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Topic: Doing Well on Aromatase Inhibitors (AIs)

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Apr 22, 2017 09:51AM - edited Nov 15, 2017 02:09PM by Moderators

Butterfly1234 wrote:

I read a suggestion that someone should start a topic for women who are NOT experiencing severe SEs while taking Arimidex, Femara, or Aromasin. I'm about to start taking Arimidex and when I read about the potential SEs I get discouraged. Maybe others would also like to hear about positive experiences. We would love to hear from you!

Edited by Mods to add content from the main Breastcancer.org site on:

Aromatase Inhibitors

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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May 6, 2019 12:56PM - edited May 6, 2019 12:56PM by ruthbru

Plus yoga will give you long, lean muscles, a strong core & good balance. A win all the way around!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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May 9, 2019 01:13PM InnaB2018 wrote:

Hi, guys, I don’t comment often on this thread for some reason, but just wanted to share something with you. I started taking Anastrozole in December of last year and was constantly troubled by side effects like hot flushes (up to 10 times a day), joint pain and vaginal dryness. The pill was manufactured by Accord. Then I spoke to my pharmacist and begged her to order Teva for me because I read that it produces fewer side effects. There were problems getting it, but she persevered and I got my first Teva bottle about a month and a half ago.

Well, I have to say that I didn’t expect that much of a difference! Now I am down to about one hot flash a day, usually in the evening and my joint pain is gone! Not sure about vaginal dryness, because I still use coconut oil moisturizer just in case, but maybe will give it a rest one of these days.

My pharmacist said that if she gets prescription, she can get Teva for anyone who needs it. It’s a private pharmacy, so I am guaranteed personal attention. She also made me great scar creams for my mastectomy scars. Here’s the pharmacy info, if anybody is interested. It’s licensed day in many states.


Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol) Radiation Therapy 10/7/2018 3DCRT: Breast, Lymph nodes, Chest wall Surgery 5/21/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 5/22/2019 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole)
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May 9, 2019 02:22PM HikingLady wrote:

InnaB2018 This is good to know; thanks for sharing. I'm so glad this change has made a great difference for you!

I started Anastrozole at the beginning of November. I had all the usual side effects you mention, and they gradually really receded. Now, at 6 months, I barely have joint stiffness, hot flashes are very minimal, and thumb joints are less cranky. I had severe fatigue for 2 weeks, and then that went away. I noticed that all side effects were much better at 4-5 months, but they were definitely all super bothersome the first two months. Vaginal dryness is solved with Estradiol cream, which my MO says is okay to use since it's shown NOT to be absorbed systemically (I hope that's true! He says yes, for sure).

So, my side effects were the usual "reduction of estrogen in the body" ones, and my body became accustomed to most of them, as my MO had predicted. He had said all along: Try to take this for six months, because your body will adjust. And, I guess mine did. Ha ha, it's like he KNOWS STUFF, lol.

I've now had 8 weeks of getting one hour of daily exercise, and am building back strength, lost through about 16 months of reduced activity due to chemo + BMX + foot surgery in 2018. So, better muscles are making my joints happier, and who knows whether my joint discomfort has lessened due to better fitness, or because my body's gotten accustomed to being on the AI.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/8/2003 Lumpectomy Radiation Therapy 6/9/2003 3DCRT: Breast Hormonal Therapy 8/7/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/6/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 9, 2019 02:50PM cassiecanada wrote:

exvellent idea. As it stands- i have tucked my

tamoxifen into a drawer because i cant

bare the thought of uterine cancer.

AI’s will worsen my already compromised

bones- so with cancer, itsa crapshoot

in SOME womens cases... NOT ALL.

( weighing a wee benefit of tamoxifen with the very real risk of uterine cancer in post menopausal women is near impossible “ would you rather

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May 12, 2019 11:54AM lala1 wrote:

ajbclan--My niece would die with envy if I told her you spent all day at a K-Pop band concert! She is totally obsessed with BTS. It's all I can do to keep her in cheap BTS gifts for her birthday and Christmas....much to my sister's dismay. Happy But that's what aunts are for!!

Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/12/2012 Mastectomy: Left Hormonal Therapy 1/31/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/25/2013 Reconstruction (left): Silicone implant Surgery 6/24/2014 Reconstruction (left): Nipple reconstruction Surgery 1/19/2015 Prophylactic ovary removal
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May 12, 2019 11:55AM - edited May 12, 2019 11:55AM by lala1

This Post was deleted by lala1.
Mentor smooth round high profile memory gel implants 600cc (Left); Allergan 10 Moderate Profile 120cc (Right) ; Oncotype 15 Dx 11/27/2012, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 12/12/2012 Mastectomy: Left Hormonal Therapy 1/31/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/25/2013 Reconstruction (left): Silicone implant Surgery 6/24/2014 Reconstruction (left): Nipple reconstruction Surgery 1/19/2015 Prophylactic ovary removal
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May 18, 2019 10:37AM JaBoo wrote:

HikingLady, my obgyn said I am not allowed to use any hormonal cream, because it can be absorbed. I found this after I read an article on hormonal treatment and this was referenced. Study.


dx at 38 Dx 5/22/2018, IDC, Left, 2cm, Grade 3, 1/3 nodes, ER+/PR+, HER2+ (FISH) Surgery 6/14/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 6/19/2018 Lumpectomy: Left Hormonal Therapy 7/16/2018 Zoladex (goserelin) Chemotherapy 7/16/2018 AC + T (Taxol) Targeted Therapy 9/13/2018 Herceptin (trastuzumab) Hormonal Therapy 1/11/2019 Aromasin (exemestane) Surgery 1/21/2019 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/27/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 18, 2019 09:37PM HikingLady wrote:

Thank you very much for sharing this article. It’s from 2006. Standards of research-based practice don’t usually include research that old in medicine these days..,but still, it raises an important question for me. My OBGYN says that recent studies haven’t confirmed this study, and that the cream type of Estradiol isn’t exactly studied, whereas the ring type is. My MO says that his research on this doesn’t confirm this 2006 study, and that his information and guidelines aren’t changing to contraindication. My girlfriend who’s an OBGYN wonders: “does an AI actually impede the uptake and efficacy of topical Estradiol?” So, does it even work, when we’re on an AI, she wondered aloud in a conversation I had with her about this recently. In her practice, she’s seen coconut oil do the trick. I feel completely bewildered by all this. In two weeks I see my MO again and will ask more questions....Estradiol has another Quality of Life addition for me——it has helped with urinary urgency and has generally made mytissue less fragile. I will continue to research this.....

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/8/2003 Lumpectomy Radiation Therapy 6/9/2003 3DCRT: Breast Hormonal Therapy 8/7/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/6/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 18, 2019 10:17PM CindyNY wrote:

HikingLady- I had started using Estring prior to BC. My OB/GYN had me remove it after giving me my dx of bc. Then at my MO appt I told her I had removed it, she told me she allows her patients to use it so I could go home and insert a ring. She said it's such a low dose and it's directly where you need it.

I see my OB/GYN on Monday for my yearly. If I'm correct I'll be scheduled for an internal ultrasound. Should be intetesting to say the least.

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/14/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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May 18, 2019 11:15PM - edited May 18, 2019 11:22PM by MexicoHeather

I went and had a DEXA Scan. Everything is good, and the bones are the same as 2 years ago.

I was put on an every other day regimen for the AI six months ago to reduce SEs, and it helped.

The oncologist is suggesting to stay on the AI for 7 years. It sounds like a long time, but I will do it.

  • Gyno is completely against hormonal creams for me. I do pelvic floor therapy and use coconut oil.
Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Femara (letrozole) Hormonal Therapy Arimidex (anastrozole)
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May 19, 2019 10:08AM JaBoo wrote:

HikingLady, I am sorry I may have caused some bewilderement with my link.... And I am glad you say you will be researching this. I would greatly appreciate any information you find on this.

I know the article is old, but since they simply measured the amount of estradiol in blood, I don't think this can be outdated? Well, maybe it can, since the products used can be different. They measured the rise of estradiol in the blood of the women after insertion of vaginal cream. And since it rose, the AI did nothing to prevent it from rising.

Maybe somebody else has any information on this.. I would be glad to hear. So far, my MO and my obgyn both say no to hormonal creams.


dx at 38 Dx 5/22/2018, IDC, Left, 2cm, Grade 3, 1/3 nodes, ER+/PR+, HER2+ (FISH) Surgery 6/14/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 6/19/2018 Lumpectomy: Left Hormonal Therapy 7/16/2018 Zoladex (goserelin) Chemotherapy 7/16/2018 AC + T (Taxol) Targeted Therapy 9/13/2018 Herceptin (trastuzumab) Hormonal Therapy 1/11/2019 Aromasin (exemestane) Surgery 1/21/2019 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/27/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 31, 2019 09:19PM 2FUN wrote:

cassiecanada, I totally get you. My MO is concerned about me taking Tamoxifen b/c I had uterine CA during my BC treatment. My MO says "what if there are uterine cells running around your body and they get activated from the tamoxifen" Gyno Onco says you cant have any more uterine cancers b/c you have no uterine cells. And all the drs say "you decide what you want to do and let me know" I think that's a crappy attitude.

Hormonal Therapy Surgery
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May 31, 2019 09:30PM HikingLady wrote:

JaBoo I just met with my MO this week, and discussed Estradiol cream again. He's very confident that research does not show a problem that makes him think I shouldn't use it. Obviously, he's not in agreement with other MO's treating others of us, as we see in this thread, with some doctors saying No and others saying Yes. My OBGYN friend explains that research has been done more on ring-types (long term insertion, steady release at a certain rate) than cream + applicator, because the dosage is more reliable. When it's cream + applicator, there's the possibility of user error, so that hasn't actually been studied as much. She says, and it's her field to know such stuff.... As for raising estrogen level, I also read that the level can go up a bit with the cream, but immediately is slammed down again because of the AI, which inhibits the uptake of the molecule. And, my MO says No, the estrogen isn't systemic at a worrisome level, it's local with the cream, and he concludes that based on credible research he's reading. So, my MO continues to say that it's safe and he is fine with my using Estradiol cream, as prescribed, which is 1/2 g, 3x per week. In 6 months, I will have my next MO appointment with a new doc, because current one is moving across town to another branch of the practice. I will ask next MO about his opinion, and will continue to use it for now....

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/8/2003 Lumpectomy Radiation Therapy 6/9/2003 3DCRT: Breast Hormonal Therapy 8/7/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/6/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 4, 2019 02:18PM kaylajane wrote:

Hi all, new to this topic, just starting anastrozole this week, done with chemo and radiation, still on Herceptin.

Wondering if anyone here has tried Rogaine to keep hair from thinning?

Also Vitamin D? I am taking 5000 IU daily with the anastrozole, hoping that will decrease amount of bone loss.

Appreciating all the advice on this topic! Thanks!

Targeted Therapy 1/2/2018 Herceptin (trastuzumab) Dx 11/30/2018, IDC, Right, 1cm, Stage IB, Grade 1, 0/2 nodes, ER+/PR+, HER2+ (FISH) Surgery 12/10/2018 Lumpectomy: Right Chemotherapy 1/2/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 5/15/2019 Whole-breast: Breast Hormonal Therapy 5/15/2019 Arimidex (anastrozole)
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Jun 4, 2019 02:29PM HikingLady wrote:

I've had no hair thinning. Smile So far. Knock on all sorts of wood.... After he checked my Vitamin D levels, my MO gave me instructions for how much Ca and how much Vitamin D to take (supplements) to help support bone strength. I had a DEXA Scan before starting Anastrozole and I did have osteopenia, so I'm on a bisphosphonate.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/8/2003 Lumpectomy Radiation Therapy 6/9/2003 3DCRT: Breast Hormonal Therapy 8/7/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/6/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 4, 2019 02:43PM keywestfan wrote:

I’m knocking all over the place. Starting anastrozole 6/16. Will ask MO in July how much Ca and D to take. Thank you for reminding me. Since I worry about everything , now about estrogen loss and subsequent altzheimers.


Anastrozole June 2019 Dx 2/14/2019, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 3/23/2019 Lumpectomy: Right Radiation Therapy 4/29/2019 Hormonal Therapy
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Jun 4, 2019 04:09PM Ingerp wrote:

I haven't had any hair issues either--it seems I read about that more with Letrozole. That said, I've been taking Biotin since before my dx. I did start taking D3 (1000 IU/day) last fall, and added in some other "bone strength" things (a complex with calcium and several other things), although I'm not a big believer in supplements. I've not heard about any connection between AIs and Alzheimer's.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/22/2016 Lumpectomy Surgery 4/19/2016 Lumpectomy: Left Radiation Therapy 5/17/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/12/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/17/2018 Taxol (paclitaxel) Targeted Therapy 5/17/2018 Herceptin (trastuzumab) Radiation Therapy 8/19/2018 Whole-breast: Breast
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Jun 4, 2019 04:31PM L8Blmr wrote:

Ingerp, I had not heard of the estrogen/alzheimers correlation either until I saw this posted this morning on another link. It's a lengthy read; I got the impression more research needs to be done. But the article did have other good information, ie, xenoestrogens v phytoestrogens in our diet. Also might be plug for the author's new book coming out in 2020.

https://medium.com/neurotrack/menopause-and-alzheimers-1c455f29fe16


L8Blmr Dx 11/2/2017, IDC: Papillary, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2- (FISH) Surgery 12/15/2017 Mastectomy: Left, Right Chemotherapy 1/15/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/23/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 5/1/2018 Arimidex (anastrozole)
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Jun 4, 2019 09:35PM - edited Jun 4, 2019 09:36PM by Murfy

I have been interested in this topic because of a family history of AD. Estrogen is neuroprotective, promotes synapse formation, and helps promote brain healing after brain injury. Reducing estrogen, as occurs at menopause or taking AIs, has the opposite effect. If one is predisposed to AD (ie, has the ApOE4 mutation), a reduction in estrogen (and especially taking chemotherapy) may contribute to chemo brain and early cognitive impairment.

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/14/2017 Mastectomy: Left Chemotherapy 1/13/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Jun 5, 2019 12:00AM GlobalGal wrote:

Hello, Everyone!

Tonight I finally took my first AI (Anastrozole). Day Zero.

Confession: I procrastinated for 6 days after picking up the prescription. According to my MO, I will need to be on an AI for the rest of my life, so I needed some extra time to bring myself around to acceptance of this fact.

Gratitude: Thank you all for posting here about SE and how you manage them, which gave me the confidence to get going with my treatment program.

***



Dx: 3/2019, de novo stage IV metastatic breast cancer with metastases to 3 central lymph nodes in neck following complete thyroidectomy for papillary thyroid cancer WITH NO PRIMARY BREAST CANCER IDENTIFIED and NO OTHER METS (so far); diagnosed at age 65



ER+ (88%), PGR+(2%), HER2-equivocal (not enough remaining surgical lymph node tissue for FISH), KI67 borderline (15%)



Type of Breast Cancer: Possibly lobular (ILC)



Surgery: None



Radiation Therapy: None



Chemotherapy: None



Targeted Therapy: None



Hormonal Therapy: 6/04/2019 Anastrozole



Other Cancer Treatment: Radioiodine Treatment (RAI) for papillary thyroid cancer scheduled for June 19, 2019







De novo stage IV metastatic breast cancer with metastases to 3 central lymph nodes in neck following complete thyroidectomy for papillary thyroid cancer WITH NO PRIMARY BREAST CANCER IDENTIFIED and NO OTHER METS (so far) Dx 3/20/2019, Stage IV, metastasized to other, ER+/PR+ Hormonal Therapy 6/4/2019
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Jun 5, 2019 12:15AM HikingLady wrote:

Hi GlobalGal,

What a difficult and shocking DX you've been recently dealing with! This is a supportive place to share and vent. Your anxiety about starting on an AI is very much shared by many! I'm doing quite well with my AI.

You can set your DX and TX information in My Profile, in the tabs: My Diagnoses and My Treatments etc. That information will create a Profile for you, which will be your signature on posts.

Sending you very warm wishes for comfort and good success with your AI.

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/8/2003 Lumpectomy Radiation Therapy 6/9/2003 3DCRT: Breast Hormonal Therapy 8/7/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/6/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 5, 2019 08:29AM ruthbru wrote:

Glad you took the plunge, GlobalGal. May they work with few (if any) SEs for many, many, many years.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 5, 2019 01:05PM GlobalGal wrote:

Thank you, Hiking Lady, for tips on how to set up a profile (instead of copy & paste from a Word document).

So far, absolutely nothing to report in the SE department.

Hope it stays that way.

De novo stage IV metastatic breast cancer with metastases to 3 central lymph nodes in neck following complete thyroidectomy for papillary thyroid cancer WITH NO PRIMARY BREAST CANCER IDENTIFIED and NO OTHER METS (so far) Dx 3/20/2019, Stage IV, metastasized to other, ER+/PR+ Hormonal Therapy 6/4/2019
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Jun 5, 2019 05:01PM HikingLady wrote:

GlobalGal Keep us updated! Wishing you a smooth ride.

One more part of our profile creation on this site is the decision about which info you want to have be Public and which part Private, and you set each part of that, as well.

Although I managed to write my profile and share my DX and TX, I've never figured out how to add a little personal clarifying note or statement, as I see that some people do.... I never found those on the profile-creating drop-down menus....

Dx 3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2- Surgery 4/8/2003 Lumpectomy Radiation Therapy 6/9/2003 3DCRT: Breast Hormonal Therapy 8/7/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/6/2018 Arimidex (anastrozole) Surgery 1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 5, 2019 05:13PM SimoneRC wrote:

Hi HikingLady!

To add the additional information:

Menu

Settings

Signature

Edit

I hope that helps!



ATM Gene Mutation, Deletion. IDC w/Lobular Features and Focal Mucinous Features. Pre Pectoral Reconstruction. Hysterectomy
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Jun 5, 2019 07:44PM Ingerp wrote:

While we’re at it, somebody recently posted how to hotlink a username (or whatever you’d call it) and I’ve already forgotten. Anyone?

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/22/2016 Lumpectomy Surgery 4/19/2016 Lumpectomy: Left Radiation Therapy 5/17/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/12/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/17/2018 Taxol (paclitaxel) Targeted Therapy 5/17/2018 Herceptin (trastuzumab) Radiation Therapy 8/19/2018 Whole-breast: Breast
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Jun 8, 2019 08:17PM Mavericksmom wrote:

Dumb question, but I’ve been on Letrozole for about two months with no side effects. Now I am worried, because I am fat, that it isn’t working! I know this is crazy, but how does anyone know if it is working or not? I had almost 16 years with no cancer found between my two diagnoses. I know some people said they had their estrogen levels checked but since I don’t know what it was before, I wouldn’t be able to tell if the Letrozole lowered it.

Dx 6/6/2003, IDC, Left, 1cm, Stage IA, Grade 1, 0/24 nodes, ER+/PR+ Dx 12/4/2018, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH)
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Jun 9, 2019 07:31AM - edited Jun 9, 2019 07:32AM by Ingerp

Maverick that's a great question. I hope someone with more knowledge will chime in. My husband was just asking recently why we're all on the same dosage. One thing I think pertains to some of us is that we didn't have much estrogen in our bodies when we started the AI. I've noticed some SEs but never had hot flashes or anything—I went through all that ten years ago. I don't think there's any rush but that would be a good thing to ask next time you have a check-in with your MO. In the meantime, consider yourself lucky!!

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/22/2016 Lumpectomy Surgery 4/19/2016 Lumpectomy: Left Radiation Therapy 5/17/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/12/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/17/2018 Taxol (paclitaxel) Targeted Therapy 5/17/2018 Herceptin (trastuzumab) Radiation Therapy 8/19/2018 Whole-breast: Breast
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Jun 9, 2019 09:16AM ruthbru wrote:

No SEs is a good thing! As with anything, some people have an easier time than others. My SIL said she never felt better than when she was pregnant. I felt like crap. In the end, we both had very nice babies. Some people sail through menopause, others had a terrible time....the results are the same.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 9, 2019 12:47PM LaughingGull wrote:

Interesting question Maverick. I also wonder why everybody needs the same dosage. There seems to be some evidence that being overweight makes aromatase inhibitors less effective compared to Tamoxifen. Worth checking the literature and discussing with your MO if you are overweight -see below. That being said, the SE are not fun and I wish I didnt have any.

https://link.springer.com/article/10.1007/s11912-019-0787-1



ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)

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