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Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by Moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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Sep 7, 2020 02:08PM - edited Sep 7, 2020 02:11PM by Flowerlover2020

Hi, I just joined this forum. I am in a dilemma that maybe many of you have already faced. Maybe you can help me with this decision. My surgery for bilateral lumpectomies was in May 2020 and I finished radiation in June 2020. My MO wants me to start taking Anastrozole now, I've been putting it off for two months's because of its side effects. I have had significant hot flashes, 15-20 daily including at night since going off estrogen in May. I've been miserable and this is before taking Anastrozole. Then I read a blog and some women are reporting joint pain, aches and irreversible bone loss resulting in osteoporosis. I take Fosomax for osteopenia and I have arthritis. I am considering not taking the Anastrozole at all. I'm turning 70 next month and I wonder if quality of life now isn't more important than a possible recurrence of breast cancer in the future?

SRH Dx 3/10/2020, DCIS/IDC/IDC: Tubular, Both breasts, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 6/2/2020 Hormonal Therapy 9/7/2020 Surgery Lumpectomy; Lymph node removal: Left, Right, Sentinel
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Sep 7, 2020 02:51PM - edited Sep 7, 2020 02:53PM by flashlight

Hi Flowerlover2020, I know what you mean I just turned 69 in May. I am on Tamoxifen because of osteoporosis. In the past I was on Fosamax for 3 -years. The Tamoxifen has its own set of side effects because of that I only took half a dose for awhile. I took gabapentin 100mg at night and that seemed to help reduce the night sweats. I changed my MO and she wants me to go on Boniva monthly and switch to Anastrozole. I'm not sure I want to do that. I now take 10mg of Tamoxifen in the AM and 10mg in the PM and that seems to be working for me. I also take magnesium for the leg cramps and fish oil for the dry eyes. Right now it is the insomnia side effect. So far I'm dealing with it, but it is always in the back of my mind to quit. You can give it a try and see how you do. Good luck to you!

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Surgery Lumpectomy: Left
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Sep 7, 2020 02:59PM PontiacPeggy wrote:

FlowerLover2020, yes, there are women who suffer awful side effects from anastrozole. But there are also many who don't. Bone loss is a concern. I took Fosamax for 5 years. My osteopenia stayed the same. I was 69 when I started it. And just finished up nearly a year ago. Perhaps your hot flashes won't be any worse on it than off. Going back on estrogen is obviously not an option. I would recommend giving anastrozole a chance and see how you are on it after 3 or 6 months. If your QOL is worse, then see what other options you might have. You also may do just fine. Your hot flashes will remain the same or maybe they will eventually lessen (we can hope!). You just don't know how you will do on anastrozole until you try it. And there are two other AIs that can be used. Good luck with whatever you decide.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 7, 2020 03:07PM mysticalcity wrote:

Wondering if anyone on anastrozole for a longer period of time has developed Entropion (your eyelid turns inward so that your eyelashes and skin rub against the eye surface--generally it is the lower eyelid) . I was recently diagnosed with this and at first my MO said it was not from the anastrozole. . but then as she was talking about things that can cause the Entropian said "things that can factor into Entropian are things like dry eyes" . . you could see she was rethinking that. . . Then she said she has not heard of it as a side effect before, but said there might be a possibility the anastrozole played a part because it dries everything out. . . has anyone on anastrozole ever been diagnosed with that? I've been on it for 2 years and 3 months at this point.


Dx 3/22/2018, ILC/IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR-, HER2- Hormonal Therapy 6/1/2018 Arimidex (anastrozole) Surgery 6/26/2019 Cryotherapy: Left Radiation Therapy
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Sep 7, 2020 04:48PM Flowerlover2020 wrote:

Thank you flashlight for your reply. Interesting, does your MO want you to go off Tamoxifen and onto Anastrozole because she thinks it’s more effective against recurrence?

SRH Dx 3/10/2020, DCIS/IDC/IDC: Tubular, Both breasts, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 6/2/2020 Hormonal Therapy 9/7/2020 Surgery Lumpectomy; Lymph node removal: Left, Right, Sentinel
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Sep 7, 2020 04:50PM PinkLonghorn wrote:

Hi Flowerlover2020! I was 55 when I got BC diagnosis. Had lumpectomy, chemo, & radiation. Started anastrozole in April 2014. I've always taken vitamins & supplements & have continued to do so., some of which hopefully mitigate some of the side effects. I've had side effects, but nothing that I haven't been able to manage, sometimes with help: hot flashes at night, moodiness/anxiety/depression (started bupropion in 2018 and it made a HUGE difference!), dry eyes (were dry B4 anastrozole b/c of blephorospasms [eye lid spasms] & got Botox shots to stop the spams [lasted 9-12 months]; haven't gotten Botox in several years; use couple of Systane products every day), bone/joint stiffness (yoga, exercise, & massages help), fatigue, weigh gain, insomnia (was already taking 5 mg zolpidem & continue to do so). My oesteopenia was very slight & hasn't changed. My cholesterol is slightly elevated from before BC, and I continue to take Red Yeast Rice/CoQ10 to help keep it lower. At the 5 year mark, my Dr wanted me to take it for another 5 years, and I only agreed to take it for 2 more. I will re-evaluate in April. So far, I've chosen to tolerate my SEs and get help for them, where I can. I probably will not continue anastrozole, once I hit the 7 year mark next April.

I agree with some of the other posts, and encourage you to try it. Because we are all different, this med will affect each us differently. Each of us needs to weight the degree of SEs versus quality of life.This forum has been very helpful to me, so I'm glad you found it!

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Sep 7, 2020 04:52PM Flowerlover2020 wrote:

Thank you Pontiac Peggy. It probably does make sense to at least try it. The only thing that stops me is when I read that the bone loss can occur as quickly as 3-6 months on Anastrozole and is irreversible. But after reading some of these posts, it doesn’t sound like that happens often. Definitely helps to read some positive outcomes as opposed to all negative ones

SRH Dx 3/10/2020, DCIS/IDC/IDC: Tubular, Both breasts, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 6/2/2020 Hormonal Therapy 9/7/2020 Surgery Lumpectomy; Lymph node removal: Left, Right, Sentinel
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Sep 7, 2020 04:58PM Flowerlover2020 wrote:

Thank you Pink Longhorn. It sounds like you have been on this med for a long time so it’s comforting to hear that the side effects can be managed. My MO didn’t tell me about side effects when we discussed my taking it so I was pretty surprised when I started reading blogs about all the negative ones. I’m feeling a little better now about at least giving it a try. I sure don’t want the BC back! I am also glad I found this forum

SRH Dx 3/10/2020, DCIS/IDC/IDC: Tubular, Both breasts, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 6/2/2020 Hormonal Therapy 9/7/2020 Surgery Lumpectomy; Lymph node removal: Left, Right, Sentinel
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Sep 7, 2020 05:00PM PinkLonghorn wrote:

Hi mysticalcity!

I was diagnosed with blephorospasms [eye lid spasms] in 2005. They were bad enough to impair driving. Restasis didn't help. Botox shots around my eyes really helped & spams would stop for 9-12 months. I haven't needed Botox in several years. I use Systane Ultra eye drops during the day & the PM ointment at night. Since I started taking anastrozole in 2014, I noticed my eyelids occasionally folding into the eye, as you described. Never associated it with dry eyes & anastrozole. I will mention to my oncologist & ophthalmologist.

Thank you for mentioning! Hope the Systane products provide some relief.

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Sep 7, 2020 05:02PM PinkLonghorn wrote:

Shame on your Dr for not mentioning side effects! I've been blessed by a Dr who gives me all the details and works with me on what I choose to do. Let us know how you do!

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Sep 8, 2020 08:57AM - edited Sep 8, 2020 02:44PM by flashlight

Flowerlover2020, Yes, she does think that if I can protect my bones I should change. Here is a chart of possible side effects. https://www.breastcancer.org/treatment/hormonal/co...

I just read this on another post. Aromatase inhibitors aren't less toxic or better tolerated than tamoxifen, rather "both drug classes have distinct adverse event profiles that are relevant to individualizing therapy for patients," according to the update.

The newer class appears to increase serious cardiac disease incidence, though by less than 1% compared with tamoxifen, as well as high cholesterol, hypertension, bone mineral density loss, fracture, uterine cancer, benign endometrial pathology, hysterectomy, and vaginal discharge.

Tamoxifen, on the other hand, raises venous thromboembolic event risk by 1% to 2% compared with the aromatase inhibitors and is associated with more hot flashes. (It also has the side effect of uterine cancer, cataracts, and vaginal discharge)

The advantage in reducing risk of recurrence with the aromatase inhibitors in absolute terms is modest, "typically amounting to less than 5% through multiple years of follow-up," and without any difference in overall survival.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Surgery Lumpectomy: Left
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Sep 8, 2020 03:15PM Flowerlover2020 wrote:

flashlight, thank you so much for including that link. Its so incredibly helpful! I hadn’t seen that before and it clearly shows how the side effects of all the drug therapy’s compare. It really does look like Anastrozole has the least amount of side effects of them all. Of course it also depends on everyone’s own interaction with them. I have decided to try the Anastrozole. I took it today. I really appreciate yours, and everyone’s help with this decision.

SRH Dx 3/10/2020, DCIS/IDC/IDC: Tubular, Both breasts, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 6/2/2020 Hormonal Therapy 9/7/2020 Surgery Lumpectomy; Lymph node removal: Left, Right, Sentinel
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Sep 8, 2020 11:03PM Darlene63 wrote:

this site is so confusing; how do I find current reply’s instead of stuff from 10 years ago. I have been on the armada. Since April 2020. Do the excessive sweating ever go away. I change clothes 2 or 3 times a night

Dx 2/21/2020, ILC, Right, 4cm, Grade 2, 0/9 nodes, ER+/PR+, HER2- (IHC) Surgery 2/28/2020 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Hormonal Therapy 4/2/2020 Arimidex (anastrozole) Radiation Therapy 4/24/2020 3DCRT: Breast, Lymph nodes, Chest wall
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Sep 8, 2020 11:35PM SeeQ wrote:

Darlene63, I'm pretty new to the site, and it took a little while to get used to the long, and sometimes really old threads. I found if I saw a thread that looked interesting, I'd read the at least first few responses, and then - if it was a really long thread go to the last page (and maybe back up a few pages from there). You'll see some topics that you want to go further back, because there's good experience or information there.

I'm sorry I can't answer your question about the armada - I just don't have the experience. I've been on the arimidex for about two months now, and it seems like the hot flashes might be slowing down during the day. I still have waves of them in the evening after dinner, and a major hot flash at about 3:30 almost every morning. My MO suggested he could put me on Effexor (I think?) if I wanted, but I'm going to try to wait it out a few months and see if it's just an adjustment period. I'm hoping the cooler weather that is around the corner will help. It can't hurt.

There are some really nice ladies here who truly care about each other and offer support and share information. You'll like it here. It's not the club we wanted to be in, is it?

De Novo Stage IV; numerous mets in liver; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Sep 9, 2020 10:08PM CeliaC wrote:

Chiming in here as another perspective on anastrozole. I had seen that table about the various anti-hormonals and also came to the conclusion that for my family history, anastrozole seemed the best choice. I went into taking AIs with much trepidation, but things are turning out ok. Just now hitting 3.5 years on it. No discernible change on dexa scan from 11/16 (just prior to BC diagnosis) and dexa scan done 1/19. Next dexa will be this December. SEs now are much less than earlier on, and for me, are manageable. I am exercising much more now than when last dexa scan was done and also got PT exercises for bone strength. At age 66, am relatively free of joint pain, unless I overdo things. Keeping hydrated and exercising both seem to be useful in conquering some SEs. Still get hot flashes, but usually only at night and oddly, seem to coincide with the need to urinate. I do use eye drops for dry eyes. Not sure if those are a result of general aging or the AI, though.

Those of you just starting - you have come to a good place to ask questions. PontiacPeggy was a good "voice of reason" to me when I began the AI.

Best wishes and healing thoughts to all.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
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Sep 9, 2020 10:49PM PontiacPeggy wrote:

CeliaC, thank you for letting me know that I was able to help you. It really makes me feel good. I think it I helpful to know that for many of us AIs are quite doable. Sometimes it is hard to see that forest for the trees. Having BC is such a negative that it is hard to see anything but negatives with our treatment choices.

I'm so glad you are doing well!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 9, 2020 11:37PM Sunshine99 wrote:

Darlene, something I do when I post on a thread is to "Add to My Favorite Topics". I de-select the "Get e-mail notifications", but when I come on to the site, I look for "My Favorites" and will see all the most recent responses. When you get tired of a certain thread, just remove it from your favorites. Hope this helps.

(I'll add this to my "Favorites" so I can keep up with any new responses.) :)

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Sep 10, 2020 06:24AM Dreamhome wrote:

I'm so glad to have found this site and this forum. All of this is new to me and overwhelming so it really helps to hear from women who are willing to share their experiences.My lumpectomy surgery is scheduled for September 22. If my lymph nodes are clear and the chemo test doesn't indicate otherwise the only treatment I will have is hormone therapy (the absolutely best I could hope for!). No radiation is recommended as of now because of my age (72). I wasn't warm and fuzzy about my first oncologist so got a second opinion (the second doctor is awesome and will be my choice going forward). One doctor recommended Letrozole and the other Arimidex, but indicated that all the aromatase inhibitors are basically the same. I would like to know if anyone has tried both and had better luck with one. When I read about the side effects, it is scary. I've always been strong and healthy and optimistic so I plan to do everything I can to manage any side effects. Any tips or encouragement would be appreciated. Best wishes to all of you.











Dx 8/10/2020, ILC, Left, 2cm, Stage IA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 10/19/2020 Arimidex (anastrozole) Radiation Therapy
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Sep 10, 2020 06:39PM CeliaC wrote:

Dreamhome - Welcome! Is the test after your lumpectomy the Oncotype? This was the one I had to see if chemo would be beneficial. Interesting that they are not planning on radiation. I have only been on Anastrozole, but hopefully someone else will be able to help with your question.

Another topic you may wish to visit is the Lumpectomy Lounge.

Please let us know any other questions you may have.


Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
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Sep 14, 2020 12:49PM BlueGirlRedState wrote:

Flowerlover - not everyone gets SEs and there is a wide spectrum of SEs for those who do get them. If one generic does not work, you might try another or even brand name. You might want to see if Tamoxifen is an option (also has SEs). You might be told that generics are the same and the same as brand name, but they are not. Friends on very different drugs tell me the same thing. The first time I tried generic AI, SE immediate with joint stiffness and trigger fingers in both hands. Took a break, then switched to Tamoxifen. I am now taking brand name Arimidex. SEs not as bad as generic, but there. Hoping the next bone scan does not show any worsening. Does anyone know why the same machine needs to be used for an acurate comparison of bone scans ? Oncologist tried to explain, but it did not make sense. I buy brand name directly, Insurance would chage 5x as much, I pay $2/day. https://www.eaglepharmacy.com/drug/arimidex

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Sep 14, 2020 02:59PM - edited Sep 14, 2020 03:06PM by keywestfan

I,too, use name brand Arimidex from Eagle Pharmacy. Have been on it for 15 months with just a little leg and finger stiffness( but I'm 86.) I had blood tests this week,was worried that there would be SE's I wasn't aware of and lo and behold, it was in the lipids and a smidge in the glucose which was 96. LDL Cholesterol was 102, Triglycerides 58, but Cholesterol had risen 30 points to 222. However, the shocker was HDL, the good cholesterol, was 108. That is really really high and there is some confusion in medical journals as to whether it is a good thing or whether it is associated with cardiovascular problems and with- gasp- yikes- BC. Report says my CHOLESTEROL/ HDL value is <0.5x Avg Risk. I have been on 10 mg. Lipitor for about 12 years. It does worry me the unseen stuff these anti estrogenichormones do

Anastrozole June 2019 Dx 2/14/2019, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 3/24/2019 Lumpectomy: Right Radiation Therapy 4/30/2019 Hormonal Therapy
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Sep 21, 2020 06:28PM msbail wrote:

Hi, I read your post with interest. I am 72 and have my first appointment with my MO October 1. I am scared of side effects. Surgeon mentioned anaszastrole several months ago. I think that is the preferred for lobular. Five years is a long time to commit to this drug. Please tell me about yourself and what you have decided to do as far as the AI is concerned. Thanks.


Mary Baile

Mary S. Bailey Dx 5/2020, LCIS, Right, 1/1 nodes, ER+/PR+, HER2- Hormonal Therapy 10/1/2020 Surgery Lumpectomy: Right; Lymph node removal: Sentinel
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Sep 21, 2020 06:48PM msbail wrote:

Hi PontiacPeggy,

I’m new here and have heard your name brought up frequently. I am 72 and had a lumpectomy and radiation in June and July. Radiation ended four weeks ago. I have an appt. with a MO Oct. 1 about an AI. Is there a certain manufacturer of anasastrole that is better than others? He may put me on something totally different. I take meds for depression/anxiety. From your experience, what can you share with me? Time of day, supplements, etc. I know exercise is key and I do swim laps. Thank you in advance.

MaryB

Mary S. Bailey Dx 5/2020, LCIS, Right, 1/1 nodes, ER+/PR+, HER2- Hormonal Therapy 10/1/2020 Surgery Lumpectomy: Right; Lymph node removal: Sentinel
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Sep 21, 2020 07:20PM PontiacPeggy wrote:

Hi MSBail, glad you found this forum. I had few problems with anastrozole. I took it for 5 years, starting at age 69 and finished a year ago in October. I'm now 75.

My path has been unusual since I started everything in Michigan in the summer of 2014. I did my surgery, radiation and started my anastrozole there. My MO was okay. Then in June 2016 I moved to Spokane, Washington, and found a new MO whom I absolutely adore and trust 100%.

While I was on anastrozole, I did take Fosamax for the entire 5 years. I started with mild osteopenia and ended up with it the same. I don't tolerate calcium so didn't take that. Only supplements I took (and still take) are vitamin D3 and folic acid. I did add regular Claritin after a few months because that seems to help with the normal aches and pains we get as we age and anastrozole makes them a bit worse (and truly never bad, just annoying when I'd get up). I used the Teva manufactured anastrozole for most of the time I took it. Then it became unavailable. I didn't have trouble with any of the other manufacturers product (which rather surprised me). Some women do find that they can't tolerate the generics but have no problem with the brand name Arimidex and I gather there are ways to get it more affordably.

I did not have any positive nodes so what my MO recommended for me might be different than for you. But he said 5 years was all that was indicated with my age and diagnosis. I even talked with the practice's breast surgeon (who is crackerjack) and she said the same. They also said, quit the Fosamax, too.

So October 17, 2019, I stopped everything the anastrozole and Fosamax. Also the Claritin.

I did not change my diet. I didn't change my drinking habits (a glass of wine with dinner most nights). I am horrible about exercising and nothing changed that. I have continued taking vitamin D3 and folic acid and I am taking biotin. I was losing my hair (hereditary) before BC and nothing has changed,thus the biotin which works wonders for my nails, not so much for my hair.

Some women don't tolerate one of the AIs and try the other 2. Usually one will be a good fit for them. So if anastrozole and you aren't compatible try one of the others.

I took my anastrozole in the morning before breakfast. I had read that for some people it kept them awake at night if they took it then. I never noticed ANY problem with sleeping any time, so it wasn't an issue for me. I didn't take any meds for anxiety or depression though things were terribly stressful for the 4 years before I was diagnosed with my husband's terrible medical problems and me being his sole caretaker (read: NO SLEEP). He died in 2015. I downsized the house, got it ready and sold it and moved to Spokane 9 months after he died.

Don't anticipate problems taking anastrozole. Many of us have no trouble or it is so minor that it's not worth mentioning. It's a great way to help keep BC from returning and that is worthwhile. If you do have trouble, then see what other choices you have.

Give it a shot. You have nothing to lose and can gain some peace of mind which is worth a lot. Good luck!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 24, 2020 07:44AM msbail wrote:

Peggy,

Thank you for your words of encouragement and advice. I, too, lost a loved one in August 2020 and feel lost without him. I live in New Orleans but would like to downsize, too. My house needs a kitchen and bathroom renovation and painting. I don't know if I would get my money back. I could sell ‘as is' and take a hit. My daughter lives in Western MA and the weather is so harsh in the winter. You made the move yourself in nine months. Congratulations on that feat! You are brave. You must feel relieved to have treatment behind you. Hopefully, a vaccine will pop up soon allowing us to go out and meet morepeople. I feel isolated here. I always like reading your posts. You sound like the real deal.

Warmly, Mary

Mary S. Bailey Dx 5/2020, LCIS, Right, 1/1 nodes, ER+/PR+, HER2- Hormonal Therapy 10/1/2020 Surgery Lumpectomy: Right; Lymph node removal: Sentinel
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Sep 24, 2020 11:09AM PontiacPeggy wrote:

MSBail, I'm so sorry about your loss. It is definitely hard. Not sure I'm brave but I was determined to be near one of my sons. I saw how difficult it was for them when their father was on his last days and the hoops they had to jump through to come visit him. I didn't want that to happen when my time comes.

I'm no fan of winter but I've been coping with it for 75 years so I can manage more. Gee, Hawaii sounds good! I think winter is a small price to pay to be near my son. Wish San Diego was more affordable, however. We all have to decide what is most important to us and then forge ahead and not look back. For me, the move has been terrific.

I totally understand your dilemma on your house. I did not do any re-modeling when I sold my house. I had some work to do to make sure it would pass inspection and did that. But essentially as is. It was an old house but most things had been updated that needed to be like electrical, furnace fairly new, etc. I also took a hit but I was determined to move and was willing to do whatever it took to make it happen.

I never felt my treatments were onerous. Just another thing to get through, especially that last year with my husband when I was diagnosed and had surgery and radiation. Taking anastrozole wasn't a problem. Just another pill to add to my allergy meds, Pepcid, etc. And most of the time I didn't think about "why" I was taking it. It just was. I did what I had to do and concentrated on everything else that needed to be done.

I'm so glad you enjoy my posts. I hope that people realize that taking anastrozole does not have to be a challenge.

Good luck!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Sep 30, 2020 07:52PM Humblepeace wrote:

Good Evening All,

I pray everyone is doing well. I have a question to the team of women here who are so well informed and the collective experience here is priceless. So, with that being acknowledged, I have been on hormone therapy for three years this Nov. 2020. I started on Tamoxifen for 6 months and changed to Arimidex after having a full hysterectomy, June 2018. I have had many side effects on hormone therapy. I have had many CT's MRi's and Ultrasounds. My body hurts a lot and some of the pain will stop in one area but come back in the same or another area, but hurt more. I have experienced carpal tunnel in both hands. It did get better in the right hand but has lingered in the left hand. Lately, I have been having muscle weakness in my left forearm and painful left hand especially on the thumb and wrist area. I was curious if anyone else has experienced this?? I have an appointment with the rheumatologist on Oct. 15. That seems way too long to have this feeling.d

Thank you for all your responses.

Dx 3/2017, IDC, Right, Stage IIA, Grade 3, ER+ Hormonal Therapy 6/10/2018 Arimidex (anastrozole) Surgery Lymph node removal: Right; Mastectomy: Right Radiation Therapy Whole-breast: Breast Chemotherapy
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Sep 30, 2020 10:36PM - edited Oct 2, 2020 11:10AM by SeeQ

Humblepeace, those sound like they could be carpal tunnel symptoms. Do you wear a wrist brace? Do you wear it at night? My symptoms (numbness/tingling in arms) got better when I started wearing wrist braces to bed. Eventually, I learned to keep my wrists straight when sleeping, and I don't wear the braces anymore.

De Novo Stage IV; numerous mets in liver; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Oct 2, 2020 02:49AM Humblepeace wrote:

SeeQ,

I don’t wear a brace I will ask my doctor for one at my next appointment. Thanks for the response.

Dx 3/2017, IDC, Right, Stage IIA, Grade 3, ER+ Hormonal Therapy 6/10/2018 Arimidex (anastrozole) Surgery Lymph node removal: Right; Mastectomy: Right Radiation Therapy Whole-breast: Breast Chemotherapy
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Oct 2, 2020 01:36PM AnnC2019 wrote:

Hi,

Does anyone take the generic Anastrozole distributed by Zydus and manufactured in India by Cadilla Healthcare? If you do, you might want to read the recent FDA warning letters for this company. They don't specifically reference Anastrozole but the whole manufacturing facility. I just picked up a 90 day supply before I read the warning letter. I want to switch to Arimidex now. Has anyone had insurance issues related to getting the brand?

Here is the link to their warning letter from the FDA:

https://www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/warning-letters/cadila-healthcare-limited-584856-10292019

Dx 6/19/2019, ILC, Right, 3cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 8/15/2019 Arimidex (anastrozole) Surgery 8/28/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 11/4/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/22/2020 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement

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