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Nov 24, 2019 08:30PM
Hi, just wanted to join in to hopefully give some encouragement.
Everyone is different and what works for one person might not work from another. Then again reading/hearing about others experiences might help folks with making decisions on whatever paths to try.
I started taking Tamoxifen back in July 2011. After 6.5 years I switched to Femara due to some side effects, then to Aromasin because the SE's with Femara were so bad for me, and now I am back on Tamoxifen because in the two years I was on an AI I had 10% bone density loss, not to mention other SE's which were impacting my quality of life.
I was ready to stop the hormone therapy part of my treatment. Thankfully I have an awesome Oncologist who is very supportive and honest with me and supported me regardless of my decision on what to do. So after a good conversation and research (thanks to this site for a lot of the information I found) I decided to go back to Tamoxifen. Hoping that in the last few years of my treatment that I will be able to tolerate the SE's of Tamoxifen. I know that my body needs to adjust again, but I will give it my best effort, make adjustments and give it my all.
A few things I have learned along the way which helped me which I hope to use with this next phase, and adjust as necessary are:
- Exercise. This really makes a difference, found yoga is really beneficial for me. Staying active, whether taking walks, hiking, biking, etc... just staying active has a positive impact on my Quality of Life. Weight baring exercises are now more important for me due to the bone density loss that I have experienced.
- Eat healthy (but I will not give up my dark chocolate and red wine). Making additional adjustments now with my diet due to the bone loss.
- Maintain a healthy weight. This really made a difference for me. I know because my weight has bounced around. Really made a difference with the lymphedema too.
- Reduce stress. Sometimes that means walking away from the stress, but getting rid of the stress can make life so much better.
- Supplements really help me. Got approval from my Oncologist for everything I take. Once again everyone is different, so talk to your doctor before taking supplements. I take Turmeric, B6/B12, CoQ10, Glucosamine/Condroiden, L-Glutamine, and Calcuim/Magnesium.
- Getting a good nights sleep is really important. Sometimes I need to take Melatonin or CBD oil if I have issues with sleeping. It is not an every night necessity for me, but sometimes I just need the extra help to fall asleep.
- Find something to do which makes you feel good. A hobby, volunteering, mentoring, playing with your kids, grandkids, neighbor's kids, etc....
- LAUGH! Laughter really does make life better.
- Talk with your oncologist and be honest with them. If they dismiss your concerns and do not address your questions, find another one.
Remember, this life is your, your choice on what to do or not do, but be open to hear the advise of others and most importantly trust your gut on what is best for you.
10/1/2010, IDC, Left, 1cm, Stage IIA, Grade 2, 2/4 nodes, ER+/PR+, HER2-
11/17/2010 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
1/5/2011 AC + T (Taxol)
4/25/2011 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
7/1/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)