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Jan 5, 2019 04:43PM
hi everyone, haven't been on this site in a while. Checking back in because of my hair loss/thinning on Exemestane . I have been on it almost 2 yrs now. My hair was straight,fine and thin prior to chemo, but I definitely had a lot more of it then. My hair seemed to come back in nicely after chemo and even had a little bit of wave in it for several months!
I've definitely been noticing more hair coming out from just regular washing and styling for last 3 months or so. It's gotten very thin in the front and crown area of my scalp. Can see a lot more of my scalp thru my hair than ever before. ( I shaved my head and started wearing a wig after my second chemo so I didn't have to deal with / look at my hair loss process in the mirror every day ) Another annoying thing is that my eyebrows have thinned also, but it hasn't slowed the facial/chin hairs down one damn bit!!! This S/E really bothers me. It's all shallow vanity I know, but as a single widowed mom @54 yrs old, it really does a number on your self confidence and self esteem !
I work with an auyervedic consultant and have tried some Banyan products like hair capsules and oils, but that has not shown any improvement even after 2 months. 😞
In addition to the hair loss, I have definitely gained weight, especially this last year. I seemed to have increased appetite in the evenings and crave carbs then. I also have never really gained back the same energy that I used to have Before Cancer. I already had a lot of arthritis in my joints and spinal stenosis ( thanks mom&dad), so most of my joint pain I already had prior (knee, hip, lower back). I'm sure the Exemestane only exacerbates that, but didn't cause it. I did have pain in both elbows for a while , which I thought was weird, but that has gone. Also pain in my feet which I am still dealing with. My MO did have me do tests/scans on my hip, knees and back to rule out another other issues, which gave me some peace of mind.
I have done a lot of yoga in the past to help with weight management and my joints( before cancer). I do still practice but not daily as before. I also walk for exercise. That's all I have ever really done for exercise my whole life. Not a runner or a lifter.
I see MO next week and dread getting on the scale!! She also has not been too helpful with my hair issues either in the past. We WILL discuss it again!
Feel free to share any hair tips please!! 8 more years is a long way to go and I don't have that much hair left😩
Well, that's my life on Exemestane , thanks for reading.
☮💗🕉🙏🏼. Age 52. Occult primary
8/30/2016, Right, 2cm, Stage IIB, ER+/PR-, HER2+ (IHC)
9/29/2016 Herceptin (trastuzumab)
9/30/2016 Carboplatin (Paraplatin), Taxotere (docetaxel)
9/30/2016 Perjeta (pertuzumab)
2/27/2017 Lymph node removal: Right, Underarm/Axillary
3/16/2017 Aromasin (exemestane)
4/17/2017 Whole-breast: Breast, Lymph nodes