Aug 2, 2018 08:25AM Novmoon wrote:
Lunesta helped me tremendously.
All Topics → Forum: Hormonal Therapy - Before, During and After → Topic: Anyone else not sleeping?! Need sleep!
Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.
Posted on: Aug 2, 2018 08:14AM
I’m 63- a runner- eat clean- not anxious- am blessed- doesn’t make sense, rite?
My oncologist prescribed 5mg ambien & NOTHING ! Help please thank you x
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Aug 2, 2018 08:25AM Novmoon wrote:
Lunesta helped me tremendously.
Aug 2, 2018 08:40AM OCDAmy wrote:
Me too! I don't want to take meds. I've tried melatonin but I don't think it works. It's frustrating.
Aug 2, 2018 10:04AM - edited Aug 2, 2018 10:27AM by moth
How about trying the Sleep with Me podcast? I really didn't think this could work but it does. It's just a guy telling really really really pointless boring stories. New podcast lands every few days but there are some that I just listen to over and over again. I fall asleep within about 10 min.
Set the volume so you can just barely hear it. You can set your app to turn off automatically at the end of the episode or let it continue to the next episode. When wired on steroids during chemo I once went through 6 episodes in one night - I'd just lightly wake up, hear him muttering on and on, roll over and go back to sleep.
The first 20-25 min of the podcast is him talking to the audience, talking about his advertisers & sponsors, and responding to questions from listeners etc. I recommend you skip all that and just get to the story.
of the recent episodes, 678 The Lemonade Experience has been one of the most reliable ones at putting me to sleep but I've also liked 681 Bernie the Butterfly & 685 Cloud Tower
Aug 2, 2018 01:32PM mustlovepoodles wrote:
I have a long history of insomnia. I've used Ambien and Xanax, but nothing has worked as well as Melatonin. The first few times i took it I really didn't get any benefit from it. Then i doubled the dose, and Shazzamm! It was like a miracle. I could fall asleep easily, stay asleep all night, and woke up refreshed wolithout any hangocer.
Aug 2, 2018 05:46PM Onegoodfriend wrote:
thank you all & god bless! soooo frustrating for sire
Aug 2, 2018 05:59PM gailmary wrote:
i have a long 50 year history of insomnia too and anticipated it getting worse on letrezole.
Did accupuncture at drs suggestion. Take Magnesium supplements and do meditations with the "calm" app. They have adult sleep stories too. Occasionally i still struggle and resort to melatonin. 10 mg to sleep all night. Ive heard up to 20 mg is ok cause as we get older we produce none.
Did ambien years ago and was alergic.
Im finally sleeping. The breathing u do for meditation helped the most. Clears my racing mind.
Aug 2, 2018 06:13PM wallycat wrote:
20mg of melatonin every night; 95% of the time, that does the trick. I've switched it up with 10mg + 10 mg timed release and it is different enough to help.
I've tried benadryl (which is an old antihistamine) which is what hospitals use and it can make some people drowsy enough to help them sleep--doesn't do much for me for the 5% of the time the melatonin fails me.
When I go fishing on a cold afternoon and have the ocean breezes, I sleep like the dead. Clearly that is not a 100% treatment.
I read somewhere that doing a mental list of beauty-care type thinking (like counting sheep but daily care routine instead) helps some fall asleep faster.
Aug 2, 2018 07:28PM Georgia1 wrote:
Seconding the melatonin and magnesium. Magnesium also seems to help ward off or reduce tinnitus (a hormone therapy side effect) and constipation. The wonder supplement that works wonders!
Aug 2, 2018 10:28PM gailmary wrote:
yes. Gotta love magnesium. Helps with those awful leg cramps too. To many reasons not to take it.
Such a shame drs know so little about diet nutrition vitamins supplements . . .
Aug 2, 2018 10:44PM OCDAmy wrote:
How much magnesium and do you take it at bedtime with the melatonin
Aug 3, 2018 04:38AM GeorgieGirlKC wrote:
So glad to find this thread. I have suffered with insomnia since my cancer diagnosis. I have a prescription sleep med but don't like to use frequently as it is not recommended for long term use. I've also tried Benadryl, guided meditation, exercise, no naps, magnesium. I have been on letrozole for 4 plus years and suspect the insomnia is related to letrozole. Anyway, I have been reading about magnesium deficiency, sleeplessness and anxiety and decided to order a product you can mix with hot water that has magnesium and melatonin in it to see if that helps. Thankful for the sharing on BCO.
Aug 4, 2018 07:52AM beach2beach wrote:
The Sleep with Me podcasts...whoah. He bores me to sleep with the rambling. I usually take melatonin..5mg and another half and listen to the podcast..well at least a few mins of it. If I really need a solid 4hrs guaranteed, I take a xanax but I'm trying not to rely on that.
Aug 4, 2018 10:28AM Georgia1 wrote:
I take 200 mg of magnesium every night when I take my tamoxifen. For melatonin, I read that it's best to take it temporarily then stop for awhile so I'm off of it now. Can't recall what the dosage was...and my MO is good with both. Hope that helps!
Aug 4, 2018 10:50AM Runrcrb wrote:
Onegoodfriend - I too find it frustrating to do all the "right" things (exercise, healthy eating, etc) and deal with side effects of breast cancer. You didn't mention it but I assume you are on an aromatase inhibitor? When do you take it? My plastic surgeon wanted me off ALL meds and supplements prior to and for several weeks after surgery in December; consequently, I was able to add things back one at a time and assess. I went from good sleep for two weeks post surgery (no pain meds I promise) to waking up 3-4 times a night when I restarted aromasin so it was easy to identify that as the culprit of my previous sleep (or lack of) issues. I switched to taking it in the morning and got back to decent sleep almost immediately. Something to try.
Other sleep things - I took 5mg of melatonin nightly for about a year which didn't hurt and possibly helped. In my forced "stop all meds" I restarted things that were required (AI and allergy) before adding the optional things in an effort to be certain I was taking the minimum to do all the tricks. I have not restarted melatonin.
My oncologist prefers supplements to Rx as a first step to solve a side effect. I take magnesium (400mg) each morning for joint pain. I recently added tumeric (500mg) at night and she's a fan of the combo. I take my caltrate twice a day since the body can't handle the recommended dose at one time.
I have ambien (5mg) in the drawer. If I go more than a week with crappy sleep, I will take it for three nights and this typically gets me back on a good sleep schedule. I've probably done that 3-4 times over the past year.
Aug 4, 2018 11:03AM Nel wrote:
CBD oil has worked wonders No THC involved A couple of drops going to bed and I am sleeping wonderfully
Aug 4, 2018 11:29AM JoE777 wrote:My first round with Femara beginning around May of 2012. Almost immediately stopped sleeping along with other really bad side effects. Changed to Eximistane. No change. I could fall asleep but would wake never to sleep again. Onc put me on tamazapam. Worked like a charm. In 2014 I went off AIs because of side effects and was diagnosed February of 2018 distant metastasis in sacrum of back.(moved and new docs) Back on femara, kisqali and zometa infusions. I guess I'll never sleep again. Onc says I can take benedryl which works but it only makes my mouth drier than it already is so I watch movies. Onc was worried about interfering with kisqali with sleep aids but I was in bad shape when I was diagnosed. Hugs and sleep wishes to you.
Aug 4, 2018 02:42PM Onegoodfriend wrote:
hi and thank you everyone!
Gosh I may have filled out my profile incorrectly(I’m 63 & so much better w pen and paper) yes, I am on AI- arimidex in the morning for just over one month now.
On a side note, I do take curcumin & an alkaline/detoxifier drink every morning and guess what? My awful acid redux is gone - no meds anymore for that -
After a pretty sleepless month, My oncologist wrote me lowest ambien dosage - HATED IT! Kept me awake- go figure
I do have a point here I promise: when my father passed 15 months ago.... I had way more anxiety & depression ...than I did when I was diagnosed w ILC JUNE 2018. Soooo back to subject to sleep- I had some left over Xanax( which I don’t need any more during the day I guess) i was told to take it and ....I finally slept.
Be well everyone :)
Aug 4, 2018 02:49PM Onegoodfriend wrote:
Thank you muchly ... wishing you strength, deep slow breaths ( they help me ) & restful sleep as well :)
Aug 4, 2018 03:26PM Runrcrb wrote:
So glad to hear xanax worked for you. I have some prescribed back in the early breast cancer/husband cancer days. I noticed zero effect when i took it. Go figure.
Aug 6, 2018 05:28PM florence123 wrote:
I have been 3 years on hormonal therapy...Just back on Tamox since March after being on Aromasin. Insomnia is a big issue bc it is a side effect of the meds. Mine is pretty horrible. I still don't sleep after exercising, yoga, meditation-nothing will make you sleep because it is chemically induced :(
1. low dose of effexor every night + some melatonin-2 to 5 mgr ( I stopped in March to give my body a break after 2,5 years and I hated the constipation)
2. Gabapentin + melatonin or temazepam or flexeril. Sometimes gabapentin works by itself. You might want to try flexeril by itself. I would not do flexeril long term (liver). I don't like to use sleeping pills. You can become dependent. I use temazepam about once a week.
I am seriously considering going back to effexor for hot flashes + insomnia-works pretty well...probably at the end of this month. I will stop again around May to go back to gabapentin to give my body a second break. I hate to take all those meds but this is the only way I can sleep.
I bought some CBD oil but I am afraid to mix it with gabapentin. Side effect? I have tried it by itself and I did not sleep great, although I can see the potential once off meds.
Aug 6, 2018 07:03PM LovefromPhilly wrote:Hi everyone!
Aug 8, 2018 08:19PM DMB1949 wrote:
Hi...I’m thinking the THC level was still to much for you....I’m going to try some edibles in the next few weeks....will let u know! I can’t sleep either! UGH! I’m on anastrozole,have tried taking it at different time,doesn’t seem to matter,I take Xanax .25mg some nights,seems to help...kinda. All the best,Dian
Aug 9, 2018 07:37AM Onegoodfriend wrote:
Oh no! Hope my experience can help someone: finally some relief from arimidex induced insomnia: oncologist perscribed restoril- restful sleep last nite finally! bh”
Thank you everyone here!
Aug 10, 2018 09:09AM Runrcrb wrote:
the chilipad looks interesting. I will have to do some research on it as well as determine if i want to invest $1000 😀. Always something new to pursue
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