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Topic: For Arimidex (Anastrozole) users, new, past, and ongoing

Forum: Hormonal Therapy - Before, During, and After —

This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Jul 10, 2012 07:46AM - edited Nov 15, 2017 02:07PM by Moderators

nancyjac wrote:

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users.

I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to one knee at this point), so I am most concerned about the bone and joint side effects. I'm already frustrated by finally having some energy and stamina back after chemo and radiation, but now I have trouble exercising due to the bum knee. I'm concerned about that getting to be even more of a problem on the Anastrozole.

Please share you experiences, side effects, questions etc. about Armidex/Anastrozole here.

Edited by Mods to add content from the main Breastcancer.org site on Arimidex: Benefits, Side Effects and More

Dx 11/2011, IBC, Stage IIIB, Grade 2, ER+/PR+, HER2+ Targeted Therapy 12/7/2011 Herceptin (trastuzumab) Chemotherapy 12/7/2011 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/10/2012 Mastectomy: Left, Right Surgery 4/17/2012 Mastectomy: Left Surgery 4/19/2012 Mastectomy: Left Radiation Therapy 5/29/2012 Breast, Lymph nodes, Bone Hormonal Therapy 7/10/2012 Arimidex (anastrozole)
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Sep 27, 2021 10:07PM - edited Sep 27, 2021 10:07PM by Tmh0921

I have been on Letrozole since March of 2020, and my doctor switched me to Anastrozole today to see if it would lessen the joint and body aches I've had from Letrozole.


Has anyone else switched? Did it help?

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/15 nodes, ER+/PR+ Surgery 12/21/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/30/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/31/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/4/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 3/23/2020 Femara (letrozole), Zoladex (goserelin) Surgery 7/15/2020 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 3/7/2021 Femara (letrozole)
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Sep 28, 2021 06:47PM Kamboka wrote:

tmh0921: I was on letrozole for nine months with lots of joint pain. I switched to anastrozole. I've been on it for eight months or so and have not had any joint pain. Give it a try and maybe you will be lucky too. Good luck.

Dx 1/4/2019, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/7 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/14/2019 AC + T (Taxol) Surgery 7/8/2019 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Dx 7/9/2019, DCIS, Left, Stage 0, Grade 3 Surgery 7/23/2019 Lumpectomy; Lymph node removal: Underarm/Axillary Radiation Therapy 10/1/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/21/2019 Femara (letrozole)
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Sep 29, 2021 02:51PM CeliaC wrote:

Believe Stephen Fry is referring to losing 14lbs (= 1 stone, as used in the UK) by walking. Go for it! Exercise along with keeping well hydrated does seem to lessen some of the side effects.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
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Sep 30, 2021 08:43PM Nsbrown54 wrote:

Totally agree CeliaC. I try to walk 2+ miles every day. I still have joint pain but think I would be a lot worse if I was sedentary.

Dx 6/16/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab) Hormonal Therapy 6/1/2021 Arimidex (anastrozole)
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Oct 1, 2021 08:11PM Racheldog wrote:

Just finished Herceptin and radiation and now on to the AI. I picked up my first script for Letrozole. I felt like it was a sad day to pick up a script I never thought I would be on and hate the idea of taking!

May I ask of everyone.....who has either gained weight or lost weight on these drugs? The only part of my BC journey that I was happy about was that I lost about 18 pounds on the Kadcyla and the thought of now gaining it all back on AI drugs is disheartening.

What have you all experienced?

Dx 9/2020, IDC, Left, <1cm, Stage IA, Grade 3, ER+/PR+, HER2+ (IHC) Chemotherapy Other Surgery Lumpectomy: Left Radiation Therapy Whole-breast
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Oct 2, 2021 07:14PM Emily21 wrote:

I'm only on it since July, no major weight gain, a lb or 2 maybe 3 but I'm walking a lot and it's going fine. All OK except for aches in my bones. X

Dx 9/4/2020, IDC, Right, 2cm, Stage IIB, Grade 2, 3/31 nodes, ER+/PR+, HER2- (FISH) Surgery 9/23/2020 Lumpectomy Hormonal Therapy Arimidex (anastrozole) Radiation Therapy 3DCRT: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol)
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Oct 3, 2021 01:13PM jennyjo20 wrote:

Racheldog,

I lost about 20 lbs after my initial diagnosis. I made some major lifestyle changes like exercising daily, limiting sugar and alcohol to only very special occasions (and even then, only in moderation), and eating a whole-food-plant-based diet. I was 42 and premenopausal when I started, and have been on Lupron/anastrazole for over a year. I haven’t gained any of that weight back. This past year and a half, my weight hasn’t fluctuated more than a pound or two. I guess that’s my long way of saying that endocrine therapy hasn’t caused me any weight gain.

Diagnosed at 42 - Oncotype 24; CHEK2 mutation Dx 2/2020, IDC, Right, 1cm, Stage IB, Grade 2, 1/5 nodes, ER+/PR+, HER2- (FISH) Surgery 3/18/2020 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 4/17/2020 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Hormonal Therapy 7/6/2020 Zoladex (goserelin) Radiation Therapy 7/13/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/17/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/6/2021 Arimidex (anastrozole)
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Oct 3, 2021 02:02PM ThreeTree wrote:

Racheldog - I lost 35 or 40 pounds during chemo and have kept most of it off in spite of the AI (Letrozole in my case) for 21 months. I had some stomach trouble for awhile and lost a few more, and I have put those back on, since I've been eating more normally again. Like jennyjo20, I only do alcohol and sugar on holidays or special occasions; once in awhile on Sunday, just because, but keeping it in moderation. I do a lot of plant stuff along with fish and occasional chicken or turkey - I never eat as much as I used to, because I think the AI has actually lowered my appetite. I rarely strongly desire or crave anything. Sometimes I feel like I eat "just to eat", and I think the AI is the cause of that. I also do intermittent fasting (16/8) try to walk about 5 days a week for 30-45 minutes. I take the stairs a lot more now, park farther away than I need to, so I get a little more walking in, etc. I don't do any kind of gym stuff though. Just routine walking and getting up and moving around. So far my weight has been stable and my cholesterol is normal.

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Oct 3, 2021 02:17PM LillyIsHere wrote:

Same as ThreeTree, letrozole has lowered my appetite, and my weight is the same or maybe a couple of pounds less than before. I always liked fruit and veggies and continue to do the same. The only change I have done since the diagnose is going cold turkey with alcohol. I used to like a glass or two after work but now it is only water. I don't have much appetite and have no problem with cholesterol. Joint pain and weird pains, yes.

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy
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Oct 4, 2021 01:23AM Racheldog wrote:

Well, I'll be and thanks for the positive vibes about the AI drugs. I will be doing Letrozole soon. Like some of you, I lost 18-20 pounds on chemo and that was the "good" part of this journey. Herceptin put some water weight back on with fluid retention but that should be going away soon, I hope.

Trying to do more plant based but that has been a challenge and a tough one to overcome my past diet. I do not drink alcohol but getting rid of sweets I plan to work on. Thank you all for answering about the weight issue concerns with these AI drugs.

Dx 9/2020, IDC, Left, <1cm, Stage IA, Grade 3, ER+/PR+, HER2+ (IHC) Chemotherapy Other Surgery Lumpectomy: Left Radiation Therapy Whole-breast
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Oct 16, 2021 04:54PM MZ1969 wrote:

I have been on anastrazole for 4 months and like another person mentioned my side effects fluctuate and are manageable: sleep problems, fatigue, joint pain, eye discomfort etc. (I am continuously on weight watchers to prevent weight gain, am active, eat well and drink alcohol socially and when on vacation. Recently in the last week or so I am having some skin sensations like itchiness and random pin pricks like I’m getting bit by an insect but there’s nothing. Has anyone experienced anything like this? I also have a cough that comes and goes. I’ve read that these could be side effects but who knows.

Dx 5/18/2018, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (FISH) Radiation Therapy 8/22/2018 Whole-breast: Breast Surgery 4/6/2021 Mastectomy: Right; Reconstruction (right): DIEP flap
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Oct 17, 2021 04:18PM Pabby1044 wrote:

Hi — I have just begun treatment and was prescribed IBRANCE and Anastrozole….for 8 days , all was well…and then suddenly I had severe hip pain, swelling in both hands and aching, and aching in my neck…the hip so bad had to start using a cane. My oncologist had me stop the Anastrozole for the weekend and up my Tylenol, and I see her tomorrow, anyway, so hope there is some solution. Anyone else have this experience and what happened?

Thanks for any help….

Dx 9/2021, IDC, Left, Stage IV, metastasized to bone, Grade 2, 0/17 nodes, ER+/PR+, HER2-
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Oct 27, 2021 07:33PM LadyGwendolyn wrote:

Six weeks in on my Arimidex journey. Doing ok. I’m definitely stiffer in the morning… some aches and pains at night in bed but once I’m up and moving, I feel fine. Not feeling like I need a nap during the day anymore ✅ I’m deliberately ramping up the daily exercise - spin, deep water aquarobics, walking, full body resistance band workouts and have now added a ‘Lift Only’ class to crank up strength …. My baseline Bone Scan showed I’m in the middle of the Osteopenia scale!!! Sheesh! Another totally unexpected health issue! Enough already. I told the dental hygienist at my recent 6mos clean that I didn’t want to know if she saw something amiss 🙄. She didn’t say anything 🤣

I’m wondering if my metabolism has taken leave… despite a lot of activity and conscious effort with Noom program over the last 6 weeks, I haven’t lost an ounce. 🤨

Will try more protein …. More strength /muscle building….


Dx 6/9/2021, ILC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 6/23/2021 Lumpectomy; Lymph node removal: Left, Sentinel Radiation Therapy 8/5/2021 Whole-breast: Breast Hormonal Therapy 9/16/2021 Arimidex (anastrozole)
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Oct 27, 2021 08:02PM PontiacPeggy wrote:

LadyGwendolyn, to help with that morning stiffness, try taking REGULAR Claritin! For some reason it helps - crazy as it seems. Do NOT use Claritin-D for this. I took mine at night because I wanted good "coverage" when I get up in the morning and am creaky. Good luck.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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Oct 29, 2021 12:23PM - edited Oct 29, 2021 12:24PM by HomeMom

LadyGwendolyn - Arimidex makes it tougher to lose weight once you gain it. I had to go on a "plan" diet which I did drop the weight, but over the last 4 years I gained it back. I'm on it again and have lost 15 lbs (about 1/2) , but just found out it has a lot of soy protein, no bueno! So I'm going to wrap it up when I'm out of food whether I reach my goal or not. I'm searching for a way of eating that would be healthy, prevent a reaccurance and maintain my weight.

Dx 3/31/2014, IDC, Left, 2cm, Stage IIIA, Grade 1, 4/29 nodes, ER+/PR+, HER2- Surgery 4/15/2014 Lumpectomy: Left Surgery 5/6/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 5/30/2014 AC Chemotherapy 7/25/2014 Taxol (paclitaxel) Radiation Therapy 10/16/2014 Hormonal Therapy 12/15/2014 Arimidex (anastrozole)
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Nov 2, 2021 11:10PM - edited Nov 3, 2021 07:49PM by pinkwarrior4lyf

Hi, I'm a 42 year old that is currently getting a Zoladexshot once a month and taking Arimidex every day (5.5 years). For the most part, my SE are tolerable. However, the past three months my SE seem to have kicked it into high gear! Joint pain everywhere, digestion issues, mood swings. I am thinking about stopping AI or Zoladex, or both. I'm concerned of the SE of what happens when you stop taking everything at once. Should I stop one first, or go to every other day to ween off it? I have an appointment with my oncologist and will obviously discuss with her, but I wanted to hear from mypink sisters of your experiences..I apologize if this had already been covered somewhere. I'm new to the forum.

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Nov 8, 2021 12:25PM christiekoe wrote:

Hi! I have been on Anastrozole for two years. Recently I have started devoloping some anxiety and depression issues. Has anyone ever developed this side effect after being on it for quite some time? Thanks for your thoughts.

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Nov 8, 2021 12:40PM Miriandra wrote:

Yes! My body starts to react as if I'm panicking - heart pounding, body tension, breathing up - but there's nothing remotely threatening going on. My frontal cortex is, "What's up, dude? We're fine." But my limbic system is all, "AAAAHHHHGGGGGHHHHH!!!!!"

I tried to talk to my doc about my weird anxiety attacks, but he didn't really understand what I was actually describing. He wanted to put me on a 24/7 mood regulator medication, but I didn't need anything that extreme. When he went on hiatus and passed me on to a new doc, I hadn't had any recent episodes, so I didn't think to bring them up. Now they're back, and I've just been moved to annual check ups instead of quarterly. I'm debating whether I should make a special appointment or not bother.

I've also had a steep decline in motivation, lack of general follow through with plans that aren't urgent, and I feel overwhelmed a lot. But I'm not sure if that's from my medication or from being a naturally extroverted person trying to cope with the isolation and stresses from Covid precautions.

Dx 5/31/2019, DCIS/IDC, Left, 1cm, Stage IA, 0/1 nodes, ER+ Surgery 8/14/2019 Lymph node removal: Sentinel; Mastectomy: Left
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Nov 8, 2021 06:24PM Kamboka wrote:

christiekoe: I'm on anastrozole for about a year now. I've had no problems. However, I started taking an SSRI for hot flash relief and I think that keeps my mood under control. I'm prone to periods of feeling down but haven't had any in almost two years.

Dx 1/4/2019, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/7 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/14/2019 AC + T (Taxol) Surgery 7/8/2019 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Dx 7/9/2019, DCIS, Left, Stage 0, Grade 3 Surgery 7/23/2019 Lumpectomy; Lymph node removal: Underarm/Axillary Radiation Therapy 10/1/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/21/2019 Femara (letrozole)
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Nov 9, 2021 08:12AM Nsbrown54 wrote:

Christiekoe - I do weekly REIKI therapy sessions and attend monthly Breast Cancer Support Group Meetings. In addition to daily walks, these have really helped to help keep my stress level low. Does your oncology center or hospital offer support services? You might find something there that would be helpful for you.

Most of my anastrozole issues are aches and pains. Physical therapy helps, but my body snaps, crackles and pops every morning.

Dx 6/16/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab) Hormonal Therapy 6/1/2021 Arimidex (anastrozole)
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Nov 9, 2021 10:52AM PontiacPeggy wrote:

NSBrown54, for those morning aches and annoyances, try taking a REGULAR Claritin everyday. It seems weird but it really does help. Do NOT take Claritin-D for this. I found it really helped. I took it at night.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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Nov 12, 2021 09:26PM JRNJ wrote:

christiekoe, I experienced severe anxiety, agitation and insomnia from the minute the pill hit my tongue. I've tried them all. I currently take letrozole every other day, and I take lunesta to help me sleep, but still doesn't work great anymore.

Pleomorphic Multifocal, Extra nodal Extension, Lymphovascular Invasion. TEs removed due to infection Dx 8/15/2019, LCIS, Right, 6cm+, Grade 3, ER+/PR+, HER2- Dx 8/15/2019, ILC, Right, 2cm, Grade 3, 2/5 nodes, ER+/PR+, HER2- Surgery 9/23/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/1/2019 CMF Radiation Therapy 3/29/2020 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/3/2020 Aromasin (exemestane) Hormonal Therapy 8/5/2020 Arimidex (anastrozole) Surgery 8/24/2020 Prophylactic ovary removal Surgery 1/28/2021 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/9/2021 Femara (letrozole)
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Nov 13, 2021 01:38PM Nsbrown54 wrote:

Thanks for the suggestion PontiacPeggy. I’ll check it out.

Dx 6/16/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab) Hormonal Therapy 6/1/2021 Arimidex (anastrozole)
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Nov 13, 2021 01:47PM PontiacPeggy wrote:

NSBrown54, I also thought it was so "out there" when I first heard using Claritin. But I had nothing to lose and it was already hanging around my medicine chest (though it doesn't work on my allergies AT ALL! ). But work on those aches and pains, it sure does. If you have major aches and pains, I'm not sure how good it would work, but possibly help some. For minor ones, it did make a difference.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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Dec 1, 2021 02:41PM BJI wrote:

Just starting year 4 of Arimidex, and my dexa scan from 2 weeks ago show definite decline in bone density. I also have been on steroids for last 8 months for another condition. My dr is advising me to start Fosamax weekly. I do have trouble with heartburn and reflux and do take a pepcid everyday. My concern is tolerating the Fosamax and asked about alternatives to it. So either Prolia injection twice a year or Reclast IV yearly. Anyone have experience with these drugs?

Thanks.

Bev Dx 4/11/2017, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 4/25/2017 Lumpectomy: Right Radiation Therapy 5/7/2017 Balloon-catheter: Breast Chemotherapy 5/29/2017 Taxol (paclitaxel) Targeted Therapy 5/30/2017 Herceptin (trastuzumab) Hormonal Therapy 9/13/2017 Arimidex (anastrozole)
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Dec 1, 2021 03:09PM PontiacPeggy wrote:

BJI, I took Fosamax for 5 years and I have acid reflux also. I took it in the morning, waiting 30 minutes after taking it before eating. It is quite doable. I also was taking pepcid. Just follow the instructions and you will likely have few problems.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)
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Dec 1, 2021 11:52PM CindyNY wrote:

BJI - I too have acid reflux, like Peg. I’ve been taking the generic fosamax for about two years. I’ve had no problems with it. You do take it as you get up, take w plenty of water, before you eat anything. No laying back down, stay upright. In fact I was approved for Prolia but being I had no side effects from the fosamax, I stayed w the devil I know. I’m hoping in 1.5 years when I’m done with the AI I can be done with fosamax too. Good luck to you.

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/31/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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Dec 2, 2021 10:54AM BJI wrote:

PontiacPeggy - did you see results on dexa scan on the fosamax? I know they check it every 2 years, just wondering does it slow or stabilize the bone loss?

Bev Dx 4/11/2017, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 4/25/2017 Lumpectomy: Right Radiation Therapy 5/7/2017 Balloon-catheter: Breast Chemotherapy 5/29/2017 Taxol (paclitaxel) Targeted Therapy 5/30/2017 Herceptin (trastuzumab) Hormonal Therapy 9/13/2017 Arimidex (anastrozole)
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Dec 2, 2021 10:56AM CindyNY wrote:

BJI - I went from osteopenia back into normal ranges. Bein on this med my insurance allows a yearly dexa scan.

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/31/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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Dec 2, 2021 11:25AM PontiacPeggy wrote:

BJI, I know that I had no more bone loss but whether it improved or not can't be ascertained. Two years after starting Fosamax, I moved from Detroit to Spokane and they used a different type of DexaScan or something so there was no way to compare results. I discontinued Fosamax when my 5 years of Arimidex ended. I never had an issue with it. Definitely worth a try IMHO.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2014 Breast Hormonal Therapy 10/16/2014 Arimidex (anastrozole)

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