Log in to post a reply
Jan 14, 2020 08:55AM
Hi totally tubular, I am in NJ and had a second opinion at Sloan. The recommendations looks somewhat similar. I am doing CMF chemo (CMF definitely a Sloan thing), radiation. Sloan Dr. recommended right to AI, no tamoxifen, with lupron for ovarian suppression. Tamoxifen has been shown to not be as effective for ILC. I want my ovaries out, they have super powers, and I don't want another med. I am 54 and had my period twice while on CMF. Did you go into menopause on CMF? She didn't mention which AI. I stuck with my MO, as he agreed to implement Sloan recommendations with alterations. He is in agreement with ovary removal. I asked him today what AI is he thinking, he said Aromasen as it has less side effects. Any thoughts on this? Did Sloan have an opinion? Is Armidex better?
Regarding sleep, I have always had insomnia before and after dx. I have been taking Lunesta for years and it works really well. It is extended release. I've tried SSRIs, lorazepam, Ambien, hate them all. Bad side effects and no good for sleep because they are not extended release. Ambien does have an extended release version, but I haven't tried it. Hasn't anyone recommended a sleep aid for you? It is normally prescribed for every other day. I actually took it during the week while working, and weened off on weekends. Once dx, I got special approval to take daily, but I do have concerns I am addicted to it. But a good nights sleep is so important and needed to function.
Pleomorphic Multifocal, Extra nodal Extension, Lymphovascular Invasion. TEs removed due to infection
8/15/2019, LCIS, Right, 6cm+, Grade 3, ER+/PR+, HER2-
8/15/2019, ILC, Right, 2cm, Grade 3, 2/5 nodes, ER+/PR+, HER2-
9/23/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
3/29/2020 Whole-breast: Breast, Lymph nodes, Chest wall
6/3/2020 Aromasin (exemestane)
Prophylactic ovary removal