Join Us

We are 218,061 members in 84 forums discussing 160,867 topics.

Help with Abbreviations

Topic: Hair help please

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: Sep 3, 2020 05:22PM

brittandherboobs wrote:

Hey all, 26 y/o, nearly a year out from my last chemotherapy, finished rads in January. On Lupron and daily Letrozole now. Hair is a mullet and the longest parts are touching my shoulders but the past 2 weeks it has started to fall out again. It’s causing me to have severe panic attacks. Everytime I run my fingers through my hair I look at my hands and have multiple strands lying there. Anything I can do? Any suggestions? Advice? Help please, somebod

Log in to post a reply

Page 1 of 1 (9 results)

Posts 1 - 9 (9 total)

Log in to post a reply

Sep 3, 2020 05:32PM Lexica wrote:

I'm sorry, I probably don't have anything terribly helpful to say other than, I feel you. I am 2+ years out from starting hormone therapy and my hair is still thinning. It doesn't come out in clumps but I lose a whole lot more than I should every day and I definitely have some almost bald spots. I've tried the laser helmet thing with no results and just purchased Rogaine last month. Hoping that works... at this point I'd be thrilled if it would just stop falling out!

Diagnosed at 34. 2 years of Ibrance via PALLAS trial (ends 4/2020) Dx 7/2017, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Dx 12/27/2017, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Aromasin (exemestane)
Log in to post a reply

Sep 3, 2020 06:23PM Beesie wrote:

In the scheme of things, hair loss from Tamox or AIs seems like a small problem - and unfortunately our MOs often treat it that way - but it can have a huge impact on how we feel about ourselves and how accepting we are of taking these meds.

A lot of people on this board have found that Biotin supplements help stop hair loss, although it takes a few months to have an effect.

The laser helmet or Hair Max laser brush also works for many people (but not everyone, to Lexica's experience) but again it normally takes 3-4 months to see any impact.


“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
Log in to post a reply

Sep 4, 2020 06:12AM Rah2464 wrote:

I take 10,000 mcg biotin daily and I have a laser helmet that I use. I haven't tried the rogaine yet. My hair is pretty thin these days but I feel like I have stopped thinning more at least.

Also make sure you get enough protein in your diet daily. That can help as well. But unfortunately, for a lot of us the anti hormonals do a number on our hair production.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Sep 11, 2020 04:42PM Blue311 wrote:

I know its hard, I am experiencing the same problem with tamoxifen, the treatments, surgery and everything else is very hard. I feel for you because I am in the same situation, I have many days where i have cried over my hair thinning and its still hard to overcome this some days. I am on tamoxifen for only 4 months, but my hair has started to thin out after 2 months. Biotin helps, but its takes a while to see results. You could see a Dermatologist and see what he offers you, I saw one the other day and it was a mix of emotions, good and bad. But it might help. I know it hard with hair loss and I know the doctors are not sympathetic to our problems of hair loss. You might want to speak to someone professional, I started speaking to a psychologist and it has helped.

Log in to post a reply

Sep 13, 2020 11:09AM - edited Sep 13, 2020 11:09AM by wallycat

Lack of estrogen also causes hair loss (aren't we lucky) so the meds, doing their job, is causing it.

Have you had your thyroid checked? Many gals have thyroid issues along with breast cancer and hypothyroidism can cause hair loss...just to add insult to injury, right?

My hair used to be incredibly thick. Not anymore. The "gift" that keeps on giving.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
Log in to post a reply

Sep 24, 2020 04:44PM birdsndognow wrote:

Hi, Brittandherboobs, and everyone.

I'm on letrozole, too, and losing hair. I don't know if I will even get a hair topper because if

I keep getting more and more side effects, besides that, it's over for good with the AIs.

I will take my chances with immune boosting foods, trying to keep stress hormone levels low,

and mostly trusting in the Higher Power. Beesie and Rah2464, thx for the info about the biotin.

Dx DCIS/IDC, Left, 2cm, Stage IIB, Grade 2, 2/2 nodes, ER+/PR+, HER2- (IHC)
Log in to post a reply

Sep 25, 2020 09:12AM flashlight wrote:

Hi, I was told if your vit D level is low it will effect hair growth. I take biotin, vit K2 , and D3. My D level went from 33 to 56 this past August.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Surgery Lumpectomy: Left
Log in to post a reply

Sep 26, 2020 07:46AM - edited Sep 26, 2020 07:47AM by Mountainlover

After 2 months on Femara and 3.5 months off HRT hair thinning is becoming a problem. I hope the laser band I've been using for a while will work . I also use topical products which are supposed to help regrowth and want to add biotin to the mix. While I wait with my fingers crossed, I've decided to at least make the hair I have look better/ thicker with densifying products. The Nioxin line seems to work very well. It is not a solution but at least it makes me feel less self-conscious and reduces my anxiety.

Dx at 47 Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
Log in to post a reply

Sep 26, 2020 08:17AM RadQueen wrote:

Hi guys, my last Chemo was at the end of March. My hair actually started to grow back during the Taxol treatments. After all my Chemo was done they put me on Femara. I read about possible side effect of hair thinning and went out and got some Rogaine, Nioxin (from Sally's) and started to take Biotin. My hair started to thicken up and grow . After about a month it was about 2 inches long so could style it like a boys hair cut. Only problem was it was grey :( They tell you not to use any chemicals on it for at least 6 mo. So I went and bought some Henna. it worked great gave me a nice natural color, almost like I had when I was younger. So far I have done the Henna twice and am getting ready to do it a 3rd time as I have new growth that is coming in grey. My hair is still only about 2.5 inches long now but it is thick. My hair never did grow fast so for it to get back to my shoulders will probably take a long time. I have cut back on the Rogain to only once a day and the Nioxin only when I style it to help thicken it up.

Hope this helps keep the faith we've got this...

Dx 6/6/2019, IDC, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 8/19/2019 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 9/30/2019 AC + T (Taxol)

Page 1 of 1 (9 results)