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Jul 17, 2020 02:20PM
wahooma87 - SEs. They are so variable. Some people do not experience anything, others experience a lot. Most are somewhere in the middle. Some find relief with supplements, others with something else, and some, not at all. You should get a baseline bone density scan, since AIs are known to affect bone density. I have been taking Arimidex for almost 1 year. What helps, seems to be posted just about anywhere. I do experience joint stiffness, one finger on left hand is prone to locking up. I am not do for another bone scan for a year or so, just hope the bones are ok. I am using brand name Arimidex rather than a generic, and I think the SEs are a little less than with generic. I think turmeric (as food, add black pepper), and turmeric supplements helpGlucasamine/chondroitin might be helping. Some people most about CBD (with/without THC), it did not seem to help me. Stay hydrated and active. I hope all goes well and that you do not experience SEs. Acupuncture seems to help as well. Recently I've added electrostim to it, which I think also helps. I read something about Yamamoto scalp acupuncture which was supposed to help with AI SEs but could not find anyone who practiced it. Cannot find the original article on AI/scalp acupuncture.
2009 ER+ left breast. 52 yrs. Lumpectomy, Sentinel node removal, negative. Radiation 6 weeks, tamoxifen 5 years. Dense lumpy left breast, normal right.
2016 ER+ left breast. Probably a new cancer, but unknown. 4 rounds TC Aug-Oct 2016, Bi-lateral (my choice) Nov 2016, no reconstruction. 2 sentinel nodes remove, negative. Anastrozole 1 mg starting May 2017. Joint issues noticed immediately. Stopped Anastrozole after 3-4 months due to joint stiffness in. After several months of no AIs, fingers were feeling better. Started tamoxifen March 2018.
6/18/2019 Noticed Swelling in R-arm, opposite side from where lymph nodes. Ultra sounds for clots, no clot. REferred back to DR who referred me to lymphatic therapist. 7/2/2019 lymphatic therapist recognized that there was something very wrong and sent me back to the DR.
8/2019 CT, Breast/chest, neck/thyroid ultra sound . 9/2019 DR ordered biopsy, said it could be lymphoma, cancer, benign lymphatic. Biopsy R-axilla. Cancer. Genetic test showed no known markers (20+ looked for)
9/29/2019 PET scan, no indication of spread. Arimidex and Ibrance prescribed to shrink tumor prior to surgery, if needed.
10/2019 – Stopped Tamoxifen. Started Arimidex and Ibrance. Brand name Arimidex so far does not seem to have the SEs that generics did, but stiff/trigger finger on left middle finger returned.