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Topic: Doing Well on Aromatase Inhibitors (AIs)

Forum: Hormonal Therapy - Before, During, and After —

This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Apr 22, 2017 09:51AM - edited Nov 15, 2017 02:09PM by Moderators

Butterfly1234 wrote:

I read a suggestion that someone should start a topic for women who are NOT experiencing severe SEs while taking Arimidex, Femara, or Aromasin. I'm about to start taking Arimidex and when I read about the potential SEs I get discouraged. Maybe others would also like to hear about positive experiences. We would love to hear from you!

Edited by Mods to add content from the main Breastcancer.org site on:

Aromatase Inhibitors

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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May 13, 2017 09:39AM - edited May 13, 2017 09:39AM by Tappermom383

This Post was deleted by Tappermom383.
Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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May 14, 2017 09:40PM Kitty777 wrote:

I have been taking Anastrazole for about ten weeks. No side effects at all, so far! Keeping my fingers crossed.

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May 15, 2017 12:40AM Pessa wrote:

Starttng year 7 of anastrazole. Had hot flashes in the beginning, but resolved. Aches and pains but nothing debilitating at all. I do have problems with waking up during the night, which seems to have started when I started the drug and has not gotten better. That is the worst of the side effects. I can certainly live with that

Dx 2/20/2010, IDC, <1cm, 0/3 nodes, ER+/PR-, HER2- Chemotherapy 5/5/2010 AC Surgery 10/22/2010 Lumpectomy: Right; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 11/20/2010 Arimidex (anastrozole)
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May 15, 2017 07:26AM pupmom wrote:

Best wishes MJ! Odds are you will be fine. But if not, at least you will know you gave it a shot.

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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May 15, 2017 09:05AM Butterfly1234 wrote:

Day 6 of Arimidex and no side effects to date! Thanks all for sharing your experiences. It gives newbies like me,hope and determination.

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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May 15, 2017 09:16AM pupmom wrote:

Yay, Butterfly! ThumbsUp

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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May 15, 2017 05:21PM PugsMama wrote:

good news butterfly!

57 at dx, married with 2 pugs 😄. Strong family history & BRCA2+. MammaPrint: Luminal B & High Risk. Surgery 2/18/2009 Prophylactic ovary removal Dx 12/1/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/10/2017 Aromasin (exemestane) Surgery 8/2/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 15, 2017 05:57PM Goincrzy8 wrote:

I started Arimidex (anastrozole) on Feb 10. I take at nite and in the beginning I noticed within 30 min I would doze off. So now I take right before I am ready to go to bed. I sleep through the nite unless I need to go to the bathroom, but always go right back to sleepl I am not into reading SE'S. I will take note of any changes in my body or the way I feel. If something comes up I am worried about I will then check to make sure it is SE. I can't worry about what if.

I am not sick, I have a few bad cells Dx 10/18/2016, IDC, Left, Grade 2, 12/12 nodes, ER+/PR+, HER2- Surgery 12/9/2016 Mastectomy: Left
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May 21, 2017 07:27AM MickeyB17 wrote:

Hi There!

This is my first post. Been reading up on IA's and stressing over this - assuming I will go on them soon. I so appreciate the posts that are focused on managing SE's positively - gives me hope! I'm early in this journey and it's stressful enough without anticipating every negative outcome. Thank you all and best wishes.

Dx 4/10/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (IHC) Surgery 5/22/2017 Lumpectomy: Right Surgery 6/22/2017 Radiation Therapy 8/1/2017 Hormonal Therapy 9/1/2017
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May 21, 2017 08:43AM 2FUN wrote:

soontobetired, hello!

As with everything else, I am trying to determine if my aches and pains are due to AI, other life events or a combo of things. Any ways to separate it out?

Hormonal Therapy Surgery
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May 21, 2017 09:08AM dsteaparty wrote:

I am taking femara and Lupron injections. I am tired and sometimes achy but my doctor said it is the combination Lupron and femara that is causing the pain. I am still able to exercise and do most of my daily activities but I do get more tired than I am used to. I was very aggravated and the first few weeks of taking it but that has even out. My doctor prescribed Celexa

Dx 2/17/2017, ILC, Right, 3cm, Stage IIB, Grade 1, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 2/21/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 4/30/2017 Femara (letrozole)
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May 21, 2017 10:23PM Butterfly1234 wrote:

It'll be two weeks on Tuesday taking Arimidex. So far, no side effects. I do have some aches and pains but I truly think it's because I've really increased my exercise. I'm determined to stay as positive as I can and pray this continues. I'm trying to take it one day and one pill at a time. Thanks all for continuing to share your experiences. Blessings

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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May 21, 2017 10:56PM Tappermom383 wrote:

I'm right behind you, butterfly - start my rads tomorrow, Arimidex most likely in July. I'm also following your approach: one day at a time. Thanks for posting your positive thoughts!

MJ


Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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May 22, 2017 10:15AM Butterfly1234 wrote:

Tappersmom - good luck with rads. I know it's going to go smoothly for you. I'm three weeks out from mine and all SEs are gone, which were relatively minimal. I'm not putting any special creams on the radiated area. Looks a little tan. Also have my energy back. You can do this!

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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May 22, 2017 10:26AM lrwells50 wrote:

Those with foot pain might try Algeria shoes, I actually like them better than Finn Comfort, and they're a lot cheaper. They look kind of funky on a 66 year old, but I'm past caring about that. When your feet hurt, you're miserable.

Diagnosed at 66, OncotypeDx 24, I think because although I was 100% ER+, I was very weakly PR+ . BARD1 mutation, mother had breast cancer twice. Dx 12/5/2016, ILC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 3/7/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/18/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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May 22, 2017 11:36AM Bagsharon wrote:

Thank you for starting this topic, Butterfly. There are so many women out there who are so scared before they even start AIs because of those who post about their terrible side effects. There are so many of us who don't. I can't say I have no side effects but when I was talking to my doctor about them, he asked if it was bad enough that we should look for another treatment. Well, no, it's not that bad. I have night sweats and I'm achy when I wake up in the morning but damn, that could be my age too. My doctor tested my vitamin D levels and they are normal so he wants me to just continue on my multi-vitamin. And my achiness is no worse than I usually have after I have a long run. Speaking of which, I want to echo those before and say that exercise is a huge help in dealing with the side effects.

Diagnosed at 52. IDC-L (with Lobular features.) N0(+i) in 1 node, LVI, Oncotype 20. Not found on screening mammogram 6 months prior. Dx 7/5/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 8/1/2016 Lumpectomy; Lymph node removal: Sentinel Chemotherapy 9/6/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/27/2016 Whole-breast: Breast Hormonal Therapy 12/30/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/15/2018 Reconstruction (right): Fat grafting Surgery 6/27/2018 Reconstruction (left); Reconstruction (right): Fat grafting
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May 22, 2017 08:42PM songbird72 wrote:

Count me in as another one who is on Aromasin with no serious SE's. I have hot flashes and joint stiffness, especially when I stay sitting or standing in one position too long. I was so worried about SE'S but so far they have been minor.

Dx 11/4/2015, IDC, Right, 3cm, Stage IIB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 12/2/2015 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 1/11/2016 AC + T (Taxol) Radiation Therapy 5/15/2016 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 6/14/2016 Aromasin (exemestane) Hormonal Therapy 6/23/2016 Surgery 5/8/2017 Reconstruction (right): DIEP flap
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Jun 1, 2017 08:53AM Butterfly1234 wrote:

Checking in to say hi. Three weeks on Arimidex and no SEs. Hoping this lasts. Keeping up with exercising regularly,Off to dentist today. Prolia injection next week. Gentle hugs all.

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Jun 9, 2017 02:47PM Butterfly1234 wrote:

First Prolia injection went well. Still doing well on Arimidex. One day at a time Heartlove to all!

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Jun 9, 2017 04:50PM ruthbru wrote:

Good job, Butterfly! Exercise is the key, IMO.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 9, 2017 05:13PM Butterfly1234 wrote:

ThumbsUpHeart

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Jun 12, 2017 06:45PM PugsMama wrote:

Day1 on Aromasin. Thanks to all of you who posted here. It made me so much less apprehensive! Hoping I can post "no SEs for me" very soon!

57 at dx, married with 2 pugs 😄. Strong family history & BRCA2+. MammaPrint: Luminal B & High Risk. Surgery 2/18/2009 Prophylactic ovary removal Dx 12/1/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/10/2017 Aromasin (exemestane) Surgery 8/2/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 12, 2017 06:53PM Butterfly1234 wrote:

Best of luck Pugs. One pill one day at a time!

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Jun 12, 2017 07:11PM letsgogolf wrote:

I began taking Arimidex 2 weeks ago and have had no side effects at all. Very pleased so far.

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/26/2017 Lumpectomy: Left Radiation Therapy 4/5/2017 Whole-breast: Lymph nodes Hormonal Therapy 5/31/2017 Arimidex (anastrozole) Targeted Therapy
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Jun 12, 2017 07:19PM Butterfly1234 wrote:

Super Golf! I don't know how true this is but my MO said if I wasn't having SEs by now I probably wouldn't. Hope this is true. 5 weeks and counting.

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Jun 23, 2017 10:54AM PugsMama wrote:

just want to pop in & share that I've been on generic Aromasin (exemestane) for 11 days so far & no SEs yet! The first few days I was tired & flat-lined emotionally but that quickly passed... so far so good! My MO put me on Aromasin instead of Arimidex bc he says he gets fewer complaints of bone/joint pain with that one.

57 at dx, married with 2 pugs 😄. Strong family history & BRCA2+. MammaPrint: Luminal B & High Risk. Surgery 2/18/2009 Prophylactic ovary removal Dx 12/1/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/10/2017 Aromasin (exemestane) Surgery 8/2/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 23, 2017 07:47PM Butterfly1234 wrote:

Great news!

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Jun 23, 2017 10:30PM 2FUN wrote:

congrats!

Hormonal Therapy Surgery
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Aug 2, 2017 09:38AM Butterfly1234 wrote:

Hopping on to update. Been on name brand Arimidex since May 9. I have occasional joint discomfort in my right thumb and one of my right toes.It's very manageable and if this is the worse my SEs will get I'm not complaining. I wanted to share that I bought a gel cream called China Gel at my yoga studio. It's fantastic and really helps with my joint discomfort. Gentle hugs to all.

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Aug 4, 2017 03:45PM Scrafgal wrote:


Happy to see this thread!  I am finishing chemo in early September and starting to think about AIs.  I was getting depressed just reading all of the negative information.  This thread gives me some hope.  I don't expect to take a medicine that has zero side effects.  So, I am prepared to notice and respond to whatever comes up. However, it is nice to know that some have had SEs that are manageable.  That's all that I pray for.


Thank you!!!!

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/5/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/21/2017 Taxol (paclitaxel) Chemotherapy 6/14/2017 FAC Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/12/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 10/15/2018 Reconstruction (right): Nipple tattoo Surgery 5/9/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 7/22/2019 Arimidex (anastrozole) Surgery 9/6/2019 Reconstruction (right): Nipple tattoo

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