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All TopicsForum: Hormonal Therapy - Before, During and After → Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by Moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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Jun 29, 2017 09:35AM seq24 wrote:

Nayda--they didn't do any tests which is why I'm wondering if that's even what it is. She asked where it hurt and she said "oh you have bursitis". She wants me to come back for a cortisone shot which will only temporarily solve the problem anyway. The aches and pains I had in that area during chemo went away soon after but started up in the same place shortly after starting the anastrazole, which is why I'm waiting to ask my MO before I go back to the PCP. It seems like the more I am on my feet the worse it hurts. It's getting to the point that if I sleep in the same position all night I can barely move in the morning. Interesting about the calcium/D. I never made the connection but guess what, yet another thing in common. I'm having the same problem. I'll add it to my list for the MO on Monday. I was told to take Citrical D. What are you taking?

Dx 7/22/2016, IDC, Left, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 8/15/2016 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 9/9/2016 AC + T (Taxol) Radiation Therapy 2/13/2017 Hormonal Therapy 3/25/2017 Arimidex (anastrozole)
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Jun 29, 2017 10:48AM Peregrinelady wrote:

Seq24, I had bursitis about 6 months after starting Arimidex. The doctor moved my leg around and asked where the pain was and said bursitis. He gave me some exercises to do and it went away. I believe the AIs can dry out the bursa sacs in our joints.

Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/18/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Jun 29, 2017 12:22PM - edited Jun 29, 2017 05:32PM by Janett2014

I had bursitis in my elbow about a year ago, which was 2 years after starting Anastrozole. It started bothering me on a Wednesday (pain, tenderness, and significant swelling), I was diagnosed that Friday, and he set up an appointment for me to get a cortisone shot on Monday. By that Saturday it was much better, and on Sunday it was completely normal (like I'd never had an issue).

I cancelled the Monday appointment and haven't had a problem since then which was around a year ago. I never thought to blame it on an Anastrozole side effect. I guess I'll never know if that had anything to do with it.

Diagnosed at age 60 with IDC in 2014. Stage 1A, Grade 2, 0/10 nodes, ER+/PR+, HER2- Cancer on both sides, bilateral mastectomy, reconstruction with silicone implants, Arimidex (Anastrozole), Oncotype 16. There are more details in my biography.
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Jun 29, 2017 01:50PM seq24 wrote:

I'll post again about the bursitis as soon as I get an opinion from my oncologist. It just seems too much of a coincidence for it not to be related to the anastrazole. I guess if this is my only side effect and a cortisone shot can fix it then I'm not going to complain. I consider myself very lucky to not have anything worse.

Dx 7/22/2016, IDC, Left, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 8/15/2016 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 9/9/2016 AC + T (Taxol) Radiation Therapy 2/13/2017 Hormonal Therapy 3/25/2017 Arimidex (anastrozole)
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Jun 29, 2017 05:27PM Barbmak wrote:

I'm looking for some help. My MO told me I should go on Anastrazole. Originally my biopsy showed ER- and after surgery it showed ER+ but only 1-2%. I know the Anastrazole has side effects and the biggest I'm concerned about has to do with my bones because I already have osteoporosis and issues with arthritis. Doc said she could give me Prolia for the osteoarthritis .... I wanted to talk this over with my PCP who knows me the best....but she is away until the end of July. I did speak to a nurse navigator associated with my RO's office who said that I have time to make this decision. My thing is I want the benefits to outweigh the risk! But if I am only 1-2% ER+ is it worth it?

Dx 5/1/2017, DCIS, Left, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR- Surgery 6/6/2017 Lumpectomy: Left Hormonal Therapy 7/28/2017 Radiation Therapy Multi-catheter: Breast
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Jun 29, 2017 05:35PM kira1234 wrote:

I can't imagine with dcif the advantages would outweigh the disadvantages but I'm certainly not a professional.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Jun 29, 2017 05:48PM wallan wrote:

Hi Nayda:

I started Arimidex May 8th and by mid June I had a very sore lower back. It would only hurt when I bent over to get clothes out of the dryer at first. Now, if I go for a longer walk, my knees hurt and my back kills me. I have never had this before so I assume its the Arimidex.

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 29, 2017 06:04PM nayda985 wrote:

Me too @ Wallan...I saw my RO today for a follow and told them about my lower back pain and leg pain..they ordered me a bone density scan and was like why haven't your onc ordered it for you before you started this med...I was like Idk...I told them that I stopped the calcium/vitD b/c its causing me constipation...that said I need to start back taking it and also take a stool softener..I am like goodness..another med to add to the list uggh!

@Seq...I am taking the calcium 1200mg/vitD 800mg..aka "horse pills"..haha

34 years old, mother to 3, wife, sister, daughter, Loved Dx 7/26/2016, IDC, Left, Stage IIIA, ER+ Chemotherapy 8/25/2016 AC + T (Taxol) Surgery 2/24/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Radiation Therapy 4/17/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/9/2017 Arimidex (anastrozole), Zoladex (goserelin)
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Jun 29, 2017 06:26PM Tappermom383 wrote:

We were having a cancer round table after church on Sunday (so many survivors!). An animated topic of conversation was having to take one drug to countermand the effects of another. It just seems to keep snowballing!

MJ

Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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Jun 29, 2017 10:08PM Taco1946 wrote:

Tappermom, I couldn't agree with you more. The pile of pills seemed to just get bigger. However, I currently feel as well as I did pre-cancer so will keep attaching the pile. I think I will have to come to grips with the bone density issue. Up until now, I have told my primary that I didn't even want a test because I wouldn't take the medication even if he found something. My MO hasn't talked about osteoparisus (not spelling that right) as a SE of AI but I know it's there. I have been taking Glucosimun and Chrondican and Calcium with Vitamin for my arthritis for several years with some relief. My husband has done the shots for his back pain and is pleased with the results. So what next. MO's office called and scheduled my 6 month mammogram and another echo. Almost half way through herceptin. And the pile of pills...


Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Targeted Therapy Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary
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Jul 3, 2017 02:31PM seq24 wrote:

Just got back from the oncologist for my 3 month follow up after starting anastrazole. She said I definitely need to go in and be treated for bursitis in my hip. She said likely something was irritating it before and the anastrazole is just making it worse. If a cortisone shot doesn't work then she wants to order imaging.

And also, in regard to my previous post concerning late recurrence in hormone positive cancer. I asked her about it. She said that it is absolutely true that hormone positive cancer does have a higher recurrence rate after 5-10 years. She said that is the reason studies are pointing to being on the hormone blockers for 10 years rather than 5. I asked how much the recurrence percentages went up. She said after the first 5 years they go up 2% a year. In my case, I was told I had a 10-12% chance of recurrence in the first 5 years, so now it's 20-22% by year 10. That is a scary statistic to me! She said that after the 10th year, the recurrence rate goes down to .5% per year. To me none of this sounds real encouraging. But she did end the conversation that these statistics are 30 years old from European studies and when the study was done there were no AI medications, just Tamoxifen. She believes the percentages are lower now but couldn't give any specifics. Needless to say I'm more worried now than I was before I went in there

Dx 7/22/2016, IDC, Left, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 8/15/2016 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 9/9/2016 AC + T (Taxol) Radiation Therapy 2/13/2017 Hormonal Therapy 3/25/2017 Arimidex (anastrozole)
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Jul 3, 2017 04:52PM KB870 wrote:

Seq24 - your MO needs to cite her sources and the research rather than just throwing number about to scare patients. They may be accurate BUT at least then you can see the research for yourself. Also the numbers need to be split into cohorts so that you can see any effects Chemo may have. Chemo has improved tremendously in the last few decades and may have an impact on recurrence. Sorry for the rant but you deserve a better response.

Surgery 9/18/2016 Lumpectomy: Left Dx 10/6/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/30/2016 Lymph node removal: Sentinel Chemotherapy 11/28/2016 Taxol (paclitaxel) Targeted Therapy 11/28/2016 Herceptin (trastuzumab) Radiation Therapy 4/3/2017 Multi-catheter: Breast
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Jul 3, 2017 05:15PM seq24 wrote:

Thanks KB. As you can guess, at the moment I am so upset about this latest news I'm sick to my stomach. I'm about to my one year mark and I thought things were going really well. Now within the next 9 years I can expect a 22% recurrence rate. I don't use this often but WTF!!! I thought this time around was going to do me in. Now I'm looking at a strong possibility of having to go through it again!!?? I could just sit here and cry. I asked my dr. why she didn't share this with me before now and she just said that "this journey has to happen in small bites". All she said was that they were 30 year old European studies and she believed that statistics had improved by now. She did mention a study done in Texas pertaining to the number of years being on an AI. She said that after we all have our surgeries, and as long as the margins are clear, we are considered cancer free at that time. Chemo and radiation are a precaution for any stray cells and the hormone blocker is the most important part of treatment, which I think we all knew. When I had asked for my original statistics and was told only a 10-12% recurrence rate I was very excited. Now all of a sudden we have doubled that. Apparently the 10-12% is for the first 5 years only and it sounds like the rest is the luck of the draw. I'm scared, worried, frustrated, angry and very upset at this new information.

Dx 7/22/2016, IDC, Left, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 8/15/2016 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 9/9/2016 AC + T (Taxol) Radiation Therapy 2/13/2017 Hormonal Therapy 3/25/2017 Arimidex (anastrozole)
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Jul 3, 2017 05:45PM lrwells50 wrote:

I keep reminding myself that my mother had breast cancer twice, in 1974 and 1983. Radical mastectomies and radiation, and she died 21 years later of COPD. No way to know hormone status, or even what type of cancer it was. Just have to hope for the best, and do what we can in the way of prevention

Diagnosed at 66, OncotypeDx 24, I think because although I was 100% ER+, I was very weakly PR+ . BARD1 mutation, mother had breast cancer twice. Dx 12/5/2016, ILC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 3/7/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/18/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Jul 3, 2017 06:38PM Peregrinelady wrote:

seq24, it is difficult not to worry about statistics, but what helped me after being diagnosed 2 years ago was reading a couple of comments that people made here. 1) you either have a 100% chance of recurrence if it comes back or 0% if it doesn't. Worrying won't change that. 2) If it does come back, you have wasted precious time worrying. Just do what you can to enjoy life now and exercise daily. Exercise is one of the only proven ways to reduce your chance of recurrence.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/18/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Jul 4, 2017 08:31AM dtad wrote:

I completely agree with Peregrinelady. IMO it's a crap shoot. My MO also told me the recurrence rate studies are 30 years old! Just ridiculous! I remember when I first joined this forum and spoke to a young lady who stats were probably the best you can have and 8 years later was dealing with stage 4 metastatic BC. Don't want to scare anyone but that's when I decided I wasn't going to get hung up on stats. Good luck to all navigating this complicated disease.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 4, 2017 09:03AM grandma3X wrote:

also good to remember that these are cumulative rates - from your MO's stats (which she admitted were outdated), there is a 2% risk each year between 6-10 years post-diagnosis. This also means that each year there is a 98% chance that you will not have a recurrence. And, each year that passes without a recurrence, the risk for that year is eliminated, so your cumulative risk shrinks with each passing year.

Happy Indepence Day

Oncotype score 10. Married 35 years, 2 kids, 3 grands. Marine biologist/biochemist. No BC in my family tree. First diagnosed with multi focal ILC with 2 small tumors seen on MRI. Final pathology showed 1 large tumor measuring 5 cm! Dx 1/13/2016, ILC, Left, 5cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 1/13/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 5/18/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 10/26/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 10/11/2017 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery 10/11/2017 Prophylactic ovary removal Hormonal Therapy Femara (letrozole)
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Jul 4, 2017 11:50AM coachvicky wrote:

I finally got peace and confidence with my stats when I demanded the MammaPrint test on the worse of my tissue. I think I finally got the test because I kept nagging

It was a hard fought deal to get the test. I had just about made up my mind to take Social Security early and now I won't.

I was asked by my MO Team what made the difference and I explained I know about me and not the general population.

I went from my MO's estimated 85% for the general population to 94.6% for me.

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole)
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Jul 4, 2017 11:54AM KB870 wrote:

Glad you fought for it coachvicky.

Surgery 9/18/2016 Lumpectomy: Left Dx 10/6/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/30/2016 Lymph node removal: Sentinel Chemotherapy 11/28/2016 Taxol (paclitaxel) Targeted Therapy 11/28/2016 Herceptin (trastuzumab) Radiation Therapy 4/3/2017 Multi-catheter: Breast
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Jul 4, 2017 12:10PM lrwells50 wrote:

The MO didn't want to do one on me after the 24 OncotypeDx. Family thought I should do the chemo anyway, and I have to say it's been very bearable so far.

Diagnosed at 66, OncotypeDx 24, I think because although I was 100% ER+, I was very weakly PR+ . BARD1 mutation, mother had breast cancer twice. Dx 12/5/2016, ILC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 3/7/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/18/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Jul 4, 2017 12:14PM Barbmak wrote:

When I look at statistics of recurrence, I remind myself that the rate of non recurrence is higher! Example: a 15% recurrence chance means an 85% non recurrence...just another way to deal with the fear

Dx 5/1/2017, DCIS, Left, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR- Surgery 6/6/2017 Lumpectomy: Left Hormonal Therapy 7/28/2017 Radiation Therapy Multi-catheter: Breast
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Jul 4, 2017 12:26PM seq24 wrote:

Coachvicky do you know how long after surgery you can still have the mammaprint test? I pretty much begged them for that and oncotype testing and was refused every time. You about have me convinced to start bugging them again if it's not too late.

Dx 7/22/2016, IDC, Left, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 8/15/2016 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 9/9/2016 AC + T (Taxol) Radiation Therapy 2/13/2017 Hormonal Therapy 3/25/2017 Arimidex (anastrozole)
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Jul 4, 2017 12:29PM - edited Jul 4, 2017 12:29PM by seq24

Here's an article someone sent me explaining late recurrence in more detail than I got from my MO. Although it eases my mind some it kind of scares me as well because I fall right in between the two categories because although I had a small tumor I had on positive lymph node. This is so complicated and so very scary.


http://foodforbreastcancer.com/news/late-recurrence-of-er%2B-breast-cancer-is-more-likely-for-women-with-large-tumors-and-positive-lymph-nodes

Dx 7/22/2016, IDC, Left, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 8/15/2016 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 9/9/2016 AC + T (Taxol) Radiation Therapy 2/13/2017 Hormonal Therapy 3/25/2017 Arimidex (anastrozole)
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Jul 4, 2017 02:30PM coachvicky wrote:

Seq24

The pathology service representative where I live (North Alabama) said that by law they had to save my tissue for 10 years. He said that the mastectomy tissue would be better than the lumpectomy and biopsy tissue.

I would start with whoever did your path reports.

There was a lot of justification to do since I am almost finished with treatment. I just kept nagging.

Best wishes,

Coach Vicky


Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole)
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Jul 4, 2017 11:51PM Doughboy wrote:

my oncologist has taken me off of arimidex for the next two weeks. I have been on it since March. It took me a while to figure out what was going on with me. My hands are still in the mornings. I have two fingers that have trigger finger. I have noticed a lot of other joints aching, but I thought it was me just getting older. Right now, I am feeling achy like I have the flu. I don't, but I have that strange ache through my shoulders. Does this sound like any side effects anybody has had with this drug? I was on Tamoxifen for about 2 years before this

Dx 12/6/2013, IDC, Right, 2cm, Stage IIB, Grade 2, 1/28 nodes, ER+/PR+, HER2- Chemotherapy 3/6/2014 AC Chemotherapy 5/1/2014 Taxol (paclitaxel)
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Jul 5, 2017 12:59AM seq24 wrote:

Coachvicky--did you have the mammaprint test before your treatment was determined. I wonder if in my case it would be useless since I have already completed treatment. It is my understanding that it is used to determine what treatment we have. I'm not sure in my case, with surgery, chemo, radiation and now 10 years of hormone therapy if there is any more treatment that could have been done. I still would like to know how likely this is to reoccur. After my recent conversation with my MO I am scared to death.

Dx 7/22/2016, IDC, Left, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 8/15/2016 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 9/9/2016 AC + T (Taxol) Radiation Therapy 2/13/2017 Hormonal Therapy 3/25/2017 Arimidex (anastrozole)
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Jul 5, 2017 05:40AM coachvicky wrote:

Seq24

I had my MammPrint in June 2017. I was diagnosis in June 2016 followed by double mastectomies, 6 rounds of chemo, and then 12 scheduled rounds Herceptin. I had 2 more rounds of Herceptin to complete.

I requested this at first for peace of mind and to determine if I should take Social Security early. I don't know what reason my MO used.

I really understand how you are feeling. I will pray for your peace.

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole)
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Jul 5, 2017 10:30AM tnd22 wrote:

seq24- I would agree that it's scary to think of recurrence. I also agree with others that say it may or may not happen. Take it one day at a time- right now, you are not going to die of cancer. Enjoy your life. Worrying doesn't add anything to it. You have been fighting the good fight. Just do what you would do if you never had a cancer diagnosis and LIVE.

Dx 3/13/2017, IDC, Right, 2cm, Stage IB, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 4/10/2017 Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 4/27/2017 Arimidex (anastrozole)
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Jul 5, 2017 11:18AM Tappermom383 wrote:

Good advice, tnd! I'm looking forward to my last rads on Friday (woo-hoo!). Then I'll start taking my daily pill - but I already take several other daily pills so it will just get added to the mix. My focus can shift away from cancer treatment (daily two-hour rads trip and treatment) and to living fully once again. Many have said it here in various ways - experience the joy of today!

MJ


Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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Jul 5, 2017 11:53AM KB870 wrote:

Has anyone noticed how the most important part of treatment is the treatment of the specialist you're speaking to at the time? Maybe my cynicism is showing (again LOL)

Surgery 9/18/2016 Lumpectomy: Left Dx 10/6/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/30/2016 Lymph node removal: Sentinel Chemotherapy 11/28/2016 Taxol (paclitaxel) Targeted Therapy 11/28/2016 Herceptin (trastuzumab) Radiation Therapy 4/3/2017 Multi-catheter: Breast

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