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Topic: Anyone taking an AI for more than 10 years?

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Aug 6, 2020 10:23PM

jacksnana wrote:

A few months ago I completed 10 years of anastrazole. I've continued to take it until my recent 6 month appointment with my oncologist. When I was diagnosed, 5 years was the protocol for an AI, but when I took the breast cancer index test, it indicated that I would benefit from an additional 5 years. My onco is fine if I stop taking it and fine if I continue. I'm going to stop for six months and see how I feel and if my bone density will improve. Anybody else stay on an AI for more than 10 years?

Dx 10/26/2009, IDC, 3cm, Stage IIA, Grade 1, 0/12 nodes, ER+/PR-, HER2+
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Aug 7, 2020 06:38AM Castigame wrote:


I am on AI almost 3yrs and my Onco told me she would be happy if I can stay 7yrs total. I have minor SE here and there but I plan to stay on it as long as I can.

Please let us know how you feel and any changes either way.

Thank you for the inspiration re AI taking 10yrs.

Mimi Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Surgery 2/14/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal Chemotherapy 3/20/2017 Radiation Therapy 7/30/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/29/2017
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Aug 14, 2020 08:10PM trinigirl50 wrote:

Yes please let us know how it goes being off of it having done 10 years. I am 5 years now and plan for 5 more but I am really hoping that some of the side effects are reversible (high cholesterol, achey bones, high blood sugar, thin skin, thinning hair). It would be good to know if you notice anything different.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Aug 14, 2020 08:48PM jacksnana wrote:

Thank you both for responding. After 10 years, I didn't have the side effects that I did the first couple of years, and at this point I'm not sure what was from the AI and what was just normal aging! Cholesterol issues, lower bone density, hair thinning, so I'm hoping some of those things will improve. I have a lot of anxiety, so maybe that will improve too, although I kind of saw the AI as my security blanket! Wishing you both all the best on this journey none of us would have chosen.


Dx 10/26/2009, IDC, 3cm, Stage IIA, Grade 1, 0/12 nodes, ER+/PR-, HER2+

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