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Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by Moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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May 5, 2019 11:00AM Tappermom383 wrote:

I have a follow-up question: Can - do - side effects show up long after starting on anastrozole? I started in July 2017, nearly two years ago. Does it make sense that the diarrhea would show up now as an SE?

Thanks.

MJ

Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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May 5, 2019 11:22AM HikingLady wrote:

My MO made sure to tell me that some side effects to AI's DO show up later, after years, yes, that this could happen.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/8/2003 Lumpectomy Radiation Therapy 6/9/2003 3DCRT: Breast Hormonal Therapy 8/7/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/6/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 5, 2019 07:57PM ed111 wrote:

One more suggestion for those who are working, and whose days may be spent in the office -- do not sit! These days almost all workplaces accommodate or supposed to accommodate healthier life choices, and those include standing desks. If your company does not provide standing desk, buy a desktop extension on amazon. Get yourself a balancing board, so when you work standing, you also stand on a board and gently stretch and exercise all your muscles, especially those that might feel 'pulling' with AI effects. The more you move, the less stiffness and pains from AI are felt. I'm not sitting throughout a day at all. Got myself a standing desk for home, too, so whatever I do, from works to bills to social media to reading, I'm rocking on the board at the standing desk. Practically eliminated sitting ). Noted that when I just have to sit, in restaurant, for example, or in a car, after about an hour, I'm stiff. After a day on a board standing -- no stiffness, no pains.

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May 9, 2019 01:14PM InnaB2018 wrote:

Hi, guys, I don't comment often on this thread for some reason, but just wanted to share something with you. I started taking Anastrozole in December of last year and was constantly troubled by side effects like hot flushes (up to 10 times a day), joint pain and vaginal dryness. The pill was manufactured by Accord. Then I spoke to my pharmacist and begged her to order Teva for me because I read that it produces fewer side effects. There were problems getting it, but she persevered and I got my first Teva bottle about a month and a half ago.

Well, I have to say that I didn't expect that much of a difference! Now I am down to about one hot flash a day, usually in the evening and my joint pain is gone! Not sure about vaginal dryness, because I still use coconut oil moisturizer just in case, but maybe will give it a rest one of these days.

My pharmacist said that if she gets prescription, she can get Teva for anyone who needs it. It's a private pharmacy, so I am guaranteed personal attention. She also made me great scar creams for my mastectomy scars. Here's the pharmacy info, if anybody is interested. It's licensed day in many states.

Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol) Radiation Therapy 10/7/2018 3DCRT: Breast, Lymph nodes, Chest wall Surgery 5/21/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 5/22/2019 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole)
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May 9, 2019 01:31PM L8Blmr wrote:

InnaB, I had the same experience. I switched from Accord brand anastrozole to TEVA brand; the joint/muscle pain is almost non-existent. Someone suggested it on this thread 6-8 months ago. It took me 4 months to find a pharmacy that carried TEVA brand. So happy for the suggestion and making the switch.

L8Blmr Dx 11/2/2017, IDC: Papillary, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery 12/14/2017 Mastectomy: Left, Right Chemotherapy 1/14/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/22/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/30/2018 Arimidex (anastrozole)
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May 11, 2019 01:00PM Stellawt57 wrote:

Thanks Ladies, it's hard to believe that the med can differ that much. When I went to my 6 month post surgery appt. in April I asked my MO to made a referral for me to an Integrative Dr. I saw her last week, first she recommended me to do the elimination diet to see if any of the foods could be contributing to my joint pain, I have osteoarthritis and rheumatoid arthritis, I know some of the pain is from that. Then she recommended curumin for pain

Dx 8/14/2018, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Radiation Therapy 10/3/2018 Surgery 10/3/2018 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Hormonal Therapy 10/8/2018 Arimidex (anastrozole)
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May 12, 2019 09:33AM ed111 wrote:

Stellawt57 -- I take 2x2 per day turmeric, and 20000 D, along with keeping my C blood levels at > 300. Plus large supplement cocktail of other goodies. Integrative medicine is the way to go these days...

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May 12, 2019 05:15PM Stellawt57 wrote:

And now for the rest of the story (Paul Harvey- for those who are of my generation) part of what I typed yesterday didn't post! I take 2 cumin 2x daily, D- been taking this for many years, Natural Calm a magnesium powder for stress/anxiety/mood swings/anger (my #1 SE), liquid bioactive B12 which I place under my tongue for 20 sec. before swallowing. B12 also assists with the emotional concerns. My regiment also includes calcium, fish oil, and melatonin. When my school year ends this week I will also have acupuncture sessions to see if that will help with the joint pain as well as the anxiety/mood swings. Thanks goodness for insurance! My liquid B12, cumin, melatonin, and Natural Calm are from pharmaceutical quality as OTC aren't always what the label claim. I ordered from Progessive laboratories,

Dx 8/14/2018, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Radiation Therapy 10/3/2018 Surgery 10/3/2018 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Hormonal Therapy 10/8/2018 Arimidex (anastrozole)
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May 13, 2019 08:16PM Rosanne7 wrote:

That's interesting about different generics: I'm currently taking Teva (but Walgreens had just a few pills -- so June refill is Accord. There are expected S/E w/ Teva.... but joint pain is not intolerable -- there is just more pain -- in more joints throughout the body. I'm walking w/ a cane & knee brace for now... hope it gets better. No muscle pain, thankfully! :)


Dx 5/2007, DCIS, Left, Stage 0, ER+/PR+, HER2- Dx 9/2007, LCIS, Left Surgery 2/29/2008 Lumpectomy Dx 8/2011, DCIS/IDC, Left, 2cm, Stage IIA, 0/1 nodes, ER+/PR+, HER2- Dx 11/1/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR- Surgery 2/14/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/30/2019 Arimidex (anastrozole) Radiation Therapy Breast, Lymph nodes Surgery Lumpectomy; Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Saline implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Left
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May 13, 2019 10:01PM fancynancy1955 wrote:

Hello all ~ thanks for being here. I started on Anastrozole in November of 2018. I'm taking all my supplements, exercising and moving every day. The past couple of weeks, I have been experiencing a very painful cramp in my left calf area, to the point I cannot put any pressure on it. It does dissipate and eventually go away after lasting many hours. Anyone else experience this? The joint pain is manageable so far, although I hope it gets better. I'm feeling sorry for myself today. HAHA Any advice, guidance is appreciated. Thanks so much.

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May 13, 2019 10:29PM beep7bop wrote:

fancynancy1, Don't have answers but I have been on Anastrozole for almost a month. feel a little squeeze once in awhile. but so far so good. still dealing with some pain from mx.

Dx 3/11/2019, ILC/IDC, Both breasts, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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May 13, 2019 11:31PM GrandmaV wrote:

fancynancy - have you had your potassium levels checked? I was having cramps in my calves and feet, turns out my potassium level down from a diuretic I take for blood pressure. My primary doc prescribed potassium for me

.

Dx 9/1/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 10/11/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 11/4/2011 Herceptin (trastuzumab) Chemotherapy 11/4/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 2/13/2012 Hormonal Therapy 4/1/2012 Femara (letrozole) Dx 9/1/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery 9/29/2017 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 11/22/2018 Arimidex (anastrozole)
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May 14, 2019 03:08PM sumomo wrote:

Hi. I can't read all the posts so, if my question is duplicated, sorry. I'm curious about the brand difference Accord vs TEVA. Would it be easy for hospital pharmacy to switch the brand if I request? Since they both are generic, I guess there would be not much cost difference?

BTW, does anybody switch to Femara due to Arimidex severe side effects? I guess this question has already been asked somewhere else. I will try to find...

Thanks. Take care everyone!

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May 15, 2019 08:08PM MexicoHeather wrote:

Yesterday I had my DEXA Scan, blood work and check in with my Oncologist nurse. I told her that SEs hadn't changed much #1 is HOT flashes, #2 is muscle aches. I'm taking my dose every other day, and with that I think I can handle it.

She said, "So, you don't seem to tolerate medication well. Can you do this for 7 years?"

"What the what? Seven years? I am heard 5 discussed, and about some people doing up to 10. This is the first time anyone suggested 7 years for me personally."

So I guess that's what is expected. It just sounded terrible at the moment, so I said that all I could promise was to keep going unless something changes.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Surgery 12/6/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 15, 2019 08:14PM Toyamjj wrote:

Im noticing a lot of ladies on here taking supplements, I'm not taking anything and as of current I haven't been told to? I go for my three month check up in about 2 months, is it because I'm still so new to taking anastrozole and lupron shots?

DX at age 44 Oncotype 22 Dx 1/4/2019, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 3/1/2019 Radiation Therapy 3/13/2019 Hormonal Therapy 5/1/2019 Arimidex (anastrozole)
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May 15, 2019 08:15PM PontiacPeggy wrote:

MexicoHeather, 7 years? Seems like the MOs go for 5 or 10. Mine says with my dx that 5 is plenty. I doubt he'll change his mind when I see him next month. I should be done then in October. Hard to believe it has been nearly 5 years. My mammogram was good that I had done last week.

Good luck with your SEs!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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May 15, 2019 08:18PM PontiacPeggy wrote:

ToyaMjj, I take vitamin d3, 1000 units 3 times a day and folic acid (because I intend to drink my nightly glass of wine). I also take REGULAR Claritin to help with the stiffness I have (and had before BC). But that's it (aside from Benadryl and Pepcid and Fosamax). I'm just not into supplements. I know many ladies here are.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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May 15, 2019 10:40PM GrandmaV wrote:

Hi everyone,  This article from this site will explain the 7 years verses 10:

www.breastcancer.org/research-...      

Dx 9/1/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 10/11/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 11/4/2011 Herceptin (trastuzumab) Chemotherapy 11/4/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 2/13/2012 Hormonal Therapy 4/1/2012 Femara (letrozole) Dx 9/1/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery 9/29/2017 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 11/22/2018 Arimidex (anastrozole)
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May 16, 2019 01:31AM GrandmaV wrote:

Toyamjj - my onco put me on calcium, and vitamin d3 when I started aromatase inhibitor to help counteract the bone thinning effects of the aromatase inhibitor. You might ask your onc. about it.

Dx 9/1/2011, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 10/11/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Targeted Therapy 11/4/2011 Herceptin (trastuzumab) Chemotherapy 11/4/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 2/13/2012 Hormonal Therapy 4/1/2012 Femara (letrozole) Dx 9/1/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery 9/29/2017 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 11/22/2018 Arimidex (anastrozole)
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May 16, 2019 06:44AM Ingerp wrote:

Mexico--I was told five years (for now) but a good friend who was diagnosed last summer at the other hospital in town was told seven. I know there is emerging research about the benefit of extending the AI for several years, although I recently had a follow-up with my RO and she said the longer time period is more often recommended for younger women with more aggressive cancers. I figure we'll see what the research says when I hit the five-year mark (I'm only about five months in) but wouldn't be surprised if it's recommended that I stay on it a few more years.

Re: supplements, I've never been a big fan, but did start taking some D this past fall and more recently added in some calcium, although am trying to increase that through diet too. PontiacPeggy--what's the correlation between folic acid and wine/alcohol?

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Chemotherapy 5/18/2018 Taxol (paclitaxel) Radiation Therapy 8/20/2018 Whole-breast: Breast
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May 16, 2019 07:43AM Toyamjj wrote:

PontiaccPegg,

Can you explain what you're taking so you can still enjoy a nightly glass of wine daily? How does that help? I've given up drinking during the week and now only drink now during the weekend. I would love to be able to enjoy a glass with dinner like I use too?


Thanks

DX at age 44 Oncotype 22 Dx 1/4/2019, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 3/1/2019 Radiation Therapy 3/13/2019 Hormonal Therapy 5/1/2019 Arimidex (anastrozole)
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May 16, 2019 10:40AM PontiacPeggy wrote:

Ingerp and Toyamjj, I take folic acid because Dr Susan Love (The Breast Book - the BIBLE of breast cancer) said that it might help. Now, I have no idea if that is true but I thought it couldn't hurt. Many of my friends from BCO still drink (none to excess). My feeling is all things in moderation. I did not make any huge changes in my life because of BC. Not sure I even made any small ones. I usually have one glass of wine with dinner. I might consider two glasses but that is too many for me and I don't like feeling loopy - low alcohol tolerance apparently. Each of us has to decide what is best for our own bodies. I happen to think that alcohol did not play a role in my BC. Nor any food. If changing your diet, eliminating alcohol or other changes help you - go for it. Perhaps it makes a difference that I'm 73. I don't know. I'm also not overweight.

So many unknowns!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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May 16, 2019 03:07PM Ingerp wrote:

Peggy it did occur to me that I think <most?> bread in this country has folic acid in it and I no longer eat bread <much!>. Now I'm wondering how much I'm getting in my diet. Certainly something to think about. . .

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Chemotherapy 5/18/2018 Taxol (paclitaxel) Radiation Therapy 8/20/2018 Whole-breast: Breast
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May 16, 2019 04:02PM Bow1965 wrote:

My oncologist said 10 years for the AI - I was on Tamoxifen for 3.5 and now Arimidex (anastrozole) for 1 year and 1/2 so far...Peggy, I remember you from 5 years back which was my active surgery/chemo/rads period. Glad you are doing well! For supplements I am taking the Costco combo 600mg Calcium with D3, I take 2 a day. (1200 mg calcium and 800 IU of D3).

Dx 3/2014, IDC, 3cm, Stage IIIA, Grade 2, 4/9 nodes, ER+/PR+, HER2- Surgery 4/24/2014 Lymph node removal: Left; Mastectomy: Left Chemotherapy 5/20/2014 AC + T (Taxol) Radiation Therapy 9/15/2014
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May 16, 2019 05:46PM PontiacPeggy wrote:

Ingerp, I honestly don't know if folic acid matters or not. However, I figure it can't hurt.

Bow1965, we do go back a long ways! Sounds like you are doing well. Very glad to hear it!! Neither of my MOs ever said 10 years for me. My one here in Spokane sees no need. I absolutely trust him. Unlike my MO in Pontiac, he has never treated any of my off-the-wall questions as being crazy. He really listens (amazing, isn't it?). I will miss him - he's kicking me loose in June or maybe December.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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May 16, 2019 08:33PM MACTAZ wrote:

Seems like I’m taking the most supplements. I take 2 calcitrate with D, each tab has 600 mg calcium and 800 IU of D because I have osteoporosis. I also take turmeric/curcumin with ginger, 600 mg for inflammation associated with arthritis, and also vit b6 and alpha lipoid acid tabs to help with neuropathy I got from the taxotere. I take melatonin to help sleep due to the astrozole. I do wonder sometimes if it is to many.

Neo-adjunct therapy-TCHP (6 infusions ), Single MX right with TE, reconstruction-reduction and lift of left, implant and nipple reconstruction (3 surgeries), adjunct therapy H&P (11 infusions), hormone therapy. Dx 8/14/2018, IDC, Right, 1cm, Stage IA, Grade 2, 1/2 nodes, ER+/PR+, HER2+ (DUAL) Dx 8/14/2018, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR+, HER2+ Dx 9/19/2018, DCIS, Right, <1cm, Stage 0, Grade 3
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May 16, 2019 11:34PM CindyNY wrote:

MACTAZ - vitamin C, D, a multi vitamin, 2 fish oil, 2 Citracal - calcium +D, an apple cider vinegar capsule and I'm adding magnesium. We've been on the road and I just haven't included it yet. Does it help me? Damned if I know.

The extra D was added by my MO. But the first 5 listed above I've taken for about 20 years. Still got BC but otherwise I'm very healthy. I believe it's a crap shoot.

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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May 17, 2019 12:20AM PontiacPeggy wrote:

CindyNY, I'm with you. We lost the lottery. Definitely a crapshoot.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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May 17, 2019 07:20PM lala1 wrote:

I took (and still take) magnesium, turmeric, ginger, fish oil, 5000IU Vit D and a multi along with a good probiotic and olive leaf extract. The magnesium, turmeric and ginger were to counteract the Tamoxifen muscle pain and I continue them because the magnesium keeps me regular and my PCP says turmeric is the new wonder supplement for heart health. My BS put me on the higher dose of D because he swears it's why so many of us get cancer now. ( I have an outside job and my D levels were very low at diagnosis.....he says it's because we use so much sunscreen.) The fish oil also helps with heart health. The probiotic keeps my gut healthy and since I started the olive leaf extract 4 years ago I haven't had a single cold! And that's after I used to get 2-3 every winter! Other than the turmeric and Vit D, I don't think I'd ever stop the OLE.

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/13/2012 Mastectomy: Left Hormonal Therapy 2/1/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/26/2013 Reconstruction (left): Silicone implant Surgery 6/25/2014 Reconstruction (left): Nipple reconstruction Surgery 1/20/2015 Prophylactic ovary removal
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May 20, 2019 08:01PM - edited May 20, 2019 08:02PM by CindyNY

Hey ladies, I've got two issues I'm looking for some insight on.

Is anyone having bleeding gums with no oral health problems? Just had my 6 month cleaning and mentioned after brushing w electric toothbrush, when I spit and rinse, I see blood. No inflammation, floss 2x a day, brush 2x a day. She gave me a new toothpaste to try, Parodontax. She'll recheck me in August if its not gone. I may end up at a periodontist.

Next is spotting after intercourse or even a random pink tinge on wiping. Today was also my yearly OB/GYN internal. She did a pap, took 2 cultures, and scheduled an internal ultrasound. No pain when she presses on my cervix but blood on her glove from it.

I'm back from snow birding in FL, and all my appointments hit near each other. Feels like I'm on a roll, not necessarily a good roll.

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)

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