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Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jul 10, 2012 09:46PM - edited Nov 16, 2017 05:07AM by Moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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Posts 16561 - 16590 (16,681 total)

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Sep 11, 2019 11:03PM Toyamjj wrote:

Thanks I was on the verge chickening out! I appreciate the response.

DX at age 44 Oncotype 22 Dx 1/4/2019, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 3/1/2019 Radiation Therapy 3/13/2019 Hormonal Therapy 5/1/2019 Arimidex (anastrozole)
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Sep 12, 2019 12:51PM Reader425 wrote:

Toy let us know how you make out! Thinking of you.

Dx 9/11/2014, IDC, Left, 2cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 10/28/2014 Lumpectomy: Left Radiation Therapy 1/4/2015 Whole-breast: Breast Hormonal Therapy 2/28/2015 Arimidex (anastrozole)
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Sep 12, 2019 12:59PM Toyamjj wrote:

The EMG was pretty easy so glad I want through with it, It did confirm that I have carpel tunnel in both hands. Im convinced its because of the medicine, just because the timing of it all. My doc did say that sometimes thyroid issues or even diabetes can trigger carpel tunnel because it can cause inflammation so I'm going to see my primary doc just to make sure I'm ok in those areas.

Will continue to keep you all posted!

DX at age 44 Oncotype 22 Dx 1/4/2019, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 3/1/2019 Radiation Therapy 3/13/2019 Hormonal Therapy 5/1/2019 Arimidex (anastrozole)
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Sep 12, 2019 10:18PM MamaOz wrote:

congrats pontiac!! 💪🏼💕

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Sep 13, 2019 12:46AM PontiacPeggy wrote:

MamaOz, 35 days left. I'm curious as to how my body will react after 5 years.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 13, 2019 03:54AM Castigame wrote:

Congrats !! Pontiacpeggy


Mimi Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Surgery 2/15/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal Chemotherapy 3/21/2017 Radiation Therapy 7/31/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/30/2017
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Sep 13, 2019 04:33AM Ingerp wrote:

PontiacPeggy--please come back and let us know how you're feeling after you stop the AI. A lot of us are really curious!

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Chemotherapy 5/18/2018 Taxol (paclitaxel) Radiation Therapy 8/20/2018 Whole-breast: Breast
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Sep 13, 2019 04:41AM PontiacPeggy wrote:

Ingerp, I certainly will. I'm curious too :)

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 13, 2019 01:56PM CindyNY wrote:

PontiacPeggy -

It's like you are nearing the finish line after a 5 year marathon, and we are all rooting for you! We want to live vicariously through you, with fingers & toes crossed, hoping (knowing!) there is life after AI drugs, and it's without the daily SEs we endure to keep BC away. HUGS

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/31/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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Sep 13, 2019 08:56PM MACTAZ wrote:

Congrats PontiacPeggy. Please do let us know how you do.

Neo-adjunct therapy-TCHP (6 infusions ), Single MX right with TE, reconstruction-reduction and lift of left, implant and nipple reconstruction (3 surgeries), adjunct therapy H&P (11 infusions), hormone therapy. Dx 8/14/2018, IDC, Right, 1cm, Stage IA, Grade 2, 1/2 nodes, ER+/PR+, HER2+ (DUAL) Dx 8/14/2018, IDC, Right, 2cm, Stage IB, Grade 3, ER+/PR+, HER2+ Dx 9/19/2018, DCIS, Right, <1cm, Stage 0, Grade 3
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Sep 14, 2019 04:37AM PontiacPeggy wrote:

I'll definitely keep you posted on how things go after I go off anastrozole.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 14, 2019 09:18AM hapa wrote:

Congrats PontiacPeggy! And let me add to the chorus of people wanting to know how you do after you get off the drugs!

Dx 12/14/2017, IDC, Right, 3cm, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/2/2018 Zoladex (goserelin) Hormonal Therapy 1/2/2018 Arimidex (anastrozole) Targeted Therapy 2/14/2018 Ibrance (palbociclib) Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Sep 16, 2019 08:36AM MamaOz wrote:

well peg

I hope youll let us know!!

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Sep 17, 2019 08:37AM Humblepeace wrote:

PontiacPeggy,

I wish you all the best. I pray your body responds well and you wake each morning able to “jump” out of bed instead of the “anastrozole shuffle” lol 😂

HUGS

Dx 3/2017, IDC, Right, Stage IIA, Grade 3, ER+ Hormonal Therapy 6/10/2018 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast Chemotherapy Surgery Lymph node removal: Right; Mastectomy: Right
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Sep 17, 2019 09:42AM PontiacPeggy wrote:

HumblePeace, I wasn't exactly jumping out of bed before BC. But I'm looking forward to seeing what changes do occur.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 19, 2019 02:49AM Ballofangst wrote:

Hi. May I ask why you are stage 2A? I wondered if it is because of the new staging system?

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Sep 19, 2019 03:32AM PontiacPeggy wrote:

BallOfAngst, who are you inquiring about?

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 21, 2019 11:32PM MissouriCatLady wrote:

I took a couple of days off work for a tiny vacation. I had my HP infusion on Wednesday, and my MO asked me, how you doing on the Arimidex? The office was supposed to have submitted a letter to my insurance company requesting name-brand medication, that I was going to get at my next refill, which was Thursday. I called Walmart Thursday and they told me my co-pay would be $1285. I called my insurance, and they didn't have the letter. I called my doctor's office, and the nurse looked and, no, no letter sent, she would send one. Friday morning, I called my insurance and yes, it was received, and yes, it was denied. Not enough documentation. I called HR where I work, and she was very helpful, telling me they have to use the word "diagnosis" and my problem, which is horrible nightly leg cramps. They also have to state to "override the DAW penalty. " I have tried Zydus, Teva, Accord and Breckenridge. I bought the prescription from Eagle a few months ago when it was $30 and filled my pill box with those the last week - no cramps! (I have been saving this prescription and using it sparingly). I called the doctor's office again Friday, doctor was out, nurse told me - we will not write another letter until he comes back. That's a lot of help, I have 2 pills left.

The reason I am posting this is because the HR lady told me my co-pay, if it was a "preferred drug" thru my insurance would be $40-120, and if it was a non-preferred drug would be $80-240, she wasn't sure which one it was. I got on the phone and ordered from Eagle. If you're thinking of trying to get name-brand Arimidex, before going through all of this, you might check with your insurance to find out what the cost would be, even if they did approve it. I asked the tech at Walmart how many patients were on name-brand, and he told me none that he was aware of. That tells the story, for me - nobody.

My insurance person told me the cost for the company I work at for a month's supply of name-brand is $4000 before their discount. I believe after their discount, it must be $1285. I hope we will all find a place in this world that fixes the cost of our medication. If they can sell it for $60, imagine the profit they make if it is $4000. They ask us to take this medicine, and many women have no trouble, if only we were all so lucky. I wish everyone would work with us, and our side effects, to help us stay on the medication. Just wanted to share this, thank you. Best wishes to everyone, Lisa

Age 56, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Mast, 4/29/19 anastrazole, 6/3/19 Rads Complete response to neoadjuvant therapy
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Sep 22, 2019 11:41AM Totallytubular wrote:

hello, thanks very much for this research. very helpful. there is a good chance i can stop after 5 years.

but yes, it is a moving target. best of luck to you.

Dx 11/15/2014, IDC: Tubular, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2- Surgery 12/10/2014 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/31/2015 Whole-breast: Breast Dx 10/30/2015, IDC, Left, <1cm, Stage IA, Grade 1, ER+/PR-, HER2- Surgery 11/18/2015 Lumpectomy: Left Radiation Therapy 1/13/2016 Whole-breast: Breast Chemotherapy 4/3/2016 CMF Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2019 12:01AM Rosanne7 wrote:

MissouriCat,

Hope you received insurance approval for Arimidex!

I'm undergoing something like that... Walgreen's is offering the royal run-around... clerk keeps leaving messages saying "out-of-pocket cost is greater than $1600 for 30 pills". And, they keep sending faxes to prescribing NP, saying med is not covered by insurance.

Meanwhile, I've gone to Walgreens & spoken w/ pharmacist in-perso & was assured Arimidex is covered, provided Dr. obtainsinsurance prior authorization. At med onc consult, I was promised NP would advocate for me & get prior Auth.

Frustrating that this process is being dragged out. Walgreens clerk seems to be pretending to reach out to Dr.'s office, but not actually doing anything.

Dx 5/2007, DCIS, Left, Stage 0, ER+/PR+, HER2- Dx 9/2007, LCIS, Left Surgery 2/29/2008 Lumpectomy Dx 8/2011, DCIS/IDC, Left, 2cm, Stage IIA, 0/1 nodes, ER+/PR+, HER2- Dx 11/1/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR- Surgery 2/14/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/30/2019 Arimidex (anastrozole) Radiation Therapy Breast, Lymph nodes Surgery Lumpectomy; Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Saline implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Left
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Sep 23, 2019 12:19AM CeliaC wrote:

I have a question for anyone out there on Medicare, which I will be on, starting 12/1. What are you paying for your Anastrozole scrip?

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/20/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/20/2017 Whole-breast: Breast Hormonal Therapy 4/4/2017 Arimidex (anastrozole)
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Sep 23, 2019 01:54AM - edited Sep 23, 2019 01:57AM by Spookiesmom

Depends on your insurance. I had 0 copay. I have Humana Advantage plan. All generic rx, $0 copay.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Sep 23, 2019 03:39AM PontiacPeggy wrote:

I have an AARP prescription plan and pay $30 for 90 days of generic. I have a Medigap F plan and I have paid nothing for any of my BC treatments - just the prescriptions.

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 23, 2019 12:28PM bella2013 wrote:

MissouriCat, I take Magnesium at bedtime. It stops the leg cramps and it helps me sleep. I find that Anastrazole leaves me dehydrated if I don’t get enough water. Dehydration can cause the leg cramps. Hydrate, hydrate, and hydrate some more.

Hope you get this resolved soon. I know it’s frustrating battling the pharmacy and the doctor’s office.

Bell


Diagnosed at 60 years old. Oncotype Score=14. Dx 12/4/2017, IDC, Left, 4cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 1/3/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 2/21/2018 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Sep 23, 2019 10:48PM MissouriCatLady wrote:

Thank you all for listening, and thank you for understanding. I was so frustrated Friday, I sat and cried. I appreciate you all so much, thank you. I hope to hear from my doctor today. If it gets approved, I will let you know the cost. I wonder about AARP, I am going to look into that, thank you. And thank you for the magnesium tip, I do take that, gosh I take so many vitamins, it is almost crazy. I did soak in Epsom salts last night, Lavender scent, for 20 minutes. My cat sat on the tub and was very intrigued with the water. When I got out, I looked at the ingredients, I don't want her getting in there and having a lick and getting sick. The ingredients were MAGNESIUM SULFATE! Well, I didn't know that. I had NO cramps last night (I did take my second to last Arimidex pill). (Friday and Saturday nights I went ahead and took generic pills, and was up walking the floor.) Hoping to get an answer today.

You ever see that Winnie the Pooh quote, sometimes you just want someone to tell you, I understand? Much love to you women today, hugs, Lisa

Age 56, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Mast, 4/29/19 anastrazole, 6/3/19 Rads Complete response to neoadjuvant therapy
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Sep 24, 2019 04:58AM MissouriCatLady wrote:

My insurance is going to override the DAW penalty, which made me very excited, I can get a refill of Arimidex today, BUT then my co-pay is $240. Sigh.

I have choices - quit, switch, pay the money. The cancer roller coaster continues down this journey. Thank you for being there for me, Lisa

Age 56, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Mast, 4/29/19 anastrazole, 6/3/19 Rads Complete response to neoadjuvant therapy
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Sep 24, 2019 05:29AM PontiacPeggy wrote:

Sometimes you can get financial help from Astra-Zeneca towards your Arimidex. No harm in trying!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 24, 2019 06:03AM Spookiesmom wrote:

Peg is right, ibrance copay for me would be over $600 a month. I have 0 copay from Phizer. Think you can get it for $30 a month. Check their website.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Sep 24, 2019 09:02AM MexicoHeather wrote:

Publix Pharmacy used Breckenridge this time for the Anastrozole. I haven't had this brand before. I paid less than $10 out of pocket, but my insurance pays the rest.

I moved to taking anastrozole every other day about a year ago, and that's keeping the stiffness tolerable. Last time I was in for a check, they mentioned that they think I should be on it for a total of seven years.

So, everyone has a different sItuation, but every other day is better than no AI medication at all. I feel rather strongly that it's in my best interest to continue with anastrozole.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 24, 2019 02:44PM Reader425 wrote:

Hi everyone I haven't tried this myself yet but my Eye Drs. office had a card advertising Good Rx. Google it and type in the drug name. It's supposed to show where you can buy drugs cheaper. I typed in Arimidex and reasonably priced options came up. It's worth a try if you are having insurance issues.

All the best as we take this drug we "don't want to take." 😘 if all goes well I'll stop it in Feb. 2020. Looking forward to it.

Dx 9/11/2014, IDC, Left, 2cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 10/28/2014 Lumpectomy: Left Radiation Therapy 1/4/2015 Whole-breast: Breast Hormonal Therapy 2/28/2015 Arimidex (anastrozole)

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