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All TopicsForum: Hormonal Therapy - Before, During and After → Topic: TIA - Mini Stroke while on Tamoxifen

Topic: TIA - Mini Stroke while on Tamoxifen

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Feb 9, 2017 03:14AM

jojo2373 wrote:

2 days ago i suffered a TIA (Transient Ischemic Attack) also known as a mini stroke or pre stroke. I have been on Tamoxifen for almost 4 years now. I will start cholesterol meds and daily aspirin and will consider stopping Tamoxifen. In discussing this with a stroke specialist at the hospital, i learned going through cancer, chemo, and being on hormonals significantly increases our stroke risk. Now that i have had a TIA mine goes up much more.

Anyone else have a similar experience?

Once you choose hope, anything's possible. ~Christopher Reeve Dx 7/27/2012, IDC, Left, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR-, HER2- (FISH) Chemotherapy 8/30/2012 AC + T (Taxol) Surgery 1/6/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 2/3/2013 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/7/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 2/19/2017 Femara (letrozole)
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Feb 9, 2017 04:18AM keepthefaith wrote:

jojo, sorry to hear this. It has been a fear of mine, though. I started taking baby aspirin shortly after I started Tam. I initiated it, not my MO. Too bad they don't recommend it as part of the treatment protocol. I am also considering decreasing or dis-continuing my Tamoxifen after 2.5 yrs. I have read that a smaller dose may provide a similar benefit , but with fewer SE's; studies not complete. I can't remember where I saw that. Since Aspirin can reduce inflammation, it is also believed that it may provide some resistance to a recurrence. Good topic!

Dx 9/17/2013, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 12/3/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/26/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/16/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/1/2014 Breast Hormonal Therapy 5/23/2014
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Feb 9, 2017 05:00AM dtad wrote:

Hi guys...Most MOs don't warn of the potential serious SEs of anti hormone treatment. Would be nice if they did and also took precautions to avoid them such as daily baby aspirin. Time for us to speak up for better treatment options! So sorry for those of you that have already suffered. Good luck to all navigating this disease.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Feb 9, 2017 10:20AM - edited Feb 9, 2017 10:21AM by spendygirl

Two months after finishing 5 years of Femara, found myself getting two iliac stents due to clogged arteries. Now on cholesterol med, bp med and a daily aspirin. We're alive, for which I am so very thankful, but there certainly is a price to be paid for treatment. Also, both carotids are 60% blocked. They haven't looked at my heart, my primary tells me the hope is to prevent further progression with the meds

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Feb 10, 2017 03:09AM jojo2373 wrote:

Glad to hear from all! I know we get so focused on Cancer we forgot that all these treatments have altered our bodies forever as well. Previous to this TIA i have had a few other neurological incidents too. I will be going to Hopkins for additional evaluation soon.

Once you choose hope, anything's possible. ~Christopher Reeve Dx 7/27/2012, IDC, Left, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR-, HER2- (FISH) Chemotherapy 8/30/2012 AC + T (Taxol) Surgery 1/6/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 2/3/2013 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/7/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 2/19/2017 Femara (letrozole)
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Feb 10, 2017 07:01AM Goodie16 wrote:

So scary jojo!

My MO started me on a baby aspirin when I was on Tamox and recommended I continue taking it now that I am on Arimidex. I have a family history of stroke, too, so before starting any hormonals he sent me to a hematologist to have a variety of tests run. This info helped to determine if I was at increase risk of a bleed due to the hormonals. It found that I was not, so I began taking them.

Dx 4/18/2014, IDC, Left, 2cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 2/2015, IDC, <1cm, Stage IV, metastasized to brain, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy External: Brain Surgery Mastectomy: Left Hormonal Therapy Arimidex (anastrozole) Targeted Therapy
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Feb 10, 2017 08:26AM - edited Feb 21, 2017 05:13PM by obsolete

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Feb 10, 2017 11:11AM ajbclan wrote:

JoJo- my mom had a TIA 14 years ago on the tale end of her 5 yrs on Tamoxifen- we naturally assumed it was from the drug, but no- cardiologists discovered a whole in her heart and were able to repair that-- they said probably born with it.

I'm about to see my MO so reading through all of these things- I want to be semi- educated as I'm sure Tamoxifen is going to be suggested. I recently had a blood clot in my arm after last round of chemo too...so wonder if that's going to be a factor.

Dx 8/9/16 with "multiple masses", chemo from 8/24/16 to 12/14/16- PCR! BMX 1/31/2017. Dealt with a blood clot and cellulitis. Wife of 19 years, mom to a 14 year old daughter and a 5 year old English Mastiff! Dx 8/9/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR+, HER2- Chemotherapy 8/23/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 1/31/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/18/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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