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May 30, 2012 02:37AM
LindaLou53
wrote:
I am starting my 7th year on Aromasin and other than a little joint stiffness and thin hair, I no longer have any major SE's. My first 6 months on it were uneventful. Then from about 6 months to 12 months I had acute joint pain, mostly in my hands along with carpal tunnel and trigger fingers. I was still having occasional hot flashes but had been put into full chemopause in 2000 with my first BC dx so the flashes this time around were much milder.
After completing my first year on Aromasin the acute joint pain became mostly just stiffness. Carpal tunnel and trigger fingers went away on their own. The thinning hair seems to have stabilized over the years but is probably the SE that is most bothersome to me. My hair was always baby fine to begin with so now the thin spots are more noticeable. But the good news is I don't have any real discomfort at all related to the Aromasin.
I take it every night right before bed and no issues with GI upset. I did have some weight gain during chemo and for a couple years later, but managed to drop all the gained weight and more in 2010 and have kept it off while still on Aromasin. I was on Tamoxifen, Femara and Arimidex with my first dx and Aromasin has definitely been the easiest of all of them. Not sure how long my onc will keep me on it but given my diagnosis and being almost 7 years NED, I'm in no hurry to come off of it!
Life is not measured by how many breaths we take...but by the moments that take our breath away! ...I am a 14/9 yr survivor of 2 Primary BCs, 23/23 Positive Nodes (Zometa x 5 years) Started Paloma-3 Clinical Trial 4-14-14
Dx
7/14/2000, IDC, 1cm, Stage IIA, Grade 1, 2/7 nodes, ER+/PR+, HER2-
Surgery
8/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel
Chemotherapy
8/30/2000 AC + T (Taxol)
Radiation Therapy
2/26/2001 Breast, Lymph nodes
Hormonal Therapy
5/10/2001
Dx
11/21/2005, ILC, 5cm, Stage IIIC, Grade 1, 23/23 nodes, ER+/PR-, HER2-
Surgery
12/5/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right
Chemotherapy
12/23/2005 Taxotere (docetaxel), Xeloda (capecitabine)
Hormonal Therapy
4/7/2006 Aromasin (exemestane)
Radiation Therapy
4/7/2006 Breast, Lymph nodes
Dx
3/21/2014, ILC, Stage IV, mets, ER+/PR-, HER2-
Hormonal Therapy
4/14/2014 Faslodex (fulvestrant)