Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During, and After — This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by moderators

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
Log in to post a reply

Page 2 of 1,798 (17,979 results)

Log in to post a reply

Jul 10, 2012 08:37PM exbrnxgrl wrote:

Another happy Anastrozole customer! 7 months in and no complaints. I also get monthly Aredia infusions. I do take glucosamine, am not overweight and am physically active not only at work but I excercise almost daily. I am also NED! Some people do have bad se's but you will never know until you try it. You can always stop. Caryn

Log in to post a reply

Jul 10, 2012 08:44PM Mini1 wrote:

I was on Anastrozole for one month and went to my Dr. and told him I could not take it for 5 more days let alone 5  years. It affected my sleep to the point I was sometimes awake for 24 hours at a time. I hurt all over, and I cried at a Hallmark commercial. I had no appetite, was constipated and was bone tired even if I did sleep. He changed my medication and within a matter of days I began to feel better. I have a few minor things still going on, but I'm unsure if the radiation is affecting those, so I won't know for sure for another few weeks if that is true. I feel soooo much better. For me, I would simply go without if Anastrazole were my only adjunct treatment option. Thankfully we do have other options out there.

 My Dr. says I may have to change to Tamox because of osteoporosis and my inability to take anything for it. I'm scared I will have more side effects again if I change now, but don't want to hurt my bones even more by taking it. It is so confusing! I have read that some recommend Tamox for 2-3 years and an AI for the balance of the 5 years. I may go that route. I'm trying to firght the osteo with diet and exercise, but I won't know how effective that is working until next years bone density test.

Anyway, I hope that's not TMI. :-) I know we are all different and react differently to treatments. This was mine with Anastrozole.I hope your experience is better. Good Luck!

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Jul 14, 2012 02:44PM SusannahW wrote:

Nancyjac, this thread is very helpful, thanks for startingit. I'm still frightened, but will let you know how it goes once I start arimidex.

Susannah

Dx 3/2012, IDC, Stage I, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 4/27/2012 Lumpectomy: Right Radiation Therapy 6/4/2012 Breast Hormonal Therapy 9/1/2012 Femara (letrozole) Hormonal Therapy 10/9/2012 Aromasin (exemestane)
Log in to post a reply

Jul 14, 2012 04:36PM nancyjac wrote:

Welcome Susannah.  We can learn together.  I just started on anastrazole this past week, so no effects yet.  Some have said they had no SE for the first 2-3 months.

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
Log in to post a reply

Jul 14, 2012 04:37PM ruthbru wrote:

Will be finishing off my 5 years of Arimidex in August. I was a little 'creaky' and 'flushy' in the beginning, but I just kept busy and moving. Once my body adjusted, I was fine and I have had not had any problems; weight stayed the same, bones are still good as is everything else.

A couple hints to help those just starting out:

* I think some of the SEs attributed to arimidex are actually 'just' post treatment SEs. I especially think this is true of feeling down/mood issues. You have been on a fight or flight mode since your diagnosis, and suddenly you are DONE! That takes a good deal of physiological adjustment, at least it did for me.

* if you have been exercising, keep at it. If you haven't been, start. It's great for the mood, the figure, how you feel about yourself, helps fight any weight gain, keeps your joints limber, keeps the bones strong, etc. etc. etc.

* a daily serving of prunes is a good bone builder

* be grateful that there is something we can take that really does reduce our chances of recurrence. I can't think of any SEs that would be worse than that. For me, chemo reduced the chance that cancer would come back by 20%, Arimidex by 40%....that is HUGE!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
Log in to post a reply

Jul 14, 2012 04:58PM nancyjac wrote:

Thanks so much for that great info Ruth.  I hope my course of goes as well as yours has.  40% certainly is huge!

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
Log in to post a reply

Jul 14, 2012 08:01PM ruthbru wrote:

Nancy, I have a friend who just finished her 5 years also. She went into it with osteopenia too but didn't experience any more bone loss (she does a lot of weight bearing exercise). It is something you will want to keep good track of though, possibly get a yearly DEXA instead of the usual every two years.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
Log in to post a reply

Jul 14, 2012 08:41PM nancyjac wrote:

Yep, that's the plan Ruth.  I had a DEXA scan at the same time as the mammeogram that ended up being diagnosed as this cancer, so will will have one come Oct/Nov, right around a year after I was diagnosed.  I'm tryiing like heck to get back to weight bearing exercise, but with a bum knee and some residual peripheral neuopathy, it's been hard to do it consistantly enough.  

I also quit smoking after chemo.  Between my taste buds recovering from chemo and now being a non smoker I have managed to pack on an extra 15 pounds that I don't need.  So the exercise component is doubly inportant for me.

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
Log in to post a reply

Jul 14, 2012 10:51PM blessings2011 wrote:

I got a card from my MO. She wants to see me in September. I've been flying under the radar on Optifast, but I guess she's been keeping track of me on the computer!!!! Surprised

Rats. She gave me a reprieve from Anastrozole until I got to the Transition phase of the diet, which I started on Thursday. I thought maybe if I didn't tell her, she wouldn't find out?

Ha! Embarassed

Seeing the PS next Thursday to discuss exchange. Maybe in August?

Dx 9/15/2011, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 12/5/2011 Lymph node removal; Lymph node removal (Left); Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 8/22/2012 Reconstruction (Left); Reconstruction (Right) Hormonal Therapy 9/5/2012 Arimidex (anastrozole) Hormonal Therapy 10/22/2013 Femara (letrozole) Hormonal Therapy 10/1/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx IDC: Papillary, Left, <1, Stage IA, Grade 1, ER+/PR+, HER2-
Log in to post a reply

Jul 15, 2012 10:24AM nancyjac wrote:

Has anybody experienced any nausea from AI?  I've only been taking Anastrozole for not quite a week but the last couple of days I had some very slight on again off again nausea.  Only lasts for a few minutes and no where near the throw up level of intensity.  Might just be something I ate?

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)

Page 2 of 1,798 (17,979 results)

Scroll to top button