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Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by Moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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Mar 26, 2019 09:20AM HikingLady wrote:

Ane5TT Thanks for sharing this update. If you decide to put your DX and TX in to be seen publicly (My Profile/Settings), we can see more information about what you've been through. I appreciate, very much, hearing about your good outcome.

I'm doing fine on my AI, and have adjusted to a few new body facts (stiffness, etc.). My body does get quite perturbed with me if I ever skip my daily hour of exercise.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 26, 2019 05:51PM IamNancy wrote:

MACTAZ - thank you

oncotype 25 Dx 11/2012, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+ Surgery 12/10/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 2/4/2013 Lumpectomy: Right Chemotherapy 2/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/13/2013 Breast Hormonal Therapy 7/7/2013 Arimidex (anastrozole)
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Mar 28, 2019 06:57PM - edited Mar 28, 2019 07:00PM by LeesaD

I have been taking generic anastrozole mfg by Teva since Sept 2017. I've been able to get the Teva from various CVS's but I think I've exhausted my supply and after a day of phone calls I can't find Teva anymore. Instead of trying another generic by a different company, I signed up today with Eagle Pharmacy to get Arimidex delivery. My question to those who have gone from generic to brand name- did you see a difference in side effects? Did they lessen / get worse? Just curious. I don't want to get another generic as I've done well on the Teva with the exception of joint pain, but anxious about the switch. Definitely don't want side effects to get worse with the brand name so wondering others experience. I'm nervous switching from the devil I know. Thanks for any insights!

Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/26/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/17/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/8/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/1/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/16/2017 Prophylactic ovary removal Surgery 1/29/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Mar 28, 2019 07:34PM CeliaC wrote:

LeesaD - One of the ladies on this thread or another similar one (Coach Vicki) switched to the brand name and found it less troublesome than the generics.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/20/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/20/2017 Whole-breast: Breast Hormonal Therapy 4/4/2017 Arimidex (anastrozole)
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Mar 29, 2019 11:47AM CBK wrote:

Leesa Walgreens by me has Teva brand! I’m in NJ right next to the City.

My experience switching from Teva to brand Arimidex was slightly better with side effects. Virtually the fillers, if you compare them, are the same.

I think you won’t have a problem. Good luck to you!!


Dx 3/26/2017, IDC, Left, 2cm, Stage IIA, Grade 3, ER+/PR+, HER2- Surgery 5/11/2017 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/22/2017 AC + T (Taxol) Surgery 1/25/2018 Prophylactic ovary removal Hormonal Therapy 2/18/2018 Arimidex (anastrozole) Surgery 4/9/2018 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 9/28/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/3/2019 Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant
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Mar 29, 2019 12:43PM LeesaD wrote:

CeliaC and CBK- Thank You both so much! Fingers crossed 🤞

Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/26/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/17/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/8/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/1/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/16/2017 Prophylactic ovary removal Surgery 1/29/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Mar 29, 2019 05:20PM MamaOz wrote:

leesa, Ive been taking Arimidex from Eagle since Oct 2017 my joints are achy in morning when I wake but after im moving Im ok I take pill first thing in morning

My only fear is the osteoporosis, if I recall you get prolia shots? Hows that going

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Mar 30, 2019 07:32AM MamaOz wrote:

hey Coach,

Was wondering how your bones are doing?? Im verging on osteoporosis.. still trying not to take a bisphosphimates any advise ?? I see my onc for my 6 mo follow up this wee

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Mar 30, 2019 08:08AM HikingLady wrote:

MamaOz I was diagnosed with osteopenia before starting AI, so my MO has me getting a Zometa infusion every 6 months. I've had just one so far-- #2 will be in May---it made me feel like the flu the next day, and after that, zero side effects. MO says it will counteract the bone deterioration associated with AI's.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 30, 2019 11:44AM bennybear wrote:

I too had osteopenia before so they started me on fosamax after the first few months. But I have developed full blown osteoporosis with 10% bone loss after six months of drugs. This may be the deal breaker for me. Hope the zometa works better for you hiking lady. Because of dental issues my dentist didn’t want me taking the infusions.

Just make sure and get your bone density rechecked sooner than later!

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Mar 30, 2019 11:58AM HikingLady wrote:

bennybear thanks for this info and the cautions.... I will keep up on this. Yes, I've heard about dental problems. Ugh. Plenty of things for us to stay aware of and self-advocate about.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 30, 2019 08:49PM LeesaD wrote:

MamaOz- thanks for the info. That’s how I feel now too on the generic so hoping it’s at least the same on the brand name. As far as Prolia.... I’ve had three shots so far. Before the one I just had in January my endocrinologist gave me a bone density test The results showed I went from osteopenia to osteoporosis in both hip and back. The results were compared to the bone density test I had before starting chemo back in May 2017. I started the anastrozole Sept 2017. So the anastrozole has definitely hurt the bone density and the Prolia so far has certainly not prevented it. My endo says the Prolia should stop the bone loss but the test results have not shown that yet. Will see what happens when I see him in July for next shot. I am starting to notice some issues with my mouth. Teeth in particular. I feel like my bite has shifted and it’s new. Like when I bite down my bottom and top teeth don’t line up anymore. Not sure if it has anything to do with the Prolia but I’ll discuss with my dentist in a couple of weeks when I see him and see what he thinks. So not really sure if Prolia is doing it’s job or I just have to give it some more time. How are you doing? Hope all well! Can’t believe it’s been a couple of years now since this all started.
Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/26/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/17/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/8/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/1/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/16/2017 Prophylactic ovary removal Surgery 1/29/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Mar 30, 2019 09:30PM EdithMary wrote:

Hello, Friends! I am just starting Arimidex (started last Monday), and it is probably too early for side effects, but I have had none so far. The plan is for me to also have infusions of Reclast every 6 months for 3 years, since I am osteopenic, and also Reclast has be shown in recent studies to prevent recurrence. Though my stage of cancer was fairly early (borderline 1A/2A), my grade was intermediate, as was the result of my genome test. With surgery, chemo, radiation, Arimidex and Reclast, the doctor thinks she can achieve a 90 percent level of long-term recovery. I am nervous about the possible side effects of both Armidex (bone density) and Reclast (possible jaw/teeth problems). I am 64, and was in great health before BC was diagnosed in early September. Chemo was terrible for me, and I am glad there were only 4 treatments; radiation was apiece of cake. We'll see what this stage is like!

Best to all!

Edith Mary

Dx 9/10/2018, DCIS/IDC, Right, 2cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR-, HER2- (IHC) Surgery 9/19/2018
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Mar 30, 2019 09:38PM MamaOz wrote:

thanks for your info Leesa,

Its good to touch base with you as we started on this journey the beginning of 2017...

Your info is helpful. Will be interesting to see when the prolia starts to make a difference..

Aside from occasionally feeling like Im 80! Im alive. So thats good!!

Ive been trying to walk or do stairs everyday , I need to up my strength building. Tho, ive been taking an algae based calcium and 5000 vit D and am considering osteo biflex.. but thats it for now

Keep in toich!

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Apr 4, 2019 01:25PM arby wrote:

Hi! I have experienced teeth pain off and on the last 3 yrs. Always pooh poohed by dentist and onc. I'm happy to say I'll hit 5 yrs May 7 with all my teeth! But it has been a strange sensation as if the teeth have shifted and there's pressure sometimes upper sometimes lower. I'm looking forward to another new normal...hoping anxiety and disrupted sleep will go away. I often felt the pill had a caffeine like affect on my brain and it was running all night! I found that taking the Arimidex from 11 a.m.- 2 p.m.daily resulted in the most restful nighttime sleep. Every person has to make this discovery and timing on their own. Experiment. Good Luck to each one starting out. I kept up mowing a big yard and doing all the yard work with more breaks. Didn't want cancer to rob me of outdoor work which makes my heart sing! My fingers ache and I'm on a hypothyroid pill. But I believe the Arimidex causes lots of side affects because we women are not made to be healthy without our estrogen. Every system is touched by the decrease of hormones. Hang in there. Explore yoga and holistic approaches to pain, etc.I embrace this journey and am grateful for each day and all the time I've had with my grandkids. (they weren't around when the 1 st diagnosis and the 1st recurrence happened 07 and 09. "C" came back to bite me in 2014.) Grateful for life!

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Apr 7, 2019 12:56PM achildofGod wrote:

I was on Arimidex for approximately 5 Weeks. The brain fog was unbelievable. I couldn’t focus when driving, couldn’t hold a conversation with more than a couple of sentences and couldn’t focus on paperwork due for work. My friends and family became so concerned that they insisted on driving me to all the locations I needed to go to for work. I became very irritable because I had a hard time remembering things and felt like I had the onset of dementia. I was dizzy and had a headache that just wouldn’t leave. I never have headaches. The fatigue and body aches were another struggle. One evening, I sat on my bed and just wept. This felt worse than the surgery I had to remove the cancer and although the radiation was difficult, there was light at the end of the tunnel. My husband who had insisted that I take Arimidex, now stated, “I want my wife back! I can’t stand watching you go through this!” Needless to say, I stopped taking Arimidex three days ago and can’t wait for it to be out of my system. I may try another drug later but I need to heal for now

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Apr 7, 2019 01:27PM Scottie719 wrote:

LeesaD and MamaOz - I joined the club in early 2017 as well, and started anastrozole in July 2017. After reading so many reviews on this site about the issues with various generic providers, I also made the switch to Arimidex through Eagle Pharmacy in October 2017. I'm still somewhat stiff when I wake up, and my left index finger occasionally [and briefly] locks up during the day - but I seem to be doing better with the brand name as well. I love the convenience of using the mail delivery, but have found that I need to keep on top of refills - although that could be my MO as well. There's just been some miscommunication the last two times the script needed to be renewed, and I've learned not to trust that reorders are being processed.

Dx 1/6/2017, IDC, Right, 0/12 nodes, ER+/PR-, HER2+ Chemotherapy 1/23/2017 AC + T (Taxol) Targeted Therapy 3/21/2017 Herceptin (trastuzumab) Targeted Therapy 3/21/2017 Perjeta (pertuzumab) Surgery 7/16/2017 Mastectomy: Right Radiation Therapy 9/5/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Apr 8, 2019 01:46PM - edited Apr 8, 2019 01:46PM by LeesaD

Thanks for the info Scottie! I'll make sure to stay on top ofthe refills. The first order for three months came with no issue but I'll definitley watch the refills. I've been taking the brand name now for about a week. Don't notice any difference just yet but I have not been worse which works for me so far👍

Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/26/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/17/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/8/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/1/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/16/2017 Prophylactic ovary removal Surgery 1/29/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Apr 12, 2019 04:08PM MeganB wrote:

Is it safe to use CBD oil while taking Anastrazole? Thanks!

DX 8/13/18 IDC, Stage 1B, 1cm, 2 clean nodes, 1 mode with .24mm micromet, extensive LVI Treatment: Chemo 4 rounds TC, Radiation 6 weeks, will start AI spring 2019, on Lupron since 10/18.
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Apr 12, 2019 08:54PM MamaOz wrote:

Hopefully this wont get nixed but Yes I dont think it does any harm and helps with the aches

I get mine medical grade fromMy gynecologist

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Apr 16, 2019 09:12PM Toyamjj wrote:

Hey everyone!

Starting Anastrozole May 1, anyone have any good stories to share, only hearing about the bad lol. I love to hear the truth but hoping all is not down here from here?

DX at age 44 Oncotype 22 Dx 1/4/2019, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 2/28/2019 Radiation Therapy 3/13/2019 Hormonal Therapy 4/30/2019 Arimidex (anastrozole)
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Apr 16, 2019 09:30PM MACTAZ wrote:

Not all bad news, you can also checkout the topic “doing well on aromatase inhibitors”. I read both threads and try to keep things in perspective. I have been in anastrozole for a little over 7 weeks. Certainly have a few SE, but have found ways to get past those issues. Sleep, melatonin- achy joints, Tylenol or Advil with exercise and keep moving. Have a few blue days but nothing I can’t handle. Take care and hope all goes well

Neo-adjunct therapy-TCHP (6 infusions ), Single MX right with TE, reconstruction-reduction and lift of left, implant and nipple reconstruction (3 surgeries), adjunct therapy H&P (11 infusions), hormone therapy. Dx 8/14/2018, IDC, Right, 1cm, Stage IA, Grade 2, 1/2 nodes, ER+/PR+, HER2+ (DUAL) Dx 8/14/2018, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR+, HER2+ Dx 9/19/2018, DCIS, Right, <1cm, Stage 0, Grade 3
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Apr 16, 2019 10:59PM Taco1946 wrote:

Toyamjj - do check out the "doing well" thread. I'll have 2 years of AI's done in May. Remember that everyone doesn't have many SE's and that we seem to react to the different ones differently. Some find that even the manufacturer makes a difference. For everything wonderful I tell you about Femora, someone will tell you the opposite. My MO continues to work with me to minimize my discomforts so speak up. Don't let anyone tell you there aren't any, but don't get ahead of yourself either. Also know that you can try another one. If your MO dismisses that idea, dismiss him/her and find someone who will work with you.

I try very hard to stay hydrated and exercise. Some have found that lower carb diets help the joint pain but I haven't been uncomfortable enough to make those life style changes. I gave up drinking 37 years ago and I'm not ready to give up my ice cream but that's just me. Weight gain is a problem for many and cutting the carbs certainly could help with that too. (Even after the extra Taxol weight, I now weigh less than when I was diagnosed so maybe I'm being more careful in my choices than I realize.)

Anyway, do join us on "doing well" and take it one day at a time.

Dx 11/22/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Radiation Therapy 12/29/2016 Balloon-catheter: Breast Chemotherapy 2/3/2017 Taxol (paclitaxel) Targeted Therapy 2/3/2017 Herceptin (trastuzumab) Hormonal Therapy 12/4/2017 Femara (letrozole) Targeted Therapy Surgery Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary
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Apr 16, 2019 11:43PM Suzyshacklechick wrote:

I could not find doing well post to join. Could you please post complete name of post? Thank you ❤️

Dx 11/2/2018, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 12/27/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 2/18/2019 Arimidex (anastrozole)
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Apr 17, 2019 12:07AM PontiacPeggy wrote:

Toyamjj, I've been on anastrozole (generic Arimidex) for 4-1/2 years. I've had few SEs. I will be done in October. My MO thinks that 5 years is enough in my case. I do take Fosamax for my bones. I've had no trouble with it either. I was diagnosed with osteopenia before I started my AI. Things have remained stable. If you find you are stiff in the joints, try regular (not D) Claritin. That seems to help. Good luck!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Apr 17, 2019 01:59AM HikingLady wrote:

Suzyshacklechick Here's the link. I would call myself someone who's Doing Well on my AI. A few challenges, but no disaster. Just some stiffness. This forum thread (below) is full of lots of perspective, and has lots of positive and hopeful stories.

https://community.breastcancer.org/forum/78/topics/854403?page=33#idx_973

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 17, 2019 09:26AM Ingerp wrote:

I'm tolerating it okay too, and wanted to add that some of us did a lower dose for a few weeks to get our bodies used to it. My pills are too small to cut in half so I took one every other day for about three weeks. It *seems* to have given us not-too-bad SEs.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/22/2016 Lumpectomy Surgery 4/19/2016 Lumpectomy: Left Radiation Therapy 5/17/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/12/2018 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/17/2018 Herceptin (trastuzumab) Chemotherapy 5/17/2018 Taxol (paclitaxel) Radiation Therapy 8/19/2018 Whole-breast: Breast
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Apr 17, 2019 11:21AM Snickersmom wrote:

I have been on Anastrozole for just about 18 months and I really can't complain about any severe side effects. I do have aches and pains but honestly don't know if that's because of the medication or the fact that I'm 72 and tend to forget that I'm not a lot younger! My biggest issue has been the Buddha belly/weight gain but I'm working on that. I am on Zoloft for PTSD/depression/whatever and that keeps me calm and somewhat sane most of the time. I will probably be on it for another 3-1/2 years or so, and that's fine with me. I'll do whatever it takes to remain cancer-free.

Dx 3/24/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/3/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/12/2017 Arimidex (anastrozole)
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Apr 17, 2019 12:33PM - edited Apr 17, 2019 12:35PM by Suzyshacklechick

Thank you ❤️ I take mine at night so I sleep thru the side effects if any and am doing great . Only been in 2 months and I only get a headache once in a while. Take Valium if I can’t sleep. Have a great day

Dx 11/2/2018, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 12/27/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 2/18/2019 Arimidex (anastrozole)
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Apr 17, 2019 12:38PM - edited Apr 17, 2019 12:41PM by kimburke

Hi ,

i was on Tamoxifen for 13 months (no major side effects), did a hysterectomy in June 2018 and switched to Anastrozole (taking it for 11 months now) .I have put on weight with it as well and it doesn't seem to be budging , regardless of how many calories I burn daily. I am having a lot of joint pains mainly in my ankles and knees which inhibit my exercise routine. There is some in my fingers and toes but not as much. I do a lot of walking , jogging and aerobics. I have been swimming more so as to take the pressure off my legs. What has anyone taken for the joint and muscle pains, to be able to continue comfortably with their exercise routine?


Dx 12/23/2016, IDC, Right, <1cm, Stage IIA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 1/19/2017 Mastectomy: Right Chemotherapy 3/3/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 3/23/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 4/19/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 5/10/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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