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Topic: Doing Well on Aromatase Inhibitors (AIs)

Forum: Hormonal Therapy - Before, During, and After —

This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Apr 22, 2017 09:51AM - edited Nov 15, 2017 02:09PM by Moderators

Butterfly1234 wrote:

I read a suggestion that someone should start a topic for women who are NOT experiencing severe SEs while taking Arimidex, Femara, or Aromasin. I'm about to start taking Arimidex and when I read about the potential SEs I get discouraged. Maybe others would also like to hear about positive experiences. We would love to hear from you!

Edited by Mods to add content from the main Breastcancer.org site on:

Aromatase Inhibitors

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Aug 8, 2017 03:55PM 2FUN wrote:

iatigger, I'm sorry about the endo CA. I totally know what u r going thru. I got my endo CA dx a month after my BC dx, so mine was not a side effect. It took about 6 months after my hysterectomy for the hot flashes to ease up ( not disappear). Since I am now post menopausal, my MO put me on Femara/letrozole. It has pros and cons, but hasn't been too bad. I am a bit heavier and MO said letrozole works better in heavier people. I still get hot flashes from the AI, but not as bad as having just lost your ovaries! Hang in there!

Hormonal Therapy Surgery
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Aug 8, 2017 03:57PM pretzelwoman wrote:

I have been on Anastrozole for almost four years....the most troubling side effect I have experienced is joint pain but I have been a runner since the age of 12 and at 65 years young I continue to run despite the pain...knowing that this aromatase inhibitor reduces the risk of my cancer from coming back I am sticking with this treatment despite the joint stiffness/pain...exercising helps me so much...even walking when I cannot run. I consider myself lucky that I have not experienced more serious side effects...I am a cancer conqueror!!!!

Dx 9/4/2013, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/25/2013 Lumpectomy: Left; Lymph node removal: Sentinel Dx 10/13/2013, DCIS, Left, Stage 0, ER+/PR+, HER2- Surgery 10/13/2013 Lumpectomy: Left Radiation Therapy 11/13/2013 Whole-breast: Breast Hormonal Therapy 1/1/2014 Arimidex (anastrozole)
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Aug 8, 2017 10:32PM KBeee wrote:

I here with exercise, I walk and/or run every day. Rain, sun, snow, hot, cold..... I do something! Some days I walk or run many miles. Some days just a mile. I think the outsdoors helps my mood, and the exercise decreases side effects. I have some, but manageable. I have never missed a dose.

Everyone tolerates drugs differently. I tolerate. Letrozole muchbetter than tamoxifen, and tamoxifen did not work for me.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Aug 10, 2017 01:18PM - edited Aug 10, 2017 01:19PM by PugsMama

just checking in to say it's been about 2months since I've been on exemestane (generic Aromasin). A little more stiff, especially if I've been sitting a while but nothing I can't deal with. I was so fearful of the SEs but so far so good! Plan to start exercising regularly once healed from my exchange surgery.

57 at dx, married with 2 pugs 😄. Strong family history & BRCA2+. MammaPrint: Luminal B & High Risk. Surgery 2/18/2009 Prophylactic ovary removal Dx 12/1/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 1/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/10/2017 Aromasin (exemestane) Surgery 8/2/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 22, 2017 03:30PM Butterfly1234 wrote:

Hi All - also checking in. Been on name brand Armidex since May 9 and doing well. A little stiffness that comes and goes. My thumb joint is a little swollen but I don't know if it's the meds. All in all doing OK. Exercising regularly with yoga and supplementing with treadmill and weight machines. Sending gentle hugs and positive thoughts to all

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Aug 22, 2017 07:42PM Tappermom383 wrote:

Good to hear from you, Butterfly. Glad Arimidex is serving you well so far. I started on the generic on July 17. So far, so good. My pharmacist got me Teva for the first fill but gave me Accord for the refill. I didn't know what to do but decided to give it a try. So far I can't tell the difference.

I've continued going to my strength training and mat Pilates classes. I think this exercise - like what you're doing - helps us a lot. I know it made me stronger and I think helped me recover quickly from my surgery and get through my rads easily. I'm grateful that my local gym is a Silver Sneakers partner!

MJ

Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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Aug 24, 2017 11:26PM Icietla wrote:

I have been on Letrozole for almost seventeen months now. I hope to be able to take it for The Duration.

I have had a few side effects, all of them non-problems.

I threw up each of my first few doses, but I did not feel sick, so I took another pill each of those times. My Doctor ordered more supply for me so I would not run out from losing an occasional dose that way. I switched to evening dosing and have since lost only one dose that way. Non-problem.

For about my first couple of months on Letrozole, I was more tired and required more napping. Non-problem.

About four hours after dosing, I feel rather warm for a short time. Non-problem.

About a year ago, shortly after my fourth surgery last year, I had a massive shed that substantially thinned my hair. Then my hair fallout rate reduced to a normal fallout rate. I do not know if the shed was from the Letrozole -- it might have been from stress and the surgeries. Either way, non-problem.

Some side effects have phased in and out periodically -- say, more for a few months; then much less, or nothing remarkable that way, for a few months. One has been some aching and stiffness along the outer side of one femur. When it gets to aching when I am down for resting, I just roll over, then it feels better. When there is stiffness there when I get up after some time down, some walking and stretching movements very shortly make it better. Non-problem. Another side effect that has phased in and out periodically is alternately feeling warmth and cold when I am down for resting at night. At those times I run the ceiling fan to cool myself, and I also use lightweight covers to warm myself -- then I can easily uncover myself to vent away excess heat until I get to feeling cold again. Non-problem.

A few months ago one of my toenails fell out. I noticed that it was tipped over sideways, and then when I handled it, it came out easily and painlessly. Before long, the leading edge of a new toenail showed up there. Non-problem. In fact, the loss of that toenail has been convenient. It was a littlest toenail. [Anyone else recall Roseanne Roseannadanna aptly comparing clippings of the littlest toenails to boomerangs?]


My latest (Stage IVB) diagnosis is almost certainly of another distant primary type. To the best of my information and belief, I am still apparently what we call NED as to breast cancer, doubtless thanks to Letrozole. Dx 2/12/2016, ILC, Right, Stage IIA, Grade 1, 0/13 nodes, ER+/PR+, HER2- Surgery 2/19/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 4/1/2016 Femara (letrozole) Surgery 4/25/2016 Prophylactic ovary removal Dx 8/2018, Stage IV
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Aug 25, 2017 10:26AM JuliaJazz wrote:

Icella, I just love your attitude.  Hope I can adopt that no problem attitude when I go on Arimidex next month.  It has certainly been my attitude about my chemo treatments.  Last one is today!

Dx 4/11/2017, ILC, Right, 2cm, Stage IIB, Grade 2, 1/11 nodes, ER+/PR+, HER2- Surgery 5/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Surgery 5/16/2017 Lymph node removal: Right Chemotherapy 6/22/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/22/2017 Arimidex (anastrozole)
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Aug 27, 2017 10:29AM MickeyB17 wrote:

I start anastrozole on 9/1. Need this thread to keep on going! My MO said that often people with side effects will post and while their symptoms are real - most people simply have SE's that are mild and annoying.So it's nice to have a thread that captures those experiences as well. Thank you!


Dx 4/10/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (IHC) Surgery 5/22/2017 Lumpectomy: Right Surgery 6/22/2017 Radiation Therapy 8/1/2017 Hormonal Therapy 9/1/2017
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Aug 27, 2017 10:53AM coachvicky wrote:

soon2

I started in April. After 2 different generics with horrid SEs I switched to the brand name. I can't even tell I take it. My GYN said I had significant vaginal shrinkage but that is not necessarily a bad thing! LOL

Best wishes

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Targeted Therapy Surgery
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Aug 28, 2017 03:00AM 2FUN wrote:

vicky, interesting that the brand name worked for you. I have been on generic letrozole for about 6 months, and this last 6 weeks has been the pits. I really struggle getting up from a chair . After I'm up and moving a few minutes I'm ok.I wonder if I should ask to change to the brand name, or just change to another AI. Dr also recommend CO-Q 10. I am up again tonight with joint pain, so I hope I can get a handle on this, as I go back to work/school in a week!

Hormonal Therapy Surgery
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Aug 28, 2017 06:58AM - edited Aug 28, 2017 07:00AM by Icietla

Thank you so much, JuliaJazz. I love yours, too. Congratulations on finishing with Chemo. I hope things keep getting better for you. I see from your already having entered your Armidex start date that you are in Anticipation! I hope your AI treatment will be (at least) as easy for you.

Hey JuliaJazz -- since because of your location, you must contemplate the realistic possibilities of bad storms and consequent supply disruptions, try always to keep a good supply of your medicine.

My latest (Stage IVB) diagnosis is almost certainly of another distant primary type. To the best of my information and belief, I am still apparently what we call NED as to breast cancer, doubtless thanks to Letrozole. Dx 2/12/2016, ILC, Right, Stage IIA, Grade 1, 0/13 nodes, ER+/PR+, HER2- Surgery 2/19/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 4/1/2016 Femara (letrozole) Surgery 4/25/2016 Prophylactic ovary removal Dx 8/2018, Stage IV
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Aug 28, 2017 09:45AM coachvicky wrote:

2Fun

I don't know if the brand-name would work for you or not.

I kept very detailed notes on every side effect under every drug so my MO had plenty of data to justify the brand-name.

Best wishes on this and school/work.

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Targeted Therapy Surgery
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Sep 1, 2017 09:49AM MickeyB17 wrote:

Starting anastrozole (Teva) today. Ready for anything - it is such a beautiful day. Anyoner have advice on time of day to take it?

Dx 4/10/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (IHC) Surgery 5/22/2017 Lumpectomy: Right Surgery 6/22/2017 Radiation Therapy 8/1/2017 Hormonal Therapy 9/1/2017
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Sep 1, 2017 10:41AM coachvicky wrote:

I am a morning girl.

Each time I pop the pill, I say less than 5 years to go!

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Targeted Therapy Surgery
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Sep 1, 2017 04:12PM Tappermom383 wrote:

My MO didn't care when I take mine. I take it at night and have been sleeping better.

MJ


Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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Sep 2, 2017 10:19AM Janett2014 wrote:

My MO said it could make me sleepy, so I take mine at night; however, I don't think it has affected my sleep one way or the other

Diagnosed age 60 with IDC in 2014. Stage 1A, Grade 2, 0/10 nodes, ER+/PR+, HER2- Cancer on both sides, bilateral mastectomy, reconstruction with silicone implants, Oncotype 16, Arimidex (Anastrozole) 5 years. There are more details in my biography.
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Sep 2, 2017 10:25AM MickeyB17 wrote:

Thanks all. After reading a little more, decided to start with taking it at night. Slept 9 hours, so no initial sleep interruptions:) I was really afraid and paranoid - so relieved that to get this going. I so appreciate everyone's feedback and tips! First day of the rest of my life....time is so precious now.


Dx 4/10/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (IHC) Surgery 5/22/2017 Lumpectomy: Right Surgery 6/22/2017 Radiation Therapy 8/1/2017 Hormonal Therapy 9/1/2017
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Sep 10, 2017 03:56PM shortcake42 wrote:

Have been on anastrazole (not Teva) for 10 months. The hot flashes I had for years were worse for about 4 months and are milder than before BC. I had slightly aching joints, but don't have a clue if that is aging (I'm 65) or the anatazole. Probably aging. I have trouble sleeping. I take half a tablet Equate brand doxylamine succinate for about two weeks and when that quits working I switch to melatonin until it quits working and then back to Equate. The switching works for me. I need to sleep because I get up at 4:45 AM to go to work. Two or three hours of sleep is not enough. Excercise helps, but I have COPD to contend with, so that is somewht limited. In other words no real SEs. :) I am so glad to see a more positive thread!!!

Dx 9/2016, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2+ (IHC) Hormonal Therapy 11/13/2016 Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Sep 10, 2017 07:00PM MickeyB17 wrote:

Thanks for posting, I don't want this to die out either:) I am 64 and can't tell the difference wither between SE and normal aging. I am working too and I'm gonna keep on keeping on:)

Dx 4/10/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (IHC) Surgery 5/22/2017 Lumpectomy: Right Surgery 6/22/2017 Radiation Therapy 8/1/2017 Hormonal Therapy 9/1/2017
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Sep 10, 2017 09:02PM 2FUN wrote:

I was feeling pretty good on letrasole, but the last 2 weeks have been killer. Tons of hip pain, can't get up from a chair without help etc. I decided yesterday to talk with MO, and today I am only mildly sore. DO SE's varry from day to day?

Hormonal Therapy Surgery
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Sep 11, 2017 07:31AM MickeyB17 wrote:

I would think there would be fluctuation, though be sure and seek MO's input. Personally, as I journey through this, I am recognizing I need to write things down so I keep an accurate record due to fluctuations. All the material from individuals unique stories opens up thoughts about SE's that could be from other things. That's makes for confusion for me as to what's what. My MO did say that most women has SE that were mild and annoying.

Dx 4/10/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (IHC) Surgery 5/22/2017 Lumpectomy: Right Surgery 6/22/2017 Radiation Therapy 8/1/2017 Hormonal Therapy 9/1/2017
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Sep 23, 2017 08:45PM BlueGirlRedState wrote:

Butterfly - How often do you use the China Gel and where? I bought some after reading another post. it seems to help some with muscle issues, but has not done much for the joint issues in hands. Maybe I am not using enough. Usually only use in PM

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Sep 23, 2017 09:31PM KBeee wrote:

I am doing well on Letrozole. Side effects could just be menopause... not sure because I will not miss a dose and hope to complete all 10 years. Everyone tolerates things differently. I walk or run several miles per day as well. My cancer may come back, but I will never have to say "what if?". I understand some people's bodies do not tolerate these, and quality of life is important. I do understand why some people cannot complete the prescribed course. I just hope those afraid to start are not scared to start because of other stuff experiences. You do not know unless youtry

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Sep 23, 2017 09:50PM Artista928 wrote:

In reading the quitting AI/Tamox threads I get the feeling that some are defensive in their choice. Either they chose to never even try or can't tolerate (which I can understand as I can't Letro at least) but there seems to be a slight not so thrilled thing in their words. I mean why not try everything. If you can't tolerate it then fine, but give it a chance? And maybe Aromasin would be kinder since it works differently? Do it all: diet, exercise, reduce stress, and T/AI imo, the latter giving it time and try different brands to see before tossing it. I do see that folks who are not doing hormonals who can are majority stage 0 and 1, but many of them do progress too. I do believe in do it all and then if you progress, you won't be thinking what if. I think you say that now but should it happen, how big of a suck would it be to go through it all again with a recurrence, or worse, mets.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Sep 24, 2017 07:37AM bravepoint wrote:

Arista - That's my feeling. I tried Letrozole but stopped when my right hand started going numb. I gave it 6 weeks and am now trying exemestane/Aromasin. My back is sore but that isn't abnormal as I do have some back issues. It's only been 8 days so I'll stay on it unless worse SEs crop up.

Gail Radiation Therapy 4/17/2016 Whole-breast: Breast, Lymph nodes, Chest wall Dx 8/8/2016, IDC, Right, 1cm, Stage IIA, Grade 3, 1/5 nodes, ER+/PR-, HER2- Surgery 8/28/2016 Chemotherapy 10/6/2016 AC + T (Taxol)
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Sep 24, 2017 07:47AM coachvicky wrote:

The April and May time frame I was on the Arimidex generics was brutal. My saturated iron dropped as well and I had a lump (benign) on a reconstructed breast. I could have handled the lump and iron dropped better than I did but not on top of the generics and their side effects. It was too much.

I also think this was the time that I began to doubt my Oncologist and lost confidence in him. He just didn't seem to take the side effects seriously until I said get the the brand name or I will not be able to take this. I got the brand name Arimidex and (for me) the side effects are hardly experienced.

I understand trying and not trying. At some point I will probably say enough is enough. I almost did that with my Prolia shot last Wednesday but then I thought why not give it a try.

Coach Vicky


Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Targeted Therapy Surgery
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Sep 24, 2017 07:52AM pupmom wrote:

2Fun, I've found that SEs become less severe with time. And yes there is fluctuation from day to day, but the general direction is down. Only SE I've had with tamoxifen is hot flashes.

Artista, I've been on those threads with you. My feeling is that people with cancer are understandably angry. Because we can't attack the cancer directly, that anger is sometimes directed towards doctors and other health care professionals, who give us unpleasant news and treatments. Nobody likes cancer treatments, whether chemo, rads, or anti-hormonals. We do them to save our lives.

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Sep 24, 2017 10:16AM ruthbru wrote:

Since the most dangerous side effect of a cancer recurrence is death (preceded by some really crappy treatments which will just maybe slow it down a little); each person has to ask herself, if I (heaven forbid) have a recurrence, will I have any regrets about the treatment decisions I make now? I followed all the recommended treatments, and my answer would be no (in my mind the recurrence would then be fate/real crappy luck). If you, for whatever reason, follow a different path and will still be able to answer 'no', then it is the appropriate way for you to go.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Sep 24, 2017 11:20AM - edited Sep 24, 2017 11:50AM by Bliss58

I'm glad to find this thread and think it's probably more appropriate for me than the Femara thread since I don't have what I would consider SEs on Letrozole. I started out on Anastrozole and after seven months, had severe knee pain. Knowing what I know now about fillers, I think the brand of generic may have been the culprit. My MO did take my concern seriously and switched me to Letrozole (Teva brand). Within days, I felt so much better. Now after 11 months on it, I don't have near the joint pain I once did. I already have osteoarthritis, but I'd say the additional joint pain and stiffness from Letrozole is attributable to decreased estrogen rather than a SE, but it's tolerable. The only other thing I've noticed is weight gain, however, I also know that I need to be better about my diet which has been a contributor. Again, probably just part of losing more estrogen rather than a SE. Edited to say: I agree with others who have said exercise is key. I'm stiff when I get up in the morning or after sitting for a long period, but once I get moving, I'm okay.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/8/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)

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