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All TopicsForum: Hormonal Therapy - Before, During and After → Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jul 10, 2012 07:46AM

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today.  Plan is to take it for 5 years, possibly longer.  I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects.  I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee.  I'm concerned about that getting to be even more of a problem on the Anastrozole.  

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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May 17, 2017 08:35PM Celand wrote:

Regina,

Thank you - I sure did get answers from my doctor's appointment today. They did an ultrasound and everything looked normal - she did say that they go by the blood work results to determine menopausal status and not by clinical definition of no period for one year. She told me that the Arimidex / Anastrozole made me bleed - she said since I have been skipping a couple of periods at a time that my ovaries were shutting down - she also would rather see me on AI rather than Tamoxifen because those are better with less side effects than Tamoxifen.

My body is adjusting to the medication and this kind of heavy period was quite normal for me. She said that I also needed to come in whenever this happens to continue to check that things are OK.

Celand

Dx 10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2- Surgery 10/27/2016 Lumpectomy: Left Radiation Therapy 12/13/2016 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 17, 2017 08:51PM ReginaZ wrote:

Celand,

Hopefully the periods will stop and you can continue to take the Anastrozole without any problem. It really does seem like a wonder drug for us Estrogen positive women. I've been on it 2 months now and so far so good!

Regina

We are not human beings having a spiritual experience, we are spiritual beings having a human experience Dx 2/2/2017, IDC, Right, 1cm, Stage IA, Grade 2, 1/7 nodes, ER+/PR+, HER2- Surgery 2/20/2017 Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary Hormonal Therapy 3/23/2017 Arimidex (anastrozole) Radiation Therapy 4/13/2017 Whole-breast: Breast
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May 17, 2017 10:28PM Celand wrote:

Regina,

I hope so, really, the other side effects that I am having include some joint pain (which water aerobics seems to be helping), sleepiness, mild itching are tolerable right now. The reason that I didn't want to take Tamoxifen was because the list of side effects were so much longer than the AI's. And Arimidex had the shortest list of SE's.

Glad that this medication is working for you!

Celand

Dx 10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2- Surgery 10/27/2016 Lumpectomy: Left Radiation Therapy 12/13/2016 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 18, 2017 12:41PM Simplicity wrote:

Afternoon ladies. Hope all are dong well. Over a month off the anastrazole and feeling better. Started the exemestane 1 week ago.

Anyone have much experience with this new drug yet?

Dx 3/31/2015, IDC, Right, Stage IIIA, Grade 2, ER+/PR+, HER2- Chemotherapy 4/21/2015 AC + T (Taxol) Surgery 9/4/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right Radiation Therapy 10/13/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/28/2015 Arimidex (anastrozole) Surgery 5/20/2016 Reconstruction (left): Free TRAM flap; Reconstruction (right): DIEP flap
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May 18, 2017 08:56PM EraseAndRewind wrote:

I was diagnosed with osteoarthritis in both knees a year before being diagnosed with cancer. By the time I started my treatment for cancer, my knees were so bad, that I had to walk using a cane, or walker depending on where I was going. The chemo treatment of course gave me bone pain so my hurt even worse. Once cancer treatment was finished I had knee replacement surgery to my worst knee. This helped a lot in relieving the pain. Having said that, I was put on hormone therapy (starting with Letrolzole) but the side effects were so severe with respect to bone pain that we changed treatment four different times. The latest was Arimidex and it turned out to be, for me, the worst. The bone pain was gone, however, I started sleeping for 22 hours a day. In an effort to see if I had Chronic fatigue, they started a series of tests to eliminate other possible factors. Meanwhile, my life was virtually in the toilet, non existent. I couldn't drive anymore, or buy my own groceries, sometimes barely having the energy to walk to the washroom and back. It was a nightmare ! My primary care physician finally decided to look at the side effects of the pills my onco had me on and to his astonishment, and mine, we learned that 22% of women on Arimidex experience chronic fatigue. He immediately took me off these, as well as reducing my cymbalta (which I take for neuropathy, a side effect from the chemo) t the smallest possible dose. The change was noticeable almost immediately. I have been off the Arimidex for three weeks, and although I still have low energy, I am able to drive again and buy my own groceries,and make doctor's appointments. I was upset that my own Onco didn't think of taking me off these when I saw him months ago and complained about my chronic fatigue.

I am choosing to stop all hormonal therapy as the side effects are not worth the way they effect the quality of my life. Every person is different. You may find Arimidex will be fine, or you may go through different ones before finding that magic bullet. Find out what the side effects are, and they pay attention to your body. Lots of them cause joint pain, that may or may not go away. Different people try different things in order to alleviate some of the problems, but again, every person is different. You will find what works best for you, I promise you that. It may take time, or it may take no time at all. People think the treatment is the worst part of cancer. I think life after the treatment, dealing with the side effects of the chemo and then the hormone pills, the not knowing your body anymore, the emotional trauma......that I found to be worse. People don't want to hear about your ongoing problems. They figure now that your cancer is gone, and you're alive, all it well in your world. They were scared to death by your diagnosis and treatment. They are relieved its over. But for a lot of us, the journey is just beginning.

Just be aware of what you are feeling and don't be afraid to let your doctor know if you're experiencing pain or discomfort. You have to be your own best advocate. Good Luck ! I really hope the Arimidex agrees with you. As for the knees...meh... knee replacements will be in your future...but let me tell you, you'll be rid of the pain finally !!


The Devil whispered in my ear, "You're not strong enough to handle the storm." Today I whispered in the Devil's ear, "I am the storm." Dx 4/10/2014, IDC, Right, 2cm, Stage IIB, Grade 3, 1/1 nodes, ER-, HER2+ Surgery 5/22/2014 Lumpectomy: Right Chemotherapy 7/18/2014 Taxol (paclitaxel) Chemotherapy 9/18/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin) Radiation Therapy 12/10/2014 Breast, Lymph nodes Hormonal Therapy 4/5/2015 Femara (letrozole) Hormonal Therapy Femara (letrozole)
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May 19, 2017 06:46AM Simplicity wrote:

Morning ladies

EraseAndRewind, thank you for sharing. It's very difficult to decide what works or whats best per person. I was angry to learn exemestane is used by body builders *sigh* no wonder I've been angry since the second day. First day was awful hot flashes. Frustrating.

Dx 3/31/2015, IDC, Right, Stage IIIA, Grade 2, ER+/PR+, HER2- Chemotherapy 4/21/2015 AC + T (Taxol) Surgery 9/4/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right Radiation Therapy 10/13/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/28/2015 Arimidex (anastrozole) Surgery 5/20/2016 Reconstruction (left): Free TRAM flap; Reconstruction (right): DIEP flap
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May 19, 2017 07:53AM dtad wrote:

Eraseandrewind....so sorry you had to go through this. Your story is a prime example of why we have to be aware of the SEs of anti hormone therapy. It infuriates me that MOs deny these SEs. You should not have to go to your PCP to figure it out. The doc who prescribes these powerful drugs are responsible to do so! We need to speak up for better treatment options. Good luck to all navigating this complicated disease.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 19, 2017 02:40PM Molly50 wrote:

Simplicity, I was on anastrozole for about 6 months when the SE's got so bad I couldn't function. I had flu like symptoms, heavy feeling legs, confusion and panic attacks. After a 3 week break I started on exemestane. I have been on it for over a year now and I am doing really well. Very few SE's including the only mild joint pain and some depression but I have always been mildly depressed due to circumstances.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 19, 2017 10:34PM Simplicity wrote:

Evening Molly50. Thats great to hear! Gives me a bit of hope. Not far in, hot flashes have increased, and Im just angry. Granted, single mom, 3 kids, full time work, trying to somehow manage a relationship thats just, frustrating.

Eh, maybe its just life. But its been a much more intense anger. The SE's on the anastrazole for me were horrid.

Hard to distinguish whats life, and whats life after?

Thanks for sharing.

Dx 3/31/2015, IDC, Right, Stage IIIA, Grade 2, ER+/PR+, HER2- Chemotherapy 4/21/2015 AC + T (Taxol) Surgery 9/4/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right Radiation Therapy 10/13/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/28/2015 Arimidex (anastrozole) Surgery 5/20/2016 Reconstruction (left): Free TRAM flap; Reconstruction (right): DIEP flap
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May 21, 2017 04:53PM ChemicalWorld wrote:

I now have a full week in with anastrozole, and have had good and bad days.  The first three days were rough, I was queasy a lot, had a lot of fatigue, and some bone pain.  Spent a couple of days in bed or just lazing around.  This may have been exacerbated by the fact that I'd had my Lupron shot the night before I started anastrozole, and that tends to knock me out a bit and make me pretty achy.  Pain I expect and I can handle that, it's something I'll push through. 

I then had to get the measles vaccine mid-week and had a serious headache for about three days after that may or may not have been down to that.

I've had some hot flashes too, but I feel I can handle those. 

I started to feel less queasy after a few days but the past few, my stomach's been kind of upset again either as a result of, or along with, some BM issues.  Yesterday afternoon I was feeling fine and then out of the blue got feelingwoozy and had the gurgling crampy stomach.  Same thing happened again today.  I'm also more anxious along with this too.  I don't know if that is down to the drug (I had similar issues when I started Lupron), or because I'm worrying that I'm going to get sick while I'm out in public.  ( btw I never had stomach issues whatsoever before I started on Lupron and now this (I was 40 at diagnosis and very much so non-menopausal, was making lots of estrogen, which is probably why I felt pretty good up until then.  I also never had any issues with anxiety, even through active treatment (aside from scan-time).)



Dx 9/28/2010, IDC, 3cm, Stage II, 0/4 nodes, ER+/PR+, HER2- Surgery 10/12/2010 Lumpectomy: Right Chemotherapy 12/5/2010 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 5/3/2011 Breast Hormonal Therapy 7/6/2011
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May 21, 2017 09:37PM wallan wrote:

Hey ladies:

I have been on Anastrozole for two weeks now (almost 13 days). The first week I felt nauseaous and BM issues and wiped out. I didn't know if I could handle it. But now, I feel fine. It still makes me drowsy - I take it right before bed. And I have a few minor aches and pains in my fingers, ankles and back now. But other than that, its like I am not taking anything. I don't even get hot flashes.

I hope, hope, hope it remains this way...

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 6/1/2004 AC + T (Taxol) Radiation Therapy 12/1/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 21, 2017 10:14PM Butterfly1234 wrote:

Hi All,

I've been on Arimidex two weeks this Tuesday and so far no side effects. I have some aches and pains but I attribute that to increased exercise. I can live with this and hope it doesn't get worse.

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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May 24, 2017 10:04PM Celand wrote:

Well, after my appointment today with my MO, I felt that he was not listening to me and was aggravated with me as well. He had conferred with my gynecologist and they both insist that I am post-menopausal because my blood work shows that I am. And he claims that my gynecologist told him that she told me that what I had (extremely heavy bleed following four months of no bleeding) was not a period! He says that she told me it was either my very small fibroid or my uterus shedding lining and the only solution to this was a hysterectomy - I don't remember her telling me that the only thing that she told me was that she recommended a hysterectomy but not that I had to get one.

Anyway, MO told me that since I am post menopausal that I was definitely on the right medicine (Arimidex) but that if I wanted he would switch me to Tamoxifen, so I told him that I definitely wanted to switch to Tamoxifen until I meet the clinical definition of menopause (one complete year of no period). Also, he claimed that my problem was gynecological and not his area of expertise, so when I get my hysterectomy, and my ovaries and uterus are gone, then I could get back on the Arimidex.

I left this appointment perplexed and upset as I feel that both doctors are ganging up on me and trying to get me to agree to this major surgery, which I am only wanting to give my body some time to see if I go into clinical definition of menopause (Per recent biopsy, I don't have uterine cancer nor have they mentioned anything suspicious regarding my ovaries except very small cysts and genetic testing results indicated that I was not predisposed to any type of cancer).

Well, I do have my Tamoxifen prescription set up at the pharmacy to begin taking in a couple of weeks (MO also says to take an aspirin every day with the Tamoxifen to prevent blood clots).

I sure hope that I am making the right decisions with my medication switch and putting off major surgery for the time being anyway.

Celand

Dx 10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2- Surgery 10/27/2016 Lumpectomy: Left Radiation Therapy 12/13/2016 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 24, 2017 11:59PM Molly50 wrote:

Cleland, please don't be bullied into having a healthy organ removed. Hysterectomy is major surgery and is also putting you at higher risk of pelvic organ prolapse.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 25, 2017 09:01AM dtad wrote:

Celand...please get a second opinion. This is NOT how you should feel about a major medical decision. I would find a new GYN first and then a new MO. Hopefully at a major university teaching hospital. Don't let them bully you! The right docs can make a world of difference and you deserve it. Good luck and keep us posted.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 25, 2017 09:23AM - edited May 25, 2017 02:05PM by coachvicky

Celand

This is BS!

Fire these people and start new with a medical team that respects you.

Remember it is YOUR body and these medical people work for you.

Thanks for posting this also. It is a great reminder to all of us to demand the best care from people we can fully trust.

Coach Vicky




Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH)
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May 25, 2017 10:20AM CeliaC wrote:

Celand - Echoing the thoughts of others - Strongly recommend a second opinion. Hysterectomy seems like a radical step. After all the BC stuff, I would not go lightly into a decision for yet another surgery.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
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May 25, 2017 11:13AM Tappermom383 wrote:

Celand, you don't say if the GYN recommended a D&C. My situation was completely different but I started bleeding several years after menopause. My GYN did a D&C, thinking that would solve the problem (it didn't and I did end up having a hysterectomy) but it's a simple procedure that may help. It's something you might ask about.

MJ

Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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May 25, 2017 07:11PM Celand wrote:

Tappermom383, No, the gyn did not suggest a D&C - I have known of others who have had this procedure though. The only thing that she said to me was that if post-menopausal bleeding continues she recommends a hysterectomy - she is a young doctor and I sense that she doesn't know what else to do!

My gut instinct is that I will give my body a couple of months to see what happens - if I continue to have episodes of very heavy bleeding, then I will need a 2nd opinion to discuss the surgery.

Thank you for your insight.

Celand

Dx 10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2- Surgery 10/27/2016 Lumpectomy: Left Radiation Therapy 12/13/2016 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 25, 2017 07:30PM Celand wrote:

Coach Vicky,

My MO was speaking to me in an irritated tone and like I was a child - and then, my regular appointment was changed from late June to late July (including blood work) - I am wondering if insurance allows a certain amount of visits. Guess since I caused trouble he doesn't want to see me for two months!

I only remember one time that a doctor treated me like this when I was in my early 20's and no, I never went back to him.

I didn't realize that doctors acted like this toward patients especially when I was Simply letting him know of my bleeding episode to determine if the medication that I was on had caused it - of course he said that it didn't!

Well, hopefully things will get better for me with the new medication.

Thanks to all for your insight.

Celand

Dx 10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2- Surgery 10/27/2016 Lumpectomy: Left Radiation Therapy 12/13/2016 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 25, 2017 07:33PM Celand wrote:

Molly50, I know it is a major surgery, that is why I am asking a lot of questions and want to be sure that it is really needed before agreeing to it. I think that doctors are too quick to jump to conclusions about patients need surgery. Celand

Dx 10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2- Surgery 10/27/2016 Lumpectomy: Left Radiation Therapy 12/13/2016 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 26, 2017 09:30AM Molly50 wrote:

Celand, I think many doctors just jump right to hysterectomy instead of exploring alternative options. If post menopausal bleeding continues theh should be considering uterine biopsy first.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 26, 2017 09:34AM Molly50 wrote:

Celand, bleeding is a possible SE. ARIMIDEX SE'S

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 26, 2017 10:20AM coachvicky wrote:

Celand,

Call your insurance and see if they limit time / visits. I called mine when I was not scheduled for 12 weeks to see my Oncologist but was scheduled for treatments every 21 days. I found out that was just the way he scheduled and my Case Manager was "concerned" I would go that long and not see him. Got that changed!

BTW, when I researched the SEs of Arimidex and realized my periods could restart I scheduled a robotic hysterectomy. I had already talked to my GYN about it before my cancer diagnosis to stop pelvic pain. I just knew if I had just one SE, it would be a period. My GYN said to me and my husband, "if you were my wife, I'd have everything removed." I have been with this GYN for a decade and I trust him. My situation / relationship was different from yours.

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH)
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May 26, 2017 12:38PM Celand wrote:

Molly50, yes, uterine biopsy was done about 3 months ago - it was negative for cancer. I just want to be sure that this is what needs to be done before consenting to having it done. Celand

Dx 10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2- Surgery 10/27/2016 Lumpectomy: Left Radiation Therapy 12/13/2016 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 26, 2017 12:43PM Celand wrote:

Coach Vicky,

Having the surgery done is what I am leaning toward - the more I research, the more that it makes me feel that this may be the best option for me. I don't want to worry about excessive bleeding and additional reproductive cancers. Celand

Dx 10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2- Surgery 10/27/2016 Lumpectomy: Left Radiation Therapy 12/13/2016 Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 26, 2017 01:20PM coachvicky wrote:

Celand,

Each of us must make our own decisions. For me and like you, I know the cancer can not attack my reproductive organs because of my choice to have the robotic hysterectomy. That night in the hospital I had no pelvic pain. I felt in power with this decision at a time when so much was outside of my control.

I wish for you the best in your decision.

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH)
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May 27, 2017 01:39PM Gogirl007 wrote:

Does anyone have sudden severe knee pain while using anastrozole? I can't take NSAIDS and no therapy has relived the pain. Walking and getting up from sitting position are becoming debilitating. Saw ortho doctor and have physical therapy with no relieve.

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May 27, 2017 01:44PM CeliaC wrote:

Gogirl - I use Boiron Arnicare Gel or Cream and Arnicare pellets for pains - Homeopathic remedies that seem to work for me as I do not like taking NSAIDs.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
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May 27, 2017 01:57PM Gogirl007 wrote:

I have been on anastrozole for 2 years and 4 months. Started to have knee pain suddenly after being on it for four months. Have arthritis in both knees but it had never had caused pain. Saw several doctors to evaluate knee pain. All said arthritis should not be causing this debillitating pain. Can't take NSAIDS so have nothing for pain. Have stopped anastrozole and will wait to see if pain improves. Anyone else have severe knee pain. Did not associate knee pain with anastrozole until a new doctor mentioned it.

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