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Topic: Has anyone ever LOST weight while taking Arimidex?

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Feb 11, 2017 01:14PM

trying2staypositive7 wrote:

I've been taking Arimidex for a little over two months and I was wondering if anyone has ever lost weight while taking Arimidex. I admit that my weight wasn't what it should've been when I started Arimidex ( I was on Tamoxifen for 2 years prior to switching to Arimidex after a hysterectomy). I am 44. It feels like I've gained a ton of weight in the two months since I've started (it's actually closer to 5 pounds but I can't afford to gain any). I am just starting an exercise regime now but I wanted to hear from those who have had success losing weight on this drug. Thanks for any help you can provide!Happy

Dx 11/21/2013, ILC, 4cm, Stage IIIC, Grade 2, 10/15 nodes, ER+/PR+, HER2- Surgery 1/22/2014 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 2/25/2014 AC Hormonal Therapy 5/4/2014 Radiation Therapy 6/25/2014 Whole-breast: Breast Surgery 6/28/2015 Reconstruction (right): DIEP flap Surgery 12/20/2015 Prophylactic ovary removal Surgery Mastectomy: Right
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Feb 11, 2017 02:37PM ruthbru wrote:

I lost some weight on Arimidex by doing the usual things; decreased the calories & increased (by quite a bit) the exercise. If you want some exercise buddies, check on the Lets Post Our Daily Exercise thread on the Fitness Forum, a great group of ladies in all stages of treatment & beyond and at all fitness levels too.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Feb 11, 2017 03:18PM trying2staypositive7 wrote:

Thanks! I'm going to head over there now. I really appreciate the adviceHug

Dx 11/21/2013, ILC, 4cm, Stage IIIC, Grade 2, 10/15 nodes, ER+/PR+, HER2- Surgery 1/22/2014 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 2/25/2014 AC Hormonal Therapy 5/4/2014 Radiation Therapy 6/25/2014 Whole-breast: Breast Surgery 6/28/2015 Reconstruction (right): DIEP flap Surgery 12/20/2015 Prophylactic ovary removal Surgery Mastectomy: Right
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Feb 11, 2017 03:35PM muska wrote:

I have been on arimidex for three years and haven't noticed any impact on weight. I am and have always been close to the upper limit of normal weight and haven't noticed any difference in how I gain or lose weight since starting arimidex. In my case, it's all about how much I eat. I lost 3-4 pounds over the past several months by just being careful about portion size.

Dx at 54 Dx 5/9/2013, DCIS/IDC, Right, <1cm, Stage IIIA, Grade 3, 7/11 nodes, ER+/PR+, HER2- (FISH) Surgery 6/12/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/13/2013, LCIS, Both breasts Chemotherapy 7/24/2013 AC + T (Taxol) Surgery 2/19/2014 Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/11/2014 Arimidex (anastrozole) Radiation Therapy 3/22/2014 Breast, Lymph nodes, Bone
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Feb 11, 2017 03:47PM annoyingboob wrote:

hi tryin2bepositive - curious if you had weight fluctuations on tamoxifen - im about to start in a few weeks after I finish xrt. nervous!!

Dx 12/2016, DCIS, Right, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 1/4/2017 Lumpectomy: Left, Right Radiation Therapy 2/20/2017 3DCRT: Breast Hormonal Therapy 3/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 11, 2017 07:25PM trying2staypositive7 wrote:

Hey!

I didn't really mind tamoxifen. I didn't gain any weight on tamoxifen. I did have a ton of hot flashes though!! Don't be nervous. Not everyone has side effects. Let me know if you need anything!

Dx 11/21/2013, ILC, 4cm, Stage IIIC, Grade 2, 10/15 nodes, ER+/PR+, HER2- Surgery 1/22/2014 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 2/25/2014 AC Hormonal Therapy 5/4/2014 Radiation Therapy 6/25/2014 Whole-breast: Breast Surgery 6/28/2015 Reconstruction (right): DIEP flap Surgery 12/20/2015 Prophylactic ovary removal Surgery Mastectomy: Right
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Feb 12, 2017 05:50AM trying2staypositive7 wrote:

Muska, Thank you so much for your reply. I haven't really been faithful/serious about my diet. I'm going to try that out now that I see that it can be done! lol!! THANK YOU TO ALL THAT REPLIED!


Have a great day!

Heart

Dx 11/21/2013, ILC, 4cm, Stage IIIC, Grade 2, 10/15 nodes, ER+/PR+, HER2- Surgery 1/22/2014 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 2/25/2014 AC Hormonal Therapy 5/4/2014 Radiation Therapy 6/25/2014 Whole-breast: Breast Surgery 6/28/2015 Reconstruction (right): DIEP flap Surgery 12/20/2015 Prophylactic ovary removal Surgery Mastectomy: Right
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Feb 12, 2017 06:57AM claireinaz wrote:

Thought I would weigh in. I've taken tamox, arimidex, now aromasin. I don't eat a lot, haven't in a long time. And I didn't lose weight on any of those drugs; arimidex actually seemed to increase my bloating and weight around the back of my hips. I have now lost about 2.5 lbs (over a month or more) by counting calories using an app called My Fitness Pal. Based on my height, weight and what I want to lose--5 to 7 lbs--and my activity level--I can eat up to 1420 cals a day. I don't even put in my activity daily, since it gives me more calories to eat! The weight is coming off, but slowly, like mountains growing. Very slowly. Much more slowly than before I started taking these drugs.


9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen to arimidex, BMX/immed recon 7/3/13 "God supposedly gives us only what we can handle. God must think I'm a badass."
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Feb 12, 2017 09:56AM SpecialK wrote:

I have been on both Arimidex (anastrazole) and Femara (letrozole) over the six years since diagnosis. My MO would like for me to continue taking anti-hormonal medication due to a BCI test result that predicts continuing high risk of recurrence for me personally. I gained about 15 lbs. during chemo - not from overeating but from reaction to the medications, both steroids and Taxotere, plus 5 lbs. more initially after starting letrozole. I had difficulty losing weight using methods that had worked for me in the past - walking 5 very fast miles a day and limiting calories to 1500 daily comprised of healthy foods. I used MyFitnessPal also over the course of several months and put in both food consumed and exercise and the prediction it gave for weight loss did not materialize at all. I literally lost nothing. I am not someone who can practice the "everything in moderation" type of eating, even if I am exercising daily. I ended up adopting an anti-inflammatory/food elimination diet and this worked like a champ - I lost 22 lbs over 6 months with no exercise as I was recovering from 3 back-to-back surgeries during that same 6 month period. I will add that this type of diet is difficult because of what you no longer eat, but I found that it was the only thing that worked for me.

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+
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Feb 12, 2017 10:59AM trying2staypositive7 wrote:

Thanks Claire & Special K! I'm definitely going to incorporate all of the help I've been given. I have to admit I had to google the whole elimination diet thing. Looks like it's pretty difficult but I'm willing to try anything to stop this runaway train of weigh gain! LOL!! I will keep you guys posted. No time like the present to start. Have a great rest of your weekend!

Sending all of you love and hugs!Hug

Dx 11/21/2013, ILC, 4cm, Stage IIIC, Grade 2, 10/15 nodes, ER+/PR+, HER2- Surgery 1/22/2014 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 2/25/2014 AC Hormonal Therapy 5/4/2014 Radiation Therapy 6/25/2014 Whole-breast: Breast Surgery 6/28/2015 Reconstruction (right): DIEP flap Surgery 12/20/2015 Prophylactic ovary removal Surgery Mastectomy: Right
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Feb 12, 2017 11:24AM SpecialK wrote:

trying - I did the Virgin Diet, and I had slow and steady weight loss - a pound a week for 6 straight months, without exercise, before I plateaued to my natural weight. If you exercise it is entirely possible that you will lose at a more rapid pace. Not gonna lie - this is a hard diet to follow, especially initially. I found that once I identified food, brands, etc. that fit the diet, it got easier. If you need my list of go-to stuff I would be happy to supply it. Here is the condensed version of the diet, I bought the book, but if I had it to do over I would buy the recipe book only - it gives the diet premise clearly enough and has good recipes that are tasty and easy. You could probably just read this link and not buy any books too!

http://www.chewfo.com/diets/the-virgin-diet-by-jj-virgin-2012-what-to-eat-and-foods-to-avoid-food-list/

One other benefit of this diet was less inflammation - my lymphedema and joint pain both improved, as did my energy level and digestion. It helped me identify what foods caused problems for me, and I was able to add eggs back in, but have stayed away from the other six things for the most part.

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+
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Feb 12, 2017 12:24PM trying2staypositive7 wrote:

Thanks Special K! I just printed this article out and I will be following it to a tee (hopefully).

Dx 11/21/2013, ILC, 4cm, Stage IIIC, Grade 2, 10/15 nodes, ER+/PR+, HER2- Surgery 1/22/2014 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 2/25/2014 AC Hormonal Therapy 5/4/2014 Radiation Therapy 6/25/2014 Whole-breast: Breast Surgery 6/28/2015 Reconstruction (right): DIEP flap Surgery 12/20/2015 Prophylactic ovary removal Surgery Mastectomy: Right
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Feb 12, 2017 12:53PM SpecialK wrote:

trying - I make my shakes with either Vega or Plantfusion (I prefer it over Vega and use the Vanilla Bean flavor) protein powder, almond milk, frozen strawberries and chia seeds. I found it more palatable to grind the chia in a coffee grinder first. I also eat almost no processed foods, opting instead for food in its most whole form. I do use coconut aminos, and a very few salad dressings (Drew brand roasted garlic, and Follow Your Heart Vegan Ranch, which is non-dairy), Just Mayo for mayonnaise, Stubbs Original BBQ sauce is pretty low in sugar, but J J Virgin also has a BBQ sauce recipe that I can send you, as well as a ketchup one. Most commercial salsas are ok, but watch for the sugar content. Figuring out what you can eat, and what brands of the few processed things you eat is the hardest part of this - as well as initially going through sugar withdrawal. If you need to eat away from home (lunch at work, eating in restaurants, etc.) requires some adjustment. I found that salad dressed with oil and vinegar and a steak were sure bets in restaurants, and a naked sweet potato if they have them! Greek village salad without feta is also good, especially with grilled chicken. Once you get past the first couple of weeks it gets a lot easier. I don't know a single person who has tried this way of eating and not lost some weight, but it is a slow and steady rate. Be prepared for that, although some people lose pretty rapidly initially if this a real departure from how they had been previously eating. I had already cut out soy and a lot of dairy, but I did not realize just how much soy and corn are hidden in processed foods. Please PM me anytime if you have any questions - good luck!

BMX w/ TE 11/1/10, ALND 12/6/10. 14 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+
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Feb 12, 2017 02:02PM trying2staypositive7 wrote:

Thanks! I'm off to go pick up the necessary supplies now. Thanks for sharing your expertise with me. I really need the help to jump start my weight loss because what I'm doing (or not doing) isn't working!HappyYou are an angel

Dx 11/21/2013, ILC, 4cm, Stage IIIC, Grade 2, 10/15 nodes, ER+/PR+, HER2- Surgery 1/22/2014 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 2/25/2014 AC Hormonal Therapy 5/4/2014 Radiation Therapy 6/25/2014 Whole-breast: Breast Surgery 6/28/2015 Reconstruction (right): DIEP flap Surgery 12/20/2015 Prophylactic ovary removal Surgery Mastectomy: Right
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Feb 13, 2017 06:10AM Aug242007 wrote:

Yes, I was on Arimidex for 9 years and was never hungry. I also walked every day.

IDC 2.2 cm 2007 lumpectomy then BMX 2008, Oncotype 11, AIs for 10 years, Chris Rock states "the U.S. will never cure cancer, the money is in the medicine". Dx 8/24/2007, IDC, 2cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 12/18/2007 Surgery Mastectomy Surgery Lumpectomy Radiation Therapy

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