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Oct 22, 2019 01:45PM
Oct 22, 2019 01:48PM
I got the Genetic Tests results...no Gene Mutations at all. But there was an AU on the MUYTH gene there's no answer for.
That means I have no “genetic" predisposition for Cancer but now I have BC for the second time. There is no reason I should have gotten it the first time. JS...
Had the Oncotype Testing done and waiting for the results. In my Research I've found that different chemo drugs work on different genome types within your tumor. Commonly called SERMs. This makes perfect sense to me. Why use a scattershot shotgun blast of Anastrozole to kill all the Estrogen and Progesterone in my body? Obviously my brain, heart and bones need hormones to function. My MO is only considering the Oncotype Score to determine my chances of responding to Chemo.
My MO is insisting that I take Anastrozole or Faslodex without systemic Chemo for ILC. Right now I'm fighting that. Will have a Bone Scan and Whole Body CT Scan on Friday. If the area of the chest wall shows again, I'll be kicking and screaming for a new Treatment Plan. If the chest wall is clear, I'm still waiting on the Oncotype Test to determine which of the 12 genes in my Cancer might respond to which drug.
If all else fails and my only option is Endocrine (hormone) Therapy, I'll chose Faslodex. At least it only targets the Hormone Receptors in Breast tissue.
It's been 5 months since I noticed something wrong and I still do not have a Treatment Plan. I'm getting antsy.
Just wanted to add my “slow growing” ILC has grown from a 6 to a 9 cm size in 6 weeks time..
7/20/2010, DCIS/IDC, Left, 2cm, Stage IIIB, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC)
9/5/2019, ILC, Both breasts, 6cm+, Stage IV, metastasized to lungs, Grade 1, ER+/PR+, HER2-