therapy medicines can be used to lower the risk of early-stage hormone-receptor-positive breast cancer from coming back, shrink or slow the growth of advanced-stage or metastatic hormone-receptor-positive breast cancers, and lower the risk of developing breast cancer in certain women who are at high risk. They work by lowering the amount of estrogen in the body or by blocking the effect of estrogen on breast cancer cells.

There are several hormonal therapy medicines, including, tamoxifen (Nolvadex, Soltamox), Arimidex (anastrozole), Aromasin (exemestane), and Femara (letrozole).

Hormonal therapy is usually prescribed for multiple years. Common side effects include hot flashes, joint pain, fatigue, and bone thinning.

Note: This is a safe place to share YOUR experience, not to be influenced or influence others. Please contact your doctor about any questions or concerns you may have if you are currently taking hormonal therapy.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Mar 6, 2012 08:31PM - edited Nov 15, 2017 01:03PM by Moderators

rayofsun wrote:

Just starting aromasin after being on tamoxifen for 1.5 years. I am also on effexor so did not experience hot flashes with tamoxifen and my other side effects were mild. Am curious how others have done on Aromasin.

Thanks ray

Edited by Mods to add content from our main Breastcancer.org site on Aromasin: Benefits, Side Effects and More

brca neg.SNB 10/09, bilateral mastectomy 4/10. DIEP , ooph and tubes removed 1/5.11.. started breast cancer vaccine study for her2 positive at hopkins on feb 2011. Dx 9/30/2009, IDC, 6cm+, Stage IIIC, Grade 2, 1/25 nodes, ER+/PR-, HER2+
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Nov 15, 2018 10:51AM CaliKelly wrote:

Hi, I take anastrazole, a little different from aromasin, but same type medication. I think all the side effects are similar. I felt like a creaky old grandma at first, and I'm a fitness nut. But gradually(over 6 months) started adjusting to it, now my aches and pains are from being able to increase my exercise and weight training!😃Hang in there! It'll get better. If it doesn't, tell your oncologist, there are remedies 😚💖

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/10/2015 TAC Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/29/2016 Arimidex (anastrozole) Surgery 6/28/2016 Reconstruction (left): Silicone implant Chemotherapy 11/2/2016 Xeloda (capecitabine) Surgery 10/6/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/29/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Nov 15, 2018 12:02PM Jaybird627 wrote:

Hi Bliss,

No, the Exemestane through my insurance is $75/mo (typo above). I am switching to generic Arimidex. Gah! Sorry for the confusion. Generic is $14 for 3 mos! Different tier. I'll try it. If the SE's are no worse then I'll stay on it otherwise I can go back to Exemestane and pay more. It's all about the SE's. I think the Wobenzem is helping. I take 2 at bedtime. I am tolerating the Exemestane, I just don't like the price!

J~

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Nov 15, 2018 03:23PM AngelsGal57 wrote:

Jaybird,

I take quite a few supplements as well. Glutethion, Beta Glucan, CO Q 10, a whey protien called Immunical that builds your immune system at the cellular level, Biotin for nails and hair, calcium and D, Garlic and Cranberry capsules, and a few more that I cant remember. My dr is very supportive. My husband keeps up on the latest research in the Natural Health realm. I tend to be a bit stand offish until I see research studies.

So far it is difficult to tell if my SE's are from my Kadcyla infusion or starting the Aromasin. I am finding myself extremely tired during the day, even with a good night sleep.

Angelsgal

Dx 3/20/2017, Right, 4cm, Stage IIA, metastasized to bone/lungs, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Surgery 10/5/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 11/15/2017 Whole-breast: Breast Hormonal Therapy 7/4/2018 Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Other
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Nov 17, 2018 03:15PM Blownaway wrote:

I started and stopped Tamo 3 times due to s/e's. Have been on examestane for about 5 months with no problems

Dx 3/31/2014, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/12/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 6/2/2014 Lumpectomy: Left Chemotherapy 7/2/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/2/2014 Herceptin (trastuzumab) Radiation Therapy 10/6/2014 3DCRT: Breast Hormonal Therapy 1/9/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast
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Nov 19, 2018 10:47AM AngelsGal57 wrote:

Blownaway,

we seem to be similar in our treatments. I am just starting Aromasin after a bad run with Tamoxefin and I have a question. Have you read anywhere about starting out slowly on the AIs and building up to EVERYDAY? I would like to do every other day and work my way up to every day and wondered if anyone has done that successfully. I am so glad to hear you havent had a hard time with it. Makes me optimystic.

Angelsgal

Dx 3/20/2017, Right, 4cm, Stage IIA, metastasized to bone/lungs, Grade 2, 0/2 nodes, ER+/PR+, HER2+ Surgery 10/5/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 11/15/2017 Whole-breast: Breast Hormonal Therapy 7/4/2018 Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole), Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Other
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Nov 19, 2018 05:27PM KimE wrote:

Has anyone been diagnosed with diabetes since you started taking aromasin? I've been on aromasin for over a year and now have diabetes and high cholesterol.

Oncotype Score - 31 Dx 3/10/2017, DCIS/IDC, Left, Stage IIA, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 3/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 4/24/2017 Lumpectomy: Left Surgery 6/1/2017 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/11/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 10/16/2017 Aromasin (exemestane) Surgery 7/28/2019 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Nov 20, 2018 06:42AM dtad wrote:

KimE....so sorry you are experiencing some serious side effects from the aromasin. Maybe switching to another aromatase inhibitor would help elevate those side effects. Good luck and keep us posted.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 20, 2018 07:40PM Blownaway wrote:

Angelsgal - It never occurred to me to take the exemestane any other way than my newest onco said to take it,after he told me that if I was his sister he would beat me over the head and make me take it everyday....he said that after I told him I stopped taking my tamoxifen.

Dx 3/31/2014, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/12/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 6/2/2014 Lumpectomy: Left Chemotherapy 7/2/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/2/2014 Herceptin (trastuzumab) Radiation Therapy 10/6/2014 3DCRT: Breast Hormonal Therapy 1/9/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast
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Nov 25, 2018 09:19AM Jaybird627 wrote:

Hey Ladies,

My onc takes 4/5 vials of blood when I see him so in January I'll know if my numbers still look "good", no known diabetic issues with AI's. But I suppose anything is possible?? Watch your diet?

Taking the Anastrozole with no apparent side effects. Have some aches and pains but it could be the fall/damp weather. Could be my being back to work (I'm a flight attendant) full time. My onc insists I take an AI due to my BRCA2+ AND my 2nd BC. He says 10 years. So as long as I tolerate one of them I'm in for the long haul. I take it at night with 2 Wobenzym tablets. I take 2 in the morning also if I'm feeling achy The bottle says you can take up to 12/day. I take a lot of other supplements so until or unless my aches and pains get worsee I'll stay of my current regimen.

Angelsgal, I too wanted to start the AI on a not-every-day regimen but I jumped right in. I figure if I DO have major side effects then I'll do 3x/week. I don't know how ONE TINY PILL can work the same for all women??? And maybe some B vitamins for energy? Or bee pollen? Maybe a gut cleanse? Too much gluten or similar? You may have a food allergy that you are unaware of? Just some ideas.

I think I mentioned previously that tart cherry juice daily is supposed to help with joint health. When I remember to I take it I do one big shot of it. It's expensive so I figure it's like taking a pill. I'd do a glassful if I had major pain.

I also see my chiropractor when I can. Looking for a new one who is local, my current one is in Illinois and while I absolutely love him I need someone local to see more regularly. Looking for a local acupuncturist too.

Lets keep this dialogue going! :)

J~

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Nov 25, 2018 04:57PM Imkopy2 wrote:

Hi ladies hope everyone enjoyed the holiday, unless of course you’re not in the US in which case it would just be Thursday lol! I’m on my 3rd week of aromasin after being on arimidex for about 2 years. On arimidex I just hurt, I thought my muscle aches was from working out... then I realized I may have started getting SEs that I couldn’t live with if there was another option. My onc said to give aromasin a whirl. So far so good. A year ago I had a lipid panel so I’d have a baseline to compare. Last year my glucose was a bit high and there were a few areas (LDL/ triglycerides) that needed attention. You can’t change everything in a day so I started exercise 4-5 Xs a week and cut my bread & watched my sugar intake. My last test showed my glucose had improved by 15, triglycerides went down by 20 but my LDL went up by 10. My onc said I was doing great but that it may just be my arimidex. Now I’m on aromasin but I asked what if I do a plant based diet twice a week. She said go for it and will test me in January. We’ll see.

I def think lifestyle helps and diet changes, I think gluten could certainly be a cu..Jaybird I take tart cherry supplements everyday with my other supplements. Not nearly as expensive and who knows maybe it helped my numbers. My husband has been on it for his gout and cholesterol...so I joined the regime.

If it doesn’t challenge you it won’t change you Dx 3/7/2016, DCIS/IDC, Right, 3cm, Stage IIB, Grade 3, 3/8 nodes, ER+/PR-, HER2- Surgery 4/13/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/23/2016 AC + T (Taxol) Radiation Therapy 10/23/2016 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/8/2017 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 9/26/2017
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Nov 30, 2018 03:18PM Bliss58 wrote:

Goldfish, sorry I haven't been back on the boards in a while. Yes, I will be on Exemestane one year in January, and so far, I am doing well, but in 6 more mos., who knows. Good luck to you.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Dec 4, 2018 01:26PM Debsver wrote:

I began Aromasin a month ago after starting on Anastrozole (lasted 12 days), then Tamoxifen for 1 month with terrible diarrhea, heartburn etc. I had a few days of heart palpitations & lightheadeness on Aromasin but they are getting better. Has anyone else experienced any se’s like that? My feet seem to be getting achy, hoping it does not get worse. If se’s get worse I possibly will go off since my cancer was hormone positive non-invasive, low stage 1, no lymph node involvement, genetic testing came back negative & onco score also very good. Anybody else opt out

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Dec 4, 2018 01:55PM Dawn1982 wrote:

Hi all,

Question for you about aromasin: In June I started taking exemestane (along with lupron shots). I had a handful of SEs for the first month - achey feet when I woke each morning, some tears, hot flashes, etc. But they were manageable and continued to improved. I did just fine for the next 3-4 months.

In October, my pharmacy started carrying a different generic exemestane. After a month on it, I've had side effects like at the start. The worst of these is the body aches and pains - especially in my mid back and thighs/femurs. I'm 35 years old and can barely get out of the car. I'm still working out 3x a week without too much trouble, but I feel like crap most of the time. I'm wondering if anyone else has ever struggled with a generic manufacturer switch? The old one that I liked was made by Alvogen; this new one is made by Cipla. My oncologist is investigating other pharmacies, etc .... but I'm not sure if it's the switch, or something else.

Looking for any experiences or insights you all may have. Thanks so much in advance!

xoxo D



Dx 9/28/2017, IDC, Left, 3cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR+, HER2+ Targeted Therapy 10/11/2017 Herceptin (trastuzumab) Targeted Therapy 10/11/2017 Perjeta (pertuzumab) Chemotherapy 10/11/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 3/9/2018 Mastectomy: Left, Right Hormonal Therapy 6/1/2018 Aromasin (exemestane) Surgery 10/19/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Dec 4, 2018 03:30PM Murfy wrote:

SEs seem individual to the person and to the brand. Walgreen's generic works the best for me and my SEs mostly affect right wrist and both thumbs. Some ladies, me included, started with 1/4 pill and worked up to full dose. When my trigger thumb wouldn't straighten, my MO and I lowered to 1/4 dose for a week at which time that symptom completely disappeared. Went back to full dose and weeks later still no thumb symptoms. It is an interesting drug. I've never been tempted to stop taking completely and think lower dose when necessary is better than no dose whatsoever

Did you see that BCO just posted results of new trial compilations that show AIs for TEN YEARS will significantly reduce recurrence vs just taking for 5 years or no years? Darn. Just when I'd gotten my head around 5 years ONLY. Gotta think about that one.

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/14/2017 Mastectomy: Left Chemotherapy 1/13/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Dec 5, 2018 10:24AM dorimak wrote:

bgail84 I had a consultation with the integrative center at our university hospital and one of the things they recommended “to keep things moving” was magnesium citrate. Might be worth discussing with your doctor.

Dx 10/2001, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/2005, IDC, Right, 2cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 1/2016, IDC, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 4/1/2016 Femara (letrozole) Targeted Therapy 4/1/2016 Ibrance (palbociclib) Hormonal Therapy 4/1/2018 Faslodex (fulvestrant) Hormonal Therapy 11/1/2018 Aromasin (exemestane) Targeted Therapy 11/1/2018 Afinitor (everolimus) Dx 1/2019, Stage IV, metastasized to brain/lungs/other, Grade 2, ER+/PR+, HER2- Surgery Mastectomy: Right Surgery Lumpectomy: Right Radiation Therapy Chemotherapy AC Radiation Therapy External: Brain
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Dec 5, 2018 07:51PM biscuits wrote:

Debsver...I was on Anastrozole for 2 1/2 years and my Onc finally talked me into switching to Aromasin one month ago to see it quality of life would improve. I have noticed lightheadedness and while I do experience heart palpitations at times, now they certainly last longer. I am happy with the switch, though. I have sooooo much more energy than on the Anastrozole. Aches and pains have definitely lessened, but I do struggle with the bones aching in my feet. However, I am 63 and work full time in a physical job and get in about 8 miles worth of steps a day. That may add to my feet pain. Hoping the two trigger fingers I developed will also go away, or get better on the new med.

Ki67: 70% Oncotype: 36 Dx 6/9/2015, DCIS/IDC/IDC: Tubular, Right, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 8/23/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/9/2016 Arimidex (anastrozole), Aromasin (exemestane) Radiation Therapy 2/8/2016 Whole-breast: Breast, Lymph nodes
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Dec 8, 2018 12:20AM bennybear wrote:

starting tomorrow, what time is best to take it? Did anyone stagger the start of taking aromasin?

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Dec 8, 2018 10:03AM biscuits wrote:

I take mine first thing in the morning. If I take it later in the day, it does cause me to have sleeping issues.

Ki67: 70% Oncotype: 36 Dx 6/9/2015, DCIS/IDC/IDC: Tubular, Right, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 8/23/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/9/2016 Arimidex (anastrozole), Aromasin (exemestane) Radiation Therapy 2/8/2016 Whole-breast: Breast, Lymph nodes
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Dec 8, 2018 11:57AM ElaineTherese wrote:

I also take mine in the morning, after I have had something to eat. Yes, if I take it at night, I do have problems sleeping.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Dec 8, 2018 12:06PM bennybear wrote:

thanks for advice, I am trying morning too., anyone having hair thinning on this?

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Dec 8, 2018 12:08PM 98hgmom wrote:

I take mine in the morning. No hair thinning yet but I have only been on it for three months.

Dx 2/15/2018, IDC, Left, 1cm, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 3/6/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/19/2018 Whole-breast Surgery 8/8/2018 Prophylactic ovary removal Hormonal Therapy Aromasin (exemestane)
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Dec 8, 2018 02:10PM Imkopy2 wrote:

I also take mine in the am (I did the same with Arimidex) I’ve only been on aromasin for a month but I also take biotin and have done so since chemo.

Good luck!

If it doesn’t challenge you it won’t change you Dx 3/7/2016, DCIS/IDC, Right, 3cm, Stage IIB, Grade 3, 3/8 nodes, ER+/PR-, HER2- Surgery 4/13/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/23/2016 AC + T (Taxol) Radiation Therapy 10/23/2016 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/8/2017 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 9/26/2017
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Dec 8, 2018 04:46PM Runrcrb wrote:

bennybear - i take aromasin in the morning- confirmed last year that it caused my insomnia if I took it at night. Been on it since July 2017 w minimal side effects. Working out daily helps every thing. Reducing carbs (bread specifically) helped reduce hot flashes. And I have as much hair as before chemo- just tons curlier.


Dx 6/27/2016, IDC, Right, 1cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Dx 6/27/2016, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Surgery 9/21/2016 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/8/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2017 Aromasin (exemestane) Surgery 12/12/2017 Reconstruction (right): DIEP flap
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Dec 8, 2018 04:59PM bennybear wrote:

thanks everyone, started it this am. Hope my hair and joints approve!

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Dec 8, 2018 09:07PM Jaybird627 wrote:

Hey. Me again. lol!

My back/spine pain was getting intolerable so I stopped for 2 weeks so I can start again and figure out if it is the pill that is causing the pain. It's not a back/muscle type pain but a bone pain. I'll go back to the Aromasin despite the cost if I have to. My eyelashes are falling out! They were growing okay on Aromasin. Maybe it is a new joint supplement I've been taking? UGH!

Oh, and I take my pill at night as it's easiest to remember then. I'm comparing side effects between the 2 pills.

J~

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Dec 11, 2018 04:18AM Occovegirl wrote:

Hi jaybird

I was on arimidex for 3 months and had to stop i had so many pains everywhere. Than tried femara and had to stop that for pain and side effects. Now I am on the aromasin

It's been 2 weeks and horrible side effects. I have no quality of life. My hands and feet swell so bad I can't really walk. I have tried to talk to my oncology team but they say stay on it. I finally have an appointment next week to a see about going back on tamoxifen. It's horrible what we all go thru i am only a 3 year survivor so they are trying to force the meds for ten years I am not going to be able do that hope you feel better soon












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Dec 11, 2018 05:49AM dtad wrote:

Occovegirl...so sorry you are going through this. It infuriates me how so many MOs disregard side effects of the drugs they are prescibing! Perhaps if they actually listened and worked with us, more people would stay on the recommended therapy. Just want to add that if for some reason you cannot tolerate any of the anti hormones, weight loss and exercise has been shown to lower recurrence rates by 40 percent. This is almost the same reduction as the drugs. Not trying to influence you in anyway, just FYI. Good luck and keep us posted.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Dec 11, 2018 09:57AM Jaybird627 wrote:

Hey Gals, I stopped the Anastrozole 5 days ago and my back/spine pain is almost completely gone. I'll start again in a week or so just to confirm that it is the drug that is causing the pain. My EYELASHES are falling out - a possible side affect??? Watching that too.

And I've developed an infection on my previously radiated breast, the most recently radiated breast is fine. UGH!!!

J~

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Dec 12, 2018 09:37PM - edited Dec 12, 2018 09:38PM by lohoff

Just started Aromasin a day ago. I switched from Arimidex because it caused permanent eye damage to both my eyes. Now I have to be followed by a retinal specialist. I already see so many doctors - family doctor, MO, RO, surgeon, pain doctor, gynecologist, dermatologist due to skin cancer 6 months ago, dentist because of so much damage to teeth and gums from chemo and radiation. Does it ever end? Feeling a little discouraged. On a positive note, I had an oncology appointment on Monday and my bloodwork is all normal. Happy I hope I don't have any side effects from Aromasin. My hair was falling out on Arimidex.

Just trying to figure this all out! OncotypeDX score: 30; 4 cycles of chemo, 30 rads Dx 11/22/2016, ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery 12/21/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 1/23/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/26/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 6/4/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 12, 2018 10:40PM - edited Dec 12, 2018 10:41PM by bennybear

I am so sorry you are having such severe problems. Yikes your poor eyes! I too was losing hair on Anasrozole and just started te aromasin this week. I hope you do better on the aromasin!

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-

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