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Topic: Tamoxifen withdrawal and bleeding

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Jul 20, 2020 03:17AM

WC3 wrote:

I was premenopausal when I began treatment and my periods stopped after my second TCHP infusion two years ago. I've been on Tamoxifen for about a year and a half and have a thickened uterine lining consistent with that. Initially I had consulted with a gynecological oncologist who said this was nothing to be concerned about unless I developed bleeding.

While I've had nothing resembling a period, I've recently experienced spotting that seems to occur after accidentally skipping a day of the Tamoxifen or taking it later than usuaI. I suspect that this is withdrawal bleeding but I can't find anything that substantiates that.

Has anyone had a similar experience?

Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Sep 17, 2020 03:09PM adina65 wrote:

Hi, My only report would be get more answers and ask many many questions. I was on Tamoxifen for about 10 months after not doing well with Letrazole or Exemestane over the past 4.5 years. I started having horrific night sweats, leg cramps, dried out body completely so when I went for my annual my one said to take 4 more years. No , cannot handle anymore! I've been off for almost one month and no more night sweats or leg cramps but I still have hot flashes. Of course I'm older and post menopausal, so don't know if this helps. As you know we are all individualistic even though it seems we are lumped into only a few categories for treatment.

Take care, & Stay in touch,

Adina

Diagnosed 11/11/15, Stage IIB, Low Grade, rt. breast, bilateral mastectomy 1/5/16, 1 auxiliary node positive ,ER+ PR+ HR2-,OncotypeDX21 Dx 11/11/2015, IDC, Right, 2cm, Stage IIB, Grade 1, 1/9 nodes, ER+/PR+, HER2-
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Sep 18, 2020 05:24PM WC3 wrote:

Hi Adina:

I had hot flashes frequently when I first started tamoxifen but they have reduced in frequency since then. I tend to just feel less cold than I used to in general these days.

Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant

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