Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During, and After — This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by moderators

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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Aug 4, 2015 05:38PM pontiacpeggy wrote:

Suladog, I wonder if the AIs are rather like birth control pills and Tylenol, for example - one size pretty much does work for all. I don't know a thing about chemo but since it is actively killing so many cells that requires a weigh-adjustment. I'd think you could "overdose" on chemo. But I suspect you can't on an AI. Just my thoughts without any medical basis at all. But yes, more research is definitely needed. It would be nice to know why some of us have such awful SEs and some of us don't. What makes the difference?

HUGS!!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Aug 4, 2015 06:16PM 10Sbaybee wrote:

I have been on Anastrozole for approximately 40 days. I am also taking Vitamin D and extra calcium to counteract any problems regarding bone loss. I have not noticed any side effects.

I am a tennis player and experiencing stamina and breathing issues, possibly due to radiation scarring on my lungs. My Internist has recommended that I join a gym and start walking in my neighborhood to work on my stamina.

Diagnosed January 26, 2015 - Breast Cancer (R) / Discovered "shadow" in my left breast before Surgery February 20, which turned out to be malignant - Both breasts with clean margins after surgery. 33 Radiation sessions, ending May 7.

First Mammogram since surgery scheduled for this Friday and I will be seeing surgeon later this month, before meeting with Oncologist for bone density test.

ATTITUDE is so important. My attitude and incredible support system, along with the top notch Oncology Team at the Lynn University Cancer Center in Boca Raton, Florida, got me through this very difficult time in my life.


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Aug 4, 2015 07:04PM pontiacpeggy wrote:

Welcome, 10SBayBee! Glad you're doing well with Anastrozole. I've been on for nearly 10 months with no issues. Most of us don't have problems. But if you do, this is the place to be. Probably a gym or yoga is a good idea. I walk the dog and do yoga when I get to it. Playing tennis is really good, I'd think. Good luck with your first mammogram post-surgery! Did you have Lx on both breasts?

I totally agree that attitude helps immensely. It's not always possible to be positive be we can try to be.

Please fill out your profile with your diagnoses, treatments, surgeries etc and make them public. That is extremely helpful when you ask a question, then we know where you've been and where you are and can tailor our answers.

You'll find us very supportive. We have a lot of Florida members - perhaps you can get together. We have a group in Michigan that meets and it is amazing how wonderful it is.

Glad you're doing so well!

HUGS!!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Aug 4, 2015 07:33PM 10Sbaybee wrote:

Thank you! Actually, my husband found all of you and I am so glad he did.....it will take me a few days to get up to speed on here....hopefully, I can be helpful by sharing my experiences...

Hugs!

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Aug 4, 2015 07:41PM pontiacpeggy wrote:

10SBayBee, you've got a good hubby there. I think you'll find it a wonderful site, with lots of answers to your questions and some things you haven't even thought of :)

Filling out your profile shouldn't take too long but it is another thing to do :( Do it when you have time and the inclination.

Again, Welcome!!!!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Aug 4, 2015 10:00PM lago wrote:

10Sbaybee don't worry about "getting up to speed" It will take time. Just ask if you don't understand.

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2-
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Aug 4, 2015 10:07PM pontiacpeggy wrote:

10SBayBee, we've all been newbies here. And sometimes it is very confusing. One little thing that tripped me up was inserting links. I was too used to cutting and pasting them. Doesn't work here. Have to use the little linky icon about the editing space to insert it.

HUGS!!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Aug 4, 2015 10:07PM marianelizabeth wrote:

10Sbaybee, early days for you as not long ago for surgery and all that goes with it plus the rads. Good idea about gym and walking and gradually building up and your energy should return. You have been through a lot in a short time.

PontiacPegg, menopause was long ago~~I was 63 at diagnosis and had just done a 13 day high altitude trek in Nepal so was in good shape to start the long treatment and surgery process. Now 66 and leading a trek in Bhutan in Sept. and more trekking in Nepal in October.

Night sweats rare but a new insomnia since the antidepressants. Will work through it. Am also doing MBCT (mindfulness based cognitive therapy) 6 sessions one on one with a senior Psychiatric resident at our cancer agency~~totally lucked out on that one

breastcancereh.blogspot.ca Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 External: Lymph nodes, Chest wall Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Radiation Therapy 9/8/2017 Surgery 9/9/2019
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Aug 4, 2015 10:16PM pontiacpeggy wrote:

MarianElizabeth, we're very close in age (I'm 70). What an adventurous soul you are! Your treks sounds like great fun. What especially are you looking forward to doing on them?

I've never taken antidepressants so I don't know the ins and outs of them. But could it make a difference what time you take yours, causing the insomnia? Would changing the time of day help, do you think? I'm sure you will work through it - you are one strong cookie! You did luck out with the MCBT sessions getting the Sr Resident. Are you finding it helpful? What is the best thing you've taken away from it so far?

Sleep good tonight!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Aug 4, 2015 10:18PM marianelizabeth wrote:

Suladog, had never thought about the 1 mg of Anastrozole we are all on. Hmmm!

breastcancereh.blogspot.ca Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 External: Lymph nodes, Chest wall Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Radiation Therapy 9/8/2017 Surgery 9/9/2019

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