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Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by Moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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Jun 21, 2019 09:31AM edj3 wrote:

I know for me, were I in your shoes I wouldn't even be considering not taking the endocrine drugs. You're right, your situation is completely different from mine and I wish it weren't that way :(

Tried the tamoxifen, no thanks. Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 21, 2019 09:54AM hapa wrote:

Re: online predictor tools, I get wildly different results using predict vs. lifemath. Lifemath puts my 15-year risk of death at around 20% whereas Predict gives me about 50-50 odds at 15 years. Anybody else get such different numbers?

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/27/2018 Perjeta (pertuzumab) Targeted Therapy 3/27/2018 Herceptin (trastuzumab) Chemotherapy 3/27/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Jun 21, 2019 10:06AM - edited Jun 21, 2019 10:07AM by Scrafgal

I will be switching to an AI as soon as I am menopausal (soon, we are thinking). I am another person with no other choice. Very high risk, so I've joined all of the threads about AIs and Arimidex, in particular. I have made friends with Tamoxifen...no real SEs now...so, I don't want to make the switch but I must, to lower my risk. At this point, even if I get the most common side effects, I figure if FAC didn't kill me, I can handle it!

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/5/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/21/2017 Taxol (paclitaxel) Chemotherapy 6/14/2017 FAC Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/12/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 10/15/2018 Reconstruction (right): Nipple tattoo Surgery 5/9/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 7/22/2019 Arimidex (anastrozole) Surgery 9/6/2019 Reconstruction (right): Nipple tattoo
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Jun 21, 2019 10:08AM edj3 wrote:

When I run those tests using my data, the data is expressed differently but I think it's basically similar. Lifemath says my risk is 2.4% but it also doesn't ask anything about the Ki-67 status.

Predict does ask that and considered me positive at 12% although in the US, it's not bad until it's 20% according to my care team. My survival rate for 15 years is 89% with surgery (which I had).

Tried the tamoxifen, no thanks. Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 21, 2019 10:20AM SpecialK wrote:

hapa - unless lifemath/cancermath has been updated it doesn't factor in treatment for the Her2+ aspect of therapy, but Predict does.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Jun 21, 2019 11:04AM Haliday wrote:

thanks, all. Yes, I have run as many prediction tools as I can find. Predict suggests a 9-12% difference in surviving at the 5, 10 and 15 year marks. And Iassume that incorporates the risk of recurrence. The question for me is what do those years look and feel like. And, absolutely, everyone makes their own choices based on their personal sense of risk assessment combined with the statistics.

Dx 1/2019, IDC, Left, 2cm, Stage IIB, Grade 2, 2/2 nodes, ER+/PR+, HER2- (IHC)
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Jun 21, 2019 08:04PM bennybear wrote:

it’s good to see such a logical discussion about such a difficult situation. Is is so individual, but we all need to understand the risks vs benefits for our situations, And support each other in our journeys.

For me the benefit is only 2% and I lost 10% of my spine within six months of AIs so a clear decision for me. I just wish I didn’t end up with the bone loss. I know this is atypical but for me not worth The risk. I am happy to be able to walk again normally without pain, and sleep through the night again.

hugs to all!

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Jun 22, 2019 08:22AM giggs wrote:

AngelsGal57, there's nothing petty about wanting to keep your hair!!! There are threads in here about hair thinning and hair loss.

I'm starting anastrozole today and very nervous about all of this.

surgery invasive ductal carcinoma 3/28/19 Dx 3/1/2019, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Jun 22, 2019 08:11PM ed111 wrote:

Anastrozole recall -- who knows about it? https://www.smithdrug.com/uploads/recalls/Recall_Notification_Letter_-Anastrozole_Tablets_1mg-Revised_05.06.19.pdf

I continued taking it till ran out, called for refill, my nurse told me nothing but that CVS is out of stock. Then I got a call from my CVS that drug has been recalled. Are you affected? How did find out about it? What do you do about it if you need a refill?

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Jun 22, 2019 08:16PM pollicakes wrote:

I just read your post, I hope you are doing well. I'm making major changes, like plant based diet, etc. Do you mind if I ask you what brand turmeric combo liquid you are taking and what brand liquid probiotic you use? Thank you !!

Dx 4/2017, IDC: Mucinous, Left, 2cm, Stage IB, Grade 1, 0/3 nodes, ER+, HER2- Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Left; Lymph node removal: Left, Sentinel
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Jun 23, 2019 12:09PM Stellawt57 wrote:

Edd11, thanks for sharing the recall letter. This brand is the exact brand my pharmacy receives my anastrozole from. I placed my refill request four days ago and it hasn't been fill so I called and asked about it. The pharmacist danced around my question if the Zydus is the brand they carry and her response was they receive what their pharmacy warehouse has and distributes to them. I asked if the brand they carry is Accord or TEVA and finally she replied Zydus. I figured so as she over stated where the hang up was for not getting my prescription filled. She then suggested to contact another pharmacy to fill my script as she has no idea when they will get a supply in. I'm ok with the number of pills, I have enough for a week but wondered if the delay in refilling my script had to do with the recall and it does

Dx 8/14/2018, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Radiation Therapy 10/3/2018 Surgery 10/3/2018 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Hormonal Therapy 10/8/2018 Arimidex (anastrozole)
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Jun 23, 2019 07:16PM MACTAZ wrote:

stellawt57, amazing they didn’t fess up and actually notify you of the delay and reason. I have gone to the fda site and signed up for recall notices, I was amazed at the number of products with current recalls that I hadn’t heard about.

Edd11, thanks for the heads up. I checked mine and was okay.

I was curious if people SE come and go? It seems like I will have some really good days then a couple of lousy days, nothing I can’t handle, but just found it odd.

Take care all.

Neo-adjunct therapy-TCHP (6 infusions ), Single MX right with TE, reconstruction-reduction and lift of left, implant and nipple reconstruction (3 surgeries), adjunct therapy H&P (11 infusions), hormone therapy. Dx 8/14/2018, IDC, Right, 1cm, Stage IA, Grade 2, 1/2 nodes, ER+/PR+, HER2+ (DUAL) Dx 8/14/2018, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR+, HER2+ Dx 9/19/2018, DCIS, Right, <1cm, Stage 0, Grade 3
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Jun 23, 2019 11:47PM sdianel wrote:

monicahey: I have been on Arimidex for about 4 months and my hair is falling out. I sent a message to my Oncologist and she said "You can try some over the counter vitamins for hair & nails" -- I bought some but they don't seem to be helping. It's like they don't know what to do. Maybe there is nothing. I also have joint pain. I can't take NSAIDS. I moved the AI to right before bed and that helped some. I started taking CBD and that is helping me sleep. I want to know if the hair loss is permanent and I want to know that I can do to stop it. They are NO help!! I feel so guilty talking about my hair to them. There are so many women suffering with breast cancer that I don't think I deserve to complain about my hair. I'm going to ask my hair stylist. Maybe she will know what to do. At least a shorter choppy hair cut might help. My hair has always been thinner in the front but now you can see my scalp!! I color my hair and may stop that too. Let me know if you find out anything.

Dx 2/2017, DCIS, Right, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2017 Lumpectomy: Right Radiation Therapy 5/15/2017 3DCRT: Breast Hormonal Therapy 4/21/2018 Arimidex (anastrozole)
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Jun 24, 2019 08:49AM MACTAZ wrote:

sdaniel, I just want you to know you have every right to worry about your hair loss and do not feel guilty. We all have been through so much with the BC which has taken so much from us. I’m sorry I don’t have any suggestions for your hair loss and hope some others do. With regards to joint pain I have been taking turmeric and it does seem to help.

Good luck.
Neo-adjunct therapy-TCHP (6 infusions ), Single MX right with TE, reconstruction-reduction and lift of left, implant and nipple reconstruction (3 surgeries), adjunct therapy H&P (11 infusions), hormone therapy. Dx 8/14/2018, IDC, Right, 1cm, Stage IA, Grade 2, 1/2 nodes, ER+/PR+, HER2+ (DUAL) Dx 8/14/2018, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR+, HER2+ Dx 9/19/2018, DCIS, Right, <1cm, Stage 0, Grade 3
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Jun 24, 2019 05:47PM ed111 wrote:

Stellawt57 MACTAZ -- just off the phone with my MO. She is infuriated. She said, she personally called CVS two weeks ago, and they kept telling her it's "problem with manufacturer, it's on backorder". And because it's a voluntary retail level recall, there is no FDA nationwide warning, so MD wouldn't know. CVS is lying not just to retail customers, but to providers, which is insane. I wonder if there is a class case. I'm getting mine filled in Walgreens meanwhile...

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Jun 24, 2019 07:06PM Stellawt57 wrote:

I talked with my MOs office this morning telling them that my script isbeing filled at my pharmacy, as they get the med from Zydus who is the lead of the recall. I also shared that they don’t know when they’ll be able to fill it due to the recall. MOs office called around & found another pharmacy to fill the script for the next month so we’ll have to see when the pharmacies affected by the recall get back to normal. I’m interested to see what brand they use & if I see any differences, the price is similar.

Dx 8/14/2018, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Radiation Therapy 10/3/2018 Surgery 10/3/2018 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Hormonal Therapy 10/8/2018 Arimidex (anastrozole)
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Jun 25, 2019 09:40PM bennybear wrote:

sdianel, Biotin is worth a try and ask for a referral to a dermatologist. Unfortunately it is a side effect of the AIs. And it is a real problem, I think we have all been through so much that you think it’s just hair, but how we look sure can effect how we feel.

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Jun 26, 2019 04:33PM ctmbsikia wrote:

I went to CVS and bought a conditioner that says it's for thinning hair and it's to help thicken or at least maybe make my strands stronger? Or I just paid $14. to make my hair look fuller! LOL Also bought the serum to go with it. It's quinoa and caffeine and some other vegan stuff. I'll let you know if it works. Just working into my hair was stressful as more was coming out and I got hair on the soap!!!!!!

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Jun 26, 2019 05:46PM - edited Jun 26, 2019 05:48PM by Reckless

Ed111,I actually started a thread about it a month ago

https://community.breastcancer.org/forum/78/topics/871862?page=1#post_5408262

Dx 3/4/2016, IDC, Right, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 4/19/2016 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/19/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/11/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 11/14/2017 Prophylactic ovary removal Hormonal Therapy 6/20/2018 Arimidex (anastrozole)
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Jun 27, 2019 11:50PM Toyamjj wrote:

Noticing some numbness/tingling in a few of my fingers, I think I read somewhere this is a side affect of anastrozole. Anyone out there can confirm this. I hate to call my doc over this, I feel lately like the girl who cried wolf with my recent concerns that I've run by them, so would rather not have to call them over this even though they are so patient with me lol.

DX at age 44 Oncotype 22 Dx 1/4/2019, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 2/28/2019 Radiation Therapy 3/13/2019 Hormonal Therapy 4/30/2019 Arimidex (anastrozole)
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Jun 28, 2019 12:01AM hapa wrote:

SpecialK - I noticed lifemath doesn't take into account herceptin. The weird part is that it gives me such better chances than predict, which does account for herceptin. Thank god I'm not british, I guess?

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/27/2018 Perjeta (pertuzumab) Targeted Therapy 3/27/2018 Herceptin (trastuzumab) Chemotherapy 3/27/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Jun 28, 2019 02:06AM HikingLady wrote:

Toyamjj My MO told me that tingling and numbness in fingers is not a side effect he's heard of with AI's. I have exactly that, myself, but it's a "not unexpected" (!!!) side effect after chemo (and during chemo), and I did have chemo, and my numbness neuropathy in my fingers is getting a little better now, thank heavens.

I think that you should report your symptoms to your MO to keep track of, and you should keep asking questions about this, for sure.

My MO has wanted me to report all side effects that worry or bother me. That way he can assess whether to intervene, and also can keep track of things improving or worsening over time.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/9/2003 Lumpectomy Radiation Therapy 6/10/2003 3DCRT: Breast Hormonal Therapy 8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/7/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 28, 2019 09:02AM Toyamjj wrote:

Thanks HikingLady, I actually have an appointment today and I'm going to let them know!


DX at age 44 Oncotype 22 Dx 1/4/2019, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 2/28/2019 Radiation Therapy 3/13/2019 Hormonal Therapy 4/30/2019 Arimidex (anastrozole)
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Jun 28, 2019 04:02PM Tappermom383 wrote:

Toyamjj, I have had numbness and tingling in my left hand for quite a while now. I was waking up with my left hand completely numb. Another sister on this site recommended I start wearing a wrist brace at night, which I have been doing. It has helped tremendously. I just bought it at Rite-Aid.

I mentioned that to my MO, of course, as well as my other SEs. He pretty much dismissed them all. I think we all know better!

MJ


Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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Jun 28, 2019 11:25PM - edited Jun 28, 2019 11:26PM by Janett2014

I go to a dermatologist who treats many patients with hair issues. I have been pleased with the results.

Here are the over-the-counter treatments he has me on: Organix brand biotin & collagen shampoo and conditioner, supplements (pills): cinnamon, fish oil, baby aspirin, Biotin, vitamin D3.

Here are the prescription treatments: Minoxidil lotion I put on my hair four nights a week, Biotin spray I put on my hair three nightsa week, Ketaconazole shampoo twice a week, and vitamin injections in my scalp every four months (not as bad as it sounds). And we just recently switched from appointments every four months to every six months because I'm doing well.

Janett2014

Diagnosed age 60 with IDC in 2014. Stage 1A, Grade 2, 0/10 nodes, ER+/PR+, HER2- Cancer on both sides, bilateral mastectomy, reconstruction with silicone implants, Oncotype 16, Arimidex (Anastrozole) 5 years. There are more details in my biography.
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Jun 29, 2019 01:45AM Humblepeace wrote:

Hello Everyone,

I have a question about what I believe to be my HIP area though the rheumatologist said it's my lower back. It's the area above my buttocks, but below my waistline. I have always considered this to be my hip area.

Today I had x-rays on my hips, lower back, and sacrum iliac. I was fine when I believed this pain was at the back hip area because I had read countless post of Arimidex causing hip pain. However, when I was told my sacrum was also being x-rayed and I checked for post of "sacrum pain and Arimidex", the only post I found came up in the Stage lV forums. Needless to say, I lost my mind. So, my question to all who are feeling hip pain on Arimidex, where is the pain located, front, back, etc?

Also, I have been done with active treatment since January 2018. Which included a right side mastectomy, 8 rounds of chemo, 25 radiation. I was on tamoxifen for six months

prior to a full hysterectomy in June 2018 at which time I switched to Arimidex. I also had a whole body bone scan March 2018 which was clear. Thanks for any ideas or words of encouragement while I wait for the x-ray results.

Dx 3/2017, IDC, Right, Stage IIA, Grade 3, ER+ Hormonal Therapy 6/11/2018 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast Chemotherapy Surgery Lymph node removal: Right; Mastectomy: Right
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Jun 29, 2019 10:03PM 2FUN wrote:

I was at a seminar given by a MO doing research local to me. He said the standard does is 1mg, and that is backed up by 20 years of research. Apparently it is not dosed in a mg/pound of body mass as many other drugs are.

Hormonal Therapy Surgery
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Jun 30, 2019 10:21PM MexicoHeather wrote:

Humblepeace: Sorry that you are stressed. You are getting it checked out and have a DEXA scan to compare it to. Sometimes women have issues in that area of the spine due to age, wear and tear of childbirth, etc. I am hopeful that you're okay. Feel free to let us know how the X-Ray went.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 2, 2019 12:28PM sdianel wrote:

I have made the extremely difficult decision to stop the AI. Thank God, per the calculators am low risk for recurrence and will make sure my mammograms are done yearly. I made the decision because my quality of life is terrible on the AI. I am 71 years old and I feel like I'm 100! I'm depressed, not sleeping well and losing my hair. Thanks to everyone on this forum for your support. I will continue to monitor this topic and read your posts.

Dx 2/2017, DCIS, Right, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2017 Lumpectomy: Right Radiation Therapy 5/15/2017 3DCRT: Breast Hormonal Therapy 4/21/2018 Arimidex (anastrozole)
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Jul 2, 2019 12:32PM sdianel wrote:

PS: thanks for all the suggestions for hair loss. I'm taking biotin now and will try some other recommendations.

Dx 2/2017, DCIS, Right, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2017 Lumpectomy: Right Radiation Therapy 5/15/2017 3DCRT: Breast Hormonal Therapy 4/21/2018 Arimidex (anastrozole)

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