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Topic: Anyone have Osteopenia from Aromatase Inhibitors? Treatment?

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Oct 14, 2018 01:10PM

letsgogolf wrote:

I had my DEXA scan last week and now have Osteopenia of my lumbar spine (1.5). My scan from 2 years ago was normal. I have only been on Arimidex for 16 months. My doctor is recommending Prolia shots every 6 months. I have been doing some research online and am a bit confused as to why they are not recommending Bisphosphonate intervention as a first line treatment. Appears that Bisphosphonates are much cheaper and have fewer possible side effects. Your thoughts?

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/26/2017 Lumpectomy: Left Radiation Therapy 4/5/2017 Whole-breast: Lymph nodes Hormonal Therapy 5/31/2017 Arimidex (anastrozole) Targeted Therapy
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May 15, 2019 01:22PM ctmbsikia wrote:

Oh yes, I was sent to the dentist as well.  Another grand...…………  LOL


Good luck gals.   I take Vit D weekly, and work on balance and weight bearing exercise.  Calcium supplements give me headaches I can't take those.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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May 18, 2019 12:53PM bennybear wrote:

I have been stable with osteopenia for years. Last bone density showed some improvement. Fast forward to three months on Anastrozole, a broken elbow and three months Aromasin with Fosama . My MO didn’t want to do a bone density for another year but my pcp ordered one and surprise I now have osteoporosis, lost ten percent of my spine! My MO is surprised that it happened so quickly and to this degree. It is not typical apparently but now I am off the hormone suppression. Thankfully I found out before further damage.

So Ifyou are worried insist on testing.

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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May 18, 2019 01:17PM stephilosphy00 wrote:

Hi ladies, do you guys know if I can pay out of pocket to get a DEXA? I was told by my onc I am only allowed to have DEXA every other year according to my insurance which just doesn't sound right!

Dx at 29. Original mass 2.5 cm. Biopsy MRI and PET/CT confirmed 1 node involved. Ki-67 score 7.5%. ER100% PR100%. Genetic testing negative. Restaged to stage IIA post surgery. Chose to do 6 cycles of Xeloda to prevent recurrence!! Dx 11/9/2016, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Chemotherapy 11/18/2016 AC + T (Taxol) Surgery 5/10/2017 Lymph node removal: Sentinel; Mastectomy: Left Hormonal Therapy 5/21/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/11/2017 Aromasin (exemestane) Radiation Therapy 7/12/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 4/3/2018 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Zoladex (goserelin)
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May 18, 2019 01:51PM ElaineTherese wrote:

Before I began Aromasin, I was borderline osteopenic. After two years of Aromasin and Zoladex, the dexascan showed that I had full-blown osteoporosis and was at a high risk of bone fracture. I did Fosamax for six months before MO figured out how to get my insurance to pay for Prolia. I've been on Prolia for 18 months, and will have a dexascan in June. I'm hoping the dexascan shows that my bone density is increasing.

Fosamax wasn't bad; it was inexpensive and wasn't terribly inconvenient. But, I'll never know if it would have worked because MO switched me to Prolia.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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May 18, 2019 02:08PM letsgogolf wrote:

stephilosph… I believe that is correct with most if not all insurance plans. DEXA is paid for every 2 years

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/26/2017 Lumpectomy: Left Radiation Therapy 4/5/2017 Whole-breast: Lymph nodes Hormonal Therapy 5/31/2017 Arimidex (anastrozole) Targeted Therapy
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May 18, 2019 03:52PM - edited May 18, 2019 03:55PM by Spookiesmom

Actually it's Medicare causing the issue. They will only cover a DEXA every 2 years, and insurance companies follow their guidelines. I knew I was due this year. Made appt 2-3 days before the 2 year ago date. My insurance wouldn’t cover it.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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May 18, 2019 05:42PM ElaineTherese wrote:

My doctors have told me that the two-year dexascan schedule makes medical sense. Bone density doesn't change very quickly; whether or not Prolia or a biophosphonate is working may not become apparent until the two-year mark.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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May 18, 2019 05:51PM shortcake42 wrote:

My DEXA before BC was normal. A year and a half on anastrozole and DEXA showed osteopenia. Took Fosamax for 3 months and had horrible stomach problems. Prolia was too expensive, but will try NotVeryBrave's suggestion about contacting Amgen. I took Calcium for years and vit D. Onc said Calcium levels were too high so cut back. He also told me that the osteopenia and the aches and pains in my legs are just old age.

Dx 9/2016, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2+ (IHC) Hormonal Therapy 11/14/2016 Arimidex (anastrozole) Surgery Lymph node removal: Sentinel; Mastectomy: Left
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May 27, 2019 04:02PM Brandi1616 wrote:

Hi all

I'm 55 and just found out I have osteoporosis. I had 3 years on tamoxifen and then switched me to anastrozole for the last 4 years. Now since I have osteoporosis doc swiched me back to tamoxifen and wants me to do fosamax. I have acid reflux, burping and sometimes it does come upmon me. Does anyone know that after you take pill and stay upright for 30 min. Will it hurt me to have acid reflux after that. Im really scared it will hurt something and dont want to worry all the time about it.

Has anyone had the other medications and how did u do? Anyone stop them and have any side effects?

Thanks for the help

Brandi

Dx 3/14/2012, IDC, 5cm, Stage IIIA, Grade 2, 8/26 nodes, ER+/PR+, HER2+
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May 29, 2019 12:05PM muska wrote:

Hi Brandi, I am in my fourth year of Prolia. No side effects so far.

Dx at 54 Dx 5/9/2013, DCIS/IDC, Right, <1cm, Stage IIIA, Grade 3, 7/11 nodes, ER+/PR+, HER2- (FISH) Dx 6/13/2013, LCIS, Both breasts Surgery 6/13/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/25/2013 AC + T (Taxol) Surgery 2/20/2014 Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/12/2014 Arimidex (anastrozole) Radiation Therapy 3/23/2014 Breast, Lymph nodes, Bone
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Jul 24, 2019 01:16AM CindyNY wrote:

Dexa in May showed osteopenia in hip (neck). Saw PA at MO office today. She's setting me up with an endocrinologist and she believes he can get me a dexa scan yearly. Yet to be seen but I hope so. I have had a lot of bone loss since being on anastrozole. She mentioned Prolia, and how it's been shown to ward off mets. Hoping endocrinologist isn't going to be pushing medicine yet. That's my long story short.

I don't smoke, I work out hard a minimum 3x a week, but more often than not, 5x a week; I barely drink, I'm a normal weight, I eat a lot of yogurt (OK ice cream too!), take calcium supplements - Calcitrate w vitamin D. I just don't see where I can have a lifestyle change to help anymore than what I already do. Wish this drug didn't mess with us so much, I feel like we've been messed with enough.

HUGS!

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/31/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)

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