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Topic: How long do you have to take Tamoxifen?

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Feb 13, 2017 11:59PM

tc9876 wrote:

I'm curious to know how long everyone's onc is suggesting they stay on Tamoxifen. My Onc originally said 5 years but has mentioned that 10 years might be better. I am coming up on the 5 year mark and I REALLY want to get away from all the medication. Please share your Onc's opinion. Thanks.

Dx 9/2011, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2+
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Feb 14, 2017 12:34AM 70charger wrote:

I think (could be wrong) it depends on ur cancer & wether u are post or pre menopause. I was post menopause & was told 2 1/2 yrs on Tamoxifen then 2 1/2 yrs aromatose inhibitor. I had wanted to stay on Tamoxifen due to very few side effects but after 3 yrs it has thickened the lining of my uterus. So now I'm on an AI & have to have a uterine biopsy in a couple of weeks. Good luck to you. Best wishes.

Dx 7/11/2013, IDC, 2cm, Stage I, Grade 3, 0/6 nodes, ER+/PR+, HER2- Surgery 8/8/2013 Lumpectomy: Right Surgery 8/8/2013 Lymph node removal: Right, Sentinel Dx 8/21/2013, DCIS, 2cm, Grade 3 Chemotherapy 9/10/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/8/2013 Breast Hormonal Therapy 12/12/2013 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole)
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Feb 14, 2017 09:45PM - edited Feb 14, 2017 09:50PM by Joyce-PA

I was on tamoxifen for 5 years. I asked my doc about staying on longer and she said there weren't studies conclusive that staying on for 10 years would be better.

Lumpectomy 9/07; Reexcison 9/07; Rads 10/07-11/07; Started tamoxifen 1/08 Dx 6/5/2007, DCIS, 1cm, Stage 0, Grade 1, 0/0 nodes, ER+/PR+, HER2-
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Feb 14, 2017 10:03PM NotVeryBrave wrote:

My MO has told me that the recommendation has been for 5 years, but recent studies have shown that 10 years is better. He also said that by the time I hit the 10 year mark that he wouldn't be surprised if they recommend staying on one for life. That's pretty depressing since I'm just starting on this journey and feel like everything has been a problem already.

TCHP x 6 with pCR. One year of Herceptin. DTI pre-pec surgery. Quit Tamoxifen after 3 months. Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/18/2016 Perjeta (pertuzumab) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 5/9/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/9/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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