It has now passed 1 year since I got my lumpectomy and radiation therapy (no chemo). It has been a tough year, but doable, I have been on Tamoxifen and Zoladex, with some side effects (insomnia, hot flashes, constipation,etc.) but well, I can survive that. I changed my life style, eat only healthy food, walk 5 km every day, with that I lost 10 Kg along this year (slowly), I'm always remembering that I have to fight for my life. And I'm also aware that I'll never feel safe again.
But it has been hard...the only thing I wasn't able to get better was my stress levels, after the surgery I started having a lot of problems I never had notice before, horrible coincidences (as I hope). Some time after the surgery I started having strong back pain, so scared it would be bone mets , but after MRI I found out I have dorsal hernias (don't ask me how I got that...can't figure out..), so I started physiotherapy and I'm a little better now, after that, they found I have "something" in my ovary, but after 2 MRI, 4 Ecos doctors can't figure what it is, for certain, but, the "thing" doesn't show any malignant behavior and they are sure it isn't related to cancer, probably just some fibrosis, related to a previous surgery I had. After that, some months later, in August, I had a 1 week period with terrible stomach pain, I couldn't eat nothing without having terrible pain, no vomiting, or fever, or just a lot of pain after eating (I never had nothing like that in my entire life). Went to the doctor, and more exams...blood exams, MRI, ecos, etc...they didn't find nothing besides an additional spleen (and that's nothing to worry about), they couldn't explain my pain, and after some days, it disappeared, no one could explain what happened.
After that, I did my annual breast exams (MRI, eco,mamo), bone densitometry, everything was fine, I also do blood exams every 3 months to check liver values, tumor markers, WBC, etc. Only the AST value was a little more high than usual (but by a small margin).
So, I was felling so more calm, and I was finally starting to get over this hard year, but then, all of the sudden, in last November, my WBC started dropping, one year ago my WBC was (after radio therapy) 5.8 x10E9/L, in December my WBC were 3.8 x10E9/L but everything else was fine, in 17 January they dropped to 2.8 x10E9/L and yesterday they dropped to 1.5, also, my neutrophils and platelets are now also low but lymphocytes are a little high (by a small margin), and so, they called me from the lab to go to the hospital, but my onc. can't explain what is happening...my RX (thorax) is normal, other blood values are normal but I'm now immunocompromised...and I didn't even go to chemo...ever...
What the well is wrong with me? I'm not tired, and don't feel nothing wrong, besides bleeding in my arm where they collected the blood (probably due to low platelets) .
I asked my onc if it could be related with Tamoxifen or Zoladex, and they say no, there is no history of that, and the values are dropping too fast. I was supplementing with garlic pills(1000 mg) + vitamin D3 (2200 UI) + Selenium (100 mcg)+ Melatonin (1,9mg) and taking 2 cups of green tea every day, and the onc advised me to stop everything, so I did (although I can't see any connection..)
Has anyone have those side effects with Tamoxifen or Zoladex? I'm so scared now...
Hope | Fear ...uploading...
11/21/2012, IDC, Right, 1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
1/14/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel
2/24/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
3/3/2013 3DCRT: Breast
Log in to post a reply