Sep 11, 2019 08:03AM Toyamjj wrote:
Thanks I was on the verge chickening out! I appreciate the response.
Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.
Posted on: Jul 10, 2012 06:46AM - edited Nov 15, 2017 01:07PM by Moderators
I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.
I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.
Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.
Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More
Posts 16561 - 16590 (17,177 total)
Sep 11, 2019 08:03AM Toyamjj wrote:
Thanks I was on the verge chickening out! I appreciate the response.
Sep 11, 2019 09:51PM Reader425 wrote:
Toy let us know how you make out! Thinking of you.
Sep 11, 2019 09:59PM Toyamjj wrote:
The EMG was pretty easy so glad I want through with it, It did confirm that I have carpel tunnel in both hands. Im convinced its because of the medicine, just because the timing of it all. My doc did say that sometimes thyroid issues or even diabetes can trigger carpel tunnel because it can cause inflammation so I'm going to see my primary doc just to make sure I'm ok in those areas.
Will continue to keep you all posted!
Sep 12, 2019 07:18AM MamaOz wrote:
congrats pontiac!! 💪🏼💕
Sep 12, 2019 09:46AM PontiacPeggy wrote:
MamaOz, 35 days left. I'm curious as to how my body will react after 5 years.
Sep 12, 2019 12:54PM Castigame wrote:
Congrats !! Pontiacpeggy
Sep 12, 2019 01:33PM Ingerp wrote:
PontiacPeggy--please come back and let us know how you're feeling after you stop the AI. A lot of us are really curious!
Sep 12, 2019 01:41PM PontiacPeggy wrote:
Ingerp, I certainly will. I'm curious too :)
Sep 12, 2019 10:56PM CindyNY wrote:
It's like you are nearing the finish line after a 5 year marathon, and we are all rooting for you! We want to live vicariously through you, with fingers & toes crossed, hoping (knowing!) there is life after AI drugs, and it's without the daily SEs we endure to keep BC away. HUGS
Sep 13, 2019 05:56AM MACTAZ wrote:
Congrats PontiacPeggy. Please do let us know how you do.
Sep 13, 2019 01:37PM PontiacPeggy wrote:
I'll definitely keep you posted on how things go after I go off anastrozole.
Sep 13, 2019 06:18PM hapa wrote:
Congrats PontiacPeggy! And let me add to the chorus of people wanting to know how you do after you get off the drugs!
Sep 15, 2019 05:36PM MamaOz wrote:
I hope youll let us know!!
Sep 16, 2019 05:37PM Humblepeace wrote:
I wish you all the best. I pray your body responds well and you wake each morning able to “jump” out of bed instead of the “anastrozole shuffle” lol 😂
Sep 16, 2019 06:42PM PontiacPeggy wrote:
HumblePeace, I wasn't exactly jumping out of bed before BC. But I'm looking forward to seeing what changes do occur.
Sep 18, 2019 12:32PM PontiacPeggy wrote:
BallOfAngst, who are you inquiring about?
Sep 21, 2019 08:32AM MissouriCatLady wrote:
I took a couple of days off work for a tiny vacation. I had my HP infusion on Wednesday, and my MO asked me, how you doing on the Arimidex? The office was supposed to have submitted a letter to my insurance company requesting name-brand medication, that I was going to get at my next refill, which was Thursday. I called Walmart Thursday and they told me my co-pay would be $1285. I called my insurance, and they didn't have the letter. I called my doctor's office, and the nurse looked and, no, no letter sent, she would send one. Friday morning, I called my insurance and yes, it was received, and yes, it was denied. Not enough documentation. I called HR where I work, and she was very helpful, telling me they have to use the word "diagnosis" and my problem, which is horrible nightly leg cramps. They also have to state to "override the DAW penalty. " I have tried Zydus, Teva, Accord and Breckenridge. I bought the prescription from Eagle a few months ago when it was $30 and filled my pill box with those the last week - no cramps! (I have been saving this prescription and using it sparingly). I called the doctor's office again Friday, doctor was out, nurse told me - we will not write another letter until he comes back. That's a lot of help, I have 2 pills left.
The reason I am posting this is because the HR lady told me my co-pay, if it was a "preferred drug" thru my insurance would be $40-120, and if it was a non-preferred drug would be $80-240, she wasn't sure which one it was. I got on the phone and ordered from Eagle. If you're thinking of trying to get name-brand Arimidex, before going through all of this, you might check with your insurance to find out what the cost would be, even if they did approve it. I asked the tech at Walmart how many patients were on name-brand, and he told me none that he was aware of. That tells the story, for me - nobody.
My insurance person told me the cost for the company I work at for a month's supply of name-brand is $4000 before their discount. I believe after their discount, it must be $1285. I hope we will all find a place in this world that fixes the cost of our medication. If they can sell it for $60, imagine the profit they make if it is $4000. They ask us to take this medicine, and many women have no trouble, if only we were all so lucky. I wish everyone would work with us, and our side effects, to help us stay on the medication. Just wanted to share this, thank you. Best wishes to everyone, Lisa
Sep 21, 2019 08:41PM Totallytubular wrote:
hello, thanks very much for this research. very helpful. there is a good chance i can stop after 5 years.
but yes, it is a moving target. best of luck to you.
Sep 22, 2019 09:01AM Rosanne7 wrote:
Hope you received insurance approval for Arimidex!
I'm undergoing something like that... Walgreen's is offering the royal run-around... clerk keeps leaving messages saying "out-of-pocket cost is greater than $1600 for 30 pills". And, they keep sending faxes to prescribing NP, saying med is not covered by insurance.
Meanwhile, I've gone to Walgreens & spoken w/ pharmacist in-perso & was assured Arimidex is covered, provided Dr. obtainsinsurance prior authorization. At med onc consult, I was promised NP would advocate for me & get prior Auth.
Frustrating that this process is being dragged out. Walgreens clerk seems to be pretending to reach out to Dr.'s office, but not actually doing anything.
Sep 22, 2019 09:19AM CeliaC wrote:
I have a question for anyone out there on Medicare, which I will be on, starting 12/1. What are you paying for your Anastrozole scrip?
Sep 22, 2019 12:39PM PontiacPeggy wrote:
I have an AARP prescription plan and pay $30 for 90 days of generic. I have a Medigap F plan and I have paid nothing for any of my BC treatments - just the prescriptions.
Sep 22, 2019 09:28PM bella2013 wrote:
MissouriCat, I take Magnesium at bedtime. It stops the leg cramps and it helps me sleep. I find that Anastrazole leaves me dehydrated if I don’t get enough water. Dehydration can cause the leg cramps. Hydrate, hydrate, and hydrate some more.
Hope you get this resolved soon. I know it’s frustrating battling the pharmacy and the doctor’s office.
Sep 23, 2019 07:48AM MissouriCatLady wrote:
Thank you all for listening, and thank you for understanding. I was so frustrated Friday, I sat and cried. I appreciate you all so much, thank you. I hope to hear from my doctor today. If it gets approved, I will let you know the cost. I wonder about AARP, I am going to look into that, thank you. And thank you for the magnesium tip, I do take that, gosh I take so many vitamins, it is almost crazy. I did soak in Epsom salts last night, Lavender scent, for 20 minutes. My cat sat on the tub and was very intrigued with the water. When I got out, I looked at the ingredients, I don't want her getting in there and having a lick and getting sick. The ingredients were MAGNESIUM SULFATE! Well, I didn't know that. I had NO cramps last night (I did take my second to last Arimidex pill). (Friday and Saturday nights I went ahead and took generic pills, and was up walking the floor.) Hoping to get an answer today.
You ever see that Winnie the Pooh quote, sometimes you just want someone to tell you, I understand? Much love to you women today, hugs, Lisa
Sep 23, 2019 01:58PM MissouriCatLady wrote:
My insurance is going to override the DAW penalty, which made me very excited, I can get a refill of Arimidex today, BUT then my co-pay is $240. Sigh.
I have choices - quit, switch, pay the money. The cancer roller coaster continues down this journey. Thank you for being there for me, Lisa
Sep 23, 2019 02:29PM PontiacPeggy wrote:
Sometimes you can get financial help from Astra-Zeneca towards your Arimidex. No harm in trying!
Sep 23, 2019 06:02PM MexicoHeather wrote:
Publix Pharmacy used Breckenridge this time for the Anastrozole. I haven't had this brand before. I paid less than $10 out of pocket, but my insurance pays the rest.
I moved to taking anastrozole every other day about a year ago, and that's keeping the stiffness tolerable. Last time I was in for a check, they mentioned that they think I should be on it for a total of seven years.
So, everyone has a different sItuation, but every other day is better than no AI medication at all. I feel rather strongly that it's in my best interest to continue with anastrozole.
Sep 23, 2019 11:44PM Reader425 wrote:
Hi everyone I haven't tried this myself yet but my Eye Drs. office had a card advertising Good Rx. Google it and type in the drug name. It's supposed to show where you can buy drugs cheaper. I typed in Arimidex and reasonably priced options came up. It's worth a try if you are having insurance issues.
All the best as we take this drug we "don't want to take." 😘 if all goes well I'll stop it in Feb. 2020. Looking forward to it.