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Topic: Any information on letrozole?

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Sep 1, 2020 08:42AM

SHARFRA wrote:

Have finished all of the process and have been percscribed generic letrozole. Just don't know about taking it. Already have hypothyroid and fluid retention and migraines... And hair loss due to meds. Can anyone give me feedback on this? I really don't want to take anything but Drs say I have to.

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Sep 1, 2020 09:36AM - edited Sep 1, 2020 09:37AM by KMom57

I know that everyone is different, so my experience won't necessarily be yours, but to encourage you, I took letrozole for about six months before surgery, and in some ways, felt in better health than before. I did get some achy bones, and a bit of stiffness but it was nothing that I couldn't live with and function quite normally. I also did not gain weight, and really didn't have much problem with it, and don't notice much different now that I'm off of it temporarily. For me, it was pretty much life as normal, anyway, as it can be on this journey. I did get a good bit of hair thinning, but part of that could have been stress from diagnosis. I won’t know til I go back on it after chemo how much that’s a real side effect.

Dx 10/2019, ILC, Left, 2cm, Stage IIIA, Grade 2, 8/11 nodes, ER+/PR+, HER2- Hormonal Therapy 11/6/2019 Femara (letrozole) Surgery 2/15/2020 Prophylactic ovary removal Surgery 5/18/2020 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/31/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 1, 2020 10:23AM Spookiesmom wrote:

I’ve been on it about a year. Aside from loosing most of my hair, this is the easiest AI I’ve been on. Arimadex and tamoxifen were hard for me. Painful.

Try it for a few months. If you develop se, you can change, or stop.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Sep 1, 2020 12:46PM bcincolorado wrote:

I took for 4 1/2 years after doing 5 of Tamoxifen. I did have bone loss which was caught on my lab work and had to start Prolia shots. My recommendation is that to have dental work done prior to starting Letrozole since it it does have the ability to cause bone loss. I also taking my meds regularly was important to keep cancer away as long as possible and was very compliant in taking them as a result. So far so good and diagnosed in 1999. Few close calls but ok so far.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/7/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/30/2016 Femara (letrozole)
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Sep 1, 2020 02:10PM Beesie wrote:

Letrozole is generic Femara. You might want to read this thread:



And while the following thread is about all of the AIs, many of the posts are from people on Femara, since it's so commonly prescribed:

Topic: Doing Well on Aromatase Inhibitors (AIs)
“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke

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