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All TopicsForum: Hormonal Therapy - Before, During and After → Topic: Osteoporosis

Topic: Osteoporosis

Forum: Hormonal Therapy - Before, During and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Mar 20, 2017 01:15PM

HoneyCom wrote:

Taking Femara has led to osteoporosis &my oncologist wants me to take Fosamax or Boniva and see a bone density specialist. I told my oncologist

I will not take anything for the osteo as I don't want to put more chemicals into my body. The Dr. then suggested Tamoxifen, which can lead to uterine

cancer, blood clots or cataracts. Has anyone else had this situation? Many thanks.

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Mar 20, 2017 01:59PM Moderators wrote:

Welcome to our community, HoneyCom. You may it helpful to read this section here on bone density and medications (post menopausal), specifically Tamoxifen. Bone strength. There are helpful suggestions on how to help build bone density naturally, and the role Tamoxifen could play in bone strength. We're all here to help you navigate this path. Sending you hugs Medicating

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Mar 20, 2017 04:49PM windingshores wrote:

My oncologist was going to switch me to Tamoxifen from Femara if I did not succeed on getting onto some Osteoporosis meds. However, I am sensitive to some and can't take others due to health issues that contraindicate. At my last appointment, I was ready to switch MD's to stay on Femara, despite the miseries associated with it :)    To mu surprise, my oncologst agreed that afib makes the clot potential with Tamoxifen worse, and that my history of thick uterine lining could also be a problem. She kept me on Femara, at least until it's been 5 years (I've done 2).

The rate of change for my bones on Femara was the same as before Femara, 5% over two years. Not good but not so sure it's the Femara anyway.

Dx 2/2015, DCIS/ILC/IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery Lymph node removal; Mastectomy: Right Surgery Mastectomy: Left; Prophylactic mastectomy: Left Hormonal Therapy
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Mar 20, 2017 05:56PM wintersocks wrote:

I am just about to stop Letrozole after 5 years to switch to Tamoxifen. Part of that reasoning from the BS was that as I am osteopenic it would not be a good idea for me to stay on it any longer. The Letrozole added to the bone thinning problem for me but did not cause it. That was Coeliac disease. She is very adamant that I come off Letrozole cos of the risks to bone. I have had several Dexa scans which show the bone loss to have remain pretty much the same despite Letrozole. I have been on calcium and Vit D supplements for many years.

Tamoxifen - of course there are risks with this drug and the s/e you mention are some. However it's always risk v benefit. steroids can cause cataracts (I have a cloudy lens from the steroids taken for chemo) and chemo/rads can cause further cancers. I will be taking Tamoxifen and for me the benefits outweigh those risks - that I have anyway simply because I have had chemo and rads.

Dx 2/20/2012, IDC, 6cm+, Stage IIIA, Grade 2, 4/11 nodes, ER+/PR-, HER2- Chemotherapy 3/23/2012 Doxil (doxorubicin), Taxotere (docetaxel) Surgery 8/29/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/10/2012 Femara (letrozole) Radiation Therapy 9/16/2012 Breast, Lymph nodes
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Mar 20, 2017 06:17PM ChiSandy wrote:

Fact is that once you have cancer (or any other serious condition), you can never be made entirely whole again no matter if you’re cured. There comes a point in life when you can’t fix one thing without breaking another, ad infinitum. There is no such thing as a win-win situation in adult medicine—every treatment and procedure carries risks. You have to weigh the odds, but as importantly, assess your priorities in life and what you’re willing to worsen and have to endure to make something else better.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Mar 20, 2017 07:04PM Emily2008 wrote:

I agree, Sandy. Unfortunately.

I am a 44 year old woman with osteoporosis as a result of breast cancer treatment from 2008. I had a Prolia injection in January, and will continue every 6 months for several years until/unless my bone loss improves or they invent something newer and better.

Dx 5/08, IDC, Left, Stage 1, Grade 1, BRCA 2 pos. Mast. w/TRAM and implant, A/C x 4, Tamox. for 6.5 yrs, ooph and hyst in 2010. Dx. 10/16, local recurrence, Left, Grade 2, breast segmentation, 30 rads from Jan-March 2017, then AIs. Dx 5/14/2008, IDC, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2- Dx 10/31/2016, IDC, Left, 1cm, Grade 2, ER+/PR+, HER2-
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Mar 20, 2017 07:38PM savgigi wrote:

I stopped Femara after almost 3 years because of 2 fractures and osteoporosis. I will not take Tamoxifen because of existing risk of clots. I am taking Boniva without problems but had a reaction to Fosamax. My MO, RO and BS supported my decision.

Dx 1/31/2013, DCIS, Left, <1cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 2/22/2013 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/22/2013 Breast Hormonal Therapy 4/18/2013 Aromasin (exemestane) Hormonal Therapy 9/3/2013 Arimidex (anastrozole) Hormonal Therapy 10/25/2013 Femara (letrozole)

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